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alternatemum
23-08-2010, 09:45
I thought its about time to share our whole story about our much wanted baby boy who we had to terminate (19weeks)due to numerous health problems.

Dec 2007 we found out we were expecting (horrible morning sickness)our first and Dh and I were over the moon as it had taken over a year of TTC.

We had just moved towns, finally found a doctor and went to confirm the news. Was sent for a blood test and told by the doctor to call the hospital clinic to book in for antenatal visits.

I was told by the hospital that they did not need to see me till 14 weeks. I had no dating scan, no NT scan and was unsure of dates as my Period had been all over the place for over year. (thought it was a little weird but as it was our first time didnt know what to expect)

A few weeks after seeing the doctor I was having a terrible feeling about this baby as if something was wrong (my DH also had the same feeling). I went back to the doctor and she plane out refused to give me an ultrasound as she said i was just stressing and everything would be ok.

Had a scan at 18weeks at the hospital and it was the news we had dredded. There was a huge black dot on the screen. The baby's bladder was not excreting the fluid which was causing all sorts of problems, most of the fluid around the baby was trapped inside its bladder. After having the scan we had to return to the clinic to talk to the doctor again and had to wait amoungst pregnant woman all looking happy while my heart was feeling like it was being ripped into pieces (me balling my eyes out the whole time). We waited for 3 hours till my DH said something to the ladies at the counter who replied "oops.... your file is sitting in the corner and not in the pile"

We had to then travel down to Brisbane to be told the same information (that was a joke) .
They gave us 3 options:
1. to induce and terminate
2. anywhere between then and full term baby would be still born
3. 1% chance of survival to full term and if so baby MIGHT live on dialisis machine and other machines for a max of 4years if lucky.

This is the most hardest and worst decision of our lives and from the beginning DH and I agree that quailty of our life and babys is top priority.

So with the options we had we couldnt let us or the baby suffer any longer and chose to terminate.

We booked in that next week (19weeks) for an induction and went through with the birth. It is still raw in my mind 2 years on going to the hospital, hearing all the other woman around me birthing then hearing that first scream while i hear nothing, seeing our baby, then going home empty handed.

The thing i was most scared of was seeing our precious son. Before we started the induction we had the midwives ask if we wanted to see our baby afterwards and i chose not to and DH wanted to. It all changed though at the end and decided it was best for me to see him.

The flash backs i have that i cant shake is the first look at him lying in the kidney dish (TMI...but i read other stories were they have wrapped the baby in a towel or blanket and think why did they not do that, how insensative:confused:)

There are many other things i am upset with, the treatment from some of the midwives and nurses and doctors (all asking me what was going on when shifts had changed instead of looking at my chart, and losing my chart in the first place) the way they handled the baby, the horrible feeling of being trapped in the maternity ward hearing and seeing all the babies.

We also never recieved the autopsy report until 10 months later (from my new doctor)when i was pregnant with DD. I went back to the hospital clinic 1 month after and had to wait there for 2 hrs amoungst all the pregnant woman to be told they dont have any record of the autopsy.

It has taken me great strength to finally write about this and i'm trying to open up more as i tend to bottle it up and just tell everyone i'm fine. I'm also struggling with the lack of compassion and empathy that the doctors, midwives and nurses showed me in this situation.

I am very greatful that there is now a place to share my journey and in hoping it may help anyone who reads this.

We have since gone on to having a very healthy 1year old DD and 2 months ago m/c (5wks), but the emotions of the m/c seem less upsetting to me as it was something that was out of our hands.

HelenHasTwins
23-08-2010, 09:50
I am so so sorry for your loss and the way you were treated by the doctors etc :hugs:

My heart breaked reading your story.

Tweak
23-08-2010, 10:06
My heart goes out to you and your family
thankyou for sharing

don't ever feel guilty about what you have done you did what was right for you and your baby in that situation

nurses and doctors sometimes don't act appropriateley especially in circumstances of loss in pregnancy and I'm deeply sorry your child was treated in that manner

hunnybunny
23-08-2010, 10:10
So very sorry for your loss :hugs:

The way you were treated is just awful.

Melameen
23-08-2010, 10:11
Dear Alternatemum,

I wanted to say I am so very sorry for your loss and the heartbreak that you are your partner had to go through. To be denied an ultrasound early in the pregnancy when you had genuine concerns is terribly unfair and negligent by the doctor. And I can't imagine the pain and emotional stress you must have gone through when having to decide to terminate. I agree that the baby and your quality of life is the most important, but wish that the hospital and doctors/midwives could have shown you more care and compassion during your ordeal.

Congratulations on the birth of your DD, and again I am sorry for your loss with your m/c two months ago. But I can see how after what you went through with DS it seemed like a less heartbreaking thing to deal with. Still a terrible thing to go through though.

Thank you for having the courage to share your story. I hope that by doing so you find some comfort and it helps you grieve.

Em :hugs:

Purplebird
23-08-2010, 10:13
I'm so very sorry for your loss and the terrible way you were treated :hugs:

MummaFug
23-08-2010, 10:17
WOW AlternateMum, thankyou for sharing your story.

I cannot believe the treatment you recieved throughout your pregnancy and birth of your son. :hugs: :hugs:

I'm sorry for your loss

Missywants1more
23-08-2010, 10:17
My heart is breaking for you. :( I'm so sorry for your loss and the way you and bubby were treated :hugs: :hugs: :hugs:

SimplyMum
23-08-2010, 10:24
RIP little one. :hugs: I'm sorry for your loss.

DaughteroftheForest
23-08-2010, 10:27
I'm so sorry hon :hugs::hugs::hugs:

Baldie's Mum
23-08-2010, 10:30
Thank you for sharing your story with us. :hugs:
I hope you feel some sort of comfort in coming here and sharing everything. There are women in here who will genuinly understand your pain.

RIP little man. Fly free with the angels. :angel:

FluffyDucks
23-08-2010, 10:40
Thank you for sharing your story. I cant read these stories without crying. Its so heart breaking to read them and feel so terrible about your loss...and especially in your case with the way you were treated by your "carers".

I am so sorry for you and your partner.

Thank you for your courage in sharing your story.

Savingfishfromdrowning
23-08-2010, 10:49
Sorry for the loss of your little boy :hugs: You did the right thing.

Seacretsquirrel
23-08-2010, 11:17
Wow what a heartbreaking story you are so brave to share it with us.
I agree you were treated horribly :crying:


:hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs:

mumtobodie
23-08-2010, 11:42
I am so sorry for what you had to go through. I think some health professionals really need to take a look at the way they handle these situations

c38
23-08-2010, 11:59
I am so sorry and sad for my profession that they treated you and your baby with such disrespect.

May he RIP:angel:

:hugs::hugs::hugs::hugs::hugs::hugs::hugs::hugs:

alternatemum
23-08-2010, 12:53
:hugs:thankyou everyone for your lovely thoughts. It took so much courage for me to write that and feel i should have done this earlier as i feel a little bit of weight has been lifted off my shoulders.

And yes any loss is horrific to go through and my heart goes out to everyone who has been through it.

I guess these sorts of losses dont happen everyday?? Maybe the hospital staff dont know how to go about treating this situation?

kylza
23-08-2010, 13:04
:hugs: Sending huge hugs.

I also had a medical necessary termination and to make that decision is horrific enough without all the other trauma you had to go through.

I hope sharing your story has helped, and let it be known we are all here for you. :hugs:

Rest in peace our angel babies :angel:

futureherder
23-08-2010, 13:14
:hugs: I am so very sorry about the loss of your first child. You made an impossible decision the hardest decision a mother will ever have to make, ending his suffering by ending his life. You proctected your child.

I am very angry to hear of the way you and your baby were treated and I hope one day you will find the strength to write a letter of complaint to the hospital.

Congratulations on the birth of your healthy DD, mine is 14 months old. My niece passed away when she was 3 days old. While I am not her mother I understand the anxiety that comes with further PGs and children after such a heart breaking loss.

I wish you all the best in your journey and I hope you can also find some peace.

AJGirl08
23-08-2010, 15:50
alternatemum after reading your story, I can certainly see why you would struggle with the lack of compassion and empathy you received from the doctors, nurses and midwives. I don't even know what to say...it's just terrible. Your son needed and deserved gentle, respectful handling from those at his birth, not to be lying in a kidney dish in front of you. I'm so sorry...my heart's aching just thinking about it.

I applaud your courage for sharing what you went through. Like you, this is the first time I've told our whole story (even though I've spoken to a couple of close girlfriends about what happened, they still don't know all the details) and it has helped in some small way.

:hugs:

alternatemum
23-08-2010, 16:51
Thank you Ajgirl - it is the toughest thing to tell anyone. DH and I still havent sat down and talked about it as it has too much hurt and i guess we are just both so greatful we have a healthy bub now.

We didnt tell anyone about what happened. Our friends in our new town only found out because we were at the servo on our way back from hospital and they pulled up and asked how we were and that they hadnt heard from us in days (couldnt hide the flowers we recieved from family). I have only recently told one of my friends most of the details and she was mortified and in shock. It's just soooo hard to talk to people about this and when anyone asks how many kids we have its just "ONE".

Now DD is 1 we are getting "so when is the next" and not realising or knowing how long it took for us to have one healthy one.

butterflyknot
15-05-2011, 15:24
:hugs:My brother and his fiance went through same thing with my nephew, he looked fine at the 16 week scan, they came into my work for their 20 week scan, all excited about finding out the gender. I knew something was wrong as the Dr got called into the room, they told me there was something wrong with his bladder, this was Dec 31st 2009, 8 days later they gave birth to an 'alive' baby boy who 'lived' for 45 mins. They had another son 10/02/2011, but she could not enjoy the pregancy, ( I was preg at same time, and we would talk and she would just saw how scared she was, but wouldn't take any help on offer) as she has never spoken about her first son's death.

So I think you are so wonderful and brave sharing you story.

xoxox

Claire89x
20-06-2011, 07:52
Im so sorry :-(

Im very proud of you for being so strong in sharing your story. your son will be very proud of you also x
its a decision that is impossible to make :-( but you put your son first + made the best decision for him. hes free of pain + resting <3

your an inspiration hun x x
The way you were treated is disgusting! at that time you needed compassion + cuddles ! you got through with your husband + your precious sons spirit helping you through.
r.i.p your little man x