kId13531
17-06-2012, 21:22
On 5th April 2012, my baby boy Jed was born sleeping. He was only 21wks, 6 days gest'.
Jed was born early to protect him from a short life of pain, but it was only going to be if he survived to full term. (not thought to happen by several specialists).
Jed was confirmed to have Trisomy 18 (Edward Syndrome). We found this out the morning we went to hospital.
Our decision was not made lightly but made out of love for a baby we wanted desperately, but who we knew had his bladder enlarged and had already destroyed any chance of life due to his kidneys being affected beyond repair. Other problems were found with each scan and so much spoke clearly to me that I had to go through with the unthinkable.:no:
10 weeks later, I am ok some days, not others. I have Jed's ashes in a beloved place in my home. I have tattooed his footprints on my own foot and have donated Teddy Love Bear to another family who sadly has gone through the loss of a baby. So far, I think I'm doing well, true, if it weren't for my 5 children already here with me and supportive husband I would not be doing so well. Just wanted to share a small part of my story, and also to let anyone else know that if you are faced with this horrible and devastating prognosis for your darling baby, I am here for you. xx
Jed was born early to protect him from a short life of pain, but it was only going to be if he survived to full term. (not thought to happen by several specialists).
Jed was confirmed to have Trisomy 18 (Edward Syndrome). We found this out the morning we went to hospital.
Our decision was not made lightly but made out of love for a baby we wanted desperately, but who we knew had his bladder enlarged and had already destroyed any chance of life due to his kidneys being affected beyond repair. Other problems were found with each scan and so much spoke clearly to me that I had to go through with the unthinkable.:no:
10 weeks later, I am ok some days, not others. I have Jed's ashes in a beloved place in my home. I have tattooed his footprints on my own foot and have donated Teddy Love Bear to another family who sadly has gone through the loss of a baby. So far, I think I'm doing well, true, if it weren't for my 5 children already here with me and supportive husband I would not be doing so well. Just wanted to share a small part of my story, and also to let anyone else know that if you are faced with this horrible and devastating prognosis for your darling baby, I am here for you. xx