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TrulyBlessed
10-02-2010, 20:11
Just wanting some feedback on the letter I have written to our local hospital about was & wasn't done when we lost our son. *****warning bit of a read*****

Re: Complaint

My name is A*** W***. On the 18th September 2009 I gave birth to a premature baby boy, who didn’t survive, herein after referred to as J.

After being told on the 17th of September that J had passed away I was to be admitted to hospital to be induced the following day at 8am.

We arrived at the hospital on the 18th of September & shown to a private room (which I am grateful for), to wait for induction to begin. At 9am the first lot cervical tablets were inserted to start this process. My husband and I were then left on our own unless we needed something or the occasional observations to be done. At no stage was I given any information on what to expect. The only information at this stage was what drug they would be using to induce me.

I had to actually ask the midwife on duty what I could expect for the delivery & what J may look like, due to his chromosomal abnormalities. I wonder if this information would have been given if I had not of asked.

I delivered J on Friday the 18th of September around 730pm that night. I cannot complain about the attitude of the midwives that looked
after me during this visit. They were kind,caring & supportive. I was just severely disappointed that at no time did anyone offer us any advice as to “what to do next”. We weren’t offered counseling of any type. We were left to flounder away with how to deal with losing J on our own. At no time did any medical staff weigh or measure him. We are now, and always will be, left wondering what his weight and length
were. This negligence has also added to implications of us not being able to obtain a birth certificate for J as the legislation states a
birth certificate will be given to a baby of 20 weeks gestation or 400gm. We have photos, which we took of J that quite vividly shows he was a fully formed baby only extremely small.

Saturday the 19th of September I had to request my local parish priest to be contacted to bless my son. I think there should be a procedure that if you have a religion noted down that maybe someone should ask if it is something that we would like to be done.

Sunday the 20th of September saw me discharged. This was the hardest thing I had to do (leaving the hospital without J) I did not think my heart could break any further but this was proven wrong. There is a support group called TLC (Teddy Love Club), which sends out teddies to all hospitals willing to participate to give to bereaved parents in our situation. Even a small gesture like this can go a very long way. I am very happy to give you their details if you like.

Tuesday the 22nd of September saw me be readmitted to the hospital due to post partum hemorrhage retained placenta & infection. I was given a course of antibiotics over night & a curette booked for the following day

Wednesday the 23rd of September saw me have the curette done at 2pm. I did not wake fully from the general until almost 6pm. At that time I was still very groggy, dizzy & generally unwell. I managed to eat some dinner & go to the bathroom but being upright I felt like I was going to pass out. The midwife looking after me was not very sensitive & told me “it’s normally classed as day surgery” & “now that I was up & about I was to go home”. So I was discharged at around 830pm that night regardless of my fragile emotional & physical state (after another
midwife had said I wouldn’t be discharged if I wasn’t feeling up to leaving, which I wasn’t). I needed my husband & mother support me fully
to the car as I was feeling very weak & dizzy. How can a patient be discharged feeling like this?

Sunday the 4th of October saw me bleeding heavily again & in severe abdominal pain that I made another trip up to the emergency department arriving at around 10pm. I was seen to by the doctor in charge that night (who I am grateful to) as he made a call to the on call ob/gyno who informed him to get my pain under control & send me on my way. I guess it was later determined that I still had infection as I was given antibiotics. This doctor I will not say a bad word about as he was very caring & understanding. But what I do want to complain about in this instance is the 16hr wait I had in the emergency department before the ob/gynos decided to admit me for further treatment. Surely I warranted a visit earlier if the doctor in charge of the emergency department thought I warranted a consultation from them. When I was finally admitted to the hospital before leaving the ED I was told they had a private room ready for me, due to what we had been through. Once we arrived at the Family Unit I was put into a double room, which an older woman was admitted to a little later that afternoon. That I could handle, but with her was her daughter & her new granddaughter. Surely some for thought could have been put into that as I had only lost my son 2 weeks earlier. How would you feel if this were you, your wife or daughter? There were private rooms available so why not give someone who
is grieving a room for their own privacy?

We had contacted our Local MP at his office in the midst of all this happening during September last year in regards to having been given no
information or support group information. Within an hour of being on the phone to him I had received a phone call from the Patient liaison
officer who assured me that she would post some information brochures etc out to us. To this day we are still awaiting these brochures she had promised.

As having gone through this ordeal without any support, some decisions need to be suggested. First of all have someone on staff to start with
that can be on call if there is a stillbirth. I know that F is there but she was away (how can there be no back up). I suggest that counseling be given as a matter of course, as most parents are unable to make an informed decision while they are grieving. Should this have been offered to us then maybe it could have helped me avoid many months of depression. Another suggestion I would like to make is that the hospital staff should weigh, measure & dress/wrap the baby; take photos;
imprint foot and hand prints and if the parents don’t wish to take any of this with them these are to be left on file as parents may decide in
the future they do actually want some memories of their baby.

Both DH and myself are really hoping that you will be able to help us understand how we managed to fall through the cracks with this
situation and provide us with some answers to ensure this sort of situation will never happen to anyone else in the future.

Is there currently a procedure or policy in place for these sorts of situations? If so could you please provide to us a copy of this procedure/policy within 14 days of the above date?

Kind regards

Me

TeenyT
10-02-2010, 20:30
Firstly, I am so very sorry for the loss of your little baby and what you went through. Your letter sounds fine. You have outlined your situation in detail and have shown that you have a very real cause for complaint. The lack of sensitivity shown to you really upsets me.

I hope this time, you get some answers and are shown that yes, you and J DO matter. :hugs:

lizzymcfizzy
10-02-2010, 21:32
a very well written letter. I couldn't imagine leaving any of it out, I just hope they read it all and don't skim through it.

I'm very sorry for your loss and the added insult of how they treated you. I hope this gives you some closure.

Sadface
10-02-2010, 21:45
I am sorry for your loss. I thik it is a well writtin letter and I hope they take the necessary steps to ensure noone else is left feeling so, well im not sure of the word. But I cant believe the way you where treated its quite absurd. Im sorry

dillydAlly
10-02-2010, 21:48
:hugs: For you! I am sorry for your loss and what you had to endure........

I see absolutely nothing wrong with your letter. It is well worded and detailed and clearly outlines your concerns. I sincerely hope that you get some gratification or feedback from your letter........

It hurts me in situations like this. The very sad thing is is that you are not alone in having to go through this. There are other people who have had to deal with the same loss as yourselves.... Did they recieve worse or better support and help!!!

I lost a baby years ago at 14 weeks.... I was told I needed a D&C which happened, but afterwards I was treated as if nothing happened and it just went away..... As if there was never any baby at all :no: It was very sad........

I hope you find some piece within yourself!

RIP J :angel:

outbackdreamer33
12-02-2010, 10:47
I am so sorry to read your letter/story.
Your letter is very well written and factual which is great.

Just a question for you - if they didn't weigh/measure your baby and therefore there is no birth certificate, does that also mean you don't have a death certificate?

I ask due to working for Centrelink and just wanted to pass on info (honestly just passing it on, not giving opinion etc to what you should do).

If a baby is born stillborn from 20 weeks onwards you are entitled still to the baby bonus but you need a copy of the birth/death certifcate. Unless the hospital signed the back of another form that you may have been given in hospital to confirrm the birth?

The other part of the criteria is that your baby must have weighed 400 gms or more.

And if your baby 'J' took just one breath then you are also entitled to 13 weeks of family tax benefit.

I am not sure off all your stats but I just wanted to let you know of this information just incase you didn't know.

I know money cannot fix anything and doesn't help you emotionally at all - but you may have incurred some costs already in your pregnancy and this money may help you.

I wish you all the best and hope you get a response to your letter.

;)

lozie2
12-02-2010, 11:39
firstly big :hugs: for you and your husband.

very well written.

TrulyBlessed
12-02-2010, 16:19
I am so sorry to read your letter/story.
Your letter is very well written and factual which is great.

Just a question for you - if they didn't weigh/measure your baby and therefore there is no birth certificate, does that also mean you don't have a death certificate?

I ask due to working for Centrelink and just wanted to pass on info (honestly just passing it on, not giving opinion etc to what you should do).

If a baby is born stillborn from 20 weeks onwards you are entitled still to the baby bonus but you need a copy of the birth/death certifcate. Unless the hospital signed the back of another form that you may have been given in hospital to confirrm the birth?

The other part of the criteria is that your baby must have weighed 400 gms or more.

And if your baby 'J' took just one breath then you are also entitled to 13 weeks of family tax benefit.

I am not sure off all your stats but I just wanted to let you know of this information just incase you didn't know.

I know money cannot fix anything and doesn't help you emotionally at all - but you may have incurred some costs already in your pregnancy and this money may help you.

I wish you all the best and hope you get a response to your letter.

;)

Thanks for the info hun I really appreciate it. Unfortunately we are not entitled to anything. J was sixteen weeks fully formed but not classed as a baby.

Thats the next step in my process so we shall see.

hailsntwang
12-02-2010, 17:33
I couldn't read and not post.:no:

I am so, so sorry for your loss and for the treatment both you and your partner had to deal with during this trying time.

It really makes my heart want to break:crying:

Your letter is very to the point and very in your face (which is the way it has to be).

I hope you get the response you are after.

(If not I would also send a copy of the exact same letter to a national newspaper and let them make a story out of it. Maybe some public outrage / pressure and media would get the correct proceedures set in place):confused:

erinrose
20-04-2010, 20:27
:crying:That is so heartbreaking, sorry to both you & DH. Your letter was very well written & I hope that they responded in an appropriste manner to your letter. I'm so disgusted at the way you were treated, did they not have any empathy, sympathy or respect for you, or your DH??
I wish you both all the luck in the world this time round, and hope they treat you with you with some respect when you book in, as you soo deserve it big hugs xox

amnic
20-04-2010, 23:42
I am so sorry for your loss, your story had me reading through tears.... I noticed you originally posted this in Feb, have you had a response?

If not I would take a pp's advise and take your story to a media outlet, or at least tell them that is what your going to do that to get them moving kwim? I have an intellectually disabled brother & my mum threatened this once when she was getting nowhere on a very important matter & it was "fixed" the next day, it may help you get the answers your after & stop someone else having to go through the trauma you did

:hugs::hugs:

Gabi
21-04-2010, 09:52
:hugs: I'm sorry for your loss.

Your letter is good.:yes:

I wonder if someone like the Bonnie Babes foundation could help too? :detective:

I lost a baby at about the same gestation in similar circumstances and also feel my treatment by the hospital was insufficient. I was booked for a curette and wasn't told of any other option - as a result I never saw or held my baby, nor was I told my baby's gender. Their medical treatment was nothing short of traumatic, and my requests for a priest and my questions about disposal of my baby's body were ignored.

I have never thought of writing to the hospital, but I am of the opinion that action needs to be taken on this issue nation wide.

Sparklydreamer
21-04-2010, 12:39
:hugs:

A very eloquent, beautifully written letter. I hope you get a response and some changes are implemented.

:hugs:

TrulyBlessed
21-04-2010, 13:24
Thanks guys.

Yes I've had a response & a couple of meetings since. Haven't gotten to where I want it to go just yet but I'm seeing the head of obstetrics next week for an appt with this new pregnancy. He is the person I'd been having the meetings with so I might make the antenatal appointment into a bit more of a what happened with the follow ups you promised & see where I get.

I've had responses because I decided to actually change who I addressed the letter to & sent it off to the local MP's & faxed the hospital a copy so they pounced on it quickly.

But since then the response hasn't quite been the same so since its been a few weeks since the last meeting. I think its time for another firecracker to get the ball rolling again.

Sugarplum2809
22-04-2010, 00:06
:angel: I am sorry to hear about you losing your little angel.

Here I was trying to get over a traumatic experience of been induced and having a baby ending with a c-section. But I was able to bring home a healthy baby.

I really cant imagine what you went through and still are going through.

I wish you the best with this pregnancy and pray that you too bring home a healthy baby. May god give you the stregnth to fight for what you believe in.