Mum needs support in Perth

[monkeytoes]

Help me!!!!

I need to speak with someone. I am not coping with my DD's condition. She's 3yrs 9mnths and hasn't been diagnosed with anything as yet, but is delayed with gross & fine motor skills, balance and co-ordination, receptive language and play skills. She also has a lazy eye and vision problems.
I suspect sooner or later she will be labelled with Global Development Delay.

She has always been a 'difficult child'. Now my other DD has hit the terrible twos. I am struggling to get the kids dressed and in the car every morning. I struggle with getting DD1 to participate in her therapy activities. She's meant to be wearing an eye patch for 2+ hours per day to strengthen her lazy eye and I can't get her to keep it on. She has an obsession with food and whenever there is food insight she just wants to scoff the whole lot. It's becoming a social issue at playdates and Kindy.

I am a SAHM and I work bloody hard. I am tired and overwelmed. I cannot do this anymore. I've thought about putting the kids in childcare one day per week, but I worry that DD1 will not cope because of her issues. I would also feel guilty because I could be spending some of that day doing her therapy activities.

DD1 attends OT, Speech, Kinesiology and has regular checkups at the eye clinic. I feel like we're constantly going from one therapy to another. On top of all that my house is a constant mess and I can never get to the huge pile of ironing.

Does anyone know of any support groups in Perth that might be suitable for us?

[mummyof9kids]

You daughter sounds just like my son with the things you say are wrong with her.he has mild cp(which i relize your child doesnt have but she sounds so much like my son) vision problems lazy eye global delays doesnt like to play and delayed speech .i know what you mean about all the appointments and trying to get things done and going to places on time .I have put my son into daycare 2 times a week and it was the best thing i ever done for him as well as myself and when hes at day care they do his theripiy so he isnt missing any.if you need to chat private message me .I live north of the river in clarkson.

[Prickle]

:hugs: ((hugs)) hun, I can only imagine how difficult your life is. Have you looked into Respite Care? I'm not sure how it works in Perth but I know here in Melbourne there are several agencies that do it, but the one I get is through the local council.

It's only 2hrs a week but that's enough for hubby and I to get a bit of 'alone' time. The carer comes to our home and she even watches our other kids if they're there too. We also get 1.5hrs of Home Care a fortnight, I call her my Domestic Angel, she cleans the bathroom, vacuums the whole house and washes the floors, she also changes the bed linnen. If she still has time left she'll help fold the clothes or wash down cupboards etc.

I know I feel overwhelmed with it all sometimes and I don't have half the therapies you attend. I'm also lucky we're with Scope, they come and do the PT and OT at our home. Makes life so much easier.

Anyway, I'm sure mumof9 will be able to give you some great tips, she's pretty amazing with all she does too. And there's always a listening ear on here.

Take care

[Nowhere]

hey perth girls

why dont we organise a BH special needs catch up, I dont know of any suport group but dont meen we cant have our own hey.

[mummyof9kids]

a catch up sounds good where and when

[monkeytoes]

hey perth girls

why dont we organise a BH special needs catch up, I dont know of any suport group but dont meen we cant have our own hey.

Thanks for the replies ladies. Great idea to catch up. I have read your posts before Mikenzees mum and I find your strength inspiring.
mummyof9kids I'd love to chat with you. Sounds like we have similar issues.
I am in Ballajura (NOR).

[Nowhere]

Yay so we are all for a catch up, :-) I am prety open as to where apart from the places like gone bannanas etc DDs immune system is just not up for a run in the petry dish lol.

What do your little ones like to do, When Dd is well she is happy as long as she can colour in and she can do that anywhere in her wheelchair, We could maybe do a park or Mcdonalds so yours can go on the equiptment ( not sure what they can and cant do). Or im even happy to have it aat my house.

We are a bt all over the place with hospital trips at the moment have had a few emergancy dashes to PMH of late so there is always the risk of that with us but will alwys try my best not to have to cancel.

[staysane]

hi there,

well thank god i say there are others out there. i mean, i knew there was but man, i know exactly what you mean about feeling like you go to therapy all the time. let me start form the beginning.
my son, now 11 months, was just diagnosed with hemiplegia last week. i susspected it from about 4 months old when he preferred his right hand to the left. i always though it was just the left arm was weak....but at the 8 month check i expressed my concerns and one gp after another, peads and pyshio im here where i am now.
he attends 2 times a week daycare and i agree, the best thing for him. he really enjoys it and i admit, at the start he seemed to be getting every bug under the sun, but now, touch wood, seems like his immunity is getting better.
his fine motor aint that crash hot. gross, he just started sitting about 2 months ago. i starte pt with him when he was about 9 months.
he will have to wear splints for about 2-3 hours a day starting next week....
i work two days and the other 3 on at pt, ot and speech. its crazy, i hardly see anyone though they wanna catch up i dont go cause im afriad if i do see them, ill miss out on a day of therapy with him at home. the pyshio is happy with his progress.
i have such sad days...i look at him and think, why him? i neevr asked why us...becuase thats just life, its fate and i wouldnt be given him if fate didnt think i could handle it...but man, i feel like im insane at times. there are days when im impatient...not often but yes...and other days i just hope for the best outcome.
there ar eno real other side effect...touch wood. he too has a lazy eye, which we are going to check out in the next couple of weeks.
he is the most happiest and smiling bub ever...he always gets comment about his smiling face....and i hope he stays positive and smiling. loves his food and milk...and is a healthy lil boy. thats me guys. its great we can emial here...im so glad ive found some people with the same issues..and from perth too.