Come and say hello!

[naiwen]

Hi there bubhubbers :wave:

I thought I would start a thread in the breathing issues thread for all mums (and dads) who have bubs with respiritory issues.

I am convinced there are other parents on here that have babies with RAD/Asthma/CLD/Airway Scarring/Reduced Lung capacity etc so come and prove me right.

Hopefully we can share tips on how to deal with these issues.

[mumx3littlies]

:)Hi there. Our 2yr old has asthma. He was diagnosed after being rushed to hospital at 14 months having an attack. Was first time we had seen him like it and was very scary. He had shown signs of possibly having it before that however. He started out using ventolin to control it when necessary but has since been put on a daily puffer (flixotide) as a preventer cos the ventolin wasnt controlling it adequately. All good now and we know alot more about it to deal with it too.

[Lila]

yes our 2 year old has asthma too.
he too is on flixotide and singulair 4mg as preventatives and ventolin as reliever. he has predmix when he has attacks (like today and last night) which works really well.

our oldest grew out of it, but he has the double dose. dad had it as a child and i still have it. i am on seretide myself, so i know whats happening, which is a BIG PLUS

so

HELLO fellow asthma/... MUMs :wave:

[suemp]

ok julie you know me.... hello everyone else
ds2 was born with laryngotracheomalacia...a funky airways issue that makes his windpipe and larynx floppy. will grow out of it :yelclap:

[naiwen]

Hi mum3littlies and Lila,

DS has RAD which is sort of pre-asthma for the under ones lol, he also has chronic lung disease, Scarring of the ariways (from a collapse and vent) and reduced lung capacity (lungs were healing instead of growing. He is currently on ventolin, night02 (and for day sleeps) but we are hoping to wean him of that.

Sue I do know you lol and glad too see you here!

Lila thats so great that your eldest grew out of it, how long did that take?

DS has a teeny tiny mask for his spacer it's so cute!

[LivinOnAPrayer]

hi guys :wave: sue and julie know me well but for everyone else, Im peta :D

My daughter Alex had laser surgery at 3 weeks of age to correct laringomalacia. Just recently we found out that the pipe to her right lung is also floppy and thats what her 'athsma' really was.

Alex is having surgery in a week and one day!! The surgeon will take her tonsils and adnoids, put in grommits and also do scopes of both her larynx and the floppy pipe (bronchoscopy).

Overall alex is a pretty good breather now, although she has a faint wheeze 80% of the time. Shes no longer on steroids, but may need them again come winter. YAY :smiliedance:

[Nowhere]

hey there Juile

Ok mikis respiratory issues here we go, Aspiration neumonia caused by reflux countless times, Laryngo tracheomalcia (bith defect) corected twice and escaped the need for a trach by the skin or her teeth thanks a GREAT ENT, Reactive air way disorder upgraded to asthma just recently she is treating with pulmicourt and ventolin nebs, Obstuctive and central sleep apnea, and last but not least traceal spasms

Miki is lucky she no longer requires suplement o2 unless she has a bad spell IE neuomonia, an operation etc

We are curently fighting a flu with no need for suplimentry o2 wich is great just hopeing we keep plodding along that way, had a few issues last night of desats but was mainly positional

[naiwen]

Amy that fantastic she is fighting an illness with no need for O2, well done Miki!

Hello Peta lol didn't expect too see you here lol.

Everyone is welcome too come and say hi you dont have to be in special needs chat I promise, hehe.

Edward sounds like a heavy breather when he tries to move around, it goes, wriggle...grunt...wheeze...roll over...heavy breathing...wriggle.
Better not put him on the phone or people might get the wrong idea!

[LivinOnAPrayer]

lol julie :laughing:

thought id better add that alex sounds horrible during and after a feed (if she eats enough) cause food gets stuck on her epiglottis and her long soft palate, and she has nasal regurgitation which sometimes causes aspiration so her feeds and liquids are thickened. touch wood she hasnt had pnuemonia since having thickened.
Alex alarmed severely after her mri the other week, lucky they kept her in over night. I want a monitor like theirs!! It actually has a probe that gets stuck to their chest that alarms in 20sec with no movement. I love it!