Babies with Food Intolerances. [Archive] - Bub Hub Pregnancy & Parenting Forum

nemosmum

31-03-2006, 18:54

Our child health nurse predicted our son would have eczema (he was about 8 weeks old at the time) so she gave me the name of RPA's allergy clinic to get him skin pric tested.

He did end up getting eczema (which is a symptom of allergies) and we had him skin pric tested at 7 months (as there was a 5 month waiting list)

He was diagnosed with a moderate egg allergy and a severe dust mite allergy.

He was tested again at 12 months and the egg allergy was gone:smiliedance: but he still has the dustmite allergy.

Before I found out about his egg allergy I tried him on egg custard and he vomitted it straight back up, he is also intolerant to the protien in dairy foods ( we discovered this as he kept getting congested when having cow milk based formula.

He is now on soy milk and sees a natropath (she is the best :D )

Mrs Little

01-04-2006, 12:26

nemosmum- i've been hesitant to try soy.....do u think it really works? Have u tried lactose free formula at all?

What kind of things does the naturpath do to help your son?

Mrs Little & Son.

nemosmum

01-04-2006, 12:51

My son isnt lactose intolerant , it is actually the animal protein in the milk that makes him congested and sick (it effects his nasal passages by creating too much mucus, he gets congested and that leads to chest infections and now recently asthma:( )

If your son is still on formula I would suggest seeing your doc as I put my son on a prescription formula which is cows milk based but the animal protein is very low and so my son never had a reaction and was very healthy while on this formula.
It is very expensive so you need a script for it (its actually cheaper than normal formual if you have a script, you get 8 x 450g tins for $28)
I used the one called Elecare but you need to talk to your doc.

I have heard mixed responses about soy milk so was intially worried about putting my son on soy milk but I look at the results and he does really well on the soy milk and is healthier than he has ever been, so im sticking with it for now as it has made a huge difference for us.

The natropath I started seeing is amazing she basically takes down his history (birth, any complications, how he was born etc and any problems he has had since then) ie my son was late and had to be induced which led to feotal distress and then he had to have oxygen for the first 24 hours after birth etc etc

Any way she goes through his history and then examines him (looks at his eyes, mouth chest usual stuff) and then she checked his pressure points on his feet and hands.

She was full of info and advice( about what kinds of foods to avoid etc she said that banana's in some people can actually create mucus and as my little boy loves bananas she advised me to cut back on them) and she actually picked up he had a bowel problem with out me saying anything and she massaged his foot (showed me the tech. too so I can continue at home)and he started going three times a day since then (which apparently is normal)

She made up some natural herbal drops for him and within two days he was off his Ventolin medication for his asthma:smiliedance:
He was healthy and calmer (his personality changed as he was no longer on the steroids etc) and his allergies were under control:D

However on monday he was exposed to dust mites at daycare (which he is highly allergic to) and he has had a chest infection and an episode of asthma, he is still on the herbal drops as well and this is the first asthma episode where he hasnt been rushed to the hospital and admitted ( i personally think its becuase he is taking natural drops as well as the meds)

sorry for the long post :o

Hope this helps, does your son have an intolerence to something?

Mrs Little

03-04-2006, 08:24

Nemo's mum- thanks for your long post. I appreciate you sharing it all with me :thumbsup:

I believe my son has a lactose intolerance or the protien intolerance like your son. However my DS doesn't react the same as yours. My DS gets bad wind pains and tummy cramps and the reflux is a result of it too. My mum has told me that my brother and sister and i all had this when were babies, but we all grew out of it. I'm hoping the same for him.

I have tried a script formula called NEOCATE- which is meant for all babies with any kind of intolerance.....unfortunatly it tastes very metalic and my DS wouldn't eat it. I am going to try again in a few weeks. My pead. suggested the lactose free formula before trying NEOCATE....and this formula has helped too but didn't eradicate the problems....he seems to be able to pass wind easier but he still has it. The wind pains bother him when he's trying to eat.....but he is sleeping so much better now. The cramps used to bother him when he slept.

Sounds like your Naturpath is great. We've seen one that suggested he had clogged bowels too. I understand why he had clogged bowels now...it's all due to his lactose intolerance. We stopped seeing her for the last few months because she didn't seem to be able to help at all....now i realise it's because we were missing the lactose intolerance. We will go back to her again now that we've figured it out. I'm hoping she will have some suggestions.

Mrs Little & Son.

Briannabear

03-04-2006, 08:29

My baby is intolerant to wheat and gluten. (She gets it from both my husband and I :crying: ). Because of both my hubby and my history with it we thought we'd better get her checked out too - and sure enough she has issues with it too.

We found out through our Naturopath/Homeopath. She has been fabulous.
Its not something you can treat as such - Its moreso a case of having to avoid it... probably indefinately.

nemosmum

03-04-2006, 08:37

Mrs Little, Im so glad you've found something that works:smiliedance:

Coz like your little boy mine had reflux too very badly but for a long time he wasnt diagnosed which was very very hard as he had such a hard time (sleeping etc)

My natropath showed me this great massage tech. to help stimulate the bowels and it has worked wonders:D

I hope your sons health continues to improve:)

Mrs Little

03-04-2006, 12:09

I would love to know what the massage is?

I've looked at some reflexology stuff a while back for the pressure points on your feet to stimulate your bowels....but i didn't really know what i was doing.

I'm glad too that my DS's health is improving.....thanks for your story though.

Mrs Little & Son.

nemosmum

03-04-2006, 17:22

I can try and explain how to do it :o

But its probably a better idea to get an expert (natropath) to show you so you can do it at home.

When my natropath does it on my son it works like magic and lasts for about a week and then I try and keep it up at home which is hard as Im not that good at it :o

Jackson84

07-04-2006, 16:39

hello there.

my son is wheat intollerant. he was one week old when it was picked up - he had severe colic, and was screaming on and off in 'waves'. i figured out it was wheat by going on exclusion diets myself (he was reacting to the wheat i was eating, that was present in my breastmilk). the difficulty is with wheat intollerance, it usually takes about 24hrs for the reaction to manifest.

re lactose intollerance and milk protein allergy:

if your reaction to dairy is nasal congestion, rashes, breathing problems etc then it is probably milk protein allergy (think immune system responses), and the reaction is usually immediate.

if however, you get wind, cramps, tummy ache etc, then it is probably lactose intollerance (think unable to digest lactose), and the reaction usually takes 2-4 hours (long enough for you gut to not digest it, and for it to start causing problems.

i should know - i have both. :rolleyes:

nemosmum

07-04-2006, 18:40

Great explaination Jackson:smiliedance:

My son is is intolerant to the animal protein for sure as his reaction is nasal (rhinitis) and breathing (asthma)

Mrs Little

07-04-2006, 19:09

Thanks ladies for being so informative.

My DS reactions take a few hours...i think...he's had it so long i wouldn't know anymore! :thumbsdown:

He still gets bad wind...he's not as bad with tummy cramps anymore though.

He has just started breaking out in eczma (sp?) today.....nothing new has been introduced into his diet for over a week now.

DH and i were discussing going to see a dr. that could actually doing some of those allergy tests. What kind of dr. is that? I want to get an exact answer for what he's allergic or intolerant too.

What kind of milk would i give my DS when i start weaning him?

Mrs Little & Son.

nemosmum

07-04-2006, 19:22

I would suggest getting a referal from your GP to see an allergy speacialist.

I dont know where you are in Oz but if your in sydney I can highly recommend RPA Allergy clinic, its a free service but there is a long wait list (4-5 months) so you need to get in early.

Otherwise consult your gp and they should be able to refer you.

Once I had my son tested and confirmed his allergies I was so relieved as I could finally start eliminating things in his diet and the environment and be proactive about helping him stay healthy and happy:thumbsup:

btw the eczemais a symptom of allergies so its a great idea to get him tested and know for sure what he is allergic too.

Jackson84

07-04-2006, 22:50

btw the eczemais a symptom of allergies so its a great idea to get him tested and know for sure what he is allergic too.

it is associated with both allergies and intollerances.

nemosmum

08-04-2006, 06:55

Thanks Jackson , for the clarification:D

Jackson84

08-04-2006, 08:36

my family has a long history of food intollerances. :p when i took bubs to the doctor and said "i think he is wheat intollerant" and explained what my mum has said, the dr replied, "well, your mum would know. i'd do what she says". :)

i am one of 7 kids, and six of us had lactose intollerance (i am the only one with milk protein allergy as far as i know) and pretty much all of us has dermatitis.

apparently constant hiccups is also a symptom of food intollerance? DS had them all the time, and still gets them quite regularly.

Mrs Little

08-04-2006, 15:14

what kind of formula do u feed your bubs then? partoicularly the milk protien intolerance?

Mrs Little & Son.

nemosmum

08-04-2006, 18:52

Ds was on Elecare Formula for his allergy to milk protein:) it was great stuff!

Mrs Little

08-04-2006, 19:33

is that a script formula? Is it a formula for babies with allergies of various kinds?

Mrs Little & Son.

reAllytee

08-04-2006, 19:49

Mrs Little have you taken your bubs to get tested for an allergy ?
I would really advise this as then the allergy can be treated properly as in the right formula used etc.
Also remember bubs will be unsettled for 2wks following a formula change as it does mess with their systems & also remember to change slowly otherwise this could have a bad effect also.
I really hope you get some answers soon.
With our bubs if he keeps on with his reactions to formula atm we will be testing him for the protien allergy as we know its not lactose due to him taking the formula no probs before.
Good luck :hugs:

nemosmum

09-04-2006, 07:33

I agree with Allyoo, besides dr.s dont usually give prescripion formula unless bubs has been tested OR bubs has shown an adverse reaction to both cows milk based formula and soy milk based formula (at least thats what the paed. at the allergy clinic told me)

Its funny because my son had a reaction to the soy formula but now soy milk is the only thing that his ok to have:confused: oh well what ever works.

Oh and Mrs little yes Elecare is a prescription formula and my son was weaned off bm onto the formula very slowly as Allyoo suggested (it actually took me 3 months to wean him) but I am glad I did as my diet was soooo restricted whilst bfing him and it was very very hard.

Mrs Little

10-04-2006, 08:21

Thanks girls.

I know you're looking out for me by explaining about tests and how to change formulas....i know all that...i do all that.....i just don't write about my whole life story every time. IYKWIM?

I have been to sooo many dr.s and had so many different answers/test/explanations!!!!!!

I was told by the last pead. that they don't do allergy tests!!! See how frustrating it is for me? He said the only way to rule out an allergy is to try a change in formula. So my DS has been on lactose free formula for about 2 months now...things seem to be ok. I think the intro. of solids is helping as it isn't only milk being digested in his system.

We tried NEOCATE....pescribed by a pead. who said that with my family history it should rule out if he has an allergy. But my DS wouldn't drink it.....too metalic.

So we've been plodding along on lactose free Formula. So then i thought to ask on BubHub- how did/do other parents find out what allergys bubs have and what kind of formula or food did they give them. All the dr.s i've been seeing don't seem to be helpful.

So in asking other mums here...i've concluded that i need my DS to have an allergy test...and i don't care what the dr. says...i have a right for my DS to have one done. When this test comes back i can then go to a dr. and ask them to help us determine what the best thing is to do.

I've been asking about what other people have been told to do after the tests so that i go informed to the dr.s and armed to question them as much as possible before i change or do anything. From my last dr. i was told that NEOCATE was the only formula that would help a child with allergies. As i found out from Nemosmum...thats not the case. So i'm glad i asked. I will be asking about that formula after the tests.

Nemosmum- i was told that soy doesn't help with bubs with allergies. Dr's can't seem to ever give the same info.!? So i haven't tried soy.

I'm making an appointment today to see our local gp for a referral to an allergist, so DS can have the allergy test. Then we'll determine what to do after that.

But thanks so much for your help girls....i do appreciate you warning me. It's just getting so tiresome having so many dr.s not know what to do or not able to give me any answers. I do feel that we're heading towards the finish line though...it's been a long hard 6 months!

Here is a question for you girls.....the pead. said that the lactose free formula wont eradicate the problems that DS has...it will just help him. Is that the case with your bubs allergys? Once you change the formula or diet their symptoms didn't go away they just lessened?

Thanks again! I appreciate your support.

Mrs Little & Son.

limlib

10-04-2006, 16:33

My DS came out in eczema when he was 3 months old even though my DH and I don't really have any allergies so I was very worried about allergies and food intolerances but he has been pretty good. He came out in a rash and eczema spots with kiwi fruit but nothing else really. My dr said to try him and see how he went with each food.
I just wanted to say that it is not always food intolerance or allergy that causes eczema to break out (or a rash). Everytime Ds has new teeth coming - out breaks the eczema.

nemosmum

10-04-2006, 19:25

Mrs Little- I so know where you are coming from it is so hard to get answers etc

I dont know about the lactose free formula, coz I have never tried it. But with the prescripion formula (elecare) DS still got eczema (but this was because he has an allergy to dustmites as well ) but his eczema was basically well managed ie he would only get a small patch every now and then and it wasnt as irrtiating for him etc
The major change that I found was he no longer got runny noses every week and he wasnt congested or irritable as he wasnt getting the animal protein (which was too hard for him to digest) which made him a happy baby:smiliedance:

Re: Soy, look to be honest there is alot of conflicting evidence/studies on Soy so you will here alot of negetive and positive things. For me I go with what works and my DS is alot healthier and happier when he is on soy products. We did try goats milk but after two weeks he ended up in hospital with a severe chest infection (which is all related eg congestion, mucus, fluid on the chest etc etc)

Also when my son had cows milk he got his first and only ear infection (which is also related to it) since switching to soy he no longers gets runny noses, congestion, etc Ear, nose and throat!

I just do what works for my child:D

Good luck with the testing and finding out what works for your bub:fingerscrossed:

reAllytee

10-04-2006, 19:31

Ok for starters Mrs L you sooooo need to find a doctor who is going to listen to you & not give you this rubbish about not testing allergies !!!! WTH ?!?!?!?!? :eek:
Of course certain formulas arent going to help your bubs because say for instance you put him on a lactose free or soy formula you still have the dramas of the protein which could be what he is really allergic to !
Same again if he has a different allergy to something & your still giving him something else that has it in it IYKWIM.
Some babies even get an allergy that hits all of a sudden & then dissappears just as quick in a few months its hard but a doctor should be way more helpful than this :thumbsdown:
I just spoke with my CHN last week about it all again & she said what needs to be done is for bubs to either be tested straight out while he is still on his normal formula eating yoghurt & custard etc which are all the full milk base then take a stool sample to be tested to see if his system is rejecting it etc. Otherwise she said it was up to me if i felt i just wanted to try the change straight out after this coming & going for sometime now ( dont get me wrong bubs isnt sick its just that if he has too much milk or products its like his system over loads & his bm's are shocking ! ) that i could go & get the formula which is possibly the HA version ? sorry cant remember now but it doesnt have the proteins in it for us it doesnt come in toddler version but thats no drama.
Sorry i just cant get over you not getting any answers nor having a decent doctor who knows about allergy testing !!!!!!
I really hope things work out for you & you get your answers just keep pushing & pushing & pushing ! :hugs:
Let us know how you go !

Mrs Little

11-04-2006, 07:22

Allyoo & Nemosmum, i appreciate your support.....

After CONVINCING my Gp to give me a referal to get an allergy test for bubs yesterday afternoon, i thought to myself...why isn't there one dr. out there who will try to help. I feel like i'm doing the helping. I've been to so many dr.s and this one has been the best one so far.

The dr. told me that it's a big thing to ask a little bub to do and allergy test. So in the end, we've opted for an allergy test on just the milk protien. I figured it was the only thing left in his formula diet that could be causing these problems. We have him on lactose free formula which has helped greatly, but not helped with his wind. So i can rule that intolerance out. The only possible intolerance left that i am aware of is the protien. So we've been given a referal for the CHNs Hospital in Westmead to see their allergy clinic. If this comes back negative i will assume he doesn't have the allergy and possibly try giving him soy milk. Otherwise we will wait it all out until 12 months and try giving him a different milk when we wean him off formula.

There isn't any more ideas that i can think of that would be causing him difficulties in digesting Formula. Since we've started him on solids things have improved greatly. So i'm hoping that with the increase of solids over the next few months his poor digestive system can have a rest.

I'll let you all know how i go with the allergy test. We'll wait this all out till then. At least my DS is much more managable with feeding and sleeping than he was 2 months ago. I just feel sorry for him, as his day sleeps are so distruped from wind pain which he gets about 3 hrs after eating. At night he seems to do ok- he'll sleep from 7pm-6am no problems...often from 6am -7am he spends the whole hr fussing or trying to get the wind out. I've tried gripe water...he wakes up screaming out of his sleep. I tried gripe water on three seperate occasions and the same thing happened. I'm trying infants friend today.

Thanks.
Mrs Little & Son.

wattle

11-04-2006, 07:29

What is it with doctors and allergies???

Ds recently had allergy testing and it really didn't bother him too much. They tested him for about 10 things. They just place a drop of liquid on his back and do a tiny tiny prick so that it goes just under the skin. Dh didn't even flinch.

I found that getting tested for lots of things was great because at least I know now which foods he is allergic to. If I had only tested him for eggs (which I suspected were a problem) I wouldn't have known about peanuts and shellfish.

While they are getting tested for one thing, it really isn't difficult to get tested for a few others too, and might save you lots of hassles down the track.

Just a thought. It's hard to know what to do when your doctor is being so unhelpful. Perhaps it's even worth asking the allergy place when you make the appointment.

nemosmum

12-04-2006, 15:59

Just found this site

www.petitebaublesboutique.com

They make beautiful Allergy alert ID Braclets for children, Im ordering one for my DS, they have lovely ones for little girls and cute boyish ones too (like spiderman or firetrucks, soccerballs etc)

They are a great idea for kids with severe allergies once they start kindy etc

The only problem is its an american site, does anyone know of an aussie site that makes something similar?

nemosmum

12-04-2006, 20:21

Oh and here is a great web site for allergy free products

www.allergyblock.com.au

They have easter eggs and easter bunnies that are dairy, nut and egg free, a little late maybe for this easter but good to know for next year.

They are located in sydney, Elgin st Carlton so if your in that area check it out:thumbsup:

QTB

13-04-2006, 11:58

hi everyone. my son has a milk protein allergy and is currently on pepti junior (script) my dr was great and after a few tests (changing to lactose free formula for a week, changing to goat for a week, then soy for a week) a few other tests and it was all ok'd for the subsidy. we found out he had a MPA as he was fully breast fed and fine (i dont have any dairy) then he went onto formlua as i didnt have enough breast milk for him, and he started vomiting up full feeds... then he got a rash then stopped breathing on us, and very mucusy in the chest.... i rang a dietition who told me to take him to the dr to get him checked for MPA (hubbys sister has it too) we found out when he was 14weeks old (hes now 5.5mths) and although he still gets alot of the symptoms (mucus/rash/and a little bit thown up) hes 100000 times better! although we have just found out last week hes allergic to pumpkin! so i have a bad feeling allergies are going to be a bigpart of his life.... poor wee chap... best of luck!

Mrs Little

04-05-2006, 14:22

Hi Girls...

It's been a while since i've posted on here, but i thought i'd update you all.

I have an appointment at the Allergy Clinic at Westmead Hospital on Tuesday next week.

We have been going great guns with our solids...he doesn't particularly like fruit...but no adverse reactions. So my theory continues to be confirmed that the issues are with the milk.

He has been developing the beginnings of exzma ( sp?) which i have been treating by using QV creame, as suggested by my GP. (And it's what i use for my exzma).

His wind is bothering him during his feeding times...he just can't relax to take a feed because he's too busy trying to fight the wind. There is so much of it that he finally lets one loose and then 2 seconds later we start over again. ( Yesterday we sat in the car outside the shops while DH went and got some things for tea- DS farted for a whole 3 minutes....pretty much consecutively!!!!). MY GOD, i've never heard anything like it!

Do any of you wonderful ladies have any suggestions for questions or advice that i might need to ask or use while at the allergy clinic?

We are looking into starting Karicare Goat formula. It's pretty much the only thing we have left other than the prescription formulas- pepti junior or elecare.

My DH and i are looking forward to Tuesday for some answers...even if it's just advice on what we could do even if it comes back saying he doesn't have an allergy.

Also, a naturopath has given us some drops that i can add to his bottle to help him relax to let his wind out.

Thanks in advance,
Mrs Little & Son.

jessgray

06-05-2006, 06:12

how did you find out? DS got gastro then afterwards wasnt able to handle dairy or soy when he had made a full recovery from gastro. he had a test doen to see if the bug was still in his system and it wasnt.
How did you treat it? we cant give him naythign with dairy milk or soy in it.
What kind of allergy was it? he is lactose intolerant and is allergic to dairy and soy.
At what age did you find out? he is 1. we got our results back wednesday just been.

Jackson84

06-05-2006, 10:24

mrs little - it sounds like your DS has an intollerance, rather than an allergy. wind was one of my DS's biggest problems (he is wheat intollerant).

my DS' paed said keep him on the wheat free diet till he is two. then do a patch test - mash up some wheat bixs and rub it on his skin. if he reacts, dont give him wheat. if not, keep a food diary for two weeks, noting what and when he eats, and his behavious. then give 1 wheatbixs at breakky time for 7 days - still keeping the food diary. the continue the food diary for another week or two after finishing the 7 days on wheatbixs.

if he is intollerant, there will be changes to his behavious. he may get wind, dihorea, tummy cramps, become hyperactive, unusually aggresive/sulky/intollerant. with intollerances the symptoms arent always physical pain.

if you DS is dairy intollerant, i would suggest doing something similar to the above. perhaps your Dr could refer you to a paed who actually believes food intollerances exist?

Mrs Little

06-05-2006, 10:35

Thanks Jackson84.

We were told that the Westmean Allergy Clinic deals with intolerances too.

Thanks for th confirmation about intolerances. I too believe it's an intolerance.....it's definately not an allergy.

We've started my DS on goat formula this morning....We'll see how he goes over the next few days as i introduce it to a new meal time each day.

I am curious though to find out about alterntive food products that i could give him as these have dairy: yoghurt, cheese, etc.

Mrs Little & Son.

Jackson84

06-05-2006, 15:44

you can find soy alternatives of pretty much anything these days. for good quality my mum swears by jewish kosher shops. because they have such strict rules of what you can eat with what, they have become quite adept at producing dairy alternatives. :)

jessgray

07-05-2006, 08:23

Jackson84

07-05-2006, 10:09

thanks for the suggestion abiut the food diary i think i will do that im suspecting he is also wheat intolerant. he ran out of oats and has had weet bix past 2 days and has had the runs :confused: should i cut out wheat out see if there is a change?

im finding it hard to go shopping for DS there isnt much alternatives at the supermarket for people intolerant of dairy and soy. but we're getting used to it :) i wish there was some kosher shops were i live it would make it easier.

Mrs Little- you can get lactose-free yoghurts.i think its vaalia brand.and there are butters that are dairy free too :)im still unsure of what is available in the world of cheese.

it doesnt hurt to try. maybe keep a food diary for a week or so and then take him off the wheat. if you are going to test via exclusion diet, you need to to keep them off the wheat (or whatever other product) for at least three weeks, because residuals hang around forever! if you reintroduce to soo you could get an inaccurate response. and with wheat, beware of things like maltodextrin, glucose, some vinegars etc so many things are derived from wheat it is not funny;

jessgray

08-05-2006, 15:35

maltodextrin? what is that? :confused:
i started a food diary yesturday and it seems weet bix arent going down to well but rasin bread is :confused: white bread makes him cranky and constipated.

Jackson84

08-05-2006, 20:26

maltodextrin is a wheat derivative used as a thickener.

he might not beintollerant of wheat - it might be some preservatives.

also, the reactions are delayed. he might be eating wheat bixs, but reacting to the bread he ate the day before.

jessgray

09-05-2006, 13:16

i never thought it could be a reaction to the bread. can you get lactose free bread :confused:

he seems to not react to pasta. is their a list somewhere on the net that could guide us on what foods you can get at the supermarket for DS? he eats pretty much what we eat now (except for spicy food and stuff he canthave now due to his intolerance)

jessgray

12-05-2006, 07:13

he reacted to rice milk last night. he woke up walked over to our matress( we are sleeping in the lounge coz our bedroom is freezing lol) and he spewed on the my side of the bed lol so we are going to try goats milk next but after that we dont know what to try.

Riley's Mum

12-05-2006, 12:05

So much to say... not sure where to start.

Mrs Little - Glad to hear that you are pushing forward with the allergy testing, the information you get could be incredibly helpful.

My DS has serious allergies to: wheat, cows milk, egg & peanut. Discovered when we first tried wheat bix (thankfully mixed with soy formula - had it been cows milk we may have lost him).... wound up in hospital - very scary time!!

As a result of that experience we had allergy tests done - no big deal, with the exception of trying to get DS to sit still for 10 minutes there was nothing too difficult. Also glad to have found out about his cows milk, egg & peanut allergies before trying him on those foods and having another very scary hospital episode.

I've noticed there is mixed reviews about soy products. We went from breast milk to soy formula (and also use the soy formula as a milk replacement for cooking). DS has been very healthy and had no problems. It was only luck (Mum was with me and suggested soy formula when I was wanting to try to introduce some bottles amongst the breast feeding) that I chose soy - so grateful!

Agree with the comment that getting several things tested while having the test done is a very sound idea!

Nemosmum - thank you for the info on the allergy alert bracelets. My next stop is to have a look at that web site. I would like to try going putting DS in the creche at the gym but am incredibly nervous about leaving DS in an environment where he could be exposed to foods that could harm him. Our allergy specialist advised that if we could maintain zero exposure that would increase the chances that DS will grow out of the allergy. Fingers crossed. I never want to see my little angel suffer like that again.

Anyhoo sorry about the long post. And thank you to some of the other contributors, there were some food ideas in the posts that I will try. I would definately welcome any advice / ideas to help increase the range of foods that DS can have.

jessgray

13-05-2006, 08:24

well DS is booked in finally to see his peadtrician she had been completly swamped lately but he got squeezed in on the 29th may :smiliedance: right after my antenatal appointment :)

DS has got what looks like either hives or eczema on his cheeks,arms and chest. i am not sure what has caused it. i put some of his OV kids balm on it last night when i noticed after a bath in case it was eczema so it wont dry out and go all gross. it doesnt seem to bother him but im just wonderign what casued it.

he broke out in a similar thing after eating mashed potato about a week ago. im not sure what this could mean though. is it the starch or something?

i guess i have to wait till the 29th to find otu all of DS's allergies. this week we are going to give goats milk a go, rice milk didnt go down well with DS.

nemosmum

13-05-2006, 11:37

Hi Everyone,

Jess- Good luck with the testing and the goats milk :fingerscrossed:

Nicky- How very scary for you and your bub:hugs: I have found soy to work really well for my son too. Its great when something (anything lol) works and you can see a real change!

DS had another reaction last weekend this time we think to grass, so thats another thing to add to his list of allergies!

Good news though I just found an organization devoted to one of my sons allergies

Its called ARIA and it stands for Allergic Rhinitis and its Impact on Asthma its an international organization and Im in the process of checking out all the info etc

My son has allergic Rhinitis and has (as stated before) been hospitalized three times with asthma symptoms after having a severe reaction to dustmites.

But Im sure there is also a link to his milk protein allergy as I believe its all related (congestion, chest infections and then the breathing problems)

Is it just me or do others get excited when they find new information relating to their childs allergies and the info all just kind of makes sense, it makes me feel like im getting somewhere, finding answers etc etc:o

The last time my son had a severe reaction I gave him phenergen (which I havent done in the past, coz I hate pumping my little guy with drugs etc) but this time I wanted to try and prevent him from getting really really sick, to see if I could stop it effecting his breathing iykwm

And it worked, the phenergen reduced the reaction in his body and within 4-5days he was well again (previously it would have been 2 or more weeks sick, maybe a trip to hospy and then heavy doses of steroids (which make him go insane!)

His still on natropath drops which are helping maintain his health as well!

Hope everyone is well

Sxx

ps Mrs Little- havent heard an update on you and bubs, any news?:)

Jackson84

13-05-2006, 12:05

he broke out in a similar thing after eating mashed potato about a week ago. im not sure what this could mean though. is it the starch or something?

it could be a reaction to nightshade vegetables. this family included potatos (but not sweet potato), capsicum, tomato and egg plant.

jessgray

14-05-2006, 06:45

wow i didnt know they were all related vegies. it would explain why the rash looked worse after he ate a vegie pattie at a BBQ yesturday for lunch it had zucchini,carrot and tomato and potato in it. i showed DP and he automaticly thought it was chicken pox :laughing:
thanks guys i dont know what i would do without this site you all are so helpful.:kiss: :thumbsup:

jessgray

14-05-2006, 06:47

nemosmum- wow there is a site for everything :D im gald you found it. has it been helpful for you? dumb Question whats rhinitis? i have seen the word but never known what it is

nemosmum

14-05-2006, 08:42

Jess- its like hay fever and can be very serious (as in my sons case- breathing issues etc) its caused by various allergies.

Jackson84

14-05-2006, 10:02

hi jess - i didnt know about it either untill DS had some trouble with potato, and my chiropractor mentioned it.

jessgray

15-05-2006, 07:25

nemosmum- sounds like rhinitis is very serious. i hope that site you found is helpful :thumbsup:

Jackson84- did your DS get a test for allergy to the nightshade vegies or was a reaction just enough to put it down to allergy/intolerance?

Jackson84

15-05-2006, 07:39

DS isnt actually allergic or intollerant of nightshade vegetables.

he had a reaction to potato that was very similar to his reaction to wheat, and when i spoke to my chiro he mentioned that the nightshade family is a relatively common intollerant.

i took DS to his paed, and we determined that he hadnt been reacting to the other vegies int he family. the paed said that it was proably because he was still quite young (6 months) he didnt have the enzymes (or enough enzymes) to break down the complex starches. we didnt feed DS potato for a few months, but he is fine not.

thank goodness because i dont know what i would feel him if he couldnt have potato or tomato!

Riley's Mum

15-05-2006, 12:07

Nemos Mum - Thank you! For the response and for the hugs. None of the other bubs or families around us have had allergy issues and I was beginning to feel very alone with it all. :gloomy:

I hadn't heard of rhinitis before - but it sounds very serious! I must admit I do share your excitment at finding information that helps things come together. :thumbsup:

I know it sounds silly but just the idea of attaching a medic alert bracelet to DS somehow helps with the hope that someone won't accidentally (or in their eyes 'out of kindness') hand DS something to eat that could make him sick!! I'm forever amazed at the range of foods that contain wheat (not to mention eggs & cows milk) ... foods that I used to view as harmless now take on a whole new meaning!

I agree with you on the phenergen. I also hate giving it to him - but it does reduce the reaction, and that can make all the difference.

Thanks again and I hope it all works out for you! :hugs:

jessgray

15-05-2006, 14:19

Jackson84- my DS did something similar at around the same age your DS reacted to potatoes but it was with banannas he is fine with them now though. he spewed up some spaghettit sauce before that i made it had tomoatoes and mince in it very basic so i dont know what to do now :confused: he seems to be reacting to everything

nemosmum

17-05-2006, 08:06

Nemos Mum - Thank you! For the response and for the hugs. None of the other bubs or families around us have had allergy issues and I was beginning to feel very alone with it all.

No problem, I felt very alone too when I first found out about DS allergies.

I also had to struggle to get alot of family/friends and even day care somtimes to take his allergies seriously ( coz he isnt anaphalactic thankgoodness, but he has wound up in hospy on a number of occassions due to his allergies)

Even this last easter I had to stop family from giving him chocolate and tried persuading them to spend that little bit extra$ on dairy free choc. coz he is so sensitive.

I cant imagine how scary it is for you and I would be investing in a medic bracelet for sure, any little peace of mind:yes:

There is actuallya support thread on here for anaphalactics, i think its found under the allergies section?

Sxx

Riley's Mum

17-05-2006, 13:41

Thanks again Nemo's Mum!! :hugs:

jessgray

18-05-2006, 05:29

Even this last easter I had to stop family from giving him chocolate and tried persuading them to spend that little bit extra$ on dairy free choc. coz he is so sensitive.

i know how you feel 3 days after DS was diagnosed with lactose intolerance we had a big family gathering for DS's christening DP's 21st and MIL's 50th all in one party lol and MIL and her freinds's were saying "a little bit wont hurt him" and this made me so angry coz we are still yet to find out how serious his allergy is. and i said to her "will you stay up all night looking after him while he screams his head off and has the runs and vomits everywhere? didnt think so"

My DS is the first person on both sides to have a food allergy (my sister has a really mild reaction to mushrooms she gets hives but thats it) so they are trying to learn what DS can and cant have but i think MIL will take the longest.
i wish there was a pamphlet or something i could give MIL to porve a little bit CAN hurt a person with a food allergy.she doesnt think food allergies are that serious even though there are people who die from them:confused:

jessgray

18-05-2006, 05:30

where can i get a funky looking medic braclet for DS all the sites i have found are american :( and the australian medic bracelt wouldnt fit DS yet is there anywhere that sells little ones here in australia?

nemosmum

18-05-2006, 06:56

I asked the same qusetion on here (i think it was back on page three lol:o )

Maybe thats a cool bussiness idea for any jewelry making mamma's out there, all it would take is a little know how(how to make jewelry) and getting a stainless steel name tag thingy engraved add a funky informative website and wa la:smiliedance:

Any takers LOL????:D

I think there is a huge market for something like this, coz like you Jess I dont really want to have to pay the extra by going through a US site iykwim

jessgray

18-05-2006, 07:17

if i knew how to make jewlery i would so make them :laughing:
with the amount of kids with allergies out there it would be a great bussiness :thumbsup:

Jackson84

18-05-2006, 08:50

i wish there was a pamphlet or something i could give MIL to porve a little bit CAN hurt a person with a food allergy.she doesnt think food allergies are that serious even though there are people who die from them:confused:

next time he is having a reaction, call her. she will hear it over the phone. it might help. alternatively, you could try and record some of his behaviour (video/audio tape). i did this because i couldnt explain his behaviour properly to my doctor. i thought it helped.

jessgray

18-05-2006, 08:56

thanks :) :thumbsup: i think we will borrow MIL's video camera.

Jackson84

18-05-2006, 09:35

i remember when joe first starting the reactions, and i was still going to the breastfeeding clinic. i would explain to them his behaviour, and say that i thought he was having tummy aches. they would look at me like i had two heads and say "well, what makes you think that?". how do you reply to a question like that? do i tell them that my mum was holding him, and that thats what she said? (cause thats what did happen). in the end i told them his cry was different. his cry was the same it had always been. i later realised that this was because he had always been reacting. :crying:

when i took him to my gp and she asked why i thought he was having an intollerance reaction, i said "thats what mum says" and she replied, "well, your mum would know" :) i love my GP. she referred us to a paed in case it was more than a food intollerance (family history), and we have the most wonderful paed. when i explained everything that happened, he wrote it all down, and explained everything about food intollerances (learned a few things myself despite living with one personally) and gave me an action plan. it was so reassuring.

however, despite both my GP and DS's paed confirming the food intollerance and adivsing the restricted diet, the MIL still got it into her head to give him wheat. :( sometimes, other people just dont get it, and the only thing you can do is not let them be alone with your child.

btw - the crying i recorded was when he was reacting to potato. :) his crying was so similar to his wheat reactions, but there was something different about it.

Mrs Little

18-05-2006, 09:38

How do you confirm an intolerance? Not an allergy?

Mrs Little & Son.

Jackson84

18-05-2006, 10:01

exclusion diet. i didnt eat wheat for a week. then i had a small amount. then he reacted.

took him off the wheat and everything stopped. it was like a miracle. i gave up breastfeeding and put him on formula and within 12 hours everything - the green poo, the screaming, the kicking etc - just stopped. he started putting on weight and was happy and smiling. i think i cried at the time. it was like getting a whole new baby. by this time he was almost 3 months old. 800g underweight. he put on 850g in 15 days. there was nothing wrong with my milk or my supply - it just had wheat in it (he also had a tongue tie which messed things up too).

the paed has said that when he is two to test the intollerance. first you keep a food diary for two weeks, noting what and when he eats, and his behaviour. then you do a patch test on the skin to make sure it isnt an allergy. the feed him 1 wheatbixs at breakfast time for 7 days. keep writing in the food diary, making note of any changes in behaviour. obviously, if it gets to like day 3 and he is in screaming agony and has green frothy poo etc then stop. otherwise, keep it up for the 7 days. then stop, go back to wheat free diet, and keep the food diary for another 7-14 days.

if it is an intollerance, there should be a build up of behavioural symptoms in an arc, peaking the day after the last day he has eaten wheat (reactions can take up to 24hrs to manifest). the symptoms should then gradually dissapear the week following.

comparing severity of the reaction, you can decide how intollerant he is to wheat, and if he can have some, or none at all.

the reason you use wheatbixs is because they dont have any preservatives or flavours to confuse things. you keep the food and behaviour diary because the reaction might not always be obvious - it might be hyperactivity, general irritability, unusual tiredness etc it really does vary from kid to kid.

my mum thinks that a lot of kids diagnosed with ADD or ADHD really have mild food intollerances. but because there is no conclusive tests, many doctors dont believe they exist. and hence the general population doesnt take them seriously.

Mrs Little

18-05-2006, 12:36

WOW...

You did a great job of explaining that all the me. Thanks.:D

I'm FF, so i can't do the elimination diet. However, i really believe that my DS has an intolerance to dairy or something in the formula. He hasn't reacted to any of the solids...they've actually made it better.

I don't believe he has an allergy, but we've done the testing and it's confirmed that he has no allergies. This doesn't mean that he doesnt have an intolerance.

So i'm not sure where to go from here. How do u diagnose an intolerance to dairy, etc. when they are being FF?

I haven't found any DR.s that believe in intolerances yet! It feels like this everytime i go to see a DR. in the hope they'll understand!
------> :banghead: :mad:

Does anyone have any good DR.s who they can reccommend in relation to intolerances?

Anyways...

Thanks Jackson 84.

Mrs Little & Son.

nemosmum

18-05-2006, 13:24

OMGosh there was an allergy expo at fox studios in sydney last week end and I missed it :eek: not happy Jan I could just kick myself I normally always check the events calendar on BH but I didnt do it this month until now that is :( I feel sad I missed it!!!

Jackson84

18-05-2006, 16:27

I'm FF, so i can't do the elimination diet. However, i really believe that my DS has an intolerance to dairy or something in the formula. He hasn't reacted to any of the solids...they've actually made it better.

have you tried different forumulas? you could try giving him straight milk, and seeing if he gets worse. may i ask how old he is?

jessgray

19-05-2006, 06:32

DS reacted to the mini pizza i made for him for lunch yesturday since then he hasnt been well. i know it was the base that he reacted to coz there was only pumpkin on the top lol so im guessing he is developing a gluten intolerance?

Mrs Little

19-05-2006, 08:20

My DS is 7.5 months.

We have tried the following formulas: HA, AR, Goats, Lactose Free, normal and neocate.

I think the only one we haven't tried is SOY.

I've heard that you can have a blood test done for intolerances? Is that true?

Mrs Little & Son.

Jackson84

19-05-2006, 09:32

no. there is no blood test because intollerances are a gut thing, and nothing is released into the blood stream.

the only "intollerance" that can be determined by a blood test is celiacs disease.

mrs little - maybe when your DS is a little older (i would think 7.5 months a little young for this), you could try taking him off formula, and testing him on different milks. ie, keep him off the formula for 3 weeks, feeding him only cows milk, then switch to soy, rice, goat etc you would need to test each type for about 3 weeks though, because it can take that long for trace amounts to be broken down by the body. you would need to keep a food and behaviour diary to see how his behaviour alters. obviously, if he gets severely sick during one of them you would cut the test short (like i explained earlier). it might be that it is formula that is the problem. the various ingredients in formula are treated in different ways that may upset your DS. the milk is treated at high temperatures, it has excess iron added etc etc. now that he is on solids it is possible to provide a balanced diet without formula or breastmilk - you would just need to be a little more vigilant :) i have a recipe for home-made formula if you are interested.

jess - could you perhaps detail all of the symptoms your son has had to date? its a bit hard to remember what else he has reacted to. :)

Mrs Little

20-05-2006, 08:27

Thanks Jackson 84.

I've just spoken to my mum. She see's a Naturopath that uses a machine to detect pulses, etc. This determines intolerances and what remedies to use/make.

She is going to ask her Naturopath if anyone has a machine like this near where i live. I will then take my son for a consult and see how we go. It seems like intolerances are only really believed in by Naturopaths.....GP's and Pead.s, etc. think it's a load of rubbish.

The diary is a good idea. All we have done so far for his 7.5 months life, is test him out on formula. None seem to have made a big impact on helping ease the pains and wind for him. The only change that has helped has been putting him on solids. Goats milk worked well too....but he still had bad wind.

We will try SOY formula if normal formula still shows as being a problem for him.

Thanks.
Mrs Little & Son.

Jackson84

20-05-2006, 09:45

if the naturopath doesnt have one of those machines, ask for a hair analysis. cant believe i forgot that :)

my mum had her cats hair anylised. poor cat was born in the wrong body LOL

Mrs Little

20-05-2006, 09:49

Naturopaths do hair analysis? What does this involve?

Have u heard of the machine i mentioned?

LMAO at the cat! Why would u do that to a cat? I'm a cat lover...so i can appreciate how people would do anything for their cat.

Thanks.

Mrs Little & Son.

jessgray

22-05-2006, 12:54

jess - could you perhaps detail all of the symptoms your son has had to date? its a bit hard to remember what else he has reacted to. :)
he gets vomiting and diahrear (Sp?) from soy and dairy milks and soy foods give him constipation.
he breaks out in a rash that i am pretty sure is hives (looks just like the hives my sis gets from mushrooms) when he eats potatoes
tomatoes casue vomting
bread latley has been making him really cranky,blocked up,and his belly gets all bloated,and he gets a similar rash to the potaotes.
and he had a reaction to weet-bix similar to bread

thats all i can think of off the top of my head lol

Jackson84

22-05-2006, 13:37

sounds like you need to keep a food diary to figure out everything. :) thats a pretty complex list of reactions.

rashes/hives suggest allergies
diarrhea (had to look up the spelling LOL) and vommiting suggest intolerance
bloating is usually intollerance too.
i have no idea what constipation suggests...

then you have dairy, soy, potatos, tomatos, wheatbixs, bread. dairy and soy are common allergens, as is wheat (wheatbixs and bread). potatos and tomatos are nightshade vegies, but your boy is having different reactions to them, and i thought he wouldve had the same reaction if it was the family thing.

what does your doctor say?

----------------------------------------

mrslittle - hair analysis can determine alergies and intollerances, vitemin and mineral deficientcies and a bunch of other stuff too. my mum had her cats hair tested because he developed large, weeping sores on his legs, and ulcers in his mouth. she took him to three vets, and finally the last one told her it was allergies, but the only way to determine allergies in a cat was via exclusion. so my mum got his hair tested instead. turns out he is allergic to grass, fleas, and a whole bunch of other stuff i have completely forgotten. basically everything a cat shouldnt be allergic to. LOL

jessgray

22-05-2006, 14:32

we see DS's peadtrician next monday so hopefully we get some answers. i do have a food diary im just lazy its in the lounge room and im on the other side of the house lol

Mrs Little

22-05-2006, 14:51

Jackson 84...who does these hair anaylsis thingos?

Would love to get it done for my DS if it could help him with his intolerances.

We gave DS full cream yoghurt since thursday last week...he's been vomiting all over the place...projectile....but no pattern to the vomiting and no runny poos.

And...his allergy test said no allergy to cows protiens.

Mrs Little & Son.

Jackson84

22-05-2006, 15:04

jess - i know what you mean :o im sitting in bed too sick and lazy to move either LOL

mrslittle - a naturopath did them. i have been wanting to get my DS's hair anylised too, but it does cost about $100. i have no idea about the yoghurt either.

arent bodies wierd?

jessgray

23-05-2006, 12:37

i have found having the food diary has helped with figuring out what is triggering reactions. he has the flu at the moment so he doesnt want to eat much :(

Mrs Little

23-05-2006, 13:13

Do all Naturopaths do the hair anaylsis? I will investigate that one.

Do you reccommend any good Naturopaths in Western Syd?

Took DS off the full cream yoghurt and went back to soy yoghurt. No more chucking!

Mrs Little & Son.

Jackson84

23-05-2006, 17:50

i have no idea if all naturopaths do the hair analysis. and im in perth, so cant help you. :)

Mrs Little

25-05-2006, 09:38

I've been told by a Naturopath that the hair analysis is for metals. Not intolerances.

I have made an appointment with a Naturopath on the 8th of June. She uses kenesiology (sp?) and uses the machine i've been talking about. She was fantastic on the phone...answered all my questions. She sounded lovely too!!! Not too expensive either.

I'll let you guys know how i go.

Talk soon.

Mrs Little & Son.

Jackson84

25-05-2006, 14:03

hmm. odd. i will have to check with my mum what it was that her natrupath did.

best of luck with yours!

jessgray

25-05-2006, 16:08

what exaclty does maize thickner (i think its 1442 ) do? i have noticed its in alot of foods. but it isnt classed as gluten:confused:
the supermarket was out of lactose free milk so i got the S26 lactose free formula and DS seems to be doing ok on it.just more poo then normal lol

Jackson84

25-05-2006, 21:57

maize = corn
thickener = makes things not runny LOL

i dunno what it is exactly, but it prolly doesnt include the gluton.

isabelsmum

04-06-2006, 19:59

Hi, solids have been a battle for my little Isabel (9 months old) and found out two weeks ago that she has an intolerance to salicylates. Salicylates is a chemical that naturally occurs in some fruits and vegetables (eg. zucchini, tomatoes are high in salicylates), some seasonings, nuts and is in a lot of medications eg. teething gel. Since I've found this out and found a list of foods low or negligible in salicylates I've been feeding her accordingly and her poos are now nice and solid and no more symptoms such as loose poos, diarrohea and even vomiting.

I knew something wasn't quite right and figured out it had only been happening since she went on 2nd level of solids. Checked my baby 'bibles' which only say limited things about food intolerances, but finally checked in "Save Our Sleep" by Tizzie Hall and she mentioned salicylates so I used the word to do a Google search and came up with a list of foods and they seemed to be the ones she was having trouble with. Went to my GP for a referral to the allergist at RBH and have an appointment in a year and half! So went to a naturopath who used the NAET technique which involves kineisiology (very spooky) but she told me that she tested positive for the salicylate intolerance. We've started the elimination technique and things are much better now that she is eating the foods that she can tolerate.

Me - 33
DH - 30
Isabel - 9 months

:fingerscrossed:

almond eyes

05-06-2006, 10:16

Hi there,

My son had atopic dermatitis (skin rash) on his face when he was just a few weeks old. My pedia then gave him a hydrocortisone cream and to be on the safe side, made him drink a hypoallergenic formula after I stopped breastfeeding at 3 months. I have many allergies myself and making him use everything that's hypoallergenic is a precautionary measure. I know of a very good allergist in Sydney and he treats children as young as 9 months. Several blood tests will be taken though to determine his sensitivities. PM me if you need more info.

Hope this is helpful. :)

Mrs Little

05-06-2006, 10:28

Hiya All,

I just came back from a Naturopath in Sydney who used the NAET technique which involves kineisiology too!!!

My DS displayed mild intolerances to rice and mercury. She told us not to give him rice for a while and just watch foods with mercury.

For those who have been following my story...i've been trying to figure out why my DS has such bad wind that it wakes him up, makes him irritable and gives him pain.

She explained that his digestive tract isn't opening the valves properly...his brain is not sending messages correctly. ( I should have asked her how this could have happened..oh well). So she restimulated the brain so that it could send the message to open up the valves properly. She showed me a massage that i can use when needed to stimulate his brain to open the valves.

We went to this lady last night...she was lovely. Trained nurse too. It was a bit spooky but not invasive, so it was worth a shot. Will definately be taking the next bubs to see her.

Since we've seen her, my DS has been much calmer with his wind and the massage has been really helpful when done before a feed. That's when his wind seems to be the worst...he can't relax and eat because he's got wind.

No other intolerances...so we'll go back onto the normal formula once we finish the 2 tins we bought this week. We'll re-introduce the normal formula slowly.

She also gave me some homepathic medication that you can give to bubs for teething, temps, irritiability, etc. It's just two drops on their tounge. Apparently it's very popular....we'll see how it goes.

Just thought i'd update you all.

Isabelasmum- glad it's worked for you too....isn't it great when alternative and less intrusive methods work for our bubs!

Mrs Little & Son.

Jackson84

05-06-2006, 11:32

thats great news mrs little. at least rice is one of the easier things to avoid, not so sure about mercury though - will have to be careful with fish and other seafoods later on.

thats great about the massage too. it mkaes you wonder about osme adults who have problems like that, doesnt it?

jessgray

14-06-2006, 15:47

hi guys long time no see :)
well we have got cody on S26-LF and he is doing well on it :) his pead thinks in 6 months we can try to re-introduce dairy and soy slowly to see if he has outgrown it or not.

Mrs Little

15-06-2006, 08:50

hey guys...

Where can i buy gluten free products? Particularly bread and cereal?

Thats great Jessgray. What does the LF stand for?

Mrs Little & Son.

jessgray

16-06-2006, 08:55

i have seen gluten free pastas and ceral and bread mixes in the health food par tof coles and safeways.:D most of them are also dairy free :)
LF means lactose free

Jackson84

16-06-2006, 09:39

cealiacs australia have shops around the joint where all there stuff is gluten free.

my mum told me last night that there is an english chocolate brand called "fry's" which is 100% dairy-free. you can buy it in places that sll english lolliles, and elsewhere too.

jessgray

16-06-2006, 09:45

i hav eseen that choclate at a local choccie shop :D never tried it though lol

Mrs Little

16-06-2006, 18:52

Mrs Little

16-06-2006, 18:53

OH....and....

If anyone is interested i have 2 boxes of Neocate formula that i am happy to pass on to someone. Otherwise they will get thrown out.

PM me if you're interested.

Mrs Little & Son.

Lunar

16-06-2006, 19:20

After lots of swapping and changing, we have dicovered why Kailah didn't like to drink. She is lactose intolerant (like Em was)
We started her on a lactose free formula (Karicare de-lact) and it has been improving everyday!
She likes her bottles (most of the time). She is still a fussy feeder but I think it will get better when she no longer associates feeding with pain.

Has anyone else's bub used this formula?

Mrs Little

16-06-2006, 19:24

I put my DS on karicare De-lact out of desperation because nothing else was working.

It seemed to fix most of problems but took a while. We are just now changing back to normal milk to see if his intolerance was only short lived.

Mrs Little & Son.

Lunar

16-06-2006, 19:32

Mrs Little

17-06-2006, 08:11

Can I ask what it was like if he brought a bit of it back up? Sorry if TMI, but DD's looked really curdled and like wet powder when it comes back up. Sometimes it's like that shortly after a feed even.:confused:

When he brings it back up it often looks like it's curdled. Not wet powder though....more like chunks of milk. Sometimes when he vomited it was more like projectile vomit.

Hope that helped.

Mrs Little & Son.

jessgray

18-06-2006, 09:51

EmysMum-my Ds who is 13.5 months is on the s26-LF (lactose free) formula and when he vomits his milk looks exactly like what you described

jessgray

18-06-2006, 09:54

Thanks for your help ladies.

Our local franklins store had just about everything gluten free that we needed.

We're a bit stuck on what to do instead of butter or margarine ( i can't have dairy either as gluten free diets often mean you get a lactose intolerance too). Anyone got any suggestions?

We can't seem to find any gluten free bread- that is already made and not the flat circular bread. Any other ideas?

Mrs Little & Son.
with my DS he will eat a few sandwiches that are butter free. he seems to handle this alright. there is a brand of bread that starts with D i think i was told about it its gluten free but i havent found it anywhere. i also give DS rice cakes to substitute bread :) there is a soy version of butter i think its nutlex brand im not sure.

nemosmum

25-06-2006, 13:06

Hey girls:wave:

Just found this site and thought i'd post it here

www.starallergyalerts.com.au

You can purchase t.shirts, badges and stickers

They look cute and would make a great gift, also good for wearing at daycare or when kids are at friends houses etc.....as a reminder etc

A bit $ but you'd probably pay $30 for a funky slogan T anyway, plus you can get value packs.

What do you think?

jessgray

10-07-2006, 07:36

i think the shirts are great we are getting one for ds :D
handy for daycare (seen as how the new staff gave him dairy last friday) and it will come in handy on family gatherings like christmas :D no being a food police when he is wearing that shirt :Dlol

how is everyone's children going? my ds hasnt outgrown his lactose intolerance like his peadtrician said he might. he ate some commercial baby food 10 days ago that had less then 4%dairy and he ended up sick :( and then he had butter and biscuits at daycare on friday and he spent friday night sick.
i gave him the vaalia lactose free yoghurt once and he had a reaction to it. i presume it was something in the yoghurt coz he is fine with all other lactose free products.

Washerwoman

25-07-2006, 12:17

Hi all. I have been reading this topic and nodding and sighing along with all of you. I am now on my 4th baby with intolerance and reflux! We have had 1 lactose intolerant, 2 milk protein intolerant and this last one I think is milk intolerant, though getting the drs to listen is difficult as she has also had a heart defect and everyone was focused on that, naturally.

We have used every formula known to man, I think and each one has taken at least 3 months to 'work out'. My 2yo DS also has peanut allergy. DD3 (3 mo) has eczema and reflux. Her reflux is worse on milk formula (even the HA ones which we started on) and so is the eczema. She still gets some eczema on soy. We see the paed today and will see what he says, though after her last stay in hosp with bronchiolitis he basically said it's "up to me to find a formula to suit her". What if she is soy intolerant too?

All our others were easy to pick because they had chronic diahorrhea on milk formulas, and reflux. This one is harder because she doesn't have diahorrhea, only eczema, tummy pain and reflux.

Has anyone else had one like this? Does intolerance always mean diahorrhea? I am tired of having no help - I wish there were such things as "intolerance doctors". Maybe I'll retrain and become one!

Deb

MumofMadd

25-07-2006, 12:21

We gave DS a tiny bit of egg on toast and he broke out in this rash within seconds when he had to get one of his imunisations the dr suggested we get him allergy tested. Turns out he is allergic to egg, wheat, sesame seeds, tree nuts, nuts, dust mites and contact allergis to citrus. We were advised to avoid these things and come back in a yr he's booked in for next month:fingerscrossed: we have eliminated some of these.

mama hen

25-07-2006, 14:30

Hi Ladies

I'm new to this thread as I have just returned from a rushed trip to the Drs as my DD came out in a rash around the mouth, red eyes and rubbing them and a slight temp after giving her egg on toast.

I had given her Scrambled egg 2 days ago and thought that as she had no reaction at all it would be ok to give her straight egg on toast (yolk only).

How wrong could I be ...... she seemed to be ok with the first half and then I saw the reaction .... :(

After looking on the web (Allergy Unit RPA Hospital) I have also found out that infantile ezema (my DD got a mild case at 8 wks) have a 70% chance of having an egg allergy. I know this is only 1 study ..... ahhh just venting.

As both my husband and I are not prone to anything I suppose I have been a little careless ... in that I should have only given her a little bit at a time ..... at least I know better for next time.

jessgray

25-07-2006, 14:36

welcome to the thread :)

wow i didnt know that about infantile eczema my ds had eczema at the same age and he hasnt really ate eggs so i wouldnt know if he is allergic to them. he gets eczema from strawberries :(one of his fave fruits and he is lactose intolerant and is so sensitve to dairy and soy he can react to commercial baby foods that have as little as 2% dairy or soy in them :(

what did the dr recomemend for your dd?

mama hen

25-07-2006, 14:59

Thanks for the Welcome Jessgray

The dr basically just said to keep an eye on her and don't give her anything that contains eggs (including cakes, muffins) until she is at least 12 mths. Then when reintrocing to do it very slowly and if there is any reaction at all to get her to the Drs if not serious ... but if any breathing difficulty to call the ambulance straight away.

He also said that it may either go away with age or get worse ... only time will tell. With regard to any other allergies just keep introducing new foods with a little extra caution.

The link to the study is .... http://www.cs.nsw.gov.au/rpa/Allergy/resources/allergy/eggallergy.pdf

Hope this helps you out. Take note that this is only 1 study but I found it interesting.

jessgray

25-07-2006, 15:05

thanks for the link.
i was told a similar thing about my ds's lactose intolerance we are waiting till he is 2 (next april) to try dairy slowly to see if he has "outgrown" it.

edited to add: :eek: maybe it wasnt the strawberries that gave him eczema after all. i never really thought about eggs being in breads and other foods he eats.

mama hen

25-07-2006, 15:13

I know what you mean ... scary really ... I've just got to get used to the idea and make sure everyone knows and is reminded.

jessgray

25-07-2006, 15:17

i think i am gunna try ds on some egg later see if he reacts...i need to know now lol (i'm a lady on a mission lmao) we have relatives who still struggle with the whole no dairy or soy part. i had to explain to my sister that chocolate had diary in it yesturday lol so then she went hunting in the cupboard and was like what about this can he have this and held up a choc-chip cookie and i was like no lol
aghh family you cant pick them lol

nemosmum

25-07-2006, 16:29

Jess- I know what you mean about family, I still have to remind dh :eek: :shame:

Re: The egg allergy, my son had that (as well as eczema) and he grew out of it by about 20mths, so hopefully your bub will too!

RPA is great and thats were we go for our son.

mama hen

25-07-2006, 18:18

Thanks muchly

Hopefully my bub will grow out of it :) and dh will get it around his head about the allergy ... he saw it so hopefully that will help ;)

Did your dr recommend a skin test to see if your bubs were allergic to anything else?? Or am I just over reacting??

jessgray

26-07-2006, 08:45

we figured out it wasnt egg that set off ds's eczema. ds ate some egg last night then tried to feed it to DP lol so DS cant have his strawberries no more. sinc ehe hasnt eaten them his eczema has started to clear up :D

i am getting DS a t-shirt from star allergy alerts i think the link has been posted in this thread somewhere lol it will come in handy at christmas when relatives we dotn see often try to feed him lol

a skin test for allergies are really good for seeing if there are other allergies you might not know about yet :) we havent got one for ds. he hasnt really reacted to anything but soy,dairy and strawberries. we know he isnt allergic to peanuts coz he stole my toast once that had peanut butter on it :shame: cheeky bugger.

i hope all the bubs are doing ok :)

lucyp

25-08-2006, 13:49

Hi there - I noted you said you had a great naturopath and you are based in Sydney ----- would you mind sharing the name and location??

Cheers and thanks

Lucy

Our child health nurse predicted our son would have eczema (he was about 8 weeks old at the time) .
He is now on soy milk and sees a natropath (she is the best :D )

jessgray

25-08-2006, 16:42

my DS1 had eczema very young but no one ever said to get it checked out by specialist :thumbsdown: maybe if we had we would have known what triggers ds's eczema and what he is allergic to and we wouldnt be going through the trial and error while we wait for a dr to actually agree with us that yes ds needs a referal to a specialist to get tested for allergies and that hsi reactions arent part of some virus :banghead:
we are looking at going to a natropath for ds she is not far form our house. i dont know what she can do but i think anythign is worth a shot:):fingerscrossed:

becstar

01-09-2006, 21:26

My son is allergic to cows milk protein. He was given some formula due to breastfeeding problems at around 5-ish months of age. He projectile vomited. Tried again the next day, same thing. Doctor said it was gastro but I said no its not. Waited a week or so, tried again. DS refused the bottle, some milk dribbled onto his lips and hives spread immediatley up his face from his lips. It was a bit scary actually. Anyway, we have since seen allergy specialists at RPA in Sydney (takes a while to get in, but worth it). He gets testing every 6 months and is on milk free diet, including all food which contains traces of milk (which is most packaged foods). He is on Neocate Advance, which is a toddler formula, on script from his paediatrician at RPA. Great stuff, he loves it and would probably be very skinny if he didn't have it as he hates food.

Bec

kathrine

02-09-2006, 20:27

I wish I had know all of this 5 years ago. We have went through a living hell until we finally saw an immunogist/allergist doctor.

My DS (5.5) is/was intolerant to wheat, soy, dairy. My DD 2.5 is intolerent to wheat, soy, dairy, egg, fish and rice, food coloring and preservatives

At one stage a Dr. at RCH (vic) told me that I was a paranoid mother who wanted nothing more than for my son to be sick. Take him home and enjoy your normal baby.

Several operations later (ear grommets for blocked eustucian tubes from congestion) and now partial hearing loss, he's a normal happy thriving LOUD kinder kid looking forward to school.

I'm not looking for pity however, we now look at our dietry restrictions as an enforsed lifestyle - not a disability or a handicapp.

We have sourced pretty much all alternatives for common food items - script formula and now rice milk, rye sourdough bread etc.

My babies are happy healthy and thriving.

Kate

jessgray

03-09-2006, 09:29

i know how you feel about being told you are paranoid. why would i want my ds to be sick :( dr's should listen to patients more. if it takes 5 mins extra to figure out what to do tkae that 5 mins dotn rush patients in and out like they are cattle and not people.

Dannielle

04-09-2006, 22:21

Both my twins had an allergy to cows milk formula.

One twin was actually diagnosed with really bad colic and reflux until a different doctor suggested I try a soy formula. Within 24 hours it was like I had a completely different child. She became so happy and slept really well. She grew out of her allergy when she was just over 12 months old.

The other twin also had bad reflux and she was much better on the soy formula. She however hasn't grown out of her allergy and now gets eczema on her face whenever she eats something with cows milk in it.