kimcam
18-02-2010, 23:41
Hi There,
My son James who is 4 months old has Noonan Syndrome and cannot feed properly and has to be feed via a NG tube. On Tuesday he got high temps and I took James up to accident & emergency and he was admitted back to hospital due to a chest infection. He was admitted under a different peadiatrician and when the pead did the rounds yesterday morning stated that James is dictating how he wants to be feed via a peg tube and having a fundoplication. The pead that he normally sees James came in this morning and it looks like James will need to be checked out in an dysphasia & swallowing outpatiend clinic. The fundoplication and peg tube are probably going have to be done. I so so wish he could feed normally from a bottle.
Kim
DH
DD - 3½ years old
DS - 4 months
My son James who is 4 months old has Noonan Syndrome and cannot feed properly and has to be feed via a NG tube. On Tuesday he got high temps and I took James up to accident & emergency and he was admitted back to hospital due to a chest infection. He was admitted under a different peadiatrician and when the pead did the rounds yesterday morning stated that James is dictating how he wants to be feed via a peg tube and having a fundoplication. The pead that he normally sees James came in this morning and it looks like James will need to be checked out in an dysphasia & swallowing outpatiend clinic. The fundoplication and peg tube are probably going have to be done. I so so wish he could feed normally from a bottle.
Kim
DH
DD - 3½ years old
DS - 4 months