View Full Version : Polycystic Ovarian Syndrome
camira1976
19-05-2006, 09:18
I was diagnosed with PCOS on Monday and still coming to terms with the whole thing. I have been off the pill for 17mths and had really irregular periods and after some blood tests and a scan my gyno diagnosed me with it. He has put me on Metformin and I am feeling really ****, diahhorea, nausea. Emotionally I am still a little in shock. I have a four year old who was conceived so easily and now to be told this, well I guess I feel somewhat broken.
baby dancer
19-05-2006, 09:24
m_adams, :hugs: and :kiss: for you. I am not all that familiar with PCOS but just wanted to give you some :hugs: to let you know that we're here for you whenever you need to talk.
Ilana x x x
i sooo know the feeling, my doctor told me she thinks iv got it , just over a week ago. im going for an ultrasound on tuesday to find out for sure but its pretty obvious iv got it (now that iv researched it!) i had trouble concieving DS, -we have only been trying 4 months with #2 so far, but i dont wanna go thru what we went thru for DS again. i guess its kinda good to have answers, but im quite freaked out about it at the same time... i have been taking vitex for about a month now and it seems i have ovulated this month (i dont usually) so hopefully we caught the eggy.... my msn is braydsmum@hotmail.com if you want to add me. it would be nice to talk to someone whos going thru the same things...
I have PCOS too. but have our little angel :smiliedance: thanks to metformin and serophin (clomid). feel free to pm me anytime you want to talk about any of the yucky stuff with someone who has / is going through it too.
thinking of you. I remember when I found out and how devastated I was. :hugs: to you.
epiphany
19-05-2006, 11:34
Hi. I also have PCOS & have been on Metformin for nearly 2 years. I'm currently pregnant with my 2nd child (1st since the diagnosis) after several rounds of Clomid.
It can be devastating initially but there is life after diagnosis :) And if you're having a lot of problems with the Metformin, make sure you tell your doctor. Some people find the side effects too much to cope with, others find relief (strangely enough) if the dose goes up (or down, if it's too high)...some find it settles down after a while. I've also heard there's a slow-release formula but I'm not sure if it's available in Australia.
Big hugs. It will get better...honest.
Hi I was diagnosed in 1998 as having PCO. I went on to have clomid for 12 months up to 3 tabs a day then I was offered a position to take part in the national trial of Metformin. We obviously were not told at the time if we were to have the drug or a placebo but when i started taking it in combo with clomid everything changed including my childless life!!I eventually found out I had the real mc coy and not the placebo:smiliedance: I fell pregnant that very month and went on to lose weight and successfully had 2 other babies naturally without intervention.
Good Luck, it may seem daunting at first but you will get there.
Cheers Jen
Hi,
I went to my doctor last night and PCOS is the first thing she came up with.
I went for blood test this morning and will get results sometimes next week. In a sense it brings a little relief that there is a reason behind it all.
We will see.
camira1976
19-05-2006, 15:54
Thanks so much for all your good wishes. It is so nice to hear from other ladies in the same situation and some who still managed to get their little buddles of joy. I guess i am trying to think of the diagnosis as one step ahead of getting my own bundle and not a step behind. Knowledge is power as they say.
mumoftwoboys2005
19-05-2006, 20:09
Hi,
I have PCOS too. I conceived our first boy in 1998 naturally (no problems, it only took 4 weeks of trying) We decided when he was 18 months old that I would go off the pill and start trying again. We lost 1 baby christmas 2000 and then nothing happened after that. Eventually, we gave up trying and gave everything away except for the cot. I was diagnosed in 2004, but I didn't take any medication to try to get pregnant as I had resigned myself to just having the 1 child. After all, there's others that aren't so lucky. I missed my period for 9 months in 2001 but was told it would come back and it did. Everything was fine up till August 2004 then I missed them again but didn't think anything of it. My neighbour had fallen pregnant with 15 year age gap between children :eek: so I carried the heavy things when we did house cleaning. I was made by her to get the Dr to do pg test in January 2005 "just in case" I was sick of them saying "no" so I wouldn't look. You could have knocked me down with a feather when she said "yes" My poor husband nearly ran off the road, he was so excited! He is a truck driver (I should have told him to stop on the side of the road) I had a scan the following week and found out I was already 19 weeks pregnant. :smiliedance: That little bump will be 1 next month (already) :smiliedance:
Now I just want one more. :fingerscrossed:
MumofTwoBoys, that is a lovely story! I hope reading it has given me luck :fingerscrossed:
m_adams; Sorry to hear you're feeling horrible, I know it well. I am not sure what dosage you are on (obviously personalised to you) but my doc lowered my dose (I cut the tablet in half) and I increased it gradually under his instructions. This made a huge difference! One piece of advice, once you are in the swing of taking it, don't slack off without consulting the doc! I did, and when I took the next full dose tablet all the yucky sickness came back :(
Good luck mate, lots of us PCOSers here, so a whole mine of info at your fingertips... just ask :)
leilani07
20-05-2006, 07:52
Hi :wave: another one with PCOS here!
It is very upsetting to be told that it is going to be a bit difficult to conceive (as if it isn't already hard enough!) and then to have a reaction to the drugs and feel lousy as well....too much!!! :hugs: to you!
There are lots of people on here that have helped me to stay positive, and have directed me to info and other positive stories to keep me focussed. I would have been lost without Bubhub.
Hang in there. PCOS does not mean you are infertile. It just means that for some reason the hormones in our bodies are not in balance and it interrupts the delicate cylce of events when ttc and we need medical intervention to sort that imbalance out. Like you said - a diagnosis is a step ahead. A step closer to getting your baby!
Good luck :fingerscrossed: and positive vibes ~~~~~~~
Mariposa
20-05-2006, 08:03
yet another victim of PCOS!
i would just like to share my lil story! with my first child, i was on the pill and fell pregnant with her, when DH and i decided to try for no 2, 2yrs later, we had no success, after many arguments and me trying to lay the blame on him, saying that its all his fault, i decided to go to the drs, and get a ref for a specialist just to be sure that it wasnt me. when i went to the obs she told my that i was a text book case of pcos! i sat there stunned for a long time whilst she explained what it was, but still really couldnt believe that the fault lay with me. so she started us on the clomid, i was on this for 6mths without success. she then decided to use the FSH inj, well im not one for needles, but we were desperate to have another as my DD was almost 3. 5mths later on being on the injections we were bout to give up, when lo n behold, a test confirmed i was prenant. the feelings that we felt cannot be described fully into words. DD2 came in 2003 DD1 was already 4.
we decided to go again, but this time instead of going on to the clomid i asked my OB straight away for the injections, and guess wot? it happened the first time round!:smiliedance: so this lil bundle of joy is due in july.
i wish you all the luck, keep your chin up, it does eventually happen!
Briswegian
22-05-2006, 13:51
I was 5 weeks preg with my first son the day I was about to start treatment for pcos after 8m of trying! and the second time round we fell preg first cycle after ceasing contraception (I was having regular periods at this stage). I've heard anecdotally of it being easier the second time?
I was wondering what treatment any of you have for pcos when not ttc?
Hi Danielle,
My treatment has been to be on the pill, and taking Metformin. I have been on the pill since 14 due to the horrid periods, but not diagnosed till I was 19 or so (thanks to a wonderful GP who LISTENED! :eek: and a fantastic ObGyn who is fascinated by PCOS). Metformin ever since :)
epiphany
22-05-2006, 23:29
Danielle...for me it was just Metformin. My original gyno wanted to put me on the pill but I've had blood clots in the past, so couldn't take it. So I'm just on Metformin (although have recently come off it as I'm currently pregnant)...2000mcg a day. I found it stopped my continual sugar cravings, I lost weight & I got my periods back almost immediately (before, I was only getting 1 every 6 months or 1 a year).
Question for those with PCOS who got pregnant.
Did you get pregnant staright away after being diagnosed and starting treatment? and what side affect did you get?
Patiently waiting till my frieday appointment to find out the results. :rolleyes:
well, im heading off for my ultrasound at 10.30... will find out once and for all if i have PCOS... im freaking out, but i really want to know too...
whitsundaysmumma
23-05-2006, 08:41
:no: I just wanted to give you my support and say I have never experienced PCOS, but I send you my love and best wishes, for the positive outcome you are hoping for.:hugs:
does anyone know if the pill can mask symptoms of PCOS, besides irregular bleeding?
since going off the pill i am sure some body hair is darkening (particularly on the stomach and upper lip, never a probelm before there), I have not had a period since the initial withdrawl bleed, about 2 and a half months ago, both my older sisters have PCOS, im currently finding it hard to loose weight, besides a rigorous excersize regime and healthy diet (i will admit though i am down to that last little bit to loose which can be harder).
I had an internal ultrasound a couple of years ago but while i was on the pill and they said they didnt see any cysts. I had conflicting info from my GP as to weather this is the result that proves or disproves if you have it though so i am confused.
Hi NicoleE, I am not sure if the pill can actually mask symptoms or not, bit either way; PCOS has such a huge range of severities in different people, and for each person it does also fluctuate so I don't think 1 scan, when you seem to have symptoms, would be conclusive. I would ask for another around O time if you know when that is?
My reasoning for saying this is that a scan at 19 showed 6 cysts, and a lot of women do have a few all the time, but last year a scan showed 78 cysts!
So if you are concerned, it is the docs job to reassure you by finding out conclusively either way :)
Hope this helps
Briswegian
23-05-2006, 11:25
Looking back on my difficulties, I'm sure that the pill masked the fact that I likely would have had irregular periods which is one of the main signs.
Regardless, I eventually got a diagnosis even though I didn't meet the "criteria" in that I didn't have enough cysts on my ovaries.....if you fit the overall picture then you've got it.
I didn't know anything was wrong with me until i started having hypo's and nearly passing out. That happened once at a concert and I got treated like a drugged up chick :thumbsdown:
Then I put on weight so quickly that from one week to the next my jeans didn't fit me and I couldn't figure out why??!!
I'm in the process of doctor shopping to find someone who'll help me. Last time I asked about metformin i was told that my bloods didn't fit the profile but given that I know I fluctuate, this isn't really a good enough answer to me. If not metformin then what....well I'm told to lose weight! It doesn't matter what I do I either don't lose any or a very very small amount and then the doc says, yes well it will take a while (i'm talking grams here not kilos).
My second baby was a c sect as he was large and lots of fluid which fits the picture for mums with diabetes. given the similarities between diabetes and pcos you'd think someone would make the link! So on top of being overweight I believe I've likely ended up with a c sect because of the pcos and the ONLY help the medical profession has ever offered me are drugs to force me to ovulate in order to conceive. Don't get me wrong, my children are miracles but what about my long term well being.
Hi DanielleC, I am sorry to hear you have been through such difficulties being given adequate treatment! If you are wanting ammo to fire next time you are at a GP, ask for a GlucoseTolerance test. This will tell whether or not you are insulin resistent, and if you are, then that would be a major reason for the weight, and most likely make you an ideal Metformin user.
Good luck matey :hugs:
Briswegian
23-05-2006, 12:39
Thanks...I feel better after a rant and back to a solution. I have had a GTT before and it has been "not in clinical levels". I'll ask for another and just look for a doc with an special interest in PCOS.
well, my ultrasound showed that i do have PCO's next step, blood tests to find out if its PCOS... i guess... aghh this is sooo stressful!
Good luck Braydsmum, just keep reminding yourself that either way (PCOS or not) you will know soon.
I have a question for all you Metformin girls; when going to get your prescription filled, or to a GP for a refill, do you get quizzed on your blood sugar levels, and an assumption that you are diabetic? It might be cause I have been on it since it was in early-ish use, but they look at me like I am an alien when I tell them it's for PCOS! A lot of docs then start asking all about why it is used as they are fascinated and have never heard of it!
It does seem strange that medical proffesionals should need my limited knowledge of it :confused:
Thanx BlueGin! i have a question. what is Metformin and what does it do? iv heard alot about it on this site but dont know what it does etc.. thanx
Hi, happy to give you what I know, it just isn't much!
It was originally a diabetes medication, and is used in patients with insulin resistance. (as far as I know, your body has to produce excess insulin to control blood glucose)
This can help with the annoying weight that some people with PCOS just can't seem to lose. And if you have a tendancy towards obesity, it will help you avoid type II diabetes. Somehow it also seems to help with all the other symptoms and may be of help with conception issues
:)
awesome. thanx heaps for that. i have the stupid weight symptom of pcos, i will talk to dr about that next monday when i have my next appointment... :)
camira1976
23-05-2006, 20:54
Braydsmum I just wanted to send you a big:kiss: . Your kind words helped me heaps last week. Also if it is of any help I have managed to find a couple of good books on PCOS in the past few days. Poly Cystic Ovary Syndrome by Dr John Eden is one of the better ones. I have found that the more knowledge I have about the condition the more in control I feel. Try and stay positive a diagnosis means you can take control and a step forward in treatment.;)
Glad to be of service Braydsmum :D
When I was diagnosed I felt pretty lost, the only websites talking about it were American, and I hope I don't offend anyone, but they were WAY over the top, I don't want PCOS to define me!
Good luck with the doc, and let me know how you go and if you have any questions :)
By the way, I lost 10kg the first time I was put on Met :eek: (all back on cause I am super slack at taking medicine :o)
X
lizzymcfizzy
26-05-2006, 10:30
hi, I am another with PCOS, I took it hard when I first got diagnosed but like someone else said, its a step forward to knowing whats holding up the TTC process :)
This is the polycystic ovarian syndrome association of australia's website http://www.posaa.asn.au/
To answer a few questions I read while skimming through this thread - the pill can mask other symptoms besides irregular periods, like facial hair and weight.
Metformin makes your body accept the insulin that it produces - pcos makes your body insulin resistance. When you are insulin resistant all the fatty food you eat goes straight to your hips :) Ive lost 9 kilos since starting metformin 8 months ago.
Its very difficult to loose weight without metformin if you have pcos.
It takes awhile for your body to get used to but once it does its like taking any other tablet. The first two weeks you get diorreah.
I read that John Eden book too and it was very helpful!
BlueGin - metformin is on the pharmecutical thingi as a diabetes medication. Some doctors pescribe it for treatment of pcos but it isn't listed as being a pcos medication. Thats why not all of them have heard of it or are familiar with it.
ps - metformin can also be referred to as diaformin.
you may find something in these threads helpful http://www.bubhub.com.au/community/forums/showthread.php?t=839
http://www.bubhub.com.au/community/forums/showthread.php?t=9060
Well, the doctor said that my blood work all matches up with PCOS. Now i have to wait to hear back from the rayal womens hspital to decide what happens next. I have to say i was in shock because i honestly thought she was going to say that nope pcos isnt it.
So it hasnt sunk in yet - but i dont like it. I swear ive started growing a moustache. Its awfull. I guess the pill ius now fully gone from my system.
thanks for the tip lizzymcfizzy! Always good to have info at hand :D
Hi French_gal, well just remember that we are all here for you to vent to/ask questions of if it gets too much :hugs: Interesting thing from your post: you mentioned facial hair, possibly in jest? Not sure, BUT I was wondering if you guys knew that there are distinctly different forms of PCOS?
The most commonly found one is "male factor" which means as the name suggests that you have more testosterone in your system, as one of the symptoms. This has its good points though! Sometimes a little oestrogen boost can do wonders for you, which is great! Also, not everyone with PCOS has insulin resistance (though it is majorly common), for a great way to tackle it try "The Glucose Revolution" (I am not organised enough to plan meals ahead but I hear great things, and it is fairly easy to incorporate in to life).
The other lesser known form I don't know the name for, but the ob/endo who treated me in Sydney described it as "an ideal desert dweller" body type... apparently I would be quite at home as a nomad as my body stores fat and water like a camel :o. But the benefit of this type is no male factor symptoms.
I have been lucky to be treated by 2 men pioneering the treatment of PCOS, and leading the charge with Metformin. They have taken away all the fear I had, to tell you the truth the syndrome doesn't faze me in the slightest now, so make sure you find the right specialist for you, they make ALL the difference...(so do forums where you can vent freely when it all gets too much!)
Sorry for the long post, I hope no one is scared off, I am currently being a night owl at my laptop; scared to go to bed because when I wake up I have to go to the docs for a blood preg test :laughing:
lizzymcfizzy
30-05-2006, 11:38
thanks bluegin, I didn't know about the different types of pcos. That is very interesting reading. I think I have the male hormone one.
I have the book on the glucose revolution but have kind of fallen by the wayside! I think I need to get into it again.
I'm very glad to hear you have found a good gyno, it makes a difference. :smiliedance:
Just wondering.........:confused:
I was on metformin while ttc and at the end of my pregnancy for GD, but haven't been on it since. My period has just recently returned and so has a heap of facial and tummy hair :mad: .
Have any of you who are on metformin to control the symptoms of pcos generally, (not just when ttc) noticed it helps with the androgynous hair issue??? I couldn't be sure if it was my pregnancy hormones or the metformin that has helped over the last 18mths and was interested if it has helped ease anyone else's symptoms apart from ttc?
epiphany
01-06-2006, 17:45
fee's...I have hairsuitism & was on Metformin for 2 years (just stopped as am preggie). I never found it made a difference to the moustache...in fact, the ob/gyn said if I wanted to specifically treat the hair, I'd have to either try a hair removal method (eg laser) or he could prescribe something which I forget the name of. The Metformin only tackles the blood glucose/testosterone link to PCOS...it doesn't treat the symptoms (like hairsuitism) specifically.
thanks for that epiphany. bummer - I was hoping for a easy fix. I thought if the hair was hormonal that you would have to keep treating it if you went for laser or electrolysis - anyone know anything about that?
lizzymcfizzy
06-06-2006, 16:37
good question! I'd assume that no matter how the hair comes about, if you get laser or electrolysis it would permanently remove the hair.
camira1976
12-06-2006, 17:56
I would just like to share some positive news for all those who have PCOS and are TTC. I started this thread after I was diagnosed with PCOS last month on the 15th of May to be precise. I had a scan and blood tests and was put on metformin. I was also taking vitex. Anyway my doc sent me off on day on day 21 for another blood test to see if I was ovulating but the results showed I hadn't. We made another appointment for wednesday last week. I was given a script for clomid and also advised to have a blood test to rule out pregnancy before i started the tablets. I filled my script for clomid ready to start, but low and behold the doc rang my husband 2 days later with the blood results and guess what.... I was pregnant!!! He then rand me and I just couldn't beleive it . I did 2 home tests myself just to make sure. We had been trying for 18mths and were shattered after the PCOS diagnosis. We tried our hardest to remain positive and it worked for us. My best wishes for all the PCOS ladies out there I hope you too get your happy ending.:fingerscrossed: :fingerscrossed: :smiliedance: :smiliedance:
borntobemummy
12-06-2006, 18:01
WOW! Congratulations M!!! What excellent news...what a dream phone call:thumbsup:
Ok, so im of to the freemasons hospital today to see the female speacialist. I want to move things along. So what do i need to tell her, is there anyhting i should bring?
Since i came of the pill till now, i have put on an extra 15kg. Just like that. No difference to my diet, and i was kind of excercising. :banghead:
Man i hate this.
Hi gals,
I also have PCOS, l knew when l was 16, tried to bring it up with my doctor back then (12 years ago), but it was not nearly so common back then and they just ignored me... when l went off the pill l started feeling strange... l was accumulating cysts, one doctor told me to just get pregnant that would fix everything, but l wasn't ready just then... l went to another gyno and he told me to just wait and see, but the more l read the more l was convinced that the longer l stayed off the pill the more cysts l would accumulate -- then what would happen to my ovaries?
I went to see another gyno that was recommended to me, Dr. Simon Gordon, he specialised in endometriosis and knows a good deal about fertility problems and PCOS... he has been a godsend... always giving the information straight out, we got pregnant on our first try -- when we were ready to... not b/c some doctor wanted to scare the living daylights out of us.
If anybody wants Dr. Gordan's details l would highly recommend him -- He is also known as the expert in Endometriosis in Australia - people travel from across Australia to see him.
Hang in there - its not the death knell - but if you can cut down on your sugary foods it helps... their are many ways to combat the other problems associated with PCOS as well... depending on which of these you have... weight, excess hair etc.
Feel free to PM me if l can help
Hi gals,
I also have PCOS, l knew when l was 16, tried to bring it up with my doctor back then (12 years ago), but it was not nearly so common back then and they just ignored me... when l went off the pill l started feeling strange... l was accumulating cysts, one doctor told me to just get pregnant that would fix everything, but l wasn't ready just then... l went to another gyno and he told me to just wait and see, but the more l read the more l was convinced that the longer l stayed off the pill the more cysts l would accumulate -- then what would happen to my ovaries?
I went to see another gyno that was recommended to me, Dr. Simon Gordon, he specialised in endometriosis and knows a good deal about fertility problems and PCOS... he has been a godsend... always giving the information straight out, we got pregnant on our first try -- when we were ready to... not b/c some doctor wanted to scare the living daylights out of us.
If anybody wants Dr. Gordan's details l would highly recommend him -- He is also known as the expert in Endometriosis in Australia - people travel from across Australia to see him.
Hang in there - its not the death knell - but if you can cut down on your sugary foods it helps... their are many ways to combat the other problems associated with PCOS as well... depending on which of these you have... weight, excess hair etc.
Feel free to PM me if l can help
you have a pm :yes:
Hi l was told l had pocs 2yrs ago they only started me on the metformin last,
so you know even now l still get diarrea and upset tummy has if you eat or drink someting that the metformin does not like it get rid of it real fast, the hos told me it only lasts for 12weeks' yeah rite'
Hello
I was looking up information on the LLETZ procedure as my Pap Smear came back CIN 3. So I need urgent treatmeant to remove those cells.
Reading the papers you bring home .. could be a small risk or find it diffucult to fall pregnant or even carry the pregnancy to term well depends on the amount of tissue they remove. Thing is .. I have PCOS and having PCOS is already making it hard to fall pregnant.
Miracle happen and I had my son in Dec 2002. After nearly 6ish years of trying 'naturaly'. How does one pay for IVF? So the past 2 years been trying to have another baby ( Be better if I lose this weight! ) And now having this LLETZ. My Nan says 'Why Me' as she had dialysis and I can fully understand her saying 'why me' at this present moment! :crying:
:) I will pick myself up and smile and will get through this. As I have been saying to others when they ask me 'when are you having another one' My reply is ' When it happens, it happens'
Me Age 31
DH Age 34
:yes: 3 and half year old Son - What's the secret to toilet training!!! :)
lizzymcfizzy
28-06-2006, 11:41
I'm sorry, I'm not following. What is LLETZ and CIN3?
fox_motorcycle_girl
28-06-2006, 13:11
I've never been diagnosed with PCOS but I had irregular cycles from the moment I got my period at the age of 12, heavy AF, excruciating AF pain and pain anytime during my cycle, then I had a cyst burst when I was 14, so I was put on the pill, I had another cyst burst when I was 18 (while on the pill) but everytime they did a U/S or a laparoscapy (can't spell it) they couldn't find anything.
I've been off the pill for 3 months now (at 21) and from the word go my cycle has been regular (28 days) my AF's are lighter, I have less AF pain, it's so strange but good :) . I haven't taken any other medications (other than the pill during that time) I've only had prayer.
lizzymcfizzy
29-06-2006, 13:36
thats great your AF has settled down!
I see you are are in Newcastle too, hi!
I was diagnosed with PCOS on Monday and still coming to terms with the whole thing. I have been off the pill for 17mths and had really irregular periods and after some blood tests and a scan my gyno diagnosed me with it. He has put me on Metformin and I am feeling really ****, diahhorea, nausea. Emotionally I am still a little in shock. I have a four year old who was conceived so easily and now to be told this, well I guess I feel somewhat broken.
im sorry tag
Hi im twenty one and have recently be diagnosed wit PCO's im still uncertain wat my chances are to conceive as i cfant get a straight anwser, also is polycycstic overies heredatory because my mum was never diagnosed with it but was was diagnosed with diabetes last year. before she stopped havin periods tho she had all the claasic signs ie hair growth irregular periods + mood swings.
Hi im twenty one and have recently be diagnosed wit PCO's im still uncertain wat my chances are to conceive as i cfant get a straight anwser, also is polycycstic overies heredatory because my mum was never diagnosed with it but was was diagnosed with diabetes last year. before she stopped havin periods tho she had all the claasic signs ie hair growth irregular periods + mood swings.
I can tell you that it does run in families. I have read that if your sister has it you have a 50% chance of also having it... I have two sisters and it looks like all 3 of us have it. My GP looked at my blood tests and says its highly likely that I have it and I have jst made an appointment with Repromed (fertility specialists) which they referred me to so we can work out the next step.
tyler's mum
08-07-2006, 21:31
i was also just diagnosed with PCOS,, i dont know if i used to have irregular cycles as i was on the pill for 10yrs, but then again i fell pg without trying so i could have got it after having tyler:confused: my sister aslo as this and yet to be able to have a baby,, im still getting more test and go back to see specialis in 6weeks to work out what i need to do to try and fix it
i dont think i wont any more kids but i still feel like i need to get it fixed...iykwim just in case later on down the track i decide i would like to TRY for another baby
Hi all, thought I would pop in to this thread to share my news. I hope no one is upset but I am pregnant! I am posting because I know I was always really excited when I saw someone else with PCOS get their BFP.
Sorry if this makes anyone sad, certainly not my intention, just wanted you all to see a sister make it :)
tyler's mum
08-07-2006, 21:36
thats great good on you:thumbsup:
leannedavies
10-07-2006, 20:07
I was diagnosed with this a few weeks ago after over a year and a half of trying to conceive, I was sent for a scan to look at my ovaries, but was fairly sure of the results after research. I then suffered a miscarriage a few months back. Although it was a relief to know that I could concieve, it was devasting to lose the baby. I now feel like all I think about is conceiving, and I am so desparate for a child. Doctors dont take me seriously because I'm still very young which is a pain (twenty by the way). If any one wants to talk I'm on msn satanslealea@hotmail.com. I think it might help me to talk to others in the same situation.
I am trying to find a doctor (m_adams1976 - i have seen Prof Eden as a specialist - many years ago, he was good and would like to find him again!) I deeply suspect i have PCOS - all the classic symptoms, since going off the pill i have put on so much weight unexplainedly (was gradually putting it on whilst in the pill - 16years) and even though its only 7 months ttc i feel there is a problem.
If anyone can recommend a good doc in Southern Sydney id appreciate it.
Hello everyone,
I also have been diagnosed with PCOS in the last 6 months. It was a huge shock to me as well as our doctor as i have not had any symptoms and the blood tests that the doctors had done were not giving any clue but after the scans etc they found that yes i do have it. I have a daughter (Zahli) who was conceived naturally and she has just turned 4 we had no problems conceiving with her which is another reason why it was a huge shock to be diagnosed with PCOS.
We have been going to Repromed in Darwin (fertility specialists) and we have found them to be fantastic and helpful. We have done 3 cycles of Chlomid and we find out the results of the last round next week (I don't think that it has worked though - I don't know why just a gut feeling). We are also booked on for IVF to begin if this last round of Chlomid has not been successful. If the Chlomid hasn't been successful then the IVF will begin next month. I just wish everyone here all the best on their journeys and hope that all goes well. i will keep you updated on our progress over the next month.
Trendy1 26
DH 27
DD 13/06/02:devil6:
Forgot to mention also in last post, last year i did a blood glucose test and it showed the result i was insulin resistant. But nothing was ever done about it even though it was a high reading - i dont even know if i should have another one done???
lizzymcfizzy
13-07-2006, 16:01
you should talk to your doctor about insulin resistance as it is managable with medication and diet.
Well - i have at last been to see another gp - she is fantastic - and i have to have all the tests again - she says it is most likely i have pcos (as runs in family as does type 1 diabetes)- without recieving the tests results im having done next week she is fairly sure. As she is a doctor i used to see in the past, she knows my history - the fact that i have a fantastoc diet and train for karate more than 15 hours a week. She was absolutely aghast at some of the comments made by a doctor at the centre i used to visit - the old "loose weight and go on a diet' comments.
Its amazing people can still say that to people - especially when they are just going off appearances!
I also have to do a sleep study and then referral to Prof Eden - so glad im seeing someone familiar again, then a bit of keyhole surgery, a fertility specialist at the same time and im also going to be prescribed with metformin.
I hope to hell it assists in weight loss as i really need that - not ill educated quacks presuming i eat like a pig!
Im sure its been asked in the past but how well (have those that have been prescribed metformin) has it worked for you? Dr K seemed most concerned about my fertility and so am i - given its been 7 months ttc (im aware others are at it much longer).
And - i love to read about all the successful bfp's from those with pcos! Makes things more hopefull for me.
mummynat
28-07-2006, 16:23
Hi
I was diagnosed as having POCS when I was about 21. I was devastated as I considered myself healthy - not overweight (although not fit) and followed a pretty healthy diet. I am not 29, and expecting my first baby next month - conceived naturally. It took more than 6 months, and it was quite a shock to me that I could conceive naturally.
A colleague at work also has POCS. She gave birth to a baby girl a few months ago - conceived 1 month after taking fertility drugs. She has just announced to the world that she is pregnant with no.2 - conceived naturally.
I hope it helps... keep positive and best of luck! :yes:
Nat
Briswegian
28-07-2006, 18:41
I have two boys conceived naturally and I have PCOS. I got really unwell really quickly and put on lots of weight....few years later came off the pill only to have very irregular periods...i think three in one year. It took me 8 months to conceive naturally and it was on the third ovulation that we conceived (although I had no idea when i was ovulating). I was actually about to start clomid and did a test as a precaution and I was preg. Coceived second bub first try.
For both we were on a months holiday and lots of red vino!!
lizzymcfizzy
29-07-2006, 20:13
DJF
Professor John Eden? If its the same person, he published a book on PCOS! lucky you!
Good to hear you have got in touch with a good doctor and are making progress.
I sooo understand what you mean about ignorant doctors thinking you just need to stop eating ****. Same with ignorant "friends" and family.
To answer your question, when I started metformin I lost weight for the first time in many years. I lost 8 kilos all up but then put back on 3. But at the same time I started going to the gym and I tried to stick to a low GI diet so I don't know if it was all the metformin's doing or a bit of both.
Most people will warn you that metformin gives you tummy upset and "the runs", which it does when you first take it until your body is used to it. I was a bit off for about 2 weeks but didn't have any hassles after that. You can start on a low dose and work your way up if it really effects you.
Some people (including me) also find that it makes them feel fuller than normal. Also I don't know if its in my head or not but when I eat fast food with diaformin it tends to go through me quicker too!
Interesting point Lizzy, about fast food going right through you, I had never made the connection - but it does seem to be true for me too! I also feel fuller.
Originally I lost tons and tons of weight with zero effort, but I did start it the month I met my now DH, so maybe love whisked the pounds away! :laughing:
Seriously though, it must have helped as I lost 10kg in a month or 2, pretty awesome! Over the years (maybe 4 years?) I put it back on, but I deserved to with the way I ate :o I ate like a skinny girl, but it don't work like that with PCOS! I was also slack in the past year about taking it, and boy did I notice a difference! I put on about 5kg which sucks, but oh well, didn't affect fertility, yay!
I have been more diligent with the tabs now with the pregnancy, I would feel horrible if I lost this bub for something silly like that!
Good luck, it sounds like you've landed on your feet :thumbsup:
tyler's mum
29-07-2006, 22:31
i was wondering to those who got pos after having there bubs, what there specialist have told them to do or why they got it,,
i was told i have to lose 10kgs, i must say i havent really been trying however sometimes i find it hard to beleve it beacuse of my weight i fell pg with tyler not even trying and i was over wieght them aswell:confused:
my sister also has it she lost 20kgs and still couldnt get pg, so how do you work it out:confused: :confused
Im having my slew of tests on monday and wednesday - i actually saw Prof Eden as a child, as did my mother so he will hopefully still have our history.
This all makes me a little sad as in my early 20's i did did fall preg but started to miscarry as a result of too much hard sport - ended up having to have surgery at a place in paddington - cant remember where it was now. I just hope that the surgery i had didnt result in scarring - but i guess they will see that on U/s and laparoscopy. Has anybody had a laparoscopy for determination of pco? Just wanted to know what they do.
Maybe im just being vain - but im really hoping that something is found, im given the correct medication and i loose weight - i cant stand being this heavy, its taking such a toll on me. Health wise as well as mentally. Im just glad i have DF - he is so supportive and never makes me feel unattractive - i can do that all on my own! I think the fact ive put on weight rapidly since stopping the pill has to mean something is going on, i just hope it gets solved very soon.
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