Fundoplication

[immy]

Hi guys:wave: Just wondering if there are any parents out there of kids who have had the fundoplication? My little girl 22mths old is scheduled to have this in January as her reflux is so severe even with feeds via kangaroo pump is still failing to thrive.
Would like to hear anyone's experiences positive or negative?

[Nowhere]

hey

yes mikenzee has had a fundo she had hers just after her first birthday, unfortunatly she also has really bad gastric emptying so never got of continuos feeds due to excesive gagging she loosened her fundo and as she has a hyoersensitive stomache she never got past 35 ml an hour on her feeds, so she is now fed into her intestines, they are looking at doing another fundo but wither way she will not feed into her tummy as she will only undo it again

also have great luck with the fundo but miki is a bit of a mystery child and has other issues that contributd to the fail KWIM

there is a great web site and forum on fundos and reflux some realy experience mums on there

www.infantrefluxdisease.com
is one of them thatmy favourite all the girls great a lot of tube feeders on there

the other is
www.parent2parent.com

they also great as well but is more a generalised special needs site than a fundo tubereflux site kwim

if you have any fundo questions ask away i will help were i can

are you WA or over east

[immy]

Thanks Mikenzees mum I heard it can loosen I hope we don't have the same problem. We need for this to work so fingers crossed.

I will have a look at the sites.

We live in Sydney.

[Nowhere]

Yes finers crossed for you that it stays tight in most cases it does work KWIM my dd has such terible lower GI issues wich is why hers didnt, saying that though we are looking at re doing it so i do have some faith in the procedure just not in my DD tummy hense why when were do hers we still will not use her tummy

WHich hospital in sydney are you at are you at westmeade if so i have been told that dr shun is THE best surgen aound so if that you surgen then thats great

What feed rate is your DD on atthe moment is she on continuos feeds, do you know if she has any emtying issues

I know how a fundo is a last option so i undersdtand that she mustnt be doing wel to be going down that road big hugs to you both

As for the FTT we know that all to well unfortunatly my dd is 6.5 kilo at 20 months old we are praying for her J tube feeding to work we will do anything to keep her of TPN feeds

[immy]

Thanks for the support. My little girl is 7kgs and she is 22 months old. Her doctor is Dr Guy Henry he is wonderful and the operation will be at Sydney Children's Hospital - Randwick. This is our last option so fingers crossed all goes well.

[kiwibird27]

Guy is our surgeon Immy, he did Megans fundo!!!! He's fantastic, Megans fundo was the BEST thing ever, it has mean't she gains weight and is doing really well, we discovered afterward she also has slow bowel motility, but the fundo has still done it's job. I don't think Imogen has had other gut surgery so it can be done via endoscope, so fast recovery. Megan had an open fundo with complications and a gastrostomy done, she was out in 10 days and we haven't looked back. They are tender for the first few days and they tend to gagg alot until they get used to it. Are u going to the LL Xmas party next Wed???? Can chat more then!!!

Let me know if u need more info

[immy]

Hi kiwibird27, thanks for the feedback. I can't wait now for this operation it's good to hear it was positive for Megan. LL xmas party for Imogen is Friday I have to work so I can't make it. I hope you and Megan have a nice time.
Imogen's only other surgery has been to close the duct on her heart when born and just the peg, so looking forward to a quick recovery.
Take care hope to hear from you soon.