HELP - where can she go?

[FourAngelKisses]

Okay, you guys are my last resort. No one can probably help, but it's worth a try.

SIL is 25 and has Down Syndrome and Autism. My inlaws are getting on in years, 55 and 59, and can't keep doing this as they have health problems of their own. So they are starting to think that they may have to give her up, but we don't know of anyone who can take her and I'm trying to do a search on here but I don't know what I'm looking for. Are they still called mental institutes?

*She can't feed, shower or toilet herself
*Refuses to walk
*She is only 5ft tall but weighs 90kg, so can't be lifted
*She gets physically violent
*Is incontinent in both bowels and bladder, though we belive it is deliberate
*She can't talk, but will swear and scream (she screams about 18hrs a day or more

There is a mental hospital in the next town, but DH and I don't think it is that good, so we are thinking one in Sydney might be better. So if anyone can help me with a place, or a word (ie mental hospital) that I can use in a search engine, I will be really greatful.

[Lunar]

I'm afraid there there is only one option ATM for her and that is to go into an aged care home.
There are organisations trying to get up and running homes for young ppl with disabilities as a nursing home is hardly suitable for young ppl with disabilities.

I think the program is called young care...? not sure. It is relatively new.
Try calling the department of aged, disability health and care in your area. Try looking in the phone book? Call your local hospital for some numbers of disability services.

I know your IL's have done the best job they know how, but she really needs professional care, to work on her skills, she can be independant enough to dress and shower herself and learn to talk. I know I don't know her personally but I work with disabilities evryday, in the home and out, ppl like her CAN be taught, and be independant enough to not have to rely on someone 24/7.

I really hope you find an answer.
:hugs:

[SilverStarfish]

I would start by talking to your GP about options. Centrelink have free social workers that can help with that sort of thing too.

How about trying Autism groups or societies? I googled and came up with:
http://www.autismnsw.com.au/
http://www.autismqld.com.au/

I'm sure your home state would have something similar.

Good luck your search. Tt sounds like you and your family have been going through some rough times...

[FourAngelKisses]

Thanks for the replies, I'll tell my inlaws to call DADH tomorrow.




I'm afraid there there is only one option ATM for her and that is to go into an aged care home.

Unfortunately, they wont take her because of her violent behaviour. She hits, scratches, bites, pinches and throws things and anyone and everyone. :(

[kiwibird27]

I found this - they may be able to point u in the right direction

http://www.dadhc.nsw.gov.au/dadhc/People+with+a+disability/Accommodation.htm

[Lunar]

I found this - they may be able to point u in the right direction

http://www.dadhc.nsw.gov.au/dadhc/People+with+a+disability/Accommodation.htm

That's what I was talking about but couldn't find a link to it! Thats kiwi!!!
They will help for sure!

[kiwibird27]

No problem I have my first appointment with them next week for my baby - they are VERY helpful

[SalTheGal]

Hi,

My dad works in Vic with the Department of Human services. He is employed to work in one of many community based homes specifically for people with disabilities just like your SIL.

I will try and get some more info for you and PM it through, but it is a great option if it is available where you are (NSW?)

They live in homes with a few other clients, they are cared for by loving and dedicated staff- the house my dad works in is like his second home and family, I visit all the time as do others, and Dad gets so much out of caring for his 'people', they are treated with dignity and respect at all times, are integrated with the community as much as possible and you know that they are getting top level care.

It would be the ideal place for someone like your SIL who still has so much of her life ahead of her to be nurtured, rather than being placed in a home where she may not have the same oppurtunities. The staff are fully trained to deal with all types of disabilities- and there are different level of care homes available. For instance my father works in a house where 24hr supervision is in place, and he is specially trained to deal with voilent clients.

As I mentioned I will try and get some more info on who to contact etc.

Good luck! :hugs:

[SalTheGal]

Sorry- just realised the link posted above is exactly what I was referring to!
Hope everything works out- let me know if you want more info!