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kadee
19-02-2010, 17:05
how do you get 3kgs of weight on a 10 year old cystic fibrosis sufferer in 3 months if he doesnt they are going to gastro tube him we have have tried the special drinks managed 1 kg in 3 months has ayone got any more ideas lm all out , any advice would be appreciated

Nowhere
19-02-2010, 19:23
Thats a tough one, Have you tried, polyjoole or carb plus addded to her drinks and feeds.

Has she got fat malabsorption i know lots of CF kids do so that would take out alot of options.

DD has a G tube and a J tube for feedng they are not ideal but are very very helpful when you need them