Downs

[luckytiger]

I have been told that my baby has a chance of downs and I am so scared of that. Does anyone know any good sites or numbers I could look up or call for some info?
Of if anyone here knows anything about it all info would be highly appreciated...

Thankyou all!!!

[OscarTheGrouch]

Is this through scan results? If so, what was/were the indication(s)?

[angelickaren]

hi luckytiger you can find in each state downs syndrome website so look for them my cousins wife had her baby last wednesday and he was born with downs syndrome she didnt know at all she had no tests to check it so goodluck with it and :fingerscrossed: everything will be fine

[xkwzit]

If it was a low odds result from a nuchal fold test, we have had quite a few threads on this - do a search on nuchal. Many of us have heard stories about ppl with low odds who are carrying non-downs babies.

Cheers

[*Sparkles*]

luckytiger, I have sent you a PM about this :)

[Leez]

Luckytiger - I'm really feeling for you, I came into the high risk category for downs following the nuchal screen and it was a total stress out. There are so many different factors involved it can do your head in. Anything higher than 1/400 is considered high risk.

If you've been giving a high risk rating and you want to know, you can have an amniocentesis which will tell you for sure. That happens between 15-17 weeks. I had one and it put my mind at rest, despite the risks associated with an amnio, DH and I decided that we would go ahead with it.

Some people want to know for sure, some people don't, its up to you to decide whats best for you.

Good luck, I'm hoping bubs is fine.:hugs:

Lisa

[MilkOnTap]

Lucky Tiger - I dont know a lot about downs, but I just wanted to pass on my best wishes... :hugs:

[MrDad]

My wife also fell in the high risk category and we STRESSED during the entire pregnancy. Our daughter was born very healthy and we were blessed !

Next pregnancy my wife and I decided not do the test. We will simply accept our child no matter what.

Question to ask yourself ? If you were 100% sure you were to have a child with DS ... would you terminite the pregnancy ? We would not be able to cope with the feeling of guilt.

So ... if you are prepared to accept your child no matter what then I suggest not getting the test done.

I realise you have already done the test but something to think about next time.

There is a lot of posts on the net relating to these tests. Keep in mind that they are JUST A RISK FACTOR. It's like getting on the road each day. there is a RISK FACTOR that you may be involved in an accident. It does not mean you will have one.

Keep smiling and try and not let this work you up. :)

[MizzSocial]

I know a girl who had a 1-50 chance, and 2 weeks ago she had a healthy boy!!!!

She was so sure he would be born with Downs cause her age/risk factor from Nucal scan all pointed that way, but he was fine!!!!!

[luckytiger]

Hi all,
I know it's a little late but I have a update on this situation I had my amnio down and all turned out ok which I am so happy about.
Thankyou for all your support

[Billy]

:wave: luckytiger congrats on the positive result! :hugs: Hopefully you can now fully enjoy the remainder of your pregnancy b4 meeting your own special bundle of joy! :yes:

[CarolineF]

i had a 1:28 risk with my first pregnancy.

Remember its like betting odds. But importantly in my case 27/28 babies would have been Down's free. I had an amnio then and another one with this pregnancy. It was an ok test, and the results came back ok.

Some people do not want to know if they are carrying a Down's child. I do not know what I would have done had the results been different, but knowledge is power and i would have been able to prepare either way.

Try contacting emysmum - she has a beautiful little girl with Down's and is a regular poster on the hub. It makes you look at things in a different light when you have a full understanding of the reality of parenting a down's child. Would her advice have made me jump one way or another had my amnio results been different? I do not know honestly, but again, its all info to help.

Good Luck:hugs: