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cakeish
26-07-2012, 08:32
Are there any current users with young ones with Laryngomalacia?

My 2.5 week old DD had her CFHN appointment yesterday, and the nurse commented on her squeaky noise she makes while feeding. I had just put it off as her gulping my over supply of milk, but the nurse suggested I see my GP.

I gave him a call to see if he wanted me to come in, but as I was feeding her whilst on the phone, he could hear her and diagnosed it as Laryngomalacia, but said we could wait the month until her 6 wk check for further investigation and that so long as she was feeding well I had nothing to worry about.

She's definitely feeding well (put on 350gr in a week), but I think she's starting to suffer from reflux as by the end of the night (4am-ish) she's increasingly grizzly and this morning sounded like she was in pain. She possets after most feeds (just a little) which I thought was normal?? And she burps well, but just gets grunty, groany and tense at times...which at first I thought was her poohing, but often coincides with a clean (but wet) nappy.

I'm going to elevate her Basinette tonight, and put into practice some of the other reflux management ideas offered by the reflux association, but I just wanted an opinion about when I should take her back to the doctors..he will happily see her anytime, but if there's nothing he can do for a newborn with these two conditions, and she's not actually in danger, perhaps we just need to ride it out until she can be treated?

bumMum
27-07-2012, 18:45
My daughter was diagnosed with this but then later another specialist said it was incorrect. Sorry. It's also known as "happy wheezing" I beleive. It's not harmful at all.

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Nowhere
27-07-2012, 18:59
My daughter had servere laryngotraceomalacia and required 2 surgeries to correct it one at 7 month and another at 10 months, she was really squeeky before her ops and sounded like a drowning seal, she also has really bad reflux caused by intestinal failure and a whole host of other issues, her reflux and gut issues are on the bad end of the scale

Bubbles10
27-07-2012, 19:20
My son squeaked when he fed as a newborn and has reflux. Around 4 months of age, the squeaking just got less and less and then stopped. He was never diagnosed with anything, but i wondered whether he had an underdeveloped laranx.

We started medicating for the reflux at 10 weeks because all the other things were not working. Definitely worth trying the position etc first.

bubbabailey
27-07-2012, 19:26
DS has the squeeky noise and was diagnosed by GP but at around 5-6 months it went away, he did do little chuckies every now and then and did have very unsettled moments, I thought it was reflux but never got it checked because it went away.
I hope your LO goes away soon!

Nowhere
27-07-2012, 20:22
if its just the sound its fine, is when its causing issues with there breathing that its a problem my little monkey woul stop breathing because of it and was unable to feed ( fixing air way never fixed that anyway) If it ws just the noise we wouldnt of ever had the ops done