what eqiptment has your child got/ waiting for

[Nowhere]

Hey all just thought we could start up a thread about difernt SN equiptment and stuff and say what we like dont like about it so others in same boat can check it out

I will start lol

kangeroo 343 pump
good points was free from hospital
bad points
NOT portable at all, conected to IV pole all the time, constent flow errors

Kangeroo Pet pump
good points
more portable than the 324
bad points constant flow errors, big for a portable pump, the feed bags to big

Kangergoo E pump
much better then all other kangeroo pumps

Flowcare infinity
Good points wow where do i start its GREAT tiny, purple lol , fits in tiny back pack, no flow errors
bad point
only a small gripe the US feed lines are better then the ones in australia

Cylometric events link moniter
bad points its big
good points
both heart rate and apnea moniter
great diagnosis aide as it records an alarms

Crocodile r82 walking frame
Good points
its a great walker for in and out door
Bad points
no handle or basket available have to custumise your self

Easy Jazz stroller
not sure yet stil waiting on it should get it soon :smiliedance:

So any one else want to give some ino on there equiptment, i would love to here about it and im sure other SN mums would to

[kiwibird27]

Kangaroo 324

Big horrible, used to make me cry, "ERROR FLOW" all the time, on continuous feeds these should be OUTLAWED!!!



Kangaroo 2100 PET backpack pump

Brillant, bottle fit nicely into backpack, no flow error, made my life totally easier
This is my life saver!!!!
(they don't make these anymore)

Glucometer

For Hypoglycemia

Standing frame, corner chair, Space Shuttle SN stroller (when the funding arrives.

Thats it, U win AMY....LOL

[Nowhere]

lol stacey dont tel me its just you and me in here typical

When are you getting the SN buggy we should get ours in 4 weeks i cant wait going to be so much easier

Oh and with your blue sticker for your car did you aply or the hospital, i more interested in one for parking at apointment and stuff KWIM most of the time i can get a park in the top car park but at times when there is a heap of other ACC kids there its hard as e all know the sneaky spots lol

what stander are yougetting i have the otto bock catalogue here there lots of cool ones

[kiwibird27]

We got a disabilitiy permit from the RTA, really good at the mall, Good at the hos too when I am lucky to find a dis park. DADHC just gave us an old wooden stander, she doesn't need to buy one yet cause she isn't really ready. Still waiting for funding for sn stroller, Oh I got permission to put puree down Megans tube!!!! Bring on the food, Think she would be better off milk!!!

[Nowhere]

OMG wow congratulations what a HUGE mile stone for megan thats great, I so hope she tolerates it what food you trying first keep me updated

[CharlieJ]

Flocare Infinity Pump

Brilliant, love it. Daughter can wear in backpack during day feeds or if having a sleep, no need for IV Pole (have one for sale if anyone needs one) - new not used! Just leave in bag next to her and if bad nights arise no disconnecting from pole etc.

bad points - bags and tubes are pretty crappy compared to ones that Zevex make. Why can't we get all in one bags instead of connecting parts.

If you have containers anyone - ask for the bags as they are (as annoying as they are connecting them) much better.

The bag for toddlers that is available is way too big for little ones - i had one specially made!

Had kangaroo pump previously - hated it.

[Nowhere]

antother new item i am waiting for is the zevexsuper miki back pack from the US

and i agree the flocare toddler one is HUGE

[Cherylanne]

Okay, we have,
Nutrica kangaroo pump and IV pole, oximeter, BP moniter, suction machine, standing frame,GPS Buggy,bed bath, columbia car seat, and nebuliser.
C

[Nowhere]

hey i just realised i after reading the last post i didnt include pulseox metre or nebuliser, i dont even know what brand out pulse ox is ummm its yellow lol, i like it but the other one was TOO big

[CharlieJ]

antother new item i am waiting for is the zevexsuper miki back pack from the US

and i agree the flocare toddler one is HUGE

hi, i tried this bag. its ok but if u want more than 500ml is a bit squashy.

[Nowhere]

oh ok miki is only on 40 50 45 mls an hour so 500 is more than enough for us lol, ,aybe as she tolerates more it will be to small

[kiwibird27]

I'm having a logistical pump issue, Child that rolls over, tube attached to her, continuous feeds 20 hrs a day and she has figured out she can play with the pump, and if she pulls her tube hard enough she gets to play with milk and gastric juice. Any ideas ladies except for drugging her daily to stop her from moving?????

ps to those that don't know me the last part was a JOKE!!!

[Nowhere]

i have no idea stacey, partial mobility pluss coninuos feeds means mummy has more work i guess lol

[kiwibird27]

Thanks for your advice Amy!!!!!!! I shouldn't complain really...You should yell at me...."GET OVER IT, SHE"S ON GASTRIC FEEDS....... STUPID COMPLAINER"

[Nowhere]

lol dont be silly hehehe

We waiting on maore equiptment now a harness for mikis walker so she ant fall over YIPEEEEEE

And i shouldnt complain either she is walking really well, with her walker and getting better with out it (just falls way to much and fatigues after a few steps hence the walker)

our chair is about 6 to 8 weeks away but the harness for her walker hoipefuly with in the week

Have you had the dreaded incident of megan opening the feed bag yet and it spilling all over the place lol, we haven with the feed but Miki did however manage to unclip the other end of her drain the other night, either that or i didnt reclip after letting air out, mmm not sure either way we had gastric secretion everywhere, was lovely not,