BeatoNo3
29-08-2009, 18:55
Hi there ladies...
I am a mum of a 2.5 year old who was born at 26 weeks in 2007. He had a long stay in NICU and came home on 500ml/minute of oxygen 24/7 which has decreased to .125ml/minute and only when he sleeps..(which is great) He also is short sighted in his right eye, wears glasses but with out them u wouldnt pick that bout his eyes. He is profoundly deaf both sides but has a cochlear implant on the right side and is getting his second in september this year. The implant is the best thing that has happened to us even tho there is no defined speech yet, he is defo getting there. He is PEG fed 24/7 which one day we hope to only do overnight but just depends on the weight he gains n stuff... He also has moderate Cerebral Palsy, so he isnt sitting, crawling or standing but is getting better. I am not sayin all those things for sympathy its more jsut so u have a background...
Ok so my question is altho we have all the intervention in the world like community health, RIDBC, SCIC, early intervention play group and he goes to a family dare 3 days a week (the days i study nursing) I guess I am worried for his socail effects his 14 months brother wants to play and when his brother wants to show him how to do somehting he gets upset and i think it the comminutcation barrier. I do try to explain to lachie my 2.5 yer old that it is ok and he is trying to help he just doesnt seem to understand. So i am worried bout when he gets older will he learn like sharing n stuff. Sorry bout going the long way round the questions but n e other mothers out there with kids with needs understand where im coming from....
I am a mum of a 2.5 year old who was born at 26 weeks in 2007. He had a long stay in NICU and came home on 500ml/minute of oxygen 24/7 which has decreased to .125ml/minute and only when he sleeps..(which is great) He also is short sighted in his right eye, wears glasses but with out them u wouldnt pick that bout his eyes. He is profoundly deaf both sides but has a cochlear implant on the right side and is getting his second in september this year. The implant is the best thing that has happened to us even tho there is no defined speech yet, he is defo getting there. He is PEG fed 24/7 which one day we hope to only do overnight but just depends on the weight he gains n stuff... He also has moderate Cerebral Palsy, so he isnt sitting, crawling or standing but is getting better. I am not sayin all those things for sympathy its more jsut so u have a background...
Ok so my question is altho we have all the intervention in the world like community health, RIDBC, SCIC, early intervention play group and he goes to a family dare 3 days a week (the days i study nursing) I guess I am worried for his socail effects his 14 months brother wants to play and when his brother wants to show him how to do somehting he gets upset and i think it the comminutcation barrier. I do try to explain to lachie my 2.5 yer old that it is ok and he is trying to help he just doesnt seem to understand. So i am worried bout when he gets older will he learn like sharing n stuff. Sorry bout going the long way round the questions but n e other mothers out there with kids with needs understand where im coming from....