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india44
03-07-2006, 11:19
Hi I was wondering if anybody ont hese forums had experienced this auto immune dieases when they fell prgenant or already had ITP when they conceived?
I have had this for 8 years now and have been encrouaged to try for a baby in the wondow of good health I currently have. I am a regualr on the support group for this disease but was wondering if anybdoy here has it too.
Thanx:)

ICanDream
04-07-2006, 15:53
No sorry, I have Sarcoidosis which is another auto-immune but haven't heard of yours. Not much help I'm afraid.

MumsieMel
04-07-2006, 16:01
I had it as a child and is now in remission

india44
04-07-2006, 17:38
Mel..do you mind me asking how your itp was treated as a child? and hay sour doc ever hinted that a pregnancy might bring it on again?

MumsieMel
04-07-2006, 17:42
No prob..

I was put on steroids, and was in and out of hospital for years.
They even originally thought that my mum was beating me! :eek:
Then they thought it was leukemia!

No they havent thought it could bring it back up, and apparently its not heridatary (sp?)
Neither of my 2 have it *touch wood*

india44
04-07-2006, 19:52
Thanx for that. I had the same deal with leukemia etc. had steroids, platlettes transfusions,splenectomy 2000,dapsone ( anti leprosy) more steroids that nearly killed me mentally.$1000's worth of Intragram which is a blood by product 18 admisions ot hospital 8 last year alone and finally last decemeber I was treated with a drug they use for non hodgkins lymphoma. I am in remission for the first time in 8 years. My heamo says may hay while the sun shines so to speak. No its not herdeitay but can be passed thorugh to a child while pregnant as such but more often than not the children grow out of it sometimes within days. They even say that some woman only get it whne pregnant.
Thanks for your reply I appreciate it. :-)