Just a whinge..

[dicey]

Excuse the sob story, but I'm in need of some support.
My little boy was born 12 days ago via an emergency c-section. I was under a general and didn't get to see him until 13 hours after he was born.
He was born at 34 weeks 5 days, and was born pretty healthy. He's spent the last 12 days in the special care unit leaning how to feed. He finally has his nasal tube out and is taking all suck feeds well!

I roomed in a the hospital last night and would have been ok to take him home today, but my boy has really bad nasal congestion.
It started yesterday afternoon and worsened through the night. Now he's on antibiotics and the drip is back in his arm.
No one is telling me anything, what is going on, am I going home now? When will he be able to come home? Can I room in again?

These questions are not answered and it feels like the morning i was discharged from hospital without him all over again. I'm sick of crying. I feel like cr@p. I can't even hold my boy because he's hooked up to machines again.

This is a great big step backwards and it is tearing me apart :(


Sorry for the whinge, I don't know what I'm looking for in terms of advice and support, But I'll take anything!

[The Girls Only Club]

I don't have any advice but couldn't read without giving you huge :hugs:.

Hope things work out for you, I'm sure someone will have amazing advice for you.


BubHubbing from the IPhone instead of cleaning.

[shockinamillion]

Big big hugs. The premmie journey is not an easy one. Maybe speak with the NUM and try and find out what is the plan.
Ask about seeing a social worker or cousellor. HUGE HUGE HUGE hugs.

[melissakate]

talk to the paed. they're the ones that do the ultimately do the discharging.

[trishalishous]

hugs hugs hugs!

[duckduckgoose]

:hugs:

[SalsaMama]

:hugs::hugs: Aww sweetie you've had a tough time by the sounds of things.

I agree with speaking to the paed. When you're there, you can also insist that the staff page someone from the paed team to let you know what their plans are.

My bub was in the nursery too for 10 days, and got readmitted to hosp for a week a couple of days after getting home. Each time the decision to discharge was based on so many different things. Him getting sick with one thing would trigger something else that would need to be sorted before we could go home. It was incredibly frustrating as all I wanted was to be home with my baby and get to know him. Because they're so little and fragile, the docs are usually really cautious with sending them home.

I hope you get to take your little man home with you soon. :hugs:

[Mummypants]

(((Hugs))) to you hun! I have had two prems a 30 weeker & a 32 weeker... I understand the frustration you feel and the desperate need for a little bit of normality and to be able to feel like a parent where you make the decisions! As heartbreaking as it is bub is probably in the best place at the moment, especially if he has picked up a little virus etc as we had our DS come home earlier than normal and he went through a few ups and downs - seizures, apnea and on one occasion required CPR all before he was even 40 weeks (he came home at 35wks) and worst of all on re-admission we were admitted to childrens ward as once your out of the NICU/SCN you can't go back due to infection control etc, so we lost all our familiar surroundings & staff.

Talk to your nurse, let them know your want to know what's happening and to ensure it is noted on your handover sheet, talk to your neonatoloigist and see what plans they have etc... I'm assuming they may be worried an infection is on board and that's why antibiotics have been commenced which can only be given intravenously. But sometimes they do like to be over cautious until the tests return as negative.

I hope you get some answers soon Hun and your bubba comes home to you! They will get you to room in again if you want to, if you're happy to just take bub home when ready then the option is yours xx


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[Whitman]

I can totally understand how you are feeling. My husband just kept reminding me that in all reality it is such a short time in yours/bubbas life (we were in for 12 days) and I felt like saying to him yeah whatever you aren't the one stuck in here being made to feel like you aren't a mother :( buuuut, looking back at it now, it truly was a short time in our lives, and as sh*thouse as it was to be stuck in there, I would not change it for the world. We were discharged when bub was 100% ready to go, and up until then he had the best possible care that he could have :) keep your chin up, you guys will get there.

Ps I got mastitis the night before we were due to be discharged and I had a mega breakdown in the shower all by myself cos I thought we wouldn't be able to be discharged - but I pulled myself together and we were fine to still be discharged :) now he is 7 weeks old (11 weeks old corrected), 6kg and I am sitting on the couch listening to him doing some pretty amazing farts as he wakes up he he. My point again is - you guys will get there - all the best xx


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[dicey]

Thanks for your replies ladies!
I spoke to the paed and he said that he'll see how Max goes with the course of antibiotics, then they'll make their decisions.
Unfortunately last night he was just as bad as Sunday night. He could barely take a full feed and sat at the breast lazily for about 10 minutes. They topped him up with a bottle, but due to the difficulty breathing, he gulped down a whole lot of air and got really bad wind pain, which caused him to vomit all of his food back up.

They're not sure what's wrong with him, all tests came back clear and the antibiotics aren't working. They're starting to think that he's just a snuffly baby. I've always been one of those people with a drippy nose, I get havfever at the mere thought of dust. And a cold as soon as I've been in the night air for 10 minutes.
So he could be like this for a while. Which is heartbreaking, because I don't know how to feed him when he's like this.

On a positive note, he is still gaining weight, so some of his food must be staying down.

Thanks for your replies, I am glad he is still in the hospital while he's sick, at least I know that the nurses are very clever when it comes to feeding him, I'm useless with a bottle and he's too stuffy/sleepy/irritated to sit at the breast.
I guess I'll just have to ride it out and stay positive.
I just wish I didn't cry at the drop of a freakin hat.

[insanity]

I really feel your pain! It's horrible having to leave bubs in there day after day

My baby became really snuffly while he was in the scn. I was so scared he would stop breathing so the suctioned him a few days in a row to clear him out. His 19 weeks now and constantly sounds all chesty and snuffly

I hope Max picks up soon so you can get him home xx

[dicey]

Well we've discovered what's causing all the sniffles!
There was one test to come back and it came today. Poor Max has parainfluenza.
They've kicked him out of the special care nursery and into an isolation room in the children's ward.
There's an upside to this though, I'm able to stay with him. Which is great.

He will come home soon. They're just waiting for this to pass because they can't give him anything for it.

Hope it clears up soon. We're on day 3-4 now and the nurse said to expect it to last 7 days.

[hopefully2]

Oh this is so hard. Can you find a kind midwife and just let it all out. Ask to speak with a chaplain in the hospital so you can get it all off your chest before you do go home. Big hugs. You did a great job bringing a gorgeous healthy child into the world. Soon this will all be behind you and you will be talking poos, boobs and sleep deprivation. Gd bless you and your precious boy.

[Whitman]

Hi dicey just wondering how you and little max are? Out of hospital and busy as anything At home I hope :)


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[dicey]

We're home now! We came home on Monday.
So much happier now, I felt all the stress wash away after his first night home.
He's an angel to look after, but he's very lazy. Rarely wakes up for his feeds and doesn't make much noise unless he's super hungry, which is super rare!
It feels good to be able to take care of my baby. He's a happy healthy boy. Still has the sniffles, but nothing like he was, and we had a run in with oral (and nipple :() thrush, but we're all cleared up now!

[Whitman]

Yayyyyy! You will find that he just absolutely thrives now - in his own home - trust me, they can feel you relax and they love being there with you :) congratulations!

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