Sashy
08-04-2011, 20:03
Are there any mums here on the hub that have a baby or toddler with Cerebral Palsy? I want to know more about the dianostic criteia and how long it took people to get a firm answer.
My little boy Andrew is 17 weeks old tomorrow. He was a micropreemie when born at 24w2d weighing 765 grams. He had a reasonably good run with health after birth, was tried on CPAP at just 10 days old for a few hours at a time. The only major problem he had while in the NICU was an abscess in his belly that almost took him away from us. He recovered well and we were sent home 3 weeks before his due date.
We were warned that being so preemie that CP was a possibility (along with a multitude of other problems), he was distressed at birth, but did cry straight away.
Andrew is a twin. His twin sister passed away suddenly at 22w5d and the doctors really pushed me to abort the whole pregnancy. I'd been to hell and back, in and out of hospital from 14 weeks with bleeding and pre term labour. No way was I walking out of that hospital with nothing. Of course I had to sign a zillion pieces of paper absolving the hospital of negligence if I or Andrew died.
We have found he has 80% hearling loss in his left ear, the right seems to be ok. But the doctor expressed concern that at 16 weeks of age, 1 corrected age, he still has little to no control of his head. I can't put him on his tummy because he simply cant' pick his head up.
He is still have apneas of prematurity and we are hoping that they settle soon.
Is it possible that carrying both babies caused this? That his deceased sister caused a toxic environment?
The specialist in Melbourne has asked us to keep a diary of milestones or changes to be reviewed in 3 months.
Thanks in advance to anyone who managed to get through all that and not :sleeping:
My little boy Andrew is 17 weeks old tomorrow. He was a micropreemie when born at 24w2d weighing 765 grams. He had a reasonably good run with health after birth, was tried on CPAP at just 10 days old for a few hours at a time. The only major problem he had while in the NICU was an abscess in his belly that almost took him away from us. He recovered well and we were sent home 3 weeks before his due date.
We were warned that being so preemie that CP was a possibility (along with a multitude of other problems), he was distressed at birth, but did cry straight away.
Andrew is a twin. His twin sister passed away suddenly at 22w5d and the doctors really pushed me to abort the whole pregnancy. I'd been to hell and back, in and out of hospital from 14 weeks with bleeding and pre term labour. No way was I walking out of that hospital with nothing. Of course I had to sign a zillion pieces of paper absolving the hospital of negligence if I or Andrew died.
We have found he has 80% hearling loss in his left ear, the right seems to be ok. But the doctor expressed concern that at 16 weeks of age, 1 corrected age, he still has little to no control of his head. I can't put him on his tummy because he simply cant' pick his head up.
He is still have apneas of prematurity and we are hoping that they settle soon.
Is it possible that carrying both babies caused this? That his deceased sister caused a toxic environment?
The specialist in Melbourne has asked us to keep a diary of milestones or changes to be reviewed in 3 months.
Thanks in advance to anyone who managed to get through all that and not :sleeping: