Nueral hearing loss and Auditry Sincrany DISORDER?

[bells_sister]

hi All :wave:
just wondering is any one has a child with a neural hearing loss and auditry sincrany disorder aswell i would love to hear from mum with children with any types of hearing loss?
thanks chicks:)

[kiwibird27]

My daughter has moderate to severe sensorineural hearing loss, Is that what u mean???

[WorkingClassMum]

My 6yo has mild hearing loss due to repeated ear infections and scarring of his ear drums and ear canals. (b/w 10 and 15% in each ear on a good day, more on bad days)

We put a lot of effort when DS was very young to get his speach up as we were warned he may well go deaf.

Even though I notified the school when enrolling him and even though the school nurse confirmed the hearing loss, I still had to personally inform the teachers each year. DS is a very popular child at school and is his class representative on the SRC.

His speach is so good - just very loud, that many people don't realise that he is partially deaf. In fact - he is often asked by frustrated people when he doesn't answer them - "Are you deaf????", and I smile when he looks at them and says "Yes".

He also is an actor, and has been in a few commercials.

Even though his disability is slight - he manages very very well and am very (overly:o) proud of all he achieves.

The time his deafness has an impact is when he tried to play team sports and gets confused being yelled out so he avoids soccer and football - and now has golf lessons.:D

My DS is actually a very lucky little boy and I dont normally lable him disabled - just differentially abled as his ego and perserverence will carry him through life beautifully

[bells_sister]

hiii Again not sure about the sensorineural hearing loss my son has a hearing loss and on top of that the auditry sincrany disorder wich means his hearing is like its between raidio stations its not clear and is always flutuating his hearing is between 30-80 decibals but always changes we have our good days and not so good hes going to a telethon speach and hearing school witch is great how have you both coped with the hearing loss? i have had littl hats made to keep the hearing aids on hes always pulling at them their a god send.

wow your little boy sonds so strong i can see why ur such a proud mummy:)
and what were the causes of hearing loss if you dont mind sharing?

[WorkingClassMum]

and what were the causes of hearing loss if you dont mind sharing?

repeated middle ear infections/burst ear drums that have left the drums and the ear canals scarred.

His eustachian get blocked due to mucous build up due to food intolerences...

We have recently been treated with steriodal drops which has started to clear up the scarring - so it looks like he may gain some of his hearing back, or at least shouldn't lose any more.

[bells_sister]

That would be great, kurt had a middel ear infections asweell he had glue ear for 3 months and then they decided to put gromets in was a really scary experience for me:( kurts hearing loss is due to losing 90% of his blood at 32weeks he bleed into me just a freak thing that happend :eek: does he have haring aids? what are they set to? is he comftable with wearing his hearing aids or does he try to pulll them off?

[WorkingClassMum]

No we dont have HA's - the ENT doesn't think they are necessary ATM as he copes really well without them, and would become reliant on HA's if he had them and would be "noticed" at school. (Besides - all my family talk loudly:D:o)

We've had 3 sets of grommets and as of today we are looking at a 4th set.

His L ear is still discharging after two lots of AB's and AB drops