Chronic Gastritis and Food

[kel2]

We got the results today from the gastroscopy done on our 11 month old DS. He has severe chronic gastritis and GERD. His stomach lining and esophagus are inflammed and damaged from the GERD. Would the chronic gastritis be the cause of why he can't tolerate food at all? It was kind of hard getting answers from the doc over the phone.

[Nowhere]

hey there

It could be that the food is actualy causing the inflamation in the stomach and esophagus Im assuming they took biopsies for Eosinophilic gastrointestinal disorders such as Eosinophilic Gastritis and Eosinophilic Esophagitis, and Eosinophilic intestinitus ganeraly they are refered to as EE, EG, and EGID.

These disorders all show the same symtoms as typical GERD but are caused from the reactions to the protein in the food, It is generaly treated with elemental diets or elemental formula such as neocate or elecare and medication once the inflamation is under control then they start to do food trials.

here is some info on it

http://infantrefluxdisease.com/eosinophilic-gastrointestinal-disorders.php

There is also a suport group on IRD for parents of kids with GERD and or other GI issues the link to that is

http://infantrefluxdisease.com/forums

There is another great web site for this also it is
http://www.parent-2-parent.com/forum/forumdisplay.php?f=119

Generaly the biopsies wil take a week or so to come through so i gues until then its just keeping up with the gerd treatment

Hope that getting answers from the scopes will help with his treatment good luck GI issues suck

My DD suffers with inflamation from her eosophagus all the way down to her bum and doesnt tolerate anything but neocate and even that is at a struggle, she takes meds for her EGID and they help her tolerate the neocate but not fully

what is your DS on at the moment feed and med wise

PS mods the two web sites i linked to on this thread are aproved one there is a link from your RISA link to it thats the IRD one and the other i have got prior aprooval to link to specific sections with condtions many on here are not familiar with

[teenie]

Hi,

I had chronic gastritis for about 10 months recently. No fun at all. The drs were unhelpful (specialist and GP) - they prescribed drugs which did nothing to help (Nexium, Pariet, Somac - not all at the same time!). In despair I went to a naturopath and nutritionist and that was the beginning of my recovery (that took months, by the way - very gradual). She firstly put me on supplements (aloe vera juice - still drink this everyday, slippery elm powder and some metagenics gastro aid supplements - not sure if they'd be ok for a baby but sure the 1st 2 would). I then underwent rigorous allergy tests. Wheat came up as a severe alergen along with quite a few other things (also dairy). I eliminated them from my diet completely. This is when I started to get better.

It's certainly a harder road with a bub, but the food thing is definitely worth looking into. Don't expect support from the Drs with this. Mine completely disregarded it - even when I said I'd gone off the drugs, gone off the foods and was finally improving:eek:. I still have to be very careful with my stomach, especially as I'm pg. But I still take the aloe and slippery elm as a precaution and I am SO much better. I still have eliminated these foods from my diet. I'll probably never eat wheat again.

I hope this helps. I feel for you. Please let us know how you get on:hugs:

[kel2]

Mikenzees mum - Aparently they tested for EE and that came back negative. The results only took 2 days to come through. He is soley on Neocate as all food cause him problems, he is ana to some food, he has 45mg losec suspension a day,10mg Zyrtec a day and Gaviscon in every bottle as well as ventolin and excema creams. They just keep upping his meds to get him to tolerate anything, half the time we have problems getting the Neocate in. I am just frustrated and stressed out trying to get answers as what is wrong with him and how we can fix it. Lucky for us he is a chubby thing so when he reacts to foods and refuses anything for a few days it doesn't matter. Thanks for all your advice and good luck with your little one.

[Nowhere]

That sucks that he cant have anything but neocate, have they tried him on any of ther steroid medications to see if that helps him tolerate it or just keep upping the losec and the zantac, Has he had a PH probe/ empedence study done to check the acidity level of the reflux on meds

[kel2]

We havn't done any of that yet. It was only 2 weeks ago that we saw the Gastro doc and he only did the scope on tuesday this week. I have fought with the pead, allergist and GP for months saying that I think that there is something wrong with his stomach or esophagus. Would they normaly test for EG or EGID as well at the same time as testing for the EE? The doc said he took biopsies of his stomach at the same time. Basically they just keep uping the meds and telling me to see how that goes? Should I be requesting some other tests or asking about steriods? Would this help him to be able to handle foods? This is all new to me and any advice or help on what I should be doing or requesting from docs would be appreciated. I have learnt that a lot of specialists just put my DS in the to hard basket or the wait and see pile unless I start pushing.

[bossoflatch]

kell - sounds like all the meds pete and cleghorne had tay on .- sometimes the high amount of the losec can cause really bad cramping .

i know with tay her high dose of losec was actually causing her cramps- screaming all night long ..
do you have ds on a good probiotic ? can help them with the gut inflammtion

her ee tests came back negative too .. not enough eos t o be positive but shes was already a breastfeed exclusiong diet so not likely to be positive :confused:

[Nowhere]

thats sucks you have been given the run around it totaly sh*ts me when drs put kids in the too hard basket that hapened to my DD for a while til we got a new team now they are really onto it

As far as testing goes I would be pushing for a empedence study the reason being the losec is a proton pump inhibitor and it wil decrease the acid producation it will lower the PH of the gastric secretions to stop the acid burning the oesophagus, but that is all it wil do it wil not help with foods KWIM, 45 mls is a very high dose sometimes it is needed but i would be asking to get the study done on 30 mg a day and then if needed go back up to 45 KWIM 45 is a high dose with out proper investigation, Zantac is a histermine blocker so it makes sense that he is on that as well as it helps with the acid and the feed reaction ( leis is the best one to explain that ).

As for the negative biopsy for EE how long has he just been on neocate for as he will only show EE if he hs been on food recently KWIM as he wil not get the reaction to neocate if it is his safe food

You see pete smith as an alergist right, maybe ask him if there is anything that you can try to help your DS tolerate food i know with some kids steroids help, My DD is on a non steroid steroid, Intal and we put the capsules into her J tube, she cant tolerate anything but neocate on it anyway but others kids do great

I know it sucks that he cant have anything but neocate but it is positive he is doing well on that KWIM

Good luck
:hugs::hugs:

[kel2]

Bossoflatch - How long after you went to a high dose of losec did tay start getting stomach cramps? We have tried him on Inner Health Plus dairy free powder but that also caused a reaction for him. Is there any Probiotic you can recommend?

Mikenzees mum - Please tell me if I am understanding this right. EE wont show up unless they were having something that would cause the reaction, so cause DS has been solely on Necate then it is very unlikely that ee would sow up if he had it. DS has not had any food for 2 weeks prior to the biopsy and the last thing he had was 2 teaspoons of pumpkin that caused the reaction. Basically we try something every 2 weeks or so and each time it is only a vey small amount that he has. So would that still be in his system to show up on his test for ee?

I rang cleghorne today about the empendience study and he feels that we really need to stay wth 45mg losec a day for the next 6 weeks to see if that helps him, cause we were on 30mg for a while before the gastoscopy and that appears to not be helping him.

Called pete smith today and left a message for him to call Monday. Lets see what he can do for us?

Thank you for bossoflatch and mikenzees mum for all the advice it has really been helpful with our next course of action.

[bossoflatch]

hey kellie who are things

you sound like you are getting the round around like we did :rolleyes:

we too got the results from cleggy over the phone .. on the day he said it looked like ee but the tests said it wasnt.. since found out that since i was breastfeeding on an exclusion diet .. woudlnt likely show up :o

we noticed cramping over time with tay .. i cant tell you the exact time.. coz it was after we started experimenting with the time we gave it to her and changing the dosage from 30 to 10 to 20 .. we kinda just went and did things ourselves as no one was listening when i said she was crampy and screaming (cept amy lol ) ..

inner health claims to be dairy free. but we used another one..

bbl with the name. jsut cant think of it atm ;)

[kel2]

:hair:We are still having no luck with DS. We have been away for the last 10 days, whilst away we tried him on sweet potato and although he loved it after about 2 days he just started pooing (runny) about 10 times a day. I have also notived that the past 3 nights he is waking up screamining :hissy: a couple of times a night. I try a bottle and he just throws it away, not sure if this is due to the losec or what. He is also regurgitating a lot more again and starting to vomit :barf:after his bottle so now we are up to 2 sachets of gaviscon in every bottle to try and settle it down. I was told by cleghorne that with uping the losec to 45mg we would not need the gaviscon, so far not noticing any difference it seems like things work for a week or two and then we have to add something else.
Bossoflatch, Have you found out what the probiotic is yet? Did this make any difference with tayla?