browns syndrome and thyroid issues in kids?

[mamajess]

Hi my dd has just been diagnosed with browns syndrome does anyone have any experience with this? I also am getting her thyroid checked...any info/help?
TIA

[mamajess]

anyone?

[Nowhere]

HUGS, like many syndromes that isnt one I have heard of I just googled it and from what i read its a disease of the eyes it that what your DD has.

Thyroid isues I dont know a great deal about i know DD was tested for thyroid disorders when she was first reveiwed by the endocrine team but i know her thyroid was fine but her endorine issues was that she didnt produce groowth hormone.

Is your DD under a good opthimologist and endocrinologist, If you are in perth I know both the opthimology team and Endo teams are great we see anyone from either team with DD as I have found them all to be fantastic.

Sory I dont know anything about your DDs syndrome have you looked on yahoo to see if there is a suport group on there as they sometimes are for difernt syndrome same as on facebook beleive it or not. I know what its like to have a child with a syndrome that no one has heard of oor has any info on DD had an undiagnosed syndrome for 3 years and has this year been clynicaly diagnosed with Russel Silver syndrome and possibly Oral facial digatal syndrome.

[mamajess]

Thanks for the info Amy! We are in melbourne, though. Will check out some support group avenues.
The browns syndrome is a worry, we are told just to watch and wait & see the opthomologist (sp) again in 3 months.
In my googling I found one of the causes of browns to be thyroid disease...just about every second person in my family has over-active thyroid...The list of symptoms was accurate description of my daughter. Gonna get it checked out asap.
Must be somewhat of a relief for you to be finally getting some answers on your dd's condition.
Thanks for the reply :)