View Full Version : ~Vent~ thanks for lying to us
jessgray
11-12-2006, 10:31
well many regular BH's may know my ds1 has hearing loss in both ears. from what we have been told 1 ear requires grommets due to fluid in that ear the other ear they thougth was wax but now they arent so sure and on november 21st after a hearing test we were told he would be put on the urgent list.
well this where my vent starts
i ring up outpatients to get a rough idea of when ds1 would be seen and find otu he isnt on the urgent lsit at all:eek: :mad: the fact that audiology said he would be going on the urgent list didnt seem to help when i was talking to the woman at outpatients which i could understand it was out of her hands. i am just so peeved.
DS1 wont learn to talk till his hearing is fixed and audiology have said that more then once. so why cant one hosptial department acknowledge it they're in the same building FFS!:banghead:
by the time ENT see him whatever is reversible might not be reversible.the ear that they thought was wax according to audiology may be actually permanent hearing loss they arent sure thats they why they said he would be on urgent.
I can understand your anger and fraustration! How annoying.
Just as an aside, have you taken him to see an osteopath?
I've heard of people having miraculous results.
All the best.
jessgray
11-12-2006, 10:36
:confused: whats a osteopath?
:laughing:
i think on friday i am going to get our gp to send a 2nd referal the lady at outpaitents said that can push ds1 up the list.:fingerscrossed:
Similar to a chiropractor, but they work in a more gentle way.
jessgray
11-12-2006, 10:47
how could they help my ds's hearing :confused:
Hi Jessgray, i can certainly understand your frustration... but try not to worry to much... my DS didnt get his grommets in uintil just a few months ago (about 2.5 years old) he had bearly said "boo" before that and now he is talking heaps ! and my nephew whos hearing was "possibly permanently damaged" had his in just after age 3 and he is at school now and just fine !! so there is still lots of time for your DS.
In regards to the osteopath i think they are great but not for your Ds's issue
You know, I'm not 100% sure of the ins and outs, but I have heard mums raving saying their children were going to have to get grommets, and after taking them to the Osteopath, the ears were fine.
I think it has something to do with cranial adjustment, which allows the fluid to drain properly from the ear.
To get a proper explanation, if you are interested, why not look up an Osteo in the phone book, and ring and have a chat to them about it, that way you would get it from the horses mouth, so to speak
The other thing I use on my son, who has a bit of ear trouble from time to time, are ear candles, but I don't know if they wouldbe helpful in your case or not.
jessgray
11-12-2006, 10:57
thanks. if he isnt pushed through we're looking at waiting till about july/august next yr just to see the ENT clinic then we will probably wait even longer to get him treated:thumbsdown:
we havent been given any referals or anything to speech pathologist or anything :thumbsdown: so in the meantime we are just spose to watch hsi hearing get worse.:no:
I have heard about osteopathy for this problem but i am not sure how reliable it would be and also how long it takes to treat it.. when you have a child who's hearing is at risk and who isnt learning to talk i am all for the grommets !
as for ear candling ~ its great for ear wax build up but not for inner ear fluid build up.
jessgray
11-12-2006, 10:58
You know, I'm not 100% sure of the ins and outs, but I have heard mums raving saying their children were going to have to get grommets, and after taking them to the Osteopath, the ears were fine.
I think it has something to do with cranial adjustment, which allows the fluid to drain properly from the ear.
To get a proper explanation, if you are interested, why not look up an Osteo in the phone book, and ring and have a chat to them about it, that way you would get it from the horses mouth, so to speak
The other thing I use on my son, who has a bit of ear trouble from time to time, are ear candles, but I don't know if they wouldbe helpful in your case or not.
thanks i'll look it up in the phone book. :thumbsup:
theycallmemum
11-12-2006, 10:58
I'd keep ringing and ringing until it gets sorted out, the squeaky wheel gets the grease. My eldest had shocking ears and had grommets in at 11months, 2 1/2 and 4. When he was 4 they took his adenoids out as well and he thankfully now he has grown big enough that his eustation tubes are big enough to drain his ears.
I would be furious too, when kids have fluid on their ears it is like trying to hear under water.
jessgray
11-12-2006, 11:00
I have heard about osteopathy for this problem but i am not sure how reliable it would be and also how long it takes to treat it.. when you have a child who's hearing is at risk and who isnt learning to talk i am all for the grommets !
as for ear candling ~ its great for ear wax build up but not for inner ear fluid build up.
i have heard great stories about grommets. so far ds1 is going to have one in one of his ears but till we see the ENT clinic we dont know if it will be grommets in both ears or a hearing device in the other ear.
i have seen ear candle things in chemists but i am too wary of using them coz i dont know how to do it correctly. i wouldnt want to stuff up ds's ears more:laughing:
jessgray
11-12-2006, 11:02
I'd keep ringing and ringing until it gets sorted out, the squeaky wheel gets the grease. My eldest had shocking ears and had grommets in at 11months, 2 1/2 and 4. When he was 4 they took his adenoids out as well and he thankfully now he has grown big enough that his eustation tubes are big enough to drain his ears.
I would be furious too, when kids have fluid on their ears it is like trying to hear under water.
i am going to tell my gp she will be as peeved as me. so will my mchn.everytime i ring i get the same answer. they are sounding like a broken record lol
i had my adnoids out when i was 11 :o
Ear candles are easy peasy, no chance of 'stuffing up' the ears more, when you light the candle, it creates a gentle vacuum which pulls junk out of the earhole, and it is completely painless and I find it very soothing, I did my partners ears the other day, and he fell asleep!
I do my son while he is asleep, cos he cant keep still for long enough, it takes 10 minutes or so.
I suggested the Osteopath as a lot of mums do like the idea of something non-invasive as a first step
A woman I know was told she had to get grommets, took both her kids to 2 osteo sessions each, back to the GP, and he was amazed that the ears were completely clear.
MrsTwith3
11-12-2006, 11:25
Hi Jess,
My family has a history of ear problems, me being the worst. I have had 5 sets of grommets the 1st time when I was about 3yo. Similar situation, public patient, long waiting lists etc. (That was 28 years ago, good to see the system hasnt improved...NOT!)
I have to say that my speech is fine, if anything I speak too well and too much:laughing: .
I woud keep on contacting these peole everyday until you get some straight answers as to when your son will be seen.
All the best hun
Mel
jessgray
12-12-2006, 07:40
thanks guys
i am going to have a caht with our dr to see what we should do coz she isnt going to be happy either. she is pretty worried about ds1 hearing and speech. coz he is pretty behind in that aera now even our new mchn picked up on the 1st time she met us :(
PunkyDiva
12-12-2006, 07:52
A freinds DD had grommetts with no improvement and had severe hearing loss. The Ear specialist suggested putting her on a dairy free diet, use of a nasal spray to protect linings and no submerging ears under the water when swimming.
Three months down the track and her hearing has returned, fluid build up has gone and no grommetts are rqd.
The dairy free diet is hard but once you get used to always reading labels there is still quite a variety of food the child can eat.
jessgray
12-12-2006, 08:40
my ds is lactose intolerant so he doesnt eat dairy.he has soy. but thank you for the information. what was the spray?would ear plugs work when swiming we want to enrol ds1 in swimming lessons but if tis going to make his ears worse i am not so sure. on one hand i want him to be used to water and more confident but on the other hand i dont want his ears to be worse:confused:
jessgray
20-12-2006, 05:29
Good News!
well i say its my christmas presies early :laughing:
DS1 has been pushed through we got the letter yesturday and his appointment with ENT is in Feb/march next yr when it gets closer i should know the exact date:smiliedance:
the letter says the appointment is a ENT OP appointment does that mean he has an operation then?:confused:
I went thru something similar with my ds. Got sick of being mucked about and paid privately for everything...cost an absolute fortune but thank god in the end he went from needing ear nose throat surgery, grommets, fluid drained etc. etc. etc. to using a special spray "Nasonex" which cleared all the fluid from his nose and ears. The doctor was unbelievable and thank God we didnt have to get grommets as we are fanatical surfers and swimmers.:yes:
jessgray
20-12-2006, 10:22
:detective: your the 2nd person to mention a spray. wonder why no dr has mentioned it:laughing:
ask about the spray...if u ca avoid an operation do it...plus grommets ca b trouble sometimes
jessgray
21-12-2006, 07:37
yeah i have heard stories of grommets making peoples ear problems worse :confused:
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