Any one else with an Epi Pen kid??

[LizzardLover]

My daughter has an Epi Pen for allergies to walnuts and peanuts. She goes back soon (when I remember to make an appointment) for tests to see if her allergies are getting better/worse/same but I dont hold out high hopes for them to get better since her reactions were pretty big last year. I wish more than anything she would outgrow them but at 6yo it's not likely.

Just wondering if there are any other mums out there struggling through this like we are?? Anyone??

[missie_mack]

Gosh I wish :( I have to wait for DS to weigh 15kg first :rolleyes: Everytime he puts on weight he gets a cold and loses more again :rolleyes:

By DS suffers from anaphylaxis to eggs. Its not easy but at least its the only one :o Seems most people with allergies tend to suffer quite a few

[DB&O]

Hi Anne :wave: My 3 year old DD has anaphylaxis to peanuts, she has only had one anaphylactic reaction but it was scary as all hell, she stopped breathing & turned all purple & bruised looking :eek: I constantly worry about her & am still a little anal about what goes in her mouth & can be a little OTT with friends & family when they cook for us :o She had her latest appointment just a few months ago & she's still dangerously allergic & unfortunately unlikely to outgrow it :gloomy: When was your DD diagnosed?

Ciao,
Brooke.

[LizzardLover]

Hi Anne :wave: My 3 year old DD has anaphylaxis to peanuts, she has only had one anaphylactic reaction but it was scary as all hell, she stopped breathing & turned all purple & bruised looking :eek: I constantly worry about her & am still a little anal about what goes in her mouth & can be a little OTT with friends & family when they cook for us :o She had her latest appointment just a few months ago & she's still dangerously allergic & unfortunately unlikely to outgrow it :gloomy: When was your DD diagnosed?

Ciao,
Brooke.

My DD had her one and only reaction on xmas eve 2006 so she was 4 1/2yo. I hadnt given her nuts before this because she has cousins on her dads side with nut allergy and I was scared to try her. She ate some slice with walnuts and within half an hour she progressed from a slight cough and itching to vomiting, struggling to breathe and going limp with her eyes rolling back. Quite scary to see.

Her skin prick tests showed her to have a worse reaction to peanuts than walnuts so I'd hate to see what happens if she eats those!

I find now she's at school to be really scary. She knows not to accept food from anyone else but it's still a worry. I just pray that her reaction is "slow" enough that they can get her treatment in time should anything happen.

[LizzardLover]

:o Seems most people with allergies tend to suffer quite a few

My daughter hasnt actually been tested for anything except nuts, but I have no reason to suspect anything else as she's eaten most things by now with no troubles.

Eggs would be hard, so many things have egg in them! We have a friend who's daughter was very allergic to eggs but has outgrown it. I wish all kids could outgrow their allergies :(

I still let my daughter eat everything even if it's labeled "may contain traces" so unless it directly contains nuts she can have it. It's a bit like russian roulette at times as I honestly dont know "how much" would set off a reaction in her but I figure I cant possibly avoid all food and I cant wrap her in cotton wool. All I can do is try my best :)

[mummyofmia]

My DD (now 3) is an epi-pen kid. She has allergies to egg and dairy and until last week allergies to nuts of all kinds!!!! We had her challenged to peanuts in hospital last week with no reaction and will now continue challenging her with other nuts one at a time at home - so fingers crossed with those ones are safe at home. So far no anaphylactic reaction - though we have seen some pretty severe reactions to dairy - that's how we discovered her allergies. It's such a scary thing - and so hard to trust others with DD. Even just yesterday I was at my mothers and asked her to make DD a sandwich. Lucky I checked just before she was about to give it to her - she had used butter! ANd with others who arenlt as aware I have found it really useful to remind them b y saying even just a tiny bit can be harmful - as some think - oh it;s only a little bit ini it. My fingers are crossed she grows out of the egg and dairy allergy before school - so much more room for error there. Good luck.

[LizzardLover]

My fingers are crossed she grows out of the egg and dairy allergy before school - so much more room for error there. Good luck.
You know i was just saying to someone last week that in a way i'm glad my daughter is ONLY allergic to nuts. Ok, so it could kill her, but it seems to me that it's easier to avoid nuts that it would be egg or dairy etc....

My DD will probably be tested again next month (when I get around to making the booking LOL!) so my fingers are crossed she doesnt have as bad a reaction. My dream of course would be that she's no longer allergic at all, but for now i'll take a reduction in reactions!

[youngones]

Missie_Mack - the minimum weight requirement for epipen jnr is only 10kg, but if your child's allergy is extreme, they will give it from 8kg and include in the management plan a note to advice emergency personnel that an overdose of adrenaline has been given.

DD (22mths) has had an epi pen now for a year (from 8kg). Prior to that we carried 2 amps of adrenaline and syringes. She is allergic to peanut and egg, with milder allergies to other stuff. We don't worry too much about the lesser allergies, as repeated exposure may help her immune system to respond more normally to them over time, though her eczema has been appalling lately.

What worries me most is when we get TV reports like this clown the other night who was banging on about how we should all be giving highly allergenic foods to babies and that the reason for so many allergies now is that we don't expose them early enough.

There is a study that suggests this out of the UK, but it refers only to exclusively BF children - the theory being that minute exposure while under the protection of the antibodies in breast milk can help to develop immune protection in the infant against allergens. Unfortunately clown-features didn't go into the details, just made a sweeping and very inaccurate statement heard by thousands of people.

That sort of thing is just plain dangerous and fuels ignorant minds.

I actually had a conversation with another parent (not at our kindy) once about how rude it was that 'all these people with precious kids' want to 'ruin' their kid's life by stopping them from taking peanut butter sandwiches to school/kindy. I murmured my agreement and said that I can't believe people don't want me to send DD to kindy with a loaded gun - same potential outcome that either kid could kill someone. Outrageous. Unfortunately it was lost on her.

Our next test is in Dec and we are doing an oral trial of cooked egg (in a biscuit) in the controlled environment of the specialist's office. Apparently about 50-60% of kids with egg allergy will be allergic to both cooked and raw and unfortunately the skin prick test doesn't discriminate, so the only way we'll know is by a trial. Pity it won't be before her 2nd birthday, as I haven't found a cake recipe yet that responds well to egg-replacer - they all turn out so hard like stale bread.

All in all, we avoid all nuts and seeds and any products with egg in them. Fortunately, DD has a healthy appetite and doesn't miss what she doesn't know.

I do worry about the whole school thing, as while egg allergies often subside with time, our allergist told us that one reaction to nuts is reason enough to avoid them for a lifetime, as you may not react for years, but then have a bigger reaction than before.

I also worry about birthday parties etc as DD gets older. Kids eating ice cream or cake and because so few people make their own food these days, no one knows anymore what the ingredients are. Most people don't realise that ice cream is made with eggs, or that some brands of commercial icecream contain an additive derived from peanuts. Some people are stupid enough to not know that cake is made with eggs!!

DD has never had a full ana reaction with the closing of the airways, but she's had at least 4 moderately severe reactions. The first was to something unknown (she was still being BF exclusively, so must have been something I ate), with the whole face and eye swelling etc, the second was when I was BF and ate some salad that had peanuts on top that I scraped off - she reacted within about 10mins of starting to BF, the third was to a tiny, tiny 1mm size crumb of Willow's 'guaranteed nut, egg, dairy etc etc free chocolate' and she rashed up and blew up like a balloon within an hour. The last was a couple of weeks ago to Keflex antibiotic, but I was reassured by our allergist that it is most likely she reacted to the pink colouring and next time, to ask for the plain powder and to add honey to it and try that instead.

Anyway, I've banged on enough as usual. While I'm not happy to see others with this problem, I'm glad to see some people in here. I felt pretty alone last year when I was haunting this thread and I couldn't get anyone else to share their experience and I knew I couldn't be the only one.

[youngones]

I forgot to mention - if anyone has a kid allergic to egg and can't eat Tiny Teddy biscuits, try the home brand (Coles I think) ones. While the branded ones have egg in them, the home brand ones don't. Go figure.

[mummyofmia]

Do you know if they have dairy in them? ( Funny but my friend was telling me her friend with an allergic child was telling her about those biscuits!)

[Josh]

Hi, my 3yr old son has an epi pen, he has an egg,tomato,and hazelnut allergies, he has one for home and one for pre school, but strangely enough he still can eat peanut butter, and other nuts, it is only things like nutella, is a no,no.. his face puffs up like a balloon if he eats this, not good, but I hope that he will grow out of it.

[mummyofmia]

How do you do it with 10 kids in the home ( I'm assuming they are all at home). I find it hard to get my 17 year old DS to be careful not to leave food ( and other dangerous objects) lying around. My hat goes off to you!

[mummyofmia]

Can't believe you have to wait till DS ways a5 kg - my DD doesn't even weigh that yet and she has had 4 skin prick tests from about 6 months of age. Maybe you should ask elsewhere! (My first 2 were done privately through a specialist who then referred me through to the allergy clinic at RCH Melbourne - which is free! Good luck.

[Areca]

Both of my girls require an epi-pen.

DD1 needs it for dairy, egg, cashew nuts, walnuts, hazelnuts, almonds and kiwi fruit. She used to have a barley allergy but thankfully she outgrew that. She's three at the end of November and her tests show her allergies are getting worse but I've been told to not give up hope yet.

DD2 - needs it for eggs and banana. She's just gone 12 months so we've only had one lot of testing.

We do cut out everything that says 'may contain traces of' because I know it doesn't take much for DD1 to react and the risk isn't worth it. She dipped the end of a teaspoon in to some yoghurt a couple of months back. It was the tiniest amount, like a 1/4 of your pinky fingernails worth and she sounded like she was having an asthma attack. Dairy isn't her worst allergy so we just don't take the chance. Once you get your mindset out of being able to buy pre-packaged things it becomes a lot easier.

I breastfed DD1 until she was 14 months and I found it really hard living on such a strict diet. We found out she was allergic at 10 months old. It's much easier now, there's a lot more available. I'm breastfeeding DD2 still and I find only having to avoid eggs and banana is a breeze in comparison to DD1. When DD2 was 4 months old she showed signs of allergy so I cut out dairy, eggs, fish, I already wasn't eating nuts (hadn't been since before DD1 was 10 months old cause I fell pregnant while bf'ing and then it's advised to not have nuts during pregnancy when there is a history of allergies) and ham also made her react (like giving her a shot of caffeinne) so cut out all deli meats, stopped eating bacon etc. She was still showing signs of allergies but it was the banana I was missing. She got tested when she was 9 months old so it was 5 months without the food groups above. I find I have so much more food available to me now that I only have to avoid eggs and banana but I limit my nut intake.

DD1 starts pre-school next year and she's going to a pre-school that makes all the food and will cater to her allergies. I feel really lucky there. I'm really frantic about letting people babysit her because I'm so worried they just won't think and will accidently feed her the wrong thing. I tend to just pack all her food no matter where we're going. It saves second guessing and it makes me feel a bit more at ease. DD1 is really good and knows she can't just grab food (the yoghurt incident was because it was her sister's food and they were on the same diet for a long time). This could be her life so we are doing our best to normalise it and make her aware that she has to be careful because I can't keep her with me forever! DD1 also knows that if she's eating a banana she has to stay away from DD2 and wash her hands and mouth before going and playing with her.

To the pp who has to wait until her son is 15kg. Go and demand an epi-pen! DD1 had one from 8kg, and DD2 has one but she is only 9kg. Epi pens are from 10kg, not 15kg and like my paed said if your child isn't breathing it's better to get them breathing, then worry about the overdose than to have nothing at all. You just need to ring an ambulance straight away and tell them they have had an overdose (if they are under 10kg).

And to the pp who was looking for a recipe that worked well with egg replacer. The basic butter cake in the woman's weekly children's birthday cakes cookbook works great. No one even knows the difference. I use egg replacer, nutellex and soy milk.

[missie_mack]

To the pp who has to wait until her son is 15kg. Go and demand an epi-pen! DD1 had one from 8kg, and DD2 has one but she is only 9kg. Epi pens are from 10kg, not 15kg and like my paed said if your child isn't breathing it's better to get them breathing, then worry about the overdose than to have nothing at all. You just need to ring an ambulance straight away and tell them they have had an overdose (if they are under 10kg).

Thanks for the info. I have double checked the Epi Pen Jnr paperwork and it does say 15kg




The EpiPen® Jr. Auto-Injector is intended for use in children who have been assessed and advised by their doctor as needing an EpiPen® Jr. Auto-Injector to treat their severe allergic reaction and who

• weigh from 15 kg up to 30 kg, and

• are having a severe allergic reaction.
The paed did prescribe andrenaline ampoules for use in a needle and syringe but childcare centres are unable to administer it should there be a issue :( When the discussion about using adrenaline the concern was about overdosing because of his asthma issues so perhaps that is why we are waiting for the 15kg mark? Meanwhile my itty bitty boy should hopefully put on some weight soon as he has been put on protein shakes to help him beef up :o
Knock on wood we hasn't had a anaphylactic episode since he was diagnosed and we are still living in hope (or perhaps denial :laughing:) that he will grow out of it.

Really we are extremely fortunate that this is the only allergy relating to food that he has. I think life is difficult enough without having multiple food allergies.... the compounding issues we already experience in playgroup, parties and group situations are difficult enough to deal with. I applaud anyone who is able to deal with any allergy successfully and have been able to get outsiders to respect and understand the issue :yelclap: Who ever knew it would be this damn hard and people would be so blaze' or ignorant about it :rolleyes:

[missie_mack]

Oh I forgot has anyone else bought the newish book 'Allergy Friendly Cookbook' (No eggs, no dairy, no gluten and no nuts) By Alice Sherwood?? I only bought it the other week and I am yet to have a chance to actually trial some of the recipes. Wanting to know if anyone else has given it a go ?

[Duchessa]

I have identical twins and they were both epipen kids from 7 months old (missie_mack, what is this about waiting til they are 15 kgs?? Ours were prescribed when they were about 8kgs...). They had the most severe reactions on the scale to milk protein and a few milder nut reactions. 3 years down the track, they are not only epipen free, they are completely allergy free with only a spot or two of eczema here and there. Miracles can happen! Don't give up!

ETA Sorry DoubleAce - I missed your post :)

[youngones]

Thanks for the tip on AWW - I'll check my sister's copy and get the cake recipe from there!

Regards the Tiny Teddy homebrand biscuits, I don't know if they have dairy in them sorry, but it is worth checking out the home brands as sometimes they have slightly different ingredients in them to avoid the whole copyright issue.

missie_mack - I really would encourage you to go to a paed allergist, not rely on just a paed. We recently had to go to a paed for an unrelated issue and they were incredibly intolerant, almost to the point of rudeness, of the whole allergy issue. Paed allergists are very hard to find, but the one we have is exceptional and extremely knowledgeable and will recommend and prescribe things that a GP or paed would not. I trust his skill and years of experience in this area and he would not have given us a script for epi jr if it wasn't better than the alternative. Otherwise, we'd be stuffed too, because DD is 22mths and has only recently tipped the scale at 10kg and she attends a kindy 3 days a week and has done so since 7.5mths.

Anyway, good luck with it. We had a nightmare with the amps of adrenaline. When we got the script (because we were traveling somewhere by plane and wanted the security of knowing we had the adrenaline), I took it to a pharmacy to get filled and they said they didn't have any in that particular dilution (1:10,000), only the 1:1,000 dilution which is for adults. I ended up ringing around to a couple of others before one said they had it. I went in, waited for the script and when he handed it over I checked it. He'd filled it with 1:1000. If we had needed to use it, it would have killed her almost instantly. I was horrified and pointed out his error. I probably should have reported him to the pharmacy guild, but his total mortification at his mistake probably means he will never, ever do it again.

Its a minefield out there.

[Josh]

How do you do it with 10 kids in the home ( I'm assuming they are all at home). I find it hard to get my 17 year old DS to be careful not to leave food ( and other dangerous objects) lying around. My hat goes off to you!

I understand what you are saying, my kids all know about the allergy thing, and they know that they can;t have nutella,the main one with us is the tomato allergy, everything has tomato in it, he can't have tomatoes, sauce,pizza,baked beans/spaghetti,lasagne.. the list is endless, I have to check everything and then recheck, it can be very tiresome, but we just have to do it.

[Areca]

Thanks for the info. I have double checked the Epi Pen Jnr paperwork and it does say 15kg


[/LIST]The paed did prescribe andrenaline ampoules for use in a needle and syringe but childcare centres are unable to administer it should there be a issue :( When the discussion about using adrenaline the concern was about overdosing because of his asthma issues so perhaps that is why we are waiting for the 15kg mark? Meanwhile my itty bitty boy should hopefully put on some weight soon as he has been put on protein shakes to help him beef up :o
Knock on wood we hasn't had a anaphylactic episode since he was diagnosed and we are still living in hope (or perhaps denial :laughing:) that he will grow out of it.

Really we are extremely fortunate that this is the only allergy relating to food that he has. I think life is difficult enough without having multiple food allergies.... the compounding issues we already experience in playgroup, parties and group situations are difficult enough to deal with. I applaud anyone who is able to deal with any allergy successfully and have been able to get outsiders to respect and understand the issue :yelclap: Who ever knew it would be this damn hard and people would be so blaze' or ignorant about it :rolleyes:

Sorry to drag this thread up again but I went to an epi pen training session yesterday at our hospital. The anaphylactic nurse clearly stated that the epi pen junior is for children from 10kg. I know your paperwork states otherwise but maybe it is outdated? The anaphylactic nurse has only been available for a few months so her training and info. is up to date (or one would like to think so anyway). I guess I just find it strange that you're the only one on this thread that is being made to wait until your child reaches 15kg. DD1 is almost three and she still doesn't weigh 15kg, and won't for a good while most probably. We have known that she is anaphylactic for two years now and after her having a reaction a couple of months ago that had us ringing 000 and spending 4 hours in hospital I am eternally grateful that we had the epi pen available (even though we didn't use it.)

The only thing said about asthma was that if a child had both then if they were having an anapyhlactic reaction it could also trigger an asthma attack so both the epi pen and asthma medication should be carried everywhere JIC.

The nurse also went on to state that we were the lucky ones, because our doctors had prescribed us with epi pens. She said there are still a lot of doctors out there who don't prescribe an epi pen for whatever reason and that that then leaves the parents totally unprepared if a reaction does occur.

[mummyofmia]

Have been quite surprised about epipen and weights of kids. In fact next time I'm at paed's will ask. At no point has anyone even suggested to me that if I give DD a shot it would be an overdose. And she has had it since she's 8 months old. ( Can't remember how much she weighed then - but she's only 13 kg at 3 years.) And she has been prescribed the epipen by 4 different specialists ( each one checked to make sure I had one!)

Having said all that I know if it came to it I would inject her - but great to know about the overdose possibility - though if it is 10 kg - then no problems now!

Also checked the teddy bikkies from Safeway ( haven't had a chance to see the Coles ones - they were dairy free to - though could contain traces.

I always waver on the could contain traces label! Some days I just rule that food out - other days I think what are the chances - the company are just using it to protect themselves! One allergy doctor told me not to worry about the may contain traces statement. Then you read everything else about allergies and you think - was he wrong??? The best explanation I read about it was - it would depend on the batch if you got the first batch that came out after a nut food, for example then it would probably contain traces, but later batches wouldn't A bit like roulette.

But then we do take chances each day. Is it like going out on the road- you wouldn't purposely step in front of a car - but it is a risk as soon as you take a step on the road that a car could hit you. do you avoid going out just in case?? Love to know what others think.

[missie_mack]

The only thing said about asthma was that if a child had both then if they were having an anapyhlactic reaction it could also trigger an asthma attack so both the epi pen and asthma medication should be carried everywhere JIC.

Interesting info Doubleace :detective:


I always waver on the could contain traces label! Some days I just rule that food out - other days I think what are the chances - the company are just using it to protect themselves! One allergy doctor told me not to worry about the may contain traces statement. Then you read everything else about allergies and you think - was he wrong??? The best explanation I read about it was - it would depend on the batch if you got the first batch that came out after a nut food, for example then it would probably contain traces, but later batches wouldn't A bit like roulette.

From my understanding traces are listed because it may be cross contaminated with either items made in the same factory at the same time either by using the same machine or in the packaging. There is actually some great examples on the anaphylaxis australia website I was reading recently where a packet of bread was said to possibly contain traces of seseme seeds however the breadrolls were covered in them :eek: :confused:

Does anyone else check the anaphylaxis website for food recalls too?? I am always suprised at food that doesn't list a particular ingredient but still contains it... I wonder if someone like a government body goes through and randomly checks these things or if we only know because of a reported issue :(

[TuesdaysPrincess]

My DS1 has just been given an epipen jr for suspected allergy to raw egg. He's also never had any contact with peanuts so we are also avoiding them until we can see a paed allergist ... in OCTOBER 2009!!! That is literally the earliest we can get in anywhere in Brisbane!

Basically he had some tartare sauce a few weeks ago and had significant periorbital swelling, swelling on his cheeks and a very slight audible wheeze (I think if I weren't a children's nurse and didn't know what to listen/look for we wouldn't have picked the wheeze up - but glad we did!). I gave him some phenergan and it settled right down, I didn't think much more about it.

Saw the paed yesterday who scared the **** out of me and gave us the epipen. He said it's likely he was allergic to the raw egg in the mayo used to make the tartare sauce, even though he's had cooked egg in the past with no obvious issues. Needless to say we are avoiding all egg products from now on!

DS1 starts a new daycare tomorrow and when I spoke to them about it they were really good, all of his group leaders have been epipen trained and the centre is peanut free, which is a big relief!

It's nice to know that there are other families out there going through the same thing, it's really scary to be confronted with. Hopefully we will never have to use the epipen, but I'm so glad we've got it just in case. LIke the paed said, he would rather give us one just in case rather than not give us on, DS have a reaction and know that we could have done something about it.

[aalia]

Wow you guys all have so much information!!

I have anaphylaxtic reactions, I had all testing and they cannot work out what I am allergic too, have just said that it must be a combination of things reacting with eachother within a few weeks!!! lots of fun not knowing what to avoid....

But was wondering as you all seem to know alot more than me, does anyone know if my allergy will pass on to my baby, he is just 7 weeks now so still solely breastfed but I am curious to know if its a genetic thing at all, or if me having a mild reaction while breastfeeding him could have any effect at all?

Most of my reactions now are quite small and handled with Phenergon, they didnt start until my 23rd birthday (im 28 now) though and I have been brought back to life twice, but the last one was about 3 years ago :) so feeling fairly outgrown from anything serious :)

[k2ma]

Hi - what a relief to find you all!

My DS (3) has peanut, egg and milk anaphylaxis. He starts kindy next January and I am terrified even though the school is really on the ball.

I know what you all mean about other people making food. I am so relieved to read the posts and see that I am not being ridiculously overprotective in the measures we take to keep him safe. Sanity at last.

We are currently trying to train him to ask "Is this safe for me to eat" before he eats anything - a wonderful suggestion from another bub hub lady.

I am due to have baby number 3 in 5 weeks and my greatest concern is leaving P home with someone else. I just worry that no one watches him as closely as I do. (I am all for the early discharge programme!:D)

ALso to the poster who had trouble with cakes - I use a butter cake recipe and substitute the egg with banana, butter with nuttelex and milk with soy milk and have never had a disaster yet! It is a little moister than egg, but still tastes ok.

I puree the banana and add it into the caster sugar and nuttelex. I have found that by doing cup cakes rather than a sponge tin cake it is slightly more successful, but last birthday we had a good result. Means everyone gets banana cake for birthdays at our house but hey!

My FIL bought some Ogran Egg replacer for me the other day and I plan to try that out soon...I shall let you know how it goes.

[3blue&1pink]

Wow I am so happy to find this thread.. I am yet to see another child IRL with an epi-pen.

I am very thankful for the way I found out my DS2 was allergic and had anaphylaxis. We are very keen 4WD so this could have happened any where.. I shudder to think!

DH was out mowing the lawn one day.. DS1 was asleep, I was pregnant with DS3.. I took DS2 outside with me to do some gardening. He ran up to touch the fuel tin. I said No and put it on top of the rubbish bin. He chucked himself on the ground and started to scream.

He was bitten 6 times on his lower legs by ants.

Within 10mins he was covered in hives, his eyes were swollen shut, he had a heavy rattle to his breathing, he keeped coughing to try and clear his throat.. the biggest hive he had was wrapped around his throat!

From the bite till when he arrived at emergency was no more then 15mins. I was told by the head Dr that if I had of left it 10mins more I would have been saying goodbye to my son!

This happened early this year.. I was that upset I have wiped the date from my mind.. but since then he has never had another attack!

Our pedi informed us that because of how badly Noah reacted IF there is a next time it could only be one bite and that one bite could still take his life!

I am yet to have him tested for anything else. He has tried every food under the sun but seafood. He has bad asthma though!

The day he had that attack still brings tears to my eyes.. I have never felt so useless as a mother.. there was nothing I could do to ease his discomfort but try an hug him and tell him he was going to be OK.. he was two and the look in his eyes was pure fear and confusion!

[LizzardLover]

I have been brought back to life twice, but the last one was about 3 years ago :) so feeling fairly outgrown from anything serious :)

Ok, hate to be the bearer of bad news but if you had a reaction like that at your age it's very unlikely if not impossible for you to have outgrown it. You've just been really lucky to not have contact with the allegen like that since.

Please do get your doctor to try again to find out what you are allergic to.

Now as for your baby, you cant "catch" an allergy so breastfeeding is not a problem and if you were to have a reaction while breastfeeding technically there wouldnt really be any problem for your baby. I would howver check that phenergan or whatever you take is ok while breastfeeding?

[LizzardLover]

We are currently trying to train him to ask "Is this safe for me to eat" before he eats anything - a wonderful suggestion from another bub hub lady.


My daughter asks "does this have nuts in it?" and she knows that if the answer is yes... no matter how yummy it looks.... she cant have any and we've never had any problems.

[LizzardLover]

The day he had that attack still brings tears to my eyes.. I have never felt so useless as a mother.. there was nothing I could do to ease his discomfort but try an hug him and tell him he was going to be OK.. he was two and the look in his eyes was pure fear and confusion!

:hugs: it's horrible to see isnt it? My daughters reaction was slower, probably over 30 mins or so but the end result was trouble breathing and her eyes rolling around and losing conciousness. My DD was 4yo and it was xmas eve and it was my mums "famous" slice that did it to her LOL. I'll never forget THAT date :( Thankfully though in 2 years she hasnt had even one tiny little reaction.... she's due to go back for re-testing to see if they have improved or what.

[Poppetfish]

My Poor DS has anaphalaxis to tree nuts and sesame. Sesame is really bad. He went in for his challenge 2 weeks ago and had one sesame seed. MY GOD! Within 2 minutes he was out and bright red all over his body and face with hives. He still has huge welts all over him.

My DS has had his epi pen since he was 5 months old. He was 8kgs then. He gets to get a big boys pen soon. He is over 17kgs now.

We are trouble trying to find schools for him at the moment. Lots of schools have a 3 year waiting list so we have to get on them now.

He is also allergic to Kiwi fruit, stone fruit, poppy seeds, and Milk protein.

His first true anaphalaxis reaction was when i went shopping. We walked through a food court and BOOM! he reacted to the sesame in the air from the chinese stall. He also reacts to others when they eat it so i dont let him play with other kids unless i know everything that they have eaten.
:(