My dd has a heart problem

[Josh&Avasmummy]

Hi every one
This is my first time posting a thread?
I was wanting to know if anyones baby had to be in the special care unit when born but born at full term.My dd who is almost one has a heart condition that has to do with the aorta.She's ok and everything but has to have scans until she is at least 2 years old with the next one coming up im a bit nervous she is turning one on the 28th of july

[pixiesmums]

My sisters ex-hubby's daugther has a heart condition. The doctors told them she would not make it past 1. She is now 12. SHe has a very rare heart condition and there is only 1 other person in Australia that has this condition. I hope everything goes well with the next visit to the doctors. :fingerscrossed:

[Hokey Pokey]

Hope everything goes well with the next visit :fingerscrossed:

[Josh&Avasmummy]

THankyou for your replies.DD condition can be common and can also be a very serious one too

[mum23girls]

Hi there!

I can understand how anxious you are!! All three of mine were born with heart murmers or VSD's what ever you want to call them. Their holes ranged around 3mm. The first was diagnosed after she was born, and to be a first time mother that was a real shock! Of course in hospital they don't really tell you much about it!!! She had to have xrays and ultrasounds and cardio monitoring. It was still there at 6 months, but by 12 months it had closed.
DD2 was diagnosed by ultrasound while I was pregnant. She was born with about four doctors standing around waiting, initially given the OK to be out of SCN but underwent all the tests as an outpatient. By 12 months it had closed.
DD3 showed no signs while I was pregnant, but sure enough, once she was out she was diagnosed. We were back and forth to the SCN before every feed while in hospital, they monitered her bp and pulse closely. By 6 months though it had closed. I didn't worry about the ecg's etc because we were used to it!! Knowing the other two closed over spontaneously we kind of expected it anyway!!!!

Good luck, I am hoping everything will be fine for your DD!! :hugs:

[Josh&Avasmummy]

I found out about dd's condition at 38weeks after i had a fall and was taken to the hospital i had a scan done and was told about the problem three days later i had to have her by c-section .

[Lisa C]

Hi Camille,

I was just wondering what the problem with your DD's aorta is exactly? - My DS has coarctation of the aorta (and i have a thread in this forum called "Heart murmur and narrowing of the aorta" which will tell you all about it!). We are just waiting to hear from the Royal Children's hospital in melbourne for a date for his surgery - which will be some time within the next 3 months.

I hope that your next check up goes well. :fingerscrossed: and :hugs: to you both. It is just sooo stressful having a child with any sort of illness/condition. But the thing i keep telling myself is that there are plenty of worse things out there than a heart condition. (Though at the time of diagnosis, it does seem to be the worst thing in the world .... !)

Let us know how you go at the check up.

L
xx

[Josh&Avasmummy]

Hi Lisa C
DD has something similar only the blood in her aorta didnt go through the aorta as freely as it is meant to she had a bend in it . But it did correct itself after she was born though. Its still something that stays in the back of mind when its time for another scan.Hope everything goes well with your son and hope that it wont be problem for him later

[Josh&Avasmummy]

H Lisa C
Just wanted to know how did Find out about your DS condition as had i not have had a fall three days before i had DD we may not have known about dd heart

[bpato]

Hi

Neither I or DS have an aorta issue, but my younger bro who is now 24 was diagonsed at birth with a hole in his heart. He has never had surgery or anuthing. In saying that I was diagnosed with a hole too when I was 15, after being diagnosed with a mumur at birth that had disappeared at age 2. No probs here at all.

I know this isn't the same as what you DD is goign through. I hope all goes well and just wanted to let you know there is hope out there.

:hugs: and :kiss:
Belinda

[Lisa C]

Hi Camille,

we found out initially that DS had a murmur because the CHN sent us to our GP because Rohan was very snuffly at 2 wks and she thought he needed to be seen for that because he was struggling to breathe. As it turned out, the GP wasn't worried about the snuffly breathing - but did discover a murmur, so our GP monitored it until 6wks, when he referred us to the pead. And it was then that the pediatrician tried to find his pulse in his legs and couldn't, so we went for an echocardiagram which confirmed that he had the narrowing.

So all told, it was quite lucky that the CHN sent us to get the snuffly nose investigated!! (I had been worried about it since he was born, but all the midwives in the hospital just said it was normal. The CHN was the first person to think it was bad/severe.)

L