PDA

View Full Version : Pulminary Embolism



pregasaurus
22-08-2005, 15:05
Ok, so here's what I've been up to for the last week.
I'd been feeling off colour for a while, but when you're 28 weeks pregnant, that's to be expected. I woke up on Wednesday with the flu, and decided to take the day off (DS was in day care anyway) and lie on the couch watching videos. I had all the symptoms of the flu, clogged nose, fever, achy, and I was finding it really hard to breathe. I rubbed Vicks on my chest and had my Atrovent inhaler next to me, which I took a couple of puffs of every hour or so.
About midday, I became aware that it was getting REALLY hard to breathe. I rang my doctor's surgery and made an appointment for 2pm that afternoon. By 1pm, my chest was heaving, and my husband said I was turning a funny colour, so he drove me into Emergency. They took me straight in and put me on a nebuliser, which helped a little, but not very much. They put an pulse oxometer on and even with an oxygen mask on I was varying between 89-93% (it's supposed to be 99-100%). They gave me a second dose of nebuliser, which again made a bit of difference, but not much. The doctor said he was puzzled as to why I was still breathless, and started asking me about general health, etc. He took blood to go and test to see if I had an infection, but by this time I was hungry and fed up, so as we only live 2 minutes down the road I asked if I could go home and if they could ring me when the results came through? I can home still feeling breathless, but just decided it was part of being pregnant and having a chest infection.
I got the phone call from the doctor at 5:30pm that evening.
"You need to come straight back in, you have a blood clot on your lung".
I was in such shock I just said "oh, ok, I'm not really all that surprised."! (I don't know WHY I said that because i couldn't have been more surprised if I tried!).
I rang my sister who's an emergency nurse and told her not to panic, I was ok, but I'm going into hospital. She wished me well and promised to keep in touch.
I turned up at the hospital with a couple of magazines and insisted that my husband just drop me off and go back home with the kids, as they needed dinner and a bath, I'll be fine, don't worry. I was taken straight in to have an MRI scan done, where they injected a 10th of the usual dose of radioactive contrast dye into my vein to show up all the blood vessels in my lungs. The usual time for each picture takes between 1-1.5 minutes, but because I had so little dye in my system, each picture took 12-15 minutes. I was in the machine flat on my back for 2.5 hours, having to take regular breaks to sit up and cough and get some air, even though I had an oxygen mask. By the end of the scan my chest was heaving, and I felt like someone was sitting on my chest holding a pillow over my face, despite having 10L of oxygen pumping through the mask on my face.
They took me back down to emergency at about 9:30pm, and put me in the resuscitation room. A doctor came and told me that my right lung was 20% full of blood clots, and my left was 60% full, that they were going to admit me and put me on blood thinning drugs.
I'm needle phobic and have terrible veins, so for the next hour I endured 2 failed IV attempts and 2 failed arterial taps. When they tried to get blood out of my artery to test my blood gasses, the blood clotted in the needle immediately and blocked it. I over heard the doctor say my blood was like porridge. I was starting to get very tired and distressed, I wasn't passing any air and felt light headed and sick. The nurse came and told me she had to give me and injection in the stomach and I lost it, telling her I couldn't take anymore, I'd had enough. I was gasping for air with tears streaming down my face. She looked me right in the eye and said "If I don't give you this injection, you're going to die, and I'm completely serious". That shocked me a fair bit, I knew it was serious, but this was the first indication someone had given me that I might die.
I was getting sicker by the minute, and nothing seemed to be helping. I sort of vagued out and drifted in and out of consciousness for a while, so everything I know now is from my sister, who being a nurse knew how much trouble I was in and was ringing every half and hour for an update. By 2:30am they were ready to intubate (put a tube down my throat) and put me on life support. I was in a critical condition, and had the head registrars for respiritory and obstetrics in the room, as well as the crash team, anaesthatists, paediatricians ans a dozen nurses.
My body was so sick it could only keep one of us alive, and decided to abort the baby. I began having strong regular contractions 5 minutes apart, so the hospitals helicopter was called in to fly me to a larger hospital as the one I was in didn't have the facilities to cope with such a premature baby.
Thank God, at 3am, they finally found a drug that seemed to help my breathing, the drugs they gave to stop the labour worked, and the contractions stopped. I was still listed as critical, but I was at least getting enough air in by myself to keep us both alive. We both came very, very close to losing our lives.
I spent the next 48 hours hooked up to oxygen in a critical condition. I was taught to inject myself twice a day in the stomach with Clexane, a blood thinning drug. I've been told I will need to continue doing this until my baby is born, in 11 weeks time. The baby is fine, and I will now go through the high risk pregnancy clinic to keep a close eye on him. I was discharged last night as none of the drugs they are giving me are helping anymore, as it's now it's up to nature to slowly repair. I have about 60% lung function, and will probably end up with scars on my lungs. I can never have any more children. They think the cause was flying from Launceston to Mackay 2 weeks ago to help my elderly mother who had an accident. There was no evidence of deep vein thrombosis in my legs, so the clot must have been in my pelvis. I will need to inject myself beforef I ever fly again.
Despite all this I fell so very, very lucky. With Deep Vein Thrombosis, the clots will end up in either the lungs, heart or brain. I could have dropped dead infront of my kids from a massive stroke or heart attack at any minute, so the fact that they're in my lungs is a godsend. My baby is fine, I'm alive. I can't ask for anymore than that. :)

amme
22-08-2005, 15:33
That is so scary, i am glad you are getting a little better now! Bring on that 11 weeks hey. keep safe.

Rainbowbrite
22-08-2005, 15:49
WOW I'm so glad that you are both ok. Please take it easy and keep us informed. Good luck with everything, i'll be thinking of you :)

mumof2girls
22-08-2005, 16:53
Wow!!!

How frightening for you and your family. I am so glad that everything is better now and things are settling down. Hope the next 11 weeks go quickly for you and everything runs smoothly. Keep strong and rested and take care :) will be thinking of you :)

JenNT
22-08-2005, 17:17
Well...my God! You poor darling! My heart stopped when you said your body couldn't keep you both alive, it was going to abort..i thought noooooooooooooooooooo :(
I really hope you recover well, both of you!
Keep us informed by all means, take care
hugs Jen

draught
22-08-2005, 18:18
I will be thinking of you and sending prayers your way to keep both of you safe. Despite all the bad experiences you have had at the LGH it sounds like this time they did good things - I hope it continues!!

ThomasMum
22-08-2005, 19:28
For Pregasaurus and bub:There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something tomorrow...

Thinking of you and sending you our best wishes from Thomas and the family :)

Love Peace

ML

noniandlilysmum
22-08-2005, 19:54
Hi there Pregasaurus, what an awful thing to have to go through in your pregnancy, let alone at all... I so hope the rest of your pregnancy is bliss and your baby comes out nothing less than perfect... Keep well and keep us posted on how things are going... Thinking of you, Haana :)

TwoBlue
22-08-2005, 20:21
Hey matey

I am so sorry to hear what has happened to you...
and i am so thankful that you and your little man are ok.

It must have been so scary for you and your family, i can only imagine

I am not sure what to say other than i will keep you all in my prayers and thoughts.

I will email you soon

madvoice
22-08-2005, 20:42
OMG you are so very very lucky. I hope everything gets better for you. You and your unborn child are in my prayers.

Harmony83
22-08-2005, 21:14
I am so sorry about what you went through, I just wanted to send you my best wishes, I hope you and baby are doing great, you are both such fighters! Take is easy.

cath
23-08-2005, 09:16
Oh my goodness that is such a scary story (makes me appreciate the good health I have - I was not happy about having an aching hip and a pregnancy rash but that is nothing compared to what you've been through) . I hope you are feeling okay. Best of luck for the next 11 weeks. Look after yourself.

Cath

BubbleBelly
23-08-2005, 11:51
How scary! I'm glad to hear you are feeling better!
I'm sending you all my positive energy!

H&B'sMum
23-08-2005, 14:04
That is truly frightening.
Hope the next 11 weeks go really quickly for you and you continue to improve.

brooke
23-08-2005, 19:07
i am so glad that you and the bub are ok!!!!
i was gasping all through your thread out of pure shock! I am so glad that the baby is ok!
and that you are feeling better!!!

pregasaurus
24-08-2005, 07:50
Thankyou everyone for your kind thoughts and wishes.
I didn't post this thread to scare anyone, what I had is fairly rare, but I want people to know that this can happen, even on short domestic flights.
If you do have to fly during pregnancy, PLEASE, wear support stockings, get up and move around. You mustn't take aspirin, but if I can prevent anyone going through the hell I had to I'll be happy.
Some people who get PE's do not have a happy end to their story.

summerly
24-08-2005, 12:05
Hi pregasaurus, I am glad that you are ok now. Your story is quite a familiar one to me because all of my family (me too) has a blood clotting disorder. I know what you are going through. If you want to talk then please email me. I am more than happy to offer you my support. It is not all bad, there is still hope.

Don't overdo anything. Keep mobile. Drink plenty of water. Don't get over heated. Broccoli helps to clot blood but cellery thins the blood. Teach your children what to do in an emergency. I think the red cross and st john's run children's courses and if they don't then teach them cpr yourself. My daughter is only 4 years old but she knows how to use the phone in an emergency and I am teaching her cpr on her dollies.

My email is summerly78@hotmail.com. I check it every couple of days. Best wishes for you. :)

bugalugs1
24-08-2005, 13:31
Hi there Pregasaurus,
Sorry to hear you had a PE and hope you are recovering well. I have had a previous DVT and have a blood clotting factor as well so am on blood thinners too (Fragmin - another brand similar to Clexane) and have been since I found out about the preganancy (due in 6 weeks). My advice is find yourself a really good doctor who will talk you through all that is going on. I have an excellent Vascular Surgeon who takes care of me on the blod clot side of things.

Have you been told much about what to expect at birth with the heparin? My OB has said very little. But I know from my reading that epidurals are out of the question.

Take care of yourself. Keep active and keep the fluids up.

WeThree
25-08-2005, 21:06
omg what a terrible thing to go through, i almost couldnt bear to read some of it becasue i was so afraid of what was going to happen next. Thankgoodness you and your little baby are ok, try and rest and get some 'you' time. I had a near death experience when i was pregnant with tilly and it makes you realise how vunerable we all are doesnt it? scary stuff if you think about it to much. Please get well and know that you have lots of people out there who care about you and are hoping that you and bubs will be ok, sending lots of hugs and resting vibes your way xxoo

Tiffany R
26-08-2005, 11:46
It is fantastic that you and your baby are alive! Hope the next 11 weeks fly by and you are both really well until the birth. Best of Luck.

pregasaurus
26-08-2005, 15:46
Have you been told much about what to expect at birth with the heparin? My OB has said very little. But I know from my reading that epidurals are out of the question.

Bugalugs, I keep getting differing opinions. What they WANT to do is induce me at 39 weeks. I'll inject myself 9pm Wednesday night, they'll induce me 5pm Thursday night (20 hours post injection) by putting up a synto drip and rupturing my membranes as they want the baby out QUICK. I'll have a big shot of synto in the leg immediately after the birth to clamp the uterus down properly, then I'll inject myself at 9pm Friday night with the Clexane again.

My understanding is that if I go into labour naturally within the half-life of the Clexane (6 hours) I'll need to go straight into hospital to recieve blood products, which will reduce the effectivity of the Clexane. An anaesthatist won't touch me up to 10 hours post injection, due to the possibility of nicking the spinal cord and causing a haematoma, or intubating and run the risk of nicking the aorta and me inhaling blood. This means if there's an emergency there's nothing they can do. That's why they want me 20 hours post injection.
Have they mentioned inducing you at all?

blessed
27-08-2005, 08:02
I just wanted to thank you for sharing your painful story with us all. I am scheduled to fly to Malaysia in November, when I will be just on 21 weeks pregnant. I will certainly be very diligent in minimising the risks if DVT etc. Fortunately, my DP is an emergency nurse and will be by my side the whole time!!

Boy, it really does make you realise how fragile and vulnerable we are in what is supposed to be the happiest event in our lives.

I truly wish you and your family all the very best for the rest of your pregnancy.

Take the best of care.

Leanne :D

bugalugs1
28-08-2005, 18:44
Pregasaurus

My OB is not keen on the inducement idea for me but won't really discuss it with me. He's happy with just stopping the Fragmin the night before and then using an epidural if I want it - however all my reading and discussions with my Vascular Surgeon (whom is my primary care giver re my past DVT & blood condition) indicate I should have a longer break 3 plus days - particularly if there is any chance of surgery or need for epidural. My OB just keeps saying they will reverse the effect of the anti-coagulants "if needs be". All seem to agree that within 2-3 hours of birth I am to take my next shot of anti-coagulants.

From my research inducement is a common practice for those in your situation - they are trying to managing the risks of childbirth and the PE. DH and I plan on further discussions with OB to fully understand his opinion and try to find an agreed position on the matter.

The OB has also mentioned switching me from one shot a day to a lower dose two shot a day form of anti-coagulants by 38 weeks. I just don't know where I can stick myself as I struggle to find space at present having lost a fair bit of weight with this pregnancy.

It is worth talking to your Heamatologist or Vascular Surgeon about their opinion if you have concerns.

Hope all continues well.

:rolleyes: due 4/10/05

mummyb
28-08-2005, 19:25
hi i just wanted to wish you luck and say that your an amzing woman .
i will say a little prayer that you and your baby are safe and well through the rest of your pregnanct and the birth ,its a mircale you got all that done and your okay now .
i realy wish you all the best kindest regards mummyb

Briannabear
30-08-2005, 20:54
You are so strong Pregasaurus. :)
I hope the rest of your pregnancy - and birth - go smoothly. I wish you and your baby good health. We will be praying for you.

pregasaurus
22-09-2005, 09:22
Now I have gestational diabetes as well. Induction date is set for 14th October, when i'm 38 weeks. Not happy Jan!!!! :(

draught
22-09-2005, 09:26
Look on the bright side - Librans are lovely people!! (I am one and DD2 is one)
(Sorry don't mean to be flippant but feel the need to cheer you up a bit!)