heart murmer

[JessandKirra]

I have just been told dd has a heart murmer. Possible due to the fact that she has been fluey this week, possibly could be a long term thing, this is the third doctor that has told me this. I am going to see a specialist asap (lots more involved in the story but too much to write) .... A little unsure as to how to feel, react... where can I find more info?? obviously the net and my doctor but just need to talk to someone that may have some inside info.

Is this a big thing? Should I be panicking? :o

[dee dee]

Hi,
sorry that I don't have any advice or useful info. I just want to say that I hope everything turns out well for you and your little girl.

All the best,
dee dee

[Supermum]

Don't panic - too easy to say isn't it??

You poor thing. I wouldn't draw any conclusions or think too long and hard about it until you have seen the specialist and therefore know the extent of the problem.

I've never had to deal with anything like this though so what would I know?

I feel for you though and hope someone can help allay your immediate fears.

Hugs to you and bub

[mim]

Hi Jess,

Please don't panic! Neither of my children have had a heart murmur, but I was diagnosed with one in my teens, but it's gone now.
I've done a bit of research, and around 50% of children will actually have a heart murmur at some time. Did they tell you which grade the murmur was? There are two types of murmur, innocent and abnormal. The vast majority of kids will have an innocent murmur, which can be caused by having a fever, or thyroid problems and most will eventually disappear. Even if an innocent murmur doesn't go away it is not a problem.
Abnormal murmurs are usually because of a congenital heart defect, and they normally come with other symptoms. Even if there is something actually wrong it would probably be minor.
About 98% of murmurs are actually innocent.
Please don't panic, there is probably nothing wrong. Go and see the specialist and they will explain everything to you.
I hope this makes sense. Remember, this is just from my research, but I hope it helps. I'm sure you beautiful babe will be fine. Please keep us updated. Good luck!

[Rell]

Both me and my brother have heart murmers and generaly they are nothing to worry about. For me all it means is that if I am going to the dentist for any sort of procedure I need to take antibiotics to prevent getting an infection in the blood stream.
Try and relax when you see the specialist they will be able to check bub over and tell you more about the murmer.
Good luck hope all goes well

[razzle]

Don't panic! If it wasn't picked up before now then it's probably not serious.

Heart murmurs run in my family. I was born with one - it can be heard when I get really sick. The chances that Eloise would be born with one were pretty high. We had to take her to the cardiologist every three months for the first year to keep an eye on it, now it's only for a yearly checkup. She has 3 small holes in her lower ventricle - which sound like one really big one, so we were really worried for her until she had an ultrasound on her heart and was given the all clear.

This LINK (http://kidshealth.org/parent/medical/heart/murmurs.html) might help ease your mind. :)

[JessandKirra]

my mum actually sent me that link as well v helpful. Thank you so much.

[JessandKirra]

I have come back to this post as DD had her scan done on her heart this week.

She has two holes in her heart and her pulmenery valve is smaller than average (the one to the lungs? I have a diagram). Now when I heard this I cried for two days. I have been told she will be fine.

She will have a check up in 6 months and keyhole surgery before she is 5 and odds are she will live to be an old maid. Can still play with her friends and do sports etc. I am still dealing with this information in my own way.

But am extremely ****ed of as well. My doctor who DD and I have been seeing since before her conception, didnt even pick it up . He was away one week so we went to see another doc as DD was fluey and HE picked it up. :thumbsdown: Should I be mad? Should I go back and tell him?

Mixed feelings at the moment. Im finding it hard to explain it to family, it is a serious thing but not serious enough to be serious. Does that sound horrible. To me its a huge thing....but as she ........"is going to be fine" ......I dont want to make a big thing out of it. Ughhh....:crying:

[Rell]

You poor thing:hugs: I cause it is a big thing for you.
Beeing told your child needs surgery is a very hard thing to hear. I know when I was told my 3 week old son needed to go straight to the hospital as he needed urgent surgery I could not stop crying.
I would be a little upset that it had not been picked up early by your GP maybe it might be worth finding a new one.
Good luck I hope all goes well with the 6 mth check

[DIANNEKB]

Hi,

My bubs has a heart murmur and was told dont worry nothing to worry about .. so off we went to the cardiologist and he said yeah probably nothing but we will do the ECG to check and lucky they did cause he has tetralogy of fallot which is a defect in the heart... what happens is when the heart is forming the tissue just turns the wrong way leaving a hole in the heart and the tissue partially blocks one of the valves and they narrow... so at 6 months old he will be going in for open heart surgery to fix the problem ... I know how you feel cause this was devestating to me but I now look upon it that it is fixable and I am lucky he doesnt have something that cant be treated...and as your bubs he will live a long and happy life.
Take care and if you want to chat PM me...

Di..xxx

[bpato]

Hi

DS doesn't have a heart murmur, but I was diagnosed with one as a bub, as was my yonger brother. Mine supposedly went way when I was around 2 , but my GP when I was 15 heard it again when I was sick. I was later diagnosed with a hole in my heart (don't know if it is asd or vsd). My Brother was diagnosed with a hole farily young, not sure how young.

Neither of us have had to have surgery, we see a cardilogist every 5 years for check ups and last time we went, which was about 4 years ago, the doc had trouble finding mine. It doesn't affect me in anyway, and both my bro and I were competitive swimmers when we were young. Occassionaly my bro gets tried and this is generally because of the hole. Apart from that we are both fine.

Don't stress too much about it, I am sure everything will be fine. If you need someone to talk to feel free to PM me anytime.

Good Luck

Belinda