Juvenile Arthritis

[mumtwinsx2]

Was just wondering if there were other parents of young kids with juvenile arthritis around to chat or swap stories or notes. Our daughter 2 yrs old (our youngest and second girl twin) was diagnosed about 3 months ago. She just started limpimg out of the blue. Not due to a fall or injury etc. She has already had 2 joint injections, 1 in her right knee and 1 in her left ankle on the outside. She has just seen the rheumatologist again this week and the injections have worked but she now needs another injection on the inside of her ankle. We also do hydrotherapy with her once a week plus she is on anti-inflammatory medication. Her twin (another girl born 1 min before her) does not have JA.
Anyway was just wondering if there was anybody going through same situation and wanted to share. I don't know of anyone else that has a child with this condition. (not even at hydro!) I did meet some mums at the hospital when she had first lot of injections done but the kids were a lot older.
Thanks in advance.

[mumtwinsx2]

BUMP :flowerz:

[Nowhere]

hey

I dont have any personal experience with this sorry just wanted to offer hugs

maybe come and check out our special needs chat most of us in ther have children with rare conditions


also maybe check out www.parent2parent.com its forum for mums and dads of sick or special needs kids im sure one of them will have some info and want to chat

[jacstar31]

hi there mumtwins
I have rheumatoid arthritis myself, have had it since I was 13 years old, originally they thought it was juvenile arthritis, but is definetley adult, since i have now had it for 20 years.

I have done a lot of work with arthritis foundation in victoria in the past and we had support groups and ran camps for children and families with juvenile arthritis and there were many children from one-nine years old part of that. the one good thing about juvenile, is that the children mostly grow out of it.
no sure where you live, but there is an arthritis foundation in every state which would be a good place to start to get some extra support, one of the hardest things is not understanding their pain, esp. as they can't really express it well, just you know they are in pain!
I have a one year old baby myself and am 20 weeks pregnant and I am so desperately afraid that they might be diagnosed with it. i have done lots of research on it, and as you prob know they don't know the cause, which is why they can't get a cure!! however hereditary links and a breakdown in your immune system are 2 major ones.
I would happy to chat more if you want to PM me feel free.

i am thinking of you and your little girl, I have had heaps of injections and just about every medication around....

[SmileyBJ]

Hi, just wanted to send hugs of support to your family.

Sorry I do not have any advice but understand what your going through as I too have had arthritis and other joint mobility problems since I was 9 years old.

:hugs::hugs::hugs:

[Roxy]

hey
also maybe check out www.parent2parent.com its forum for mums and dads of sick or special needs kids im sure one of them will have some info and want to chat

One of the mums there does have a child with JA. However the link provided is incorrect....you will need to add .au.com (yes, that is the right way) and drop the .com to find the site....

[mumtwinsx2]

Thanks guys for all of your hugs and supportive ideas. I will definately check out that parent2parent website and the "special needs" forum. It will be great to hopefully chat to some other parents of young kids with JA.
Thanks again guys for your responses.
Hope you and all of your families have a very Merry Christmas and a safe, happy and healthy New Year.

:hugs::tree::xmas::reindeer::noel: