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kiwibird27
03-01-2008, 12:29
Very frank discussion about life and death of a child...don't read if this will bother u



I recently had a discussion with a friend who has a child with serious medical issues, the child is a toddler, I hope she doesn't mind me writing this but I felt it required comment.

When a woman at the local shops noticed medical equipment attached to the child's stroller the comment was passed "You should just let her go", meaning let her die, it would be less cruel.

I too have a child with serious medical issues and I put myself in that mothers shoes and thought to myself, how would you like me to knock her off, My child has never needed resuscitating, never been in full organ failure and has never actually been at the dying stage, she has with medical intervention always fought and always pulled through, the doctors have never said to us, This child won't have quality of life and we should let her pass, because there has NEVER been that situation.

So to that woman who felt the need to upset a fellow special needs mother, would you like us to starve our kids to death....Thats possible, but it takes several weeks of agonising pain to do that, Perhaps we could OD them on Morphine....but then of course we would face jail, perhaps u would prefer if all the sick kids were just sent away to some place and never return, then u wouldn't have to feel sad?????

Or perhaps you could just think your thoughts and go about your business, I am so proud of my daughter, she is alive because she chose to be, She isn't in any pain, she smiles and laughs and giggles, she doesn't eat, but she doesn't care, she doesn't care if she is different and she is so loving, even to the people who think she shouldn't be here.

I might add I have heard of premmies being resuscitated several times that grow up to be "NORMAL" Would that woman suggest they should of been "Let go??"

My point is these children choose to be here, we don't make them live....So get over is society we are here to stay

Loopy Linda
03-01-2008, 12:33
:yelclap: :yelclap: :yelclap: :yelclap: :yelclap: :yelclap:

that is all they let me put up, but big crowd standing ovation, others can think whatever thoughts they want, then keep them to them self!

Benji
03-01-2008, 12:34
I can't believe that woman would say something so obviously rude and hurtful to someone else.

Whether or not someone believes in euthanasia is not the point. Why would someone "let their child go" just because they have some sort of condition.

I'm just in shock that someone would say such a thing. I could think of some things I would like to say to that silly woman but they would be inappropriate for a forum.

punkbaby
03-01-2008, 12:35
Well said. Shame on those with such shallow minds

kiwibird27
03-01-2008, 12:37
You would be amazed what people say....thats why I wrote this, our kids chose to live!!!!! But I guess people who have never been exposed to children with severe medical issues, just don't understand, that also why I wrote it too

Benji
03-01-2008, 12:38
We certainly don't understand - and that's why I think that woman had no right to say what she did to someone she knows nothing about passing by her in the shops.

punkbaby
03-01-2008, 12:42
You would be amazed what people say....thats why I wrote this, our kids chose to live!!!!! But I guess people who have never been exposed to children with severe medical issues, just don't understand, that also why I wrote it too
i get enough comments about ds but his disabilities arent noticable till he talks or interacts with someone, i cant imagine how it would feel having comments, stares ect from people who see a visual disability without interaction. I admire how strong you are i know how much it hurts me from the small comments i get.

i bet it would be a whole new ball game if it was this womans child!!

*babygirl*
03-01-2008, 12:43
how incredibly heartless! perhaps we should just let HER go!:(

you are amazing... you do the toughest job and dispite everything stacked against babies who have it hard...they always smile! i have known a few babies and toddlers who have been real little fighters and they have the bravest outlook on EVERYTHING! so strong.

i just wanted to give u some hugs:hugs::hugs::hugs:

Oblena
03-01-2008, 12:46
I don't think anyone has the right to say whether or not someone should live or die. She must have been a very unhappy and hurtful person to inflict the pain of her illadvised opinions on someone else.

The only way I can make myself feel better about her comment is knowing that one day she will learn the error of her ways :yes:

Missus S
03-01-2008, 12:49
What a ludicrious thing to say :mad:

I would have slapped her!

SorenLorensen
03-01-2008, 12:53
i actually read something the other day somewhere that just stuck in my mind and i cant shake it....

it was something along the lines of "a special needs child having little to no quality of life"
no matter who the child is the quality of life is what the parent/care giver makes it.

people look at the out side and dont even care to get to know the inside, if they just take a moment out of their lives to look into the eyes of a child with serious special needs they will know in an instant why the parent cant just let her/him go

LivinOnAPrayer
03-01-2008, 13:10
Alex is still here! She's my world, sick of not. She has chosen to stick around and thats all I need to know to keep fighting for her.

Nowhere
03-01-2008, 14:23
I think sometimes the equiptment scares people KWIM I know it shouldnt, we are used to it but for alot of people it freaks them out

People need to look at not what a child cant do but what they can do and how far they have come, and look past the tubes the glasses the oygen weelchair or what ever it is the child has.

Special needs kids are special for so many reasons and not just for the hurdles they are specail cause they are such fighters and a heck of a lot stronger then most of us

I think having a child with special needs changes you as person makes you appriciate the good in life

As for quality of life there is not a special needs child i know that has NO quality of life even when living in hospital the nurses and ther parents and everyone around them makes them have some happy times

When you see a child in the shops or on the street with a diability or equiptment what ever it is dont pitty them, think of what they have over come and how stong they are.

Special needs kids and mum are no difernt to any one else they just have some atatchments and the mums just do things a bit difernt cause thats what they have to do, over time it becomes normal to them and the child my DD doesnt know life with out her atatchements its just her

TeenyT
03-01-2008, 15:25
Special needs kids are special for so many reasons and not just for the hurdles they are special cause they are such fighters and a heck of a lot stronger then most of us

I think having a child with special needs changes you as person makes you appriciate the good in life


Well said. I think that perfectly sums these children up. Why would we let them go when they have fought so hard to stay with us? I am yet to meet my special child but not at any stage now or in the past, have I ever thought that it would be better to "let him go" to ease the consciences of the few ignorant people that feel uncomfortable around these precious children. If they wanted to go, they would have given up themselves prior to medical intervention.

I'd put it down to a fairly ridiculous comment from someone who has no idea.

LivinOnAPrayer
03-01-2008, 15:41
:yelclap: People just dont understand

Ashleigh<3
03-01-2008, 15:46
Excellent post, and I am so sorry for what your friend had to hear. :( Some people just don't understand and ought to be ignored!:mad:

xkwzit
03-01-2008, 16:10
Dear Kiwi

I can't imagine what possesses such ppl to make such ignorant comments. You are right, that callous person knows nothing of your friend's daughter's situation.

I loved the last line of you post, it is too true. Your children fought to be here, are we supposed to stack the board against them further? How heartless.

kiwibird27
03-01-2008, 16:54
[QUOTE=Mikenzees mum;2228408]

People need to look at not what a child cant do but what they can do and how far they have come, and look past the tubes the glasses the oygen weelchair or what ever it is the child has.



Thats exactly it, although Megan can't do what a "normal " child (hate that term but can't think of another term), can, If u compare her to 6 months ago she is a triumph, We must take every single child as an individual with their own sets of goals and own hurdles, from the child with a hearing imparement, to the totally paralyzed, to the global developmental delay, to the ADD and Autistic kids, all different but all looking to reach their own goals, wether it be social, emotional, medical or physical.

Each child deserves to belong

reAllytee
03-01-2008, 17:57
Unbelievable :no::mad:

My grandparents were told to let my mum go when she contracted Polio & became a vegetable. They never once gave up nor did my mum. She went on to walk again with help, go to school, travel, get married & have kids. Everyone should have that chance, everyone.

My hats go off to all the mummy's of special needs kids you are fantastic & you should all be so proud of yourselves :yelclap:

Hold your heads high & bugger the morons !

Mum&bubs
03-01-2008, 18:04
I am just shocked and saddened to hear that someone would say such a nasty comment. All children are blessings! :(

forbetoel
03-01-2008, 18:09
Heartless woman........I am so angry just thinking of her wasting oxygen somewhere.

kas3
03-01-2008, 19:25
The woman is entitled to her opinion, but she has no right to express it to someone she doesn't even know.

Why do ppl feel that it's ok to make these kinds of comments to strangers?!

Unbelievably rude.

regards
kas