*distressing* My past few days

[workin'mumof2]

I dont even know where to begin or where to put this.. im writing this for my benifit.. and to let anyone who has heard of me know.

some of you may have read this post by me

http://www.bubhub.com.au/community/forums/showthread.php?t=187596

not long after i wrote that did things go wrong.

If you dont want to be upset or dont like reading stories on unwell babies/todlers DO NOT read on






no idea what the time was but i was trying to feed my don more toast. when i looked away for 1second. 1 lousy second. i heard an almighty thump from behind me.. i turned around and saw my son..

I saw my son having a siezure. i couldnt see his eyes. they were rolled up in his eye lids. i screamed for my husband in the other room. I didnt know what else to do. we live 5 mins from the hospital. he stoped b4 we got in the car. i was shaking but because my dh had little but no sleep i drove.. its like my mind took over from my body. i had to drive. i had to drive now. When we got there my husband ran in while i found a park. while i was finding a park he had another seizure in triage. so they took him out of my husbands arms and got things organised then. A real emergency.

When i got to them i had to give details to triage. I broke down in tears. they has to hold my 11 week old because i was shaking. i couldnt hold it together any longer. It was horrible.

When i got to my son is was around 11am and he had alot of cords and oxygene to help him.. my energetic boy was lieing on a bed zonked out to the world.

Then we were expecting a delivery at home so my husband went.. i was there with both. i was in the middle of changing dd's nappy then it happned again.. 3rd time that morning while he was on the bed.

once again i freaked.. i yelled for help but instead of dh rushing to me.. alot of doctors and nurses ran to me.. they fixed my dd's nappy while i just cried. they were surrounding him. helping him. staying calm.. why couldnt i do that.. thats what a mums spose to do.. to stay calm. they stayed with me for a while and were getting a pead to look at him.. then he started to fit again but only for 5secs.. they counted that as a half??? so they gave him an anti convulsant in the bottom.. because it worked faster.. then through an iv gave him more anti convustant that would work over a period of time. My husband came back at 2.30 and was then informed what was going on.

After he was stable we got transfered to the childrens ward he was still on a drip.. he hated.. he was so misrable. inconsolable. Slept alot. they had a few doctors check him over checking his skin, eyes ect. he didnt like poking and proding and being woken.. Unfortunatly only one parent could stay. And my husband figured it would be easier for him to stay rather then me as i breastfeed ruby. and looking after both especially in a situation like that is extreamly hard. We both did not sleep well.. me because i wanted my son, dh because he wanted us all to be together. My alarm didnt go off and because ruby slept through (the one time she does) dh rang me at 7.40 asking where i was.. i quickly got ready and left to be with them..

When i got there he was so happy to see his mummy. he gave me lots of cuddles and kisses.

As some of you know i have been worried about his speach, i told them this and they said given this recent event they will refer us to a speach patholagist because the 2 might be connected. They are saying we should prepare us that it might be epilepsy but it also might not be. Just one of those things. We are getting an eeg done. which they will ring us tomorrow and organise.. and then from there he might need an mri.. he is on medication until further notice maybe for at least 6months

So thats been my last few days.. i hope never to relive ever again.

[TwoBlue]

Oh Hun !

You poor thing what an awful ordeal :hugs: and poor Seth :hugs:

I hope its nothing too serious.. keep us informed

more :hugs:

[Mmm Dessert]

Rosie, hon, I hope things are ok for you guys.

Big :hugs: for all of you. I think you need it.

I'll be thinking of you.

[Ashleigh<3]

:hugs:

My goodness what a very scary time for you.
I hope your son is okay.
:hugs:

I think your Mother's intuition was at it's peak.
It's amazing how it works. :hugs:

[punkbaby]

Ohh hun what a horrible thing to deal with sending you and your family lots of hugs

:hugs:

Remember, as much as we all like to stay calm in these situation its VERY hard to when its your own child. I hope that your little mans ok and that you are all ok as well

[veve]

oh hon :hugs: seizures are very full on things to witness when they occur to other peoples children - I can only imagine how shocked you were - especially as its all so new :hugs:

please - focus on the fact that most epilepsy (and he hasn't specifically been diagnosed with it yet) .. but MOST epilepsy can be controlled with medication :hugs:

no one NO ONE can fault you for being so upset - he is your precious little man ..

xx
Jen

[sam's mum]

:hugs: here's hoping it is something that is easily fixed/treated/controlled.

I can't imagine what you are going through. DD1 had a fit ONCE, she was at daycare so I didn't even have to see it and I was a mess.

:hugs::hugs: make sure that you fall apart whenever you need to, you are allowed to do that and it is a needed release.

[LittleButton]

:hugs: Biggest hugs for you and your in my prayers... :hugs:

[Lastcenturymum]

*Mega hugs* Rosie. How awful. There is nothing worse and than seeing your child suffer and feeling helpless. Don't feel bad, it's a pretty natural reaction. And you have a young bub too - lot on your plate. Thinking of you as you through all the tests and stuff. One thing at a time. Keep us posted.

[Silvana]

I only just read your other post, and then I read this one. I am so very sorry about what you and DH are going through. Please do not feel bad that you couldn't remain calm, I couldn't if I were your situation. Doctors and nurses do because that is what they are trained to do.

Hopefully the tests bring back answers for you, and hopefully good. I am sorry you are going through this and I hope your little boy gets better soon.

[Amused]

How scary for you! Hope your little man recovers quickly and the Drs can give you some answers and solutions. Take care of yourself. :hugs:

[WorkingClassMum]

Sweetie - lots and lots :hugs:for all of you

I read the other day that Seth wasn't well, I hope he gets better really soon:hugs:

[bubbleyblossom]

Omg Rosie! You are so brave!!!! You have my numberif you ned to talk to anyone day or night

[DQ]

I am so sorry you had to witness your own baby like that :hugs: I can't imagine how frightened you must have been.

I really hope the tests shed some light on what is happening and it all ends in a positive way for you and your family.

Lots and lots of best wishes and hugs. :hugs::hugs::hugs:

[meggs]

Rosie how frightening for you... I cant believe little Seth is so unwell...I really hope it turns out to be nothing serious and can be explained. Hang in there, he is being looked after now and they will find out what is happening...

Sending you :hugs: and it is quite normal for you as a mum to be in shock and extremely distressed I would be too...

[poodysmum]

You poor things! How scary. I hope that he is ok. Sending you all BIG hugs:hugs:

[naiwen]

OP I am so sorry that happened to you, I totally understand how you just feel total panic when you baby suddenly deteriorates.

Hospital sucks and it would be even harder with 2 children too worry about.

Meds,IV's, Oxygen, Monitors can all be so scary and upsetting at first.

If you want to chat about coping with hospy etc please feel free to PM me.

Also there are a few mums in the special needs chat thread/section who have been through and are still going through seizures/eplilepsy/MRIs etc so please dont hold back if you want to ask us anything or need support as we have been there.

Many hugs for you and your son.

[KatiesMum]

Sending all the hugs I can

:hugs: :hugs: :hugs: :hugs: :hugs: :hugs:

I hope that things are ok, and that they get sorted quickly.

[kayla Lilyz mum]

So sorry that your son had to go through that and your family too. hope he gets better asap:fingerscrossed: stay strong hun...

[2sweetgirls]

I am so sorry that you your husband and your son had to go through this.

:hugs::hugs::hugs::hugs:

Praying for your little boy to be back to himself very soon:goodvibes:

[♥Heaven Sent♥]

Oh gosh hun :hugs: how traumatic for you and your dh to go through.

I just want to give you lots of :hugs: and let you know it will be ok,you are strong you can get through this whatever it may be.

The shock of a first seizure is horrible.My dd didn't have seizures but blacks out and still does sometimes when she is in shock or hurt.Ds has also had a febrile convulsion.I can understand how scary it was hun.Do lots of research hun,and get all the support you can get as it is a big shock,and takes a toll on your health too.

check this thread out hun it should be helpful,i know a few mummas that are in there are very nice and supportive when i was going through it all.

http://www.bubhub.com.au/community/forums/showthread.php?t=7072&highlight=seizures

[SuperWoman]

Rosie I am so sorry you are going through this. How frightening that must have been seeing your precious boy going through that. I hope they find out what is causing it. Sending you and your family lots of hugs:hugs::hugs::hugs::hugs::hugs::hugs:

[mummeeto2]

Sending you lots of :hugs::hugs:. I hope the tests will show what's happening with your little man and it's nothing too serious. :hugs: again

[Teley]

:hugs::hugs:I hope everything will be okay:fingerscrossed:.

:(How hard on you and DH. I'll keep you guys in my thoughts:hugs::hugs:.

[JorBai]

OMG S&R mummy, you poor thing. What a horrific few days for you hun.

I hope everything is ok with lil Seth and Ill keep you in my thoughts hun :hugs:

[Ralli]

:hugs::hugs:

[Chunkydunks]

:hugs::hugs::hugs::hugs:

[Mirad3k]

:hugs: to you
Sorry to hear that your little man is so sick. Hopefully you will get some answers soon.
:babydust2: Sending wishes that he gets better quickly.

[Toffee apple]

:(:hugs::hugs:How very scary for your little family .... you did an awesome job of "holding it together" in my eye ...getting him to the hospital , & you yourself were so worried (and exhusted too) due to your DS being so sick/not himself the few days leading up to it.
:babydust2:hope your little man has his crazy toddler ways back very soon.

[jdsmummy]

Lots of :hugs: :hugs: :hugs: for you and your family. Hope your son gets better soon

[reneem]

Rosie massive :hugs::hugs::hugs: for you and your family. I hope that Seth is back to being his lively, lovable self really soon.

[♥PurpleStar♥]

Oh gosh hun how scary :(

Im sending all my love and strenght your way hun.

:hugs::hugs::hugs::hugs:x a million

Hope little seth is better in no time hun :hugs:

[mellyg]

Rosie OMG you poor mummy.. You must be going out of your mind.. I am send you a million of these :hugs: and just wish there was something more I could do for you hunny.. I really feel for you and your family and I hope he pulls through this OK.. Thinking of you..

[hailsntwang]

Oh hun!!

I would have been just as terrified as you were so it's nothing to be ashamed about.

I can not even begin to imagine what h*ll you have been through these past couple of days.

My thoughts are with you and your family in your hour of need. I send you some love and I know you have the strength inside you. If you feel you're not coping don't be ashamed. Take a breath, count to ten, go for a walk.
You're not failing him by needing to do these things.:hugs:

Take care and remember we are all here for you

[Love is all you need]

Rosie sending you lots of :hugs::hugs:...

You didn't do anything wrong and shouldn't feel like you did for reacting the way you did, that is a normal response and it is so scary to see a loved one go through a fit....so please don't be too hard on yourself you reacted the way any mother would react...

My brother had exactly the same thing happen when he was 18 mths old, fell off a chair at a friends place and started to fit....then went through all the tests and fitting at the hospital, they first misdiagnosed him but he was later diagnosed with epilepsy and was put on medication, it took about 5 years to get his medication right....

BUT NOW his 17, he has very very few fits and is leading the best and most fullfilling life possible if you look at him you would never know that he has epilepsy....

So I guess what I am trying to say is that the doctors will be able to pick it up early and hopefully :fingerscrossed: they will be able to treat it effectively and he will be the energetic beautiful boy you know!

Also if you think the docs might be a bit off (if ur mummy instinct is saying something) always get a second opinion, call the childrens and ask to speak to someone and see what happens

[wiggleslover]

Hello Rosie, I am new to this forum but just read your story and wanted to say that my prays are for you. I hope your son is better soon!

[squiglet]

Just wanted to send you some of these for you and your family:hugs::hugs::hugs::hugs:

[bubbleyblossom]

Hey hun,
How are you all today? How is Seth?
Sending lots of love!!!

[Chickadee]

oh hon :hugs: seizures are very full on things to witness when they occur to other peoples children - I can only imagine how shocked you were - especially as its all so new :hugs:

please - focus on the fact that most epilepsy (and he hasn't specifically been diagnosed with it yet) .. but MOST epilepsy can be controlled with medication :hugs:

no one NO ONE can fault you for being so upset - he is your precious little man ..

xx
Jen
I can't say it any better than that.

I hope that you are all having a better day today, and that you can find some answers soon. :hugs: :hugs:

[Hollywood]

:hugs: Oh how scary, hope everything works out ok. I would have freaked out like you too. Must have been a terrifying experience. Hope you're having a better day today. :hugs:

[workin'mumof2]

EEG tomorrow at 11.30am

thank you for ur hugs and support. its much appreaciated.

[NZMEL]

Rosie - I have just caught up with what you have been going through...BIG HUGS!!!!

You are a wonderful Mum and have to very special and beautiful children, they love you very much and vice versa - just remember that!!!

Thinking of you and your family, and I hope everything goes smoothly for you all tomorrow!! :hugs:

[Love is all you need]

Hi Rosie,

Hope all went as well as possibly can today for Seths EEG :hugs:

[Mischief]

Honey Im so sorry I missed this post!

My gosh, what an ordeal you guys have been through! :hugs: I hope all is sorted soon! :hugs: :hugs:

[bubbleyblossom]

You and your family have an overwhelming support network here Rosie, I hope that you never forget that.
I hope that all went well with Seth's tests today, and that you have an answer as soon as possible. Biggest cuddles to Seth and Ruby, and many many more for you and your DH. You have my mobile number. I am here day or night for you if you need to chat. I dont care if its 2am and you cant sleep, my phone is always on, and you are welcome to call if you need me!

[grass is always greener]

:hugs::hugs::hugs: I dont what to say so i send these instead :hugs::hugs::hugs:

[Craftymum]

OMG hun, I just saw your thread. I would of been in peices hun, so dont feel bad for the way you reacted.

I hope it all went well for you today and senidng lots of :hugs::hugs: your way.

[Baldie's Mum]

:hugs: Hun you reacted the way a worried mother would!!!
When i had meninjitis my mum took me to the drs and complained about me sleeping so much....Dr told her I was in a coma. She was so shocked she DROPPED ME!!! I was then rused to hospi and my nanna came in with my father and she collapsed cracking her head on a bed and she ended up in her own hospi ward!


You have done so well! :hugs: :hugs: :hugs:

[JoLily]

:hugs: to you

I hope everything went well at the eeg today
:hugs::hugs::hugs:

[workin'mumof2]

he was a very good boy considering he had to lie still for 50mins.. with wires attached to his head...

The results are getting sent off to our peadiatrician who will ring us to book an appointment to get the results.. that may be a week or two though...

Thank you so much for all your support its much appreaciated. I really dont know what i would do if i didnt have bubhub for support.

i am trying so hard not to breakdown, so thank you for your hugs and messages.

[bubbleyblossom]

Let us knowif theres anything at all you need hun. You know Im not too far away to come up and give u a hand!

[shereejoy]

What were the results, I hope everything is ok?