MonkeyMum05
06-04-2006, 09:59
I thought I would seek out some opinions and advice regarding a little bubba's health problem...
A very close friend of mine (childhood 'Best Friend') had a beautiful little baby boy on in mid-February... he was born premmy via an emergency c-section, as he had a dangerously high heart rate. He has spent most of his life in hospital... only 4 days at home all up.
His heart rate just won't go down, and the Dr's aren't sure why. He has been on numerous medications which 'shoud have' worked, but didn't. He can't feed properly, because he is just constantly too exhausted.
My friend lives in Sydney and I live in Brisbane, so I only talk to her on the phone and can't be there to support her, but she often calls to chat about it...
last night she said that the Dr's have told her she is going to have to decide what to do...
either allow them to operate on him, with only a 30% chance that the operation will be successful (and it would be a high risk operation)... or try another medication which will almost definately make him blind.
He is too young for both options, but they are the only choices available.
She kept saying to me "What would you do?" and I just didn't know what to say?
I asked what the odds of the medication working was, and she said they hadn't told her, because the last 3 lots which should've had a 90% success rate didn't work for him.
I just feel kind of useless... when she calls, I don't know what to say.
I listen, but am lost for words. It's very sad, as she has miscarried before and was just so excited about having this baby... she says to me "All I ever wanted was a baby." She is sounding very down, almost to the point of giving up IYKWIM.
I'm not sure what advice/support would be most helpful? I listen to her, but I know she wants me to give her answers, and I can't.
I have asked if she has seen a counsellor throught the hospital and she said 'Yes, but they just sat there and said 'I see.'"
What can I say? What adivce could I offer?
A very close friend of mine (childhood 'Best Friend') had a beautiful little baby boy on in mid-February... he was born premmy via an emergency c-section, as he had a dangerously high heart rate. He has spent most of his life in hospital... only 4 days at home all up.
His heart rate just won't go down, and the Dr's aren't sure why. He has been on numerous medications which 'shoud have' worked, but didn't. He can't feed properly, because he is just constantly too exhausted.
My friend lives in Sydney and I live in Brisbane, so I only talk to her on the phone and can't be there to support her, but she often calls to chat about it...
last night she said that the Dr's have told her she is going to have to decide what to do...
either allow them to operate on him, with only a 30% chance that the operation will be successful (and it would be a high risk operation)... or try another medication which will almost definately make him blind.
He is too young for both options, but they are the only choices available.
She kept saying to me "What would you do?" and I just didn't know what to say?
I asked what the odds of the medication working was, and she said they hadn't told her, because the last 3 lots which should've had a 90% success rate didn't work for him.
I just feel kind of useless... when she calls, I don't know what to say.
I listen, but am lost for words. It's very sad, as she has miscarried before and was just so excited about having this baby... she says to me "All I ever wanted was a baby." She is sounding very down, almost to the point of giving up IYKWIM.
I'm not sure what advice/support would be most helpful? I listen to her, but I know she wants me to give her answers, and I can't.
I have asked if she has seen a counsellor throught the hospital and she said 'Yes, but they just sat there and said 'I see.'"
What can I say? What adivce could I offer?