CMPI or severe reflux

[rissa1]

Our little man is currently 13 weeks old. we have struggled with slow weight gain (60gms a week) since birth. Born term and 3.2kgs. He has had 3 admissions to the royal childrens hosp for aspiration at 2 weeks of age, and 2 more for failure to thrive. We have tried everything for his relflux, omeprozole, domperidone, bed proping, thickners, gaviscon ect. He has has an abdo ultrasound, barium meal and tests for metabolic disorders. All normal.

On our last admission, the doctors (who are stuck for ideas, calling our little Luca 'the mystery baby!) think he may also have a cows milk protein allergy. He was commenced on neocate, and has had good weight gains. Still vomitting large amounts however. It was extremly hard to take my exclusively BF baby of the breast and onto formula..

The doctors are pulling at strings as DS has no common symptoms of an allergy. I am still struggling with not BF (as i am also a midwife!!). After much research i find that this allergy does not necessarily mean that they baby has to be placed on formula. The mother can simply removed dairy from her diet.....

we go back to the doctors monday for a check up..
When we go back im going to ask for a trial of fortified breast milk, to see if this has any difference.

so my questions are;

* Has anyone had a baby with a cows milk protein allergy still BF, and still thrive?

* Has anyone had a baby with severe reflux also not thrive?



Any help or advice would be much appreciated!
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[aga]

Hi. My DS2 had a cow's/soy milk intolerance and I breastfed him for 11 months. I removed all dairy and soy from my diet and the symptoms (explosive poos, mucous in poo, eczema on face & body) dissapeared.
He wasn't gaining huge amounts of weight though, on average around 100-120g per week.
He only started to gain well around 12 months when we introduced neocate. I still wonder if there were other things in my milk that bothered him or he just needed more calories.
Now, at almost 20 months he can have cow's milk. I haven't tried soy as we don't eat it anyway. What I discovered recently though is that he is sensitive to corn so maybe that had something to do with his slow weight gain.
If you can do it I'd suggest still breastfeeding (provided that you are willing to remove problem food from your diet) and if he doesn't start gaining weight better suplement with neocate. I actually was mixing breatmilk with neocate initially to get him used to the taste but I was working so had to express anyway.
Breatmilk has lost of other benefits (besides calories) so if you can do both that would be great.