View Full Version : Could I??
Just wondering if I could please have some advice and or info re: endo. I have just been referred to a fs and been given an u/s request form to investigate sub fertility, but last night's events have got me thinking there is something else going on. I've never mentioned it to my Dr. but I was put on the pill as a young teenager as my periods were extremely irregular and painful, I've now been off it for 12 months and continue to complain about the pain that I experience af and o time. I keep covering up the pain with painkillers and been thinking that what I'm experiencing is normal but as time goes on it seems to be becoming worse. Last night I almost fainted after being woken up with the pain, has anyone been in a similar situation and been diagnosed with endo - if so, how was it diagnosed with an u/s or lap? What are the treatments? Has anyone fallen pregnant with it? How long did it take?
Any comments or stories anyone has are appreciated.
I'm also on the ttc1 thread, and I just realised that I've seen your post there already but forgot to reply to it. So here goes:
I'm not familiar with endo pains, but I was diagnosed with mild endo after having a lap to remove a large cyst. So I have done quite a bit of research on the topic, and I know that some women can suffer terribly but hardly have any endo, and others have no symptoms but loads of endo.
Endo cannot be seen on a scan, unless like me, you have a cyst. The best way is to have a lap. If there is any they get rid of as much as possible. I've read that this could greatly diminish the pains, but also increase your chances of getting pregnant. I've read many stories of women with stage 4 endo, having a lap and getting a BFP 3 months later. I know that after a lap, depending of course on what stage of endo one has, there is a 6 months window where the chances of getting a BFP either naturally or with meds and ivf) are greatly increased.
Endo cannot be cured, it can be treated with BCP or other meds, but really, only surgery to remove it is effective, especially if trying to get pregnant. Sometimes, a pregnancy can change things and somewhat get rid of endo.
I hope this helps!! good luck!
oh and I forgot to mention my own story.
I was put on BCP for 3 months after the lap, and then started ttc again. But it's been 18months and still nothing. Even though I did say that a laps increase your chances of BFP, in my case it didn't, but we might have an explanation for it. I do remember my Dr who did the lap saying that there was a bit of staining on my other ovary too but he didn't wanna touch it and the BCP might get rid of it. That was a dr in the uk at the time.
When I saw my FS here, he said that even tiny little dots of endo would need to be removed in order to give you the best chances. Here they use laser to get rid of as much as they possibly can, whereas in UK, they just removed my cyst and left the rest! so I'm having another lap next month to see if there's anything there (well, actually I have another cyst now so they'll have to remove that anyways) and to have my tubes and my uterus checked. All our tests (BTs, SA etc) are very good, so we're hoping endo is the reason we're not getting pregnant, and hopefully, either naturally or with IVF, we will get our BFP soon after!!
Yes this was how i suffered with endo.. I would get woken with the pain during the night i would be in agony... also pain around O and AF. I ended up having multiple laps and was diagnosed with stage 4 endo (worst of the worst) I had a bowel resection and cystotomy on my bladder as well as numerous other laps.. don't worry i was worst of the worst.., and I still ended up falling pregnant with IVF on our first attempt.. even with ovaries that had copped a horrendous beating... with only half a left ovary - lots of surgery had chipped away at it... It can be done, try not to dispear and remember the only true way of diagnosing endo is via lap... I had numerous pelvic u/s prior to surgery and every report stated i had no issues... until i underwent investigative surgery and they found the endo... don't loose hope, it does happen :thumbsup:
Thanks for taking the time to reply.... Really don't know what's next for me?...
Endo is extremely painful, from what I know - the longer you leave it untreated, the worst the pain will get. I got to the point that I couldn't walk when I had my periods (excruciating pain).
They couldn't detect my endo without doing the lap, but once I had the surgery, they said I was at stage 3 or 4 (the worse is 4) with endo on both ovaries. After the Op, we started trying to concieve and it happened first go. Definietly think without the Op, it's so much harder to get pregnant.
The good thing is, it's all treatable!! But I wouldn't leave it too long after the Op to start trying for a baby cause it eventually comes back.
Don't worry about the Op - it's VERY simple surgery (same day). I was up and walking 1 hour after it.
I would def be mentioning this to ur dr at the first chance u get hum as the PPs hve said it does sound like endo to me too...
I was on the pill from 15 because I had high risk of endo due to fam history (maternal aunt had stage 4 and did conceive on ivf an paternal cousin stage 4 at 16 :( yet to determine if she will conceive) I had constant pain etc at o and af and like the PPs said they couldn't pick anything up on the u/s but did a lap and I was at stage 1 - the op as mentioned is fine no biggy I was a little bit crook after but that was from the anesthetic
I was 16 when I had my op and fell pregnant first try at 23 (3 months off pill to chart cycle)
best wishes with it all and fingers crossed it's nothing but bad period pain but better to be safe than sorry xoxoxoxoxo
Thanks again for your replies ladies, for some reason this af was shorter and basically pain free (considering what I’m use to) and I also had what I thought could be ib at 5 dpo, early I know but considered that I may have o’ed earlier. Really don’t know what to think. We will be trying again this cycle (in just a few days – YAY!!) and we will be throwing everything at it….
I’ll just see how I go, I will be leaving work at the start of Oct (DH and I have decided that it’s our best option for falling). So if I’m still not UTD by Xmas I will def be going at our fs appointments.
Good luck and baby dust to all.
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