Vesecostomy

[becca022]

I was just wondering if anyone elses child has had a vesecostomy or any other stomas?

DS is booked in on the 7th of July for one because of high preasure in the bladder & numerous bladder infections. :(

[Nowhere]

hey there

my dd hasnt gotthat particular but she does have a stoma for her G/j tube and will soonhave another one for her seperate J tube so we will thenhave to stomas to care for

When is your little one getting his done, this might sound uneducated but i notheard of a vesectomy before other then for birth control asuming its a difernt thing asi said sory am preobly way of the mark

IF your DS cathed all the time if so PLEASE tell me waht cath bags you use we use leg bags for DDs G drainige

will your DS be permenent stoma, if so any questions you have in regardsto care infections or anything feel free to ask me

howsyour son going by the way not read anydates on him forages, hope he is doing well, good luckfr surgery

[SorenLorensen]

a friends little one had a vesecostomy, i don't know much about it though sorry. all i really know is that he needs something done to his kidneys and they don't want to do anything major until he is older, so they decided to give his kidneys a helping hand by draining his bladder directly. so far all has been great :thumbsup:

hope all goes well for your little man :hugs:

[becca022]

hey there

my dd hasnt gotthat particular but she does have a stoma for her G/j tube and will soonhave another one for her seperate J tube so we will thenhave to stomas to care for

When is your little one getting his done, this might sound uneducated but i notheard of a vesectomy before other then for birth control asuming its a difernt thing asi said sory am preobly way of the mark

IF your DS cathed all the time if so PLEASE tell me waht cath bags you use we use leg bags for DDs G drainige

will your DS be permenent stoma, if so any questions you have in regardsto care infections or anything feel free to ask me

howsyour son going by the way not read anydates on him forages, hope he is doing well, good luckfr surgery


A vesecostomy brings the bladder to the surface of the skin & thats how he'll urinate, we'll also have an option of putting a bag on, but we'll just use bigger nappies I think.
It will be temporary until he's big enough for another op to enlarge his bladder, they do that with part of the bowel so it's pretty major suregery. So he has to wait til he's bigger.
He's going in for it on the 7th of July.
We don't use cath bags, we just use in/out catheters where you drain the urine out of his bladder til next time. We do it atleast 5 times a day. This is where the vesecostomy will come in handy because it will drain contantly.

Thomas is doing well, he's talking really well now & copies everything. He wants to be on the move, but physically can't yet so is getting very frustrated. He's getting new AFO type braces soon, but will go right up his leg so he'll hopefully be standing soon against furniture. He'll have to wear them all day.

How is Miki going?

[Nowhere]

oh ok thanks for the explaining it to me sory for my ignorance on it at least i know now

Sound like it till really help him hey poor little thing, hope the stoma forms well, the hardest part i find is when its a new stoma so its still raw KWIM after a while they heal lovely like a earing whole KWIM, granulation tissue is the worst thing with them but there are cream to help it i find kanacombe to be the best one for us


Thats great he is making progress the brace sound great hope it helps him is is a KAFO or just an AFO

Maybe when he is standing they will get him a walking frame I cant recomend the R82 high enough we love it so helpfull

Sounds like abig op for your DS to go through poor baby thats good its not for a while, its good you can use the stoma in the mean time hey, and great that napies will work rather then a bag thats a bunus for sure

:hugs: