Anyone tried Nexium?

[faith72]

Just wondering if anyone's bubs are on Nexium as opposed to Losec?

My DS (6.5 months) has responded well to Losec but it is always short lived and after a few weeks of going ok he always seems to revert back after each dose increase. He was up to 20mg per day and the GI has now prescribed Nexium to try instead saying that some kids simply respond better to different PPI's.

Keen to hear from anyone whose babies are on it or have tried it and what they thought.

Also, has anyone had the same experience with a medication that it works initially and then the effect wears off after a few weeks?

[Me]

I couldn't read and not respond.

Ok so it's not a baby(but g he acts like it sometimes), but we're still talking reflux and the same meeds so though it might be helpful. Dh had a good response to losec at first, but then it's almost as if he became immune to it iykwim, so the dr changed him to nexium and he started to get relief again. I have heard of other people having the same reaction to losec and the same results with nexium.

IMO, if he's only getting worse now on losec and he's already on 20mg, there's no harm in trying nexium, it just may improve the situation and if not, then you can just go back to losec or try something else.

Best of luck!

[wild at heart]

Just wondering if anyone's bubs are on Nexium as opposed to Losec?

My DS (6.5 months) has responded well to Losec but it is always short lived and after a few weeks of going ok he always seems to revert back after each dose increase. He was up to 20mg per day and the GI has now prescribed Nexium to try instead saying that some kids simply respond better to different PPI's.

Keen to hear from anyone whose babies are on it or have tried it and what they thought.

Also, has anyone had the same experience with a medication that it works initially and then the effect wears off after a few weeks?

this must be what is happening to my daughter.. both zantac and losec have worn off after an initial positive result!

hmmm nexium may be the next thing to try

[waterlily]

DD is on losac and have no dramas but when I had galstones I was on nexium (losec didn't work for me) and it was great.
I know it's not the same :laughing: just letting you know it works for some so give it a go ;)

[faith72]

thanks for your responses.

The GI said perhaps he has a high functioning liver and it could possibly be breaking it down too quickly. If this is the case I would think it would be the same with all the medications?

I'm pleased to hear that other people have experienced the same thing though, whether they are adults or babies!

[Cate23]

Faith

My little girl has silent reflux. At 10 weeks we were prescribed Nexium by our GP - within a week she was a different baby and within a month a completely different baby. She has never been prescribed Losec so I can't compare but she has now been taking Nexium for 17 weeks and there does not appear to be any reduction in its effectiveness. She takes a 1/2 dose morning and night (full dose is 10 mg).

Hope this helps.

[vintagefrenchlace]

Hi Faith,
I can totally relate to what you're going through. My little one has silent reflux and we are on our 3rd month of losec suspension.
We have random good days but I can't say it's been life changing... I know many have reported losec being their miracle cure but we are yet to experience that.
Our paed has given us a script for nexium granules and from what I have heard it's very difficult to administer but it can be very effective.
We thought we would give the losec one last try before we ditch it and move on.
Apparently some of the flavours that are put in to the losec can decrease its efficiency, I have heard that the normal turing period is 3 weeks or so and then it starts to decrease.
We were getting marshmallow but it was causing the liquid to colour ( from white to purple, also another indicator it is going 'off' ) not even a week after purchase. We are on to chocolate today, apparently it is one of the flavours that doesnt cause any changes to the suspension. We'll see.
Good luck with whatever you decide to do, keep in touch and let us all know how you go :hugs:

[faith72]

thanks vintagefrenchlace,

We tried the suspension form of losec and noticed that it was not nearly as effective as the tablets (we started off on tablet form initially) so went back to tablets.

I have heard that from other people that they also think the suspension is not as effective as tablets.

It's annoying for us as DS definitely does respond well to losec but the results just do not last and we don't have the option anymore of simply increasing the dose. Hence the change over.

I'll be sure you keep you posted. Today is day 2 of Nexium (with a 2 day crossover of the losec as well, so a double dose) and still no improvement. Fingers crossed tomorrow is a brand new good day and the first of many to come!!

[Pregnor]

My DS was on Nexium when he was a bub. It saved our lives.

The bigggest problem we had was that noone consistantly told us HOW to administer it to bub. GP said to crush the tablet on a spoon with cooled boiled water. OK fine. Then i get home and read the info - DO NOT CRUSH TABLET, so i end up disolving it in a syringe of waater, and taking about 20-30ml to get all the 'balls' out.
THEN the pharmacist tells me you can't cut up the tablet, but its perfectly fine to crush it, because it works differently in babies!

*sigh* But TBH i think it was more effective when i didnt crush it. But it was a fantastic drug, and DS was a different baby in about a week. I hope it works just as well for your bub. My DS was on it from about 3 months to 10 months.

[vintagefrenchlace]

Faith I hope you don't mind me hijacking your thread, just wanted to ask what dosage everyones Nexium bubs are on?
We are changing over to Nexium from Losec tonight and have been prescribed 10mg twice daily. seems a bit high?
TIA :)

[faith72]

DS is on the same dose as yours. He is almost 7 months old and weighs 7.2kg.

How much does your baby weigh and how old?

[vintagefrenchlace]

DS is 4 months old and he's 7.4kg!
Chubba bubba!

[Georgias Mummy]

Hi there,

I cant speak for nexium for a baby but for me it is brilliant!

Good Luck with it : )

[faith72]

Unfortunately after a week and a half of great results from Nexium we have food refusal on our hands again. I knew I shouldn't have got my hopes up. From past experience on the losec, it starts with refusal and then we have a massive flare up - so we should brace ourselves for another flare. This is crap. I wonder if all medications are going to be the same with him and he just metabolizes them too quickly?

[vintagefrenchlace]

Sorry to hear about the food refusal Faith :no:
fingers crossed your DS doesnt have a flare up and this is just a very short lived phase.
I'm curious about the quick functioning liver, is your GI going to follow up on that?

[faith72]

Not sure, I will call on Tuesday and hopefully get to speak to him (he's mega busy and normally calls back a few days later). He has said before that it can sometimes take a trial of a few different ones to find the right one. I wonder if he'll want to wait a month before changing as it will only be 2 weeks of being on Nexium.

How is your little one going?

[vintagefrenchlace]

So far so good!
Not sure if it's a coincidence but our day sleeps have been fantastic in comparison to the usual 40 min catnaps. Yay!
I have noticed though that my little one isn't drinking as much as normal, I'm putting it down to him not comfort drinking to ease the pain. So hopefully it's a good thing and it's not a food refusal as such.
We'll see if these great results continue, fingers crossed. I'm so happy so far.
Hope you and DS are doing ok Faith :)

[faith72]

that's great news.

DS is not very well at the moment and he's having a horrible flare and as a result is hardly drinking a thing. His 2nd tooth is coming through and I suspect that maybe has something to do with the flare up. So perhaps it's down to teeth instead of the medication simply "wearing off". Will hopefully get to speak to the GI tomorrow or over the next couple of days and find out what we can do.

[vintagefrenchlace]

Hi Faith, how are you and DS going?
I have :fingerscrossed: the nexium has started working better for you both...

[faith72]

hi there - thanks for thinking of me :)

DS is good at the moment after his "flare up" which lasted 5 days. Then his tooth cut through and he was good again! So I would say that it was caused by teeth.

We have a GI appointment on Friday so will see what he says about and what we can do if it happens again.

How is your little one going? Nexium going well? I think it's going ok for my DS but still think we need something else and maybe a bit of Zantac added in might be the answer.

[TripleTime]

Teeth can cause a flare up, as can foods.

When DS was around 9 months, any green foods would cause a flare up. It got to the point that I just didn't give it to him. After 12 months things got better & now at 17 months he can eat as many green things as he likes without a problem.

Teeth also cause a problem. His been med free since 15 months but every time teeth start to brake threw his back on Zantac. At one point he was on losec & Zantac. Problem I found when he has flare ups is, losec & nexium is that they take around 2 weeks to kick in. Even a doesage increase can take 2 weeks. Reason why I keep Zantac on stand by & use it for flare up cause it takes a few days to kick in.

Don't stress over feed refusal, I know it's hard not to but kids notice when their parents are stressed. Relax & go with the flow, they will come around.

I used to feed DS in his sleep just to get something into him.

[faith72]

Hi Tripletime,

thanks for that - I was wondering about how long Zantac would take and if it was actually good for flare ups. Hope the doctor agrees. We actually have some Zantac on hand anyway as we tried it at the beginning but didn't do anything (this was before we saw the GI and his losec dose wasn't high enough). What dose of Zantac did you use during flare ups?

Also wanted to ask you, when did your DS start solids? I seem to remember he started late didn't he? I am trying to get mine to eat and he is not interested in the slightest. He is just over 7 months old now. Do you think I don't worry and just let him decide when he's interested? He had a few spoonfuls of rice cereal the other day and had terrible wind so think we will stay away from that from now.

[TripleTime]

J has 2ml twice daily when on Zantac. His just under 9kg
He started solids at around 8 months & its been a battle till prob the last few months to get him to eat. Compared to his sisters he started late (4 & 5 months). I didnt start any of them on solids till they were interested in wanting our food.

Let him decided when his ready, easier than stressing over food. Stress is no good for anyone, i learnt that the hard way.

[vintagefrenchlace]

hi there - thanks for thinking of me :)

DS is good at the moment after his "flare up" which lasted 5 days. Then his tooth cut through and he was good again! So I would say that it was caused by teeth.

We have a GI appointment on Friday so will see what he says about and what we can do if it happens again.

How is your little one going? Nexium going well? I think it's going ok for my DS but still think we need something else and maybe a bit of Zantac added in might be the answer.

That's so good to hear! :)
We are going ok, much much better than when we were on losec but still lots of room for improvement.
I guess you could say we are managing the reflux now, I dont know whether we will ever cure it completely with medication or whether we will just sit at this level where we manage the condition but are not completely pain free.
Some feeds are fantastic, very calm and my LO finishes his bottle without a fuss and randomly almost every day we will have one or two feeds where he just pops off after say 50ml and doesnt want a bar of it. There's no screaming anymore, but still some arching and fussiness.
Our GI has suggested we book in for an endoscopy so they can obtain some cells and pinpoint what's going on.
Has anyone's LO had this done?

We are switching formula tonight and trying Novalac AR. We have been on Novalac Colic for a couple of months, now that my little ones wind has settled down I'm hoping this formula might help a little.

[faith72]

Some feeds are fantastic, very calm and my LO finishes his bottle without a fuss and randomly almost every day we will have one or two feeds where he just pops off after say 50ml and doesnt want a bar of it. There's no screaming anymore, but still some arching and fussiness.
Our GI has suggested we book in for an endoscopy so they can obtain some cells and pinpoint what's going on.
Has anyone's LO had this done?


Sounds just like my son with regards to feeds. Some are great and some not so great. However we are getting more good days now.

We went had the GI apt today and he is happy with how everything is going and said we just need to ride out the bad days unless they last for more than a couple of days - we can Infant Gaviscon in the first instance (since Mylanta doesn't do anything for DS) and failing that we are to give 1ml of Zantac twice daily for a few days. He really doesn't want to put him on anymore medication than he's already on, on a daily basis.

He has always said no to testing for DS (i.e. a scope) and simply says he should grow out of it at 1 year old. Well today he said 90% of babies grow out of it by 1 year and he can't promise anything and it might take longer for DS. I think if after 1 year and things weren't improving, he would then look at doing a scope but says at this stage there is no point.

[TripleTime]

J is one of the few that don't grow out of reflux by 1.

Today was hell on ice with him, major reflux back arching, head throwing screaming session while we were in medicare complete with a spew on T. And of all days I had nothing with me, no mylanta, no gavascon, no ventolin, no nothing.

I could feel everyone eyes burning with the 'take that sick child home!'. What I would give for someone to understand his not sick.