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Briswegian
29-01-2009, 17:51
Just got blood test back indicating 1:200 risk of DS. A bit shocked and upset. Not going further with tests because of mc risk. Feel sick.

SammiAnn
29-01-2009, 18:02
I can offer no advice, but will give you lots and LOTS of :hugs::hugs::hugs::hugs:.

I wish you all the best for whatever the outcome of your wonderful pregnancy. And I sincerly hope you will be one of the many stories with a happy healthy baby.

Sam :bee:

meggs11
29-01-2009, 18:15
Oh honey....... :hugs:

I don't know if you have thought of it this way.... 1:200 is a 0.5% chance.... I think that makes look less scary...... I really don't know if that helps.... I am not trying to make it less than it is - I would be upset too.....

Positive thoughts to you and your little beautiful bubba..... I am sure you will all be okay...... I wish you a safe and happy pregnancy and a healthy and gorgeous baby....

:hugs::hugs::hugs::hugs::hugs:

bumblytumbly
29-01-2009, 18:16
I just wanted to give you :hugs::hugs: and send you lots of :goodvibes: that bub will be a perfect, happy and healthy baby.

Briswegian
29-01-2009, 18:22
thanks ladies. I'm upset because I didn't want the test (it wasn't explained to me) and I had it done on the 19th and they're only just telling me now and some reg rang me on the phone so that it ticked her box of referring me to a genetic counsellor and an amnio. Traumatised by the manner as much as the result.:thumbsdown:

meggs11
29-01-2009, 18:28
Oh... that is terrible....... they should not have told you like that!!!!!

I am a nurse and unfortunately I see people being told things in the worst of ways.... most doctors don't mean to come across as a$$holes..... they just don't think of the consequences.... statistics don't mean that much to them in all honesty.... 1:200 is just another number..... they forget that this is someones baby they are talking about and I always think..... what if that was me????

Did you have a nucal scan at 12 weeks or anything? You can always speak to a genetic counselor if you want and it may put your mind at ease.....

But if it is your decision to go ahead with the pregnancy without further investigations then that is totally up to you..... you can complain to the hospital and also to a health commission if you think it would help other women in your position....

:hugs:

Briswegian
29-01-2009, 18:34
Thanks. I didn't have a scan at 12 weeks cause I didn't get an appt until 14 despite a referral at 6 weeks. grrr, so never offered one, but in any case I never got one before becuase I didn't want to know expecially because it's a screen and not diagnositc!!!
A genetic counsellor is only going to tell me that I have 199 chance of a normal baby and only an amnio will tell me different. I don't want an amnio because of the risks involved so I guess I'll just have to adjust. I have an appt on the 11th so I'll be complaining then. I don't know if the 20wk scan will be able to tell me more?

Briswegian
29-01-2009, 21:18
:)Thanks for my own personal online counselling guys. Spoke to my husband who is away at the moment, best friend and mum and had a big howl and feel much better now. Am not going to let an unwanted test and unhelpful result interfere in bonding with my baby and enjoying the pregnancy. Will complain to the health rights commission. I know a midwife at the hospital that I attend so I am going to suggest a few differences. I had to sign a consent form to get an aids test but not for genetic screening bloods? I have more reasons to be optimistic than not so trying to keep it in perspective.
It's been a heck of a day. My eldest started prep today, found out that a friends sister committed suicide (she leaves a 13 year old behind), and then had an insensitive call from the hospital. I guess at the end of the day my life could be worse.
Off for some :sleeping: soon. Thanks guys for helping me to cope.

Amara
29-01-2009, 23:43
If your risk factor is based on a BT alone it's not very accurate. You need both the NT measurement & the BT to get an accurate risk factor, therefore the result they've given you is pretty pointless really.

As for your question about the 20 week scan. Some DS bubs are apparent at that scan but some aren't detected until birth. The only sure way of knowing before birth is to have the amnio.

The m/c risk for amnio is not nearly as high as you might expect particularly if it is done by an experienced O/B.

I hope you can push your worries aside & get on with enjoying your pregnancy. That's something I couldn't do until I had the amnio. I had a 1/37 chance of DS but bub was born without it as predicted in the amnio results.

mybabyboy
05-02-2009, 11:24
Hello

I hope it works out for you, try and be positive.

Perhaps look at the positive side of things. Imagine if they didn't call you with the results and you didn't find out till much further down the track? Every woman is different, but I call in for all test results, I dont leave it up to someone to come back to me. Perhaps it might help you to ask lots of questions if you are unsure of any test you are having. I bombard my GP with questions, there is nothing wrong with asking and dont feel embarressed to ask.

I believe Genetic counsellers are worth seeing, even if you dont want the amnio. You will get all the facts, from someone trained in what the tests involve, what the risks are and what other avenues are open to you if you dont want the amnio. Surely, it will help to know all the facts and all option and avenues available to you?

Try and not put yourself under any uneccesary stress, think of you and your baby.

Also remember, it is a screening test, not a diagnostic test.

Good luck with everything, try and take a deep breath and move forward from here.

:)

Briswegian
05-02-2009, 11:31
Thanks for :goodvibes:. I did ring the counsellor in the end to check my facts and after that I was absolutely fine. I've pretty much forgotten about it and am just moving on.

The reason that I am angry, is that I never requested the test. I had refused all tests in the past. So as you can imagine, it came as quite a shock to get a phone call from a doctor from the hospital who was just ticking a box off her to do list.

Looking forward to seeing baby in a couple of weeks when I have my scan to see if it's a boy or a girl! :)

meggs11
05-02-2009, 13:26
YAY!!!!:)

Hope your scan is great and I am so pleased you can relax and enjoy your pregnancy now.....

Stupid Doctor......:thumbsdown: