Special needs chat!

[Loopy Linda]

i don't think it is too hard to go out at night...just couldn't be bothered. we will just be in our street with whatever neighbours turn up.

housework doesn definitly not count as a life...so you have just been avoiding us then...housework is not a good enough excuse

[naiwen]

Hello ladies,
I am back with wonderfull news a BFN! yay, I am just so releived. I am having really bad cramping and clotting though so I think I may have been BFP IYKWIM. I am in quite a bit of pain today which is why I haven't been on. Oh and my bro and SIL had their bub too! She is a month early but not in SCU which is fab. Having premmies seems to run in our family lol!
Amy I find it hard to go out at night too, which is why we are staying in on NYE!

[Loopy Linda]

hi julie,

i am so glad things worked out for you. sorry about pain though...

how is edward doing?

[naiwen]

Edward is doing really well atm, no tube and he is taking a little solids so hopefully we will see a weight gain soon. I am lucky with him as when he is not sick he is a little angel. Sometimes I look at him and worry that he is too good for this world but that is just me being silly mummy again.
Thankyou all so much for your support though. I have been majorly panicking these past few days and having support from other special needs mummys has really helped.
I can deal with the pain as I feel it is natures way of telling me that it is not my time to have another baby atm KWIM?
So what is all the goss ladies. Anyone seen a spunky looking pool cleaner for our house yet?

[Loopy Linda]

no...apart from peta engraving nut house on coconut for front door not much progress on house either...i think it was peta or lea who was going to win lotto and buy house...haven't made any new plans for it though....we may not have to build a house though as there is a 13 bedroom house in tasmania on ebay....how many bedrooms do we need?

glad edward has been doing well, hopefully he gains heaps of weight and you have to go out and buy bigger clothes, what size is he in?

[Loopy Linda]

oh i forgot to tell you all we went to lake for some swimming fun today, gordy loved it, loves the bath aswell...maybe he will be our swimmer!

[LivinOnAPrayer]

Hi.

linda, Alex was in for her 1st 12 weeks (other than about 4 days out before being air lifted) and since then she's only in about every 2 months for a few days. this op shes having in march will keep her in for at least 2 weeks though. grrr.

Alex's hospital cots were always full of stuffed toys and stuff all over them. We walked in one morning and the ICU nurse had dressed up a lamb in a beanie, mittens and booties hahaha it was so cute. And another nurse put a gorgeous ribbon in Alex's hair so that was a nice suprise too.

Hi julie! Thats great news!! For you and its great that edward is doing so well. Im hoping this week is a gaining week for all the little mites. Mine included!!! (dont hold out tooooo much hope though).

Amy, how is miki? We're going a few blocks down to a friends place for a quiet bbq tomoro night. Shoul be ok. Although Alex's BM's seem to be going down hill again and i can only assume its because the dr put her back on food and I reakon thats the cause of the temp she had on wednesday too. Hmmm, see dr again wednesday coming.

Anyways, id better love yas all and leave ya! Gonna have a shower and crash. Im never up late enough to chat :(

:wave:

[Loopy Linda]

gordy only spent a bit over a week in hospital and i hated every minute, i can't imagine how others have done it for weeks and months hugs to you for next op.

well i am off to bed too...nearly midnight and DP is working in morning and i need to drive him at 6:30am....argghhhhh i hate getting up early

night

[ReecesMum]

Hey Linda just took a look at the pics of your boys and look at how much Gordy has grown since i last saw him.Your little man is growing fast.Top santa photo too just look at that smile on Gordy's face,just adorable.

Thought i would share Reece's santa photo with you all its not too great as i used my camera to take a pisture of the photo i have.

Reece's santa photo. (http://picasaweb.google.com/Stepup83/ReeceSanta?authkey=ho1k-UlQsqw)

And i thought since i have seen some of these little ones in their hospital shots i thought i would share some of mine to give you an idea of what he was like at birth.Bear in mind that Reece swelled up to a 6 month old baby size less than 24 hours after birth so these shots do not show him as he should have been but you can see as there are some shots taken by the hospital straight after birth.I have also included a pic of him on his first day home.The first 3 photos you will see i slept with for 3 days as i was unable to see him due to the c-section and him being in NICU.

Reece's hospital photos. (http://picasaweb.google.com/Stepup83/ReeceInHospital?authkey=yYz60UUyfsw)

Reece spent 3 weeks in 2 hospitals,the first 24 hours at one then transferred to westmead NICU(in the adults hosp)then back to fairfield for introducing bottle feeds and getting him well enough to go home.Did'nt want to return to where he was born but westmead needed space for triplets and quads so as soon as Reece was well enough they shipped him out.

Peta,
Alex is such a little cutie and poor bubba having all them tubes and surgeries done.But once got back to the recent photos her smile lit up the room.All these little ones on here have such lovely little faces.Makes me all gooey.LOL!

Julie,
Glad everyhng is better now exceot the pain of course but at leats that is one less thing to worry anout.Hope all is well with you both.....

And me not doing anything yet for new years just dreading my birthday as its only 3 days away and thinking if it will be anything but a normal day..........LOL!

TC.

[kiwibird27]

We are lucky with DD, she can come out with us and isn't much trouble!!!!

Can I ask, why do people stare at our kids when we go shopping to the point where u wanna slap them. If they wanna know whats wrong why don't they just say "Hey whats up with your kid????" I would be happy to explain. It makes me so annoyed to see people openly sad that my DD has a disability, People should be thinking wow, she is alive and smiling thats so cool, not, "Oh no look at that" I just get so annoyed.

Nevermind otherwise all is good, she went puffy while on holidays in QLD so came back early to our second home that is the hospital, It may be one of her meds but more than likely it's her kidneys playing up again!!! At least it wasn't her albumim again, no transfusions .......YAY.

Everyone seems to be going well and I am so happy!! Sorry I don't write alot, but I do read alot, been so busy

[ReecesMum]

Hey Kiwibird27,

I think we all get sick of the weird looks people give us because our kids have problems.Although Reece is un-noticable at first glance once they really look at him his eyes give it away.People often say to me is he sleeping and sometimes i don't even bother with a reply but most times i say no he just has sight problems and they do the whole poor thing treatment but little do they know his problems run deeper than that.With the eyes thing it reminds me of the time i took DP and Reece to the hospital and they took one look at Reece and rushed us in thinking he was having febrile convulsions as his eyes were rolling back in his head.Good thing was that meant we got in to see the doctors quicker for both of them as this was also when Reece had had a fever for 7 days straight.I'm actually fed up of being asked as some days i just want to not think about his issues as much IYKWIM.

Sorry to hear about your little one puffing up,fingers crossed its just the meds and nothing else.Good Luck.....................

TC.

[LivinOnAPrayer]

Hi.

Today is a looonnngggg day. Turns out we are going out tonight, to a small bbq up the road. Should b good. Alex has been a bit better lately, although its still a major fight to feed her.

It does suck, all the stares and comments. When I explain Alex to people who ask, they say 'but she looks ok and she'll grow out of it', well she might, she might not so why say it. Just gives me a felling of dread and i dont say anything more.

And when i say shes having her tonsils/adnoid/palet op in march i get 'at least its not as bad as heart surgery' and i think but its still my baby...

[Loopy Linda]

hi everyone,

i am pretty excited today. do you remember me saying i had found an organization/support group for gordy's problem? well today i got this big info package from them, it will takes me ages to read everything. they make their own annual magazine. they also hold a yearly conference in US, the magazine has all the inf from conference.and they have also published a children's book on the condition to use when explaining it to other kids. it is excellent

also in there they had info on another web service for mums of special needs, so if you haven't been successful finding a group that is for your childs need (lea and lady who is moving to melbourne) they are likely to have one, pm me if you want details.

well i am off to cook dinner...chicken burgers and wedges (gourmet tonight!)

take care and i will talk again later
linda

[alisando01]

We just got back from my parent's and the hospital. Em has roseola but is fine. it is really hot here so I have just turned our power sucking air conditioner on for the 1st time since we moved in. i hope it works!

[LivinOnAPrayer]

Hi. we just got back from the bbq. Was pretty boring but nice to get out. And meet new people.

Sorry to hear em has roseola!!

That sucks.
Alex is asleep and im not sure wether to wait for after mid night to see the new year or just give up and go to bed. hmmm seems pretty quiet on here...

Linda thats great your getting more info for gordie. I bet it feels good to know your not on your own.

[Loopy Linda]

happy new year everyone

peta, yes it is good to hear from others and then one of the little things i had noticed with gordy that i thought i would mention to pediatrician is in their info, quite common among acc kids. so that was good to find too. so dod you wait up for new year or is it still coming? i think qld is behind...we are laready in 2008, so far not much different from 2007! might get better

ali sorry to hear em had roselea, is that the same one as slapped face? i can't remember much about it except that kieran did have it once...hopefully she is better soon, how are you feeling?

lea you are a goose...i am telling everyone. lea sends me sms to say happy new year so i sent one back, then i get a reply saying thanks and happy new year but i don't know who you are!!!! the goose had only just sent me a text. then she has excuse abotu using her DP's phone...i think lea has been partying!!!!!

hope everyone else has had a good night and partied a bit! here's to a better 2008, seeing drs and hospitals less and kids growing and learning more!

linda

[Loopy Linda]

after re reading my last message looks as though i am drunk typing! i promise i only tasted a drink...and i didn't like it anyway!

[ReecesMum]

Happy new years everyone although it is a bit late now.Hope all you wonderful ladies and your familys had a great night tonight.....technically last night.

I am now sitting at home at nearly 5am eating McDonalds breakfast.Mmmmmmm yummy.......LOL!Also thinking to myself it is now only 18 hours or something till my birthday. happybirthday Only thing that s.ucks is there will be no birthday Valentine (Lovin') :no: :crying: :hissy: .

Linda,
Definately pass that website info this way it couldn't hurt to check it out.Good to hear you finally recieve that info you have been waiting for.We had sausages,chips and salad for tea at a friends house and we spent all night just chatting away.No drinks for me unfortunately........oh i lied i took a gulp of DP's drink as he didn't like it at first but that was the only drink between us 2.So it was us 2 straighties with the 2 drinkers.LOL!Sounds like a great combination........The night was still alright as we hadn't seen them for awhile so there was a bit to catch up on.I wish drinking was my excuse for that message but it must be me with a few loose screws.LOL!Roseola is a mild form of the measles/chicken pox you can only treat the symptoms with panadol the rest you pretty much haveto ride it out.It is a virus but i don't think its like slapped cheek as Reece has had both within the last month and a half and they are different,well for Reece they were.........

Ali,
Sorry to hear about Em having roseola even though it isn't anyhting major.Reece had roseola virus about 4 weeks ago and he was very unsettled, was feverish and rashy on 90% of his body.I just kept up persisting with panadol to treat the symptoms even though i hate to give him panadol unless absolutely necessary and that was one of them times.Well thats how my doc told me to treat it.

TC.

[LivinOnAPrayer]

good morning. HAPPY NEW YEAR!!! :party:

I did wait up for the new year, then went to bed. haha sad.

So lea, your b'days tomorow?

[alisando01]

well I was asleep at midnight. Happy new year girls. Em is almost over it coz the fever is gone ans she just has spots. she is getting more interested in her bottle again too.

[ReecesMum]

Hey Peta,
Yeah tomorrow now 8 hours away and i'm 25...................

Ali,
Glad to hear she is almost over it they usually say once the rash develops they are contagious for 3-5 days and then thats it.

TC.

[Loopy Linda]

well lea looked into that website and she really found it useful, so i am sending everyone a pm with web adress, just have a look they may be able to tell you something new...

[LivinOnAPrayer]

Thanks for the link Linda, i'll deffinatly check it out.

Alex hasnt stopped crying all day. Except when she's been asleep. Its been a horrible day. And tomorow is weigh day and she's barely eaten today!! Grrrr.

Lea, whats reece's middle name? I love the name reece.

What are all the kids middle names?? Alex's is Denae.

Amy, hows miki?
Kiwibird, hows Megan going??

Someone better come on soon...Im so bored and Alex has just been put in her cot, still screaming. hmmm

[Loopy Linda]

hi peta,

i checked that website out more myself just now. i should have looked into it more as they want you to ppay to be included and matched to similar families. but it does say that it is free if you can't afford it. i am reading more about hyperbaric oxygen therapy atm. not for gordy, i had reece in mind ( looking to see if there is one nearby for you lea) but maybe some of the other kids might benefit from it too.

so alex been crying all day? that is horrible, is she sick or anything? she seems to be on a pattern where straight after weigh in she starts eating again and you feel as though she is putting weight on but then as it gets closer to weigh in she goes a little backward...poor bub and not very good for you either. do you weigh her at home? maybe if you weighed her mid week you may notice some improvement. do you get nervous as weigh in time comes around? i don't want to be blaming you a=or make you feel bad but could it be possible she feels a bit of nerves and loses appetite? please don't take that wrong way or be offended

Linda

[Nowhere]

hey guys

Hope everyone had good new years

peta sorry to here lexi not having a good day poor litle thing hope she drinks lots of her ele b4 her weigh in

ala sory to her she has roseola virus hope she gets rid of it soon

LEA happy birthday for tomorow :yelclap::smiliedance::party: have good one hope reece has a marverlous day for you

Stacey sorry people are so rude and stupid, just think they are obviuosly people not blessed enough to have met such a special child, I re read my post about not taking DD out and your reply saying megan is no trouble my posty must of looked nasty to kenze, i wasnt ment to she is no trouble eithe r she is really good girl but just comes with lots of atatchment at the moment and has fobia of lots of people KWIM so its nicer for her to be at home and its easier for us where we know werer everything is KWIM
Hows megan going hope she is going well, hows your new house

Mikenzee is much the same no change there, she is still cute as ever and has good and bad moments through out the day but i must say today she has been really good wich is lovely

[LivinOnAPrayer]

Hi ladies.

Linda, i toally do get nervous come weigh day. (and no i didnt take it the wrong way!!) I try not to think about it, just get on with stiff but come that morning im pacing.

Im going to chat to the doc tomoro about Alex's feeding pattern, but honestly I think its something shes eating. I just cant work out what!! Its like shes fine after having a few days of barely feeding, then will eat for a few days thens off it again for days. And the temps are always around these days. All she has is elecare and puree apples at the moment (and very rarely she'll give some meat and veg a go, but thats very rare). She eats about 5 spoons and starts crying and shoving us away. GGGGGGGRRRRRRRRRRRRRRR. sorry for going on about it, im just so over it!!


Amy im glad to hear miki is going well. Has she had any weight gain?? How rae the J feeds going? I understand what you mean about going out, I would be the same!

[Loopy Linda]

peta i am sorry i haven't had much to do with kids who won't or can't eat, i hope the dr can tell you more and help, hugs to you and lexi though.

amy you wanting to be hoome so it is easier on kenze doesn't sound mean, actually sounds normal for a mother...i would prefer to be at home than my ferals at someone else's place! probably why i always have such a great New years...i sit at home with kids...my son actually left me to go to his mates this year though...i was heartbroken..luckily they are only 3 house away.

as for middle names, gody was named after Dp's and my grandfathers so he is Gordon Bruce.

has moreboys been around? i don't think i have seen a post from her in a while.

kiwibird where abouts in qld did you go? was it to visit family or just fun holiday? sorry megan got sick though, she feeling better now?

i will be around if anyone wants to keep talking
linda

[LivinOnAPrayer]

im here im here!! haha. im so bored.

I hope the dr can sort her out too. Perhaps if they do the allergy blood screen earlier than march we'd be getting somewhere!! grrr. But they want to do it when she's already under.

Ive been looking around that site, but its hard to pick where id go. Alex has so many differant issues ans none really more so than others so i dont know.

Yippee!! ts just started raining here! it rained a bit last night too which was nice. Makes the whole place smwll good. :thumbsup:

[Loopy Linda]

i found another website, i think new one is free and same principles as that one. i think it was birth defects or something sorry i don't have it anymore. it was one of those things where this one linked to this one to the next one and so on...i hate that and it is always after i have shut them all down i think i should have kept that one.

i had to look up blackwater tonight as i kept thinking it was the place i had heard of before, probably was, do you know mount larcom? on the bruce highway, well i lived there for a while. very nice and peaceful out there, but heaps of tree frogs which i don't mind but when only the head is visible can look very scarily like a snake head...arghhh i don't like snakes.

gordy has a new trick...lay awake at 2 am and have a big chat....he is in our room and dp and i were jsut laying there listening to him last night. as it was one of first times he has done it it is still cute...but i hope he gets over it quickly cause i can see it losing it novelty real quick!

[LivinOnAPrayer]

Mt Larcom is close, near rocky. About 1hr and a half from here i think.

Hahahaha your funny. I love frogs. Theres lots here too. And i love snakes. Im alloud to get a pet one when Alex is more grown up. In about 10 yrs. I love them. I just want a childrens python, nothing big or scary.

I like it here in blackwater, its quiet. I just dont like the struggle of getting help and being so far from major hospitals. But we're getting there.
Where do you live now?

[alisando01]

Hi girls.

:hugs: Peta. I know how you feel. I was convinced Em had gained weight when she had lost b4 we found out about the LI.

Em's spots r going!! :smiliedance:! hopefully Sarah doesn't get it now. she has had MMR and varicella vaccine so hopefully they will give her enough immunity from that group of viruses.

:party: Happy birthday Lea happybirthday

night girls

[ReecesMum]

hey ebveyone hope your all doing well and the little tikes sre in bed.Well mine isn't his dad is just making him a bottle and he is off to bed for the night but by the look of it its going to be a constipation night as he is due for one and his nappy suggests its on its way.So it will be a restless night for all tonight.Mind you he keeps me on the go all day as it would be only on an odd occasion he will nap in the day most of the time hes up from 7am to 10-11pm and it drives me mad.Yeah i did find some info on that website and am thinking of joining up,i may even pay the $5 fee but say i can't afford the newsletter as its $15.Will let you know how i go joining.

Reece's middle name is Mathew after his daddy so its Reece Mathew........

Peta,
Hope Alex is sleeping for you now so you can have a break.Hopefully the doctors can help you.Its kinda hard as she has allergies to milk doesn't she otherwise Pedisure would probably help as Reece has only had Pediasure for 3 weeks,no solids but we will be giving the pureed homemade apples a go tomorrow to try and re-introduce them.Fingers crossed he eats them.

Linda,
Yeah i must look into that oxygen therapy for Reece as the lady who started that MUMS website,her girl had cerebral palsy and she did that therapy on her and saw improvements in her tone etc........as you probably read yourself.

Amy,
Thanks for the pre birthday wish.Hope Miki is doing well.

TC all.

[Loopy Linda]

i am in sydney now. i was single mum with jarrod for a few years and i became a bit of a gypsy. we moved every couple of months i guess, just looking around and seeing where i wanted to raise him...in end ended up where we started! i have a stepsister in gladstone so we stayed with her for a while with my boyfriend, then we went out to calliope, then he got a job with one guy on a farm and it was weird bargaining type of situation. my bf worked for guy1 who did work for guy2 so bf and us got to live in a house owned by guy2 but we didn't have to pay any rent as bf never got paid for working for guy1 and guy2 never paid for the work he had done....totally confused yet?

well guy2 owned a house on quite a large property ( to me from city anyway) in Mount larcom/ambrose area. he didn't live there though, he lived with his partner in rocky.

i liked the farm though, we had a mango plantation....mmmi wish i was there now!!!! but snakes scare the **** outta me. i went to toilet one day and a tree frog was poking head down from under rim of bowl and i nearly did my business all over floor....and stop laughing

[ReecesMum]

Ali,
Doctors told us that roseola is only contagious to children in that age group so sarah should be fine.Fingers crossed.

And thanks for the happy b'day.

[ReecesMum]

Linda can't stop laughing now.That was hilarious.Smakes are the reason why i won't toilet at my friends place that i was at last night.So i just make sure i go before i get there that way i'm never busting to go till its time to leave.Then as they have this huge dirt driveway i wait till we are halfway down it in pitch black and i get otu in the middle of the road and do a P.Now thats doing it bushie style.LOL!I know horrible huh but if you gotta go you gotta go.

[Loopy Linda]

Stop Laughing I Didn't See Stupid Thing Till I Was Halfway Down ....i Ran Out Of There So Fast With Pants Still Around My Knees

[Loopy Linda]

i thought i would put up a link for our nut house...nut house (http://cgi.ebay.com.au/IRREPLACABLE-13bd-spa-sheds-2-5ac-Parattah-Tasmania_W0QQitemZ180192335094QQihZ008QQcategoryZ1 49261QQssPageNameZWDVWQQrdZ1QQcmdZViewItem)

i love the look of this house and sounds like plent of space...may have to add bathrooms as only 3 bathrooms and i am refusing to share my bathroom with any males (especially mine!) as they are disgusting

[ReecesMum]

Ok i will stop laughing...................hehe.Ok have stopped now but still smiling..............!!!I actually seen a little frog last night it was pitch black and i though i could see something on the roof of DP car.I thought it was just leaves until i touched it and it was slimy.

[alisando01]

Yep that house is gorgeous. let's buy it.

[Loopy Linda]

here i found another house for us
http://cgi.ebay.com.au/HUGE-ACCOMODATION-FACILITY-ON-TWO-ACRES_W0QQitemZ260191383012QQihZ016QQcategoryZ1492 56QQssPageNameZWDVWQQrdZ1QQcmdZViewItem
might be more practical for kids needs but out back of bush so crappy for when we need specialists...but then again my hunky ns can live ine...and some more hunky ones and we will be set

[ReecesMum]

I think the only males we will have will be our assistants,servants so we can give them their own quarters.LOL!But it seems like you have put alot of thought into the nuthouse and if i had $550,000+ i would buy it literally but then again would i move to Tasmainia with that i'm not too sure if i would do.................!!!

[alisando01]

that 1 is close 2 hospy. if we all went there they would have to get a specialist to move in to the area. we could let them stay with us mmmmmmmmm:devil:

[LivinOnAPrayer]

1st if all...hahahahahahahahahahahahahahahhahahahahahahha hahahaha.
Thats about you Linda. hahahaha your funny.
you guys would never last out here!! Expecially not at our old place at the gemfields!! Thats tank water and solar power, snakes, frogs, spiders and stupid grasshopper galour. hmmmm i like it.

that house looks awesome!! lets so do it hahaha hurry up someone, win the loto! The 2nd house is a bit scary looking....like a real nut house hahaha. :rolleyes:

Ali, how are the AD's going? is em getting weighed this week?

Lea, alex is allergic to dairy :( complicates bloody everything!! grrrr. Im hoping the peads on the 17th look at her and say 'this is the cause, do this and she'll be fine!'. Wouldnt that be nice. I can hope...

Well im probably off to bed, got an appoint at 8:45am tomorow.
Im going to get a coconut from next door and start carving....
:wave::sleeping:

[Loopy Linda]

i was talking about males i gave birth too.... do not go to toilet after them wearing your socks!

[ReecesMum]

Peta,
I would last out htere with no problems as them things don't bother me.The only thing i am really terrified of is being alone in the dark.LOL!But if i'm with people i am fine.Don't get me wrong if a creepy crawly got on me i'd get squirmish but thats about it.

TC

[ReecesMum]

Linda,
Tell me about it as DP has been using the inside toilet now since he was unwell and has been having huge aiming troubles or should i say just not trying to at all.And instead of pre warning me as he cannot bend to clean up i have stepped in it several times and then i go off at him and he tells me i shouldn't get angry with him so i told him that its disgusting and i hate for guests to step in it too.Thank god he can aim properly now or at least clean it up.LOL!

[Loopy Linda]

i hate snakes and spiders...they are horrible.

i seen a snake out the front one day (where i live now) and i am now convinced they are in my backyard and under house...so i barely go in back yard now! on the farm washing machine was in barn....that was creepy as it was full of **** and i had to rummage through it to find where hens had left eggs....and rooster was psycho...but i did like peacefulness there. were in a valley and our property went from top of hill this side to top of hill that side, couldn't even see neighbours property let alone their washing on clothes line! and when postie came he would beep horm if there was mail and jarrod would ride his bike down to get it. we had a good loyal dog there so i am sure if a snake did turn up he would have let us know

[Loopy Linda]

men are all pigs regardless of age

[Loopy Linda]

anyone spare $10, 000, 000 found beautiful nut house (http://www.propertylook.com.au/listing/default.asp?lk=63260)

[ReecesMum]

Sounds like a really lovely place you lived at up there.
And to find a snake in your front yard where you are now,dam that must of been freaky.Our friends were only just telling us they found one undermeaeth their childs cot one day,just lucky the child wasn't in their and it eventually went away and one of their dogs killed it.They live on a property so they will get them kind of things happening.

[ReecesMum]

Yep hang on i will just write you a cheque for it..............

__________________________________________________ _________________________________________________


01/01/2007


To: Property Look Re:Orpheus Island Resort
Sum Of: Ten Million dollars------------


Signed: Wishihadthecash!


$10,000,000.00

__________________________________________________ _________________________________________________



:laughing: LOL! :laughing:

[Loopy Linda]

as i said i hate snakes...under the cot arrrgggghhhh

anyway i am off to bed..i am stuffed, as usual, but gordy will probably be up in an hour or so...

good noght everyone and good luck with weigh ins

[ReecesMum]

happybirthday To me........................
happybirthday To me..........................
happybirthday To meeeeeeeee..............
happybirthday To me!!!!!!

Hip Hip Hooray :party: , Hip Hip Hooray :party: !!!!



Happy 25th Birthday Me!

LOL! Have to celebrate myself as no one is awake to celebrate with me.Hehe.

[LivinOnAPrayer]

HAPPY BIRTHDAY LEA!!!:party:happybirthday:party:

Alex's weigh in didnt go too well. She didnt gain, but she didnt lose. So not a dissaster. Im so over that dr i thought was great. He told me its probably a behavioural issue. And?? Now what!!??? Even if it is a behavioural thing, we still need help!! But since when do 17month olds starve themselves cause they 'feel like it'!!! ?????

[LivinOnAPrayer]

Thankyou Lea and Reece!! Alex's SS presentis awsome!! She's gonna love playing with it in the bath tonight and hopefully she'll love eating with her wiggles friends. Your the best Reece!! :hugs:

[Loopy Linda]

Happy Birthday to you
Happy Birthday to you
happy birthday to lea
happy birthday to you

:wave: :flowerz: :smiliedance: :raspberry: :party:
happybirthday

[Loopy Linda]

Peta, sorry about lexi, did doctor have any suggestions? you were saying before that she will have a couple of spoonfuls of apples before she refuses, is it possible to go a week with only giving her her bottles? i don't know if it is a bad thing to do or not but seeing as nothing else is giving you much luck and you thought maybe something she is eating is causing problem is it possible to only have her bottles for one week? see if there is any difference in weight, then 2nd week introduce one new food like you do when they first start eating? as i said i don't know if it is bad or not to stop solids but was just an idea to help? hugs for you both

[Nowhere]

man can you women chat lol I cant catch up right back lol so im starting back at this page lol

lea happy birthday you Old F*rt your the same age as me, hope you got great presents


Peta sorry your doctor is such a jacka** behavior or not the poor kid needs to get some nourishment god i hate drs like that stupid idiots
I dont see how they can call it behaviuor when she is reflusing feeds cause it makes her sick

Are they giving you ay advice on what to do, i cant remember can she tolerate upped calories wither adding carbs or MCT oil, DId they say anything about putting a Tube back in the only problem with that is that as you know NG tubescan make oral aversion worse which you dont want as you know

Sorry i dont have any sugestions

[LivinOnAPrayer]

Hi guys, no dr gave us no advise 'just keep doing what your doing' but obviously thats not enough. I just have my fingers crossed this new pead knows what to do. im not sure about stopping solids again, but really it cant hurt if it means the drinks her elecare. Dr didnt say ANYTHING helpful, nothing about ng or extra calories (we're already adding extra elecare to bottle) he's just a nob. haha sorry, but im pretty frustrated.

Oral aversion is exactly whats happening and exactly what I was afraid of!! GRRRRR and i told them that months ago when all this started!!! GGGGGGGGGGGGRRRRRRRRRRRRRRRRRRRRRRRRRRRRR.

So who was actually in SS and what did they get? I know what Alex and em got :detective:

[LivinOnAPrayer]

Hello....im talking to myself hahahaha wheres that coconut......rofl

[LivinOnAPrayer]

i've got a lovely bunch of coconuts, diddley de, there they are hanging in the tree...hmhmhmmmhhhmmmmmhhhmmmmmm

[Nowhere]

have you been watching lion king

So did miss lexi drink any of her botle tonight I hope so

[LivinOnAPrayer]

Big one, small ones, some as big as my head....
OH hi Amy!! I got a bit carried away there hehehe :rolleyes:

Lion king iss my fave movie ever!!

No little miss has been a shocker with the dreaded elecare tonight. But tomorow is another day (so i keep telling myself). Hows miki? Talking good today? Hows the sentences coming?

[Nowhere]

oh thats no good

Miki has had shocker to went to the shops came home no shoping she wouldnt go in the troley with out screaming puking or having an apnea so we came home and went when Dh could come to

[srguitargirl]

ok I'm coming out of lurkerdom.

My name is Shauna I have a 2.7yr old son named Angus who is a fantastic little boy who hads nothing wrong with him except an allergy to soap and the only person who forgets that is my mil ughhhhhhhh then I had a little girl 7 weeks ago and my world turned upside down after 4 days in hospital she was ambulanced to the childrens hospital to be u/s and tested for renal and cardiac problems and well they found she has Bilateral dysplastic kidneys with polyuria and other tubual issues but no cardiac issues thank god ! so we spent the next 2 week in PMH and then another week at home with HITH nurse support and now we are having regualr check ups with her nephrologist and NICU dr's to help keep her hydrated and well.

It is amasing how in a matter of days your whole life is consimed by somthing that you never thought it would be.

At the moment we are waiting on our next appointment and I have to call to get a weight check in the morning as she has had a lot of trouble gaining weight and keeping her fluids in.

You seem like a great bunch of people that I can relate to with Scarletts issues it is hard to find someone to talk to that doesn't just reply "ohhh that's horrible pooor baby " really I don't think she is a pooor baby yes not expected but I think she is just adorable and it is something we will deal with!

her is a pic of my Scarlett
http://i19.photobucket.com/albums/b190/srguitargirl/Christmas2007ScarletcominghomefromP.jpg

[Loopy Linda]

hi shauna, welcome to loony bin...or peta's nut house...knda a long story ( depends on how long you have been lurking) but we are all moving to one big house and peta is carving nut house into a coconut to hang near front door...

how is scarlett going now? i seen pic and she looks very well for such a troubled start. has she had operations or what to do they do to treat it?

peta my favourite movie is beauty and the beast but on new years i was thinking of taking up motto hakuna matata...i remember it is something like sometimes bad things happen and there is nothing you can do about it...but then i think it goes on to say why bother? remind me of hakuna matata. i had been thing if it was sometimes bad things happens and there is nothing you can do, ( then i could add) so you just deal with it and find new ways to do old things... you may have already tried this but just wanted to check you know about mesh feeders? you could put pieces of fruit in there and if she will put it to her mouth and suck or chomp might make it a little more fun for her to have food? just an idea as the food mushes as it is chomped through feeder and you can freeze them if it is hot day? maybe...( i will probably just tell you 1000 useless things i think of...you are stuck with my useless facts now)

amy you missed out on so much chatting i found two houses for us first one is a bit on cheap side but is a beautiful house and lots of yard look here. (http://cgi.ebay.com.au/IRREPLACABLE-13bd-spa-sheds-2-5ac-Parattah-Tasmania_W0QQitemZ180192335094QQihZ008QQcategoryZ1 49261QQssPageNameZWDVWQQrdZ1QQcmdZViewItem)
2nd one lea wrote a cheque for ...and well i am guessing cheque will bounce as it is a mere $10, 000, 000 but it is beautiful ..check it out (http://www.propertylook.com.au/listing/default.asp?lk=63260)

lea where are you? hope you are having a good time and dp has done something nice

so what else is new?
Linda

[Nowhere]

hi shauna,

another perth girl i see, wel i assume being that you mentioned PMH, the HITH nusres are great arent they so helpfull

Sorry your little one is having dificulties poor thing its so sad that bubs have to be unwel
what drs are you under at PMH

yer lol linda i eave you guys for minute and it all goes hecktic lol when we all going to spend leascheque lol

[Loopy Linda]

don't plan the shopping spree, the cheque only covers the house ( and the island it occupies!)

[Nowhere]

hehehe lol

[alisando01]

Hi shauna! Most of us have spent waaay too long in hospitals and dread weighins coz they mite be nasty numbers.

Speaking of which, Em weighed in today (at the chemist with her clothes on) 6.79 kg :smiliedance:.

That nappy place that did the thickener cheap is not doing it anymore :thumbsdown: so I am going to have to find someone else who does it cheap. Hmmm, will have to get googling. Peta, where do you get it?

[Loopy Linda]

good girl em

[LivinOnAPrayer]

YAY EM!!!! How much gain is that? Geez, Alex better watch out, em is catching up real quick!! Thats so great! I get the thickener online through warehouse chemist. Its about $11 a tin and postage is $5 for anything and everything. Free if you order over $100 worth from them. It works out well.

Amy, that must have been a horror shopping experience. Did she settle down once DP was there? I feel for you!!! I hope she had a better evening. Tell her Alex says she's not alloud to vomit!

Hi Shauna!! Scarlett is gorgeous! She looks so well! What does her diagnosis mean for her long term (sorry, im not good with kidney stuff, or much other stuff either!! hahaha. Thats why im carving the coconut...i think...hmmm....:rolleyes:)? I know it seems hard, like no one understands and that life sucks and its not ment to be this way, but (and i know it sounds bad) you really do adapt and get used to it in time. You'll become a medical journal! And you'll meet some of the nicest people along the way! :hugs: Remember we're here too, even if we're pretty hopeless with understanding big words and will ask you to explain over and over, we understand. :yes:

Hakuna mattata...itsd our philosophy...it means no worries, for the rest of your days, its our problem free, philosophyyyyyyy, hakuna mattata. Hakuna; mattata; hakuna..... yesssss:rolleyes:

[Nowhere]

wel done Em what good weight gain keep going like that ans you wil catch mikenzee up lol

yer was a shocker she was better when DH was ther as i held her he pushed he troley KWIM she just wasnts me to hold her all day

How cute is this but, Mikenzee as you all know im sure has sensroy intergration disorder, wel we have been working on plasy dough all year at OT we atrated the year she couldnt be in the room when it was opened no joke she would flip out, as the year progresed she would look at it watch us play with it and sometimes touch it

we she got some for christmas and she LOVES it can tget enough it wants to play all day like literaly all day wich is nice she wants to play with it

But in typical mikenzee style with her OCD traits she does the same thing every time hold one bi in her hand and breakes of tiny bits into a neat pile and will do this all day, she gets very obsesive about things

any one elses kids that same i am glad she can play with it but KWIM

[LivinOnAPrayer]

Thats great that miki's progressed so will. Although it would get frustrating 24/7 haha. I cant say we've had much experience with play dough (alex wouldn't touch it, she's got sensory issues too) but we've made progress with grass and cement!! Alex will not crawl on the grass AND the cement! She used to freak out and shake and not let her hands touch it! So this is huge! But still no luck with dirt or sand. Any ideas?

Do any of the kids have athsma? im so over it with alex. She's been having her puffers through her spacer for 9 months now, and she STILL screams and carry's on. its so frustrating and i hate making her that upset.

On the upper hand, Alex drank about 130ml's this morn!! Of elecare. YIPPEE might be a good day....

[srguitargirl]

Thanks for the warm welcome everyone and yes I need in on the nut house LOL

Linda the only treatment is to replace what her kidneys can't keep in and process so she is on Sodium Chloride solution with potassium as well as bottles of water to replace fluids lost as he kidneys don't keep the amount of water in her body that is should.

Amy- yep I'm a Perth girl east of the river actually. The Hith nurses are fantastic most don't get to deal with neonates though so it helped that I kept her bp cuff and stuff from the hospital cause they would always forget to bring one small enough LOL. Scarlett is under Dr Ian Hewitt really nice guy so far so no complaints!

Peta- Long Term Scarlett will most likely need a transplant if her kidneys don't grow suficiently and start to work better cause they won't handle the strain with more body mass but hopsfully they won't start to decline until she is older than 10 cause it makes it easier to treat, but who knows it could improve greatly and she may never need a transplant so it is just a wait and see. Angus has Asthma I kinda forget about that as I have it too so it is just part of our routine and I have to say puffers get easier as they get older, he has a spacer that he plays with so he can give teddy meds and it made it easier for when he had to take his as well, I'm lucky he only needs his when he is sick so it isn't an everyday thing. Good luck with them.

[LivinOnAPrayer]

I hope Scarlette goes well and doesnt get to the transplant stage!! Hopefully the doc's will find a new mirical so she'll just be fine. :hugs:

I dont like Alex needing her puffer everyday :no:

The child health nurse is coming over shortly so I'll quiz her about oral aversion. (Ta Amy!!) Although little miss has been pretty good today! SHe's had atleast half her feeds so if they weigh her too, has to be a gain!

[LivinOnAPrayer]

'Talk to speechies'Is all i got out of child health. Grrrr . So i will call them tomorow. And Alex has lost 50g. *sigh*

She refused a bottle during the appoint though so they saw 1st hand what i mean. Might video it so I can show speachies and peads.

[Nowhere]

srguitargirl im sorry to here your bub may need a transplant poor baby How are you going with it all

Peta mikenzee doesnt have asthma as such she is diagnosed with reactive airways so basicly the same thing KWIM we se pufer when needed

good luch with health nurse

[LivinOnAPrayer]

Hi everyone. Im pretty bored. Its been raining on and off here all day.
How is everyones day going? All ok i hope.

[Nowhere]

hey peta

lol your always bored come on MSN

we had a pretty average day

[alisando01]

Peta, bummer bout her losing weight again! good idea on the video. So i assume they have given u a referral for the speachy? hope u can work it out hun. Send some of that :rain: our way please :).

Shauna :fingerscrossed: she won't need the transplant. have u all dont tests to find out if any of your family is compatible with her?

Still trying to find a cheap way to get the thickener and hunting for other nappy discount places. going to have to go on the yellow pages site and do proper search

[Loopy Linda]

hi everyone,

peta hopefully speechy's know a couple of good tricks.

where is lea? she don't go a whole day without coming on! if there is no message from her i will call her...maybe she won lotto and bought our house and is just setting it up before she rings us all...does she have your numbers? she has mine...i will remind her not to forget you after i unpack!

we have had a miserable day today. kieran ( almost 5yrs) has had gastrointeritis ( or however you spell it) i took him to dr this morning as he couldn't even hold down a little water. dr said to give him gastrolyte and if no better in a few hours take him to hospital as he had started dehydrating. when we came home he had a taste of it but it is yuck! so he won't drink it. i had an info sheet from dr on gastro and it said cordial is also good cause of sugar so he had some of that. he had a nap and afterwards perked up enough to fight with me about going over to his friends, then cause i wouldn't let him rode his scooter in front yard for a while. so i thought he is getting better even though he hasn't had much to drink the little he has had has helped. about hour ago he had a little more cordial and threw up so bad...also says he has earache..at moment dad is having a go at bribing him to drink a little more gastrolyte. i am tossing up whether or not to go to hospy. i think i will give it about an hour and if he still hasn't drunk gastrolyte or he has thrown up again i will be going. hassle though as dp don't drive so i have to take him, but b/f gordy so i have to get him out of bed and take him too....praying he drinks the gastrolyte and keeps it down.

well that is all for now, i may get on later if i am home..

[Nowhere]

sorry to here kieran gastro that really sucks, poor thing hope you dont get it as wel and the rest of your family

Hope you dont end up at the hostpital

let us know how he goes

[naiwen]

Firstly welcome to shauna,
This is such a supportive place and we all try to help each other out.
Well it is raining here. Hurray hopefully the dams will fill up.
Edward is being very good, feeding well etc. I have had a migrane for a couple of days though so have not been doing much.
I got my passport today yay! We are condisering going to live in the UK in a couple of months time which will be exciting.
Amy I am so sorry miki has been playing up, how is she going with her Jtube atm?
Peta you totally crack me up, coconuts ROFL.
Well anyways hello and goodbye, here comes DH to hog the puta again!

[srguitargirl]

hope he gets some pedelyte into him I know I hate the taste too ughhh but you do what ya gotta do!

um well the only person who is even a blood type match is my dh they are both B+ but my dh has FSGS which is different but equally rare kidney disorder ! so no transplant ther, I'm relaly just hoping her kidneys behave and start working better now that she is have replacement therepy for her electrolytes and fluid and it gives them a chance to grow kwim.

well today was better than last night Scarlett has been behaving till now she is lying in her cot whinging cause she is tired but was falling asleep feeding so I put her down and now she wants to feed again ughhhh so I guess I better go and give it another try an I'll bbl

[naiwen]

Oh and I am sorry that Keiran has gastro, have you tried gastrolyte icypoles? They give them to the kids in ED at the mater and it is a good way to get them to take in fluids as they think it is a treat. Even just fruit iced lollies would be better than no fluids at all IYKWIM.
Peta when Edwards oral aversion was bad the lactation consultant at SCN showed me exercises to do with him. I would gently put my finger in his mouth in different ways. Hopefully the speechy will give you ideas of what to do with her.
Does anyones bubs on here have reduced lung capacity, Amy does kenzee have this?
Edward is reccessing a bit more than normal today and I was wondering how long you ket it go before taking them to ED?

[naiwen]

Shauna what is her weight?
I know when edward was under 2.5kg he needed almost consant feeding and it was so tiring but it does get a little better with time. Is anyone helping out atm?
(I know I keep saying I am going and then Blah Blah some more!)

[Nowhere]

naiwen, mikenzee doent have Chronic lung disease he breathing issues is to do with ehr trachea KWIM but i know that with her if she is sucking in under her ribs more then usual or a blue colour she genraly needs oxygen to help her out

[Nowhere]

sory posted b4 fiished lol
Have you got oygen monitor at home

hope he is ok you guys have oxygen dont you can you increase it much

[alisando01]

First of all, Julie, WOW!!!!! What supports r available in the UK with Edward? We missed u while u were offline.

JarKierGor mum, hope he drinks it! Have u considered giving him some EBM? (i know it sounds gross) but it may provide the antibodies he needs to get rid of it.

[naiwen]

Thanks Ali I missed all the SN mums on bubhub while DH was distracting me lol!
I am a British Citizen so that means I can use the NHS and so can Edward we might keep up our private health cover though as there is a private hospital with a good paediatric section near where we will be living.
Edward is only in a size 000 though and we will have to see how his lungs are closer to the departure date as he might not be able to fly.
Amy he is kinda happy a not lethargic and his sats are over 92 so he is not low but just seems to be woking hard KWIM.

[Nowhere]

if he is working hard at 92 i would take him in cuase he might get to tired with the hard work i know miki just give up when she has strugled for while, maybe some high flow oxygen will help

[alisando01]

have found a cheap way to get thickener! $9 per tin with $7 delivery for up to 2 cartons! could buy a carton of thickener and a box of nappies and still b infront!

[LivinOnAPrayer]

Hey julie! If Edward is sucking in at the little bit where the collar bones meet, take him in!!!!!! But saying that if your worried take him in anyway. Never doubt your mother's intuition. I hope hes ok....Hey i want to go to london and watch the soccer!!! YAY :yelclap: That'd be awesome.


That sucks that Keiran has gastro. I know that hydralite is gross!!! Try jelly?? Alex usually eats it. Yuuummmmmm.... I hope you dont end up in ed!!

Too many sick ones tonight.... :no:

Alex already see's the speachies so we dont need a refural, thankfully! So tomorow i might just drive the 73km and sit on their door step until they see us. But Alex drank a WHOLE bottle tonight :yelclap:

Where is Lea....if she's bought our nut house, im packing!! Nuh, she doesnt have my number...Im always here anyway hahahaha sad. :rolleyes:

[alisando01]

Yay 4 Alex drinking her Bottle!!!!!!!!!!

Julie, Do what u feel is important. sometimes it is better to go in for nothing really than not go in when they really need it.

[LivinOnAPrayer]

Yep :yes:

[naiwen]

When I say reccessing I mean when he is working hard with his breathing he using his muscles to help him breath and that causes his chest to suck in under his rib cage when he breaths. He normally has a bit of it as he has reduced lung capacity and airway scaring but it looks a bit worse IYKWIM. I just hate going if it's not nessecary!

[LivinOnAPrayer]

Go! Please go! Better nothing than not going and something....KWIM. Thats so scary.


Hows Keiran going??

[alisando01]

Go! Please go! Better nothing than not going and something....KWIM. Thats so scary.


I agree :iagree:

[Nowhere]

naiwen, i would say if you are worired to take him in KWIM i know you dont want t go if not needed but you would know yourself KWIM if its worying you he needs to be seen that how we work it out with miki

[LivinOnAPrayer]

Dido!

[naiwen]

Okay I have a plan of attack I am going to do Obs overnight and take him in to be seen by the paediatric respiritary consultant in the am that is what the hospital would do anyway. I am concerned but I do not have that feeling in my stomach IYKWIM.

[LivinOnAPrayer]

ok, well i hope it all goes better than good! I hope he's just tricking and is fine.

Anyways, im off to bed. Time for a decent sleep (hmmm i hope). Good night all, I hope all the little mites are good tonight. :sleeping:

[Nowhere]

thats good idea always trust your instints hun your a great mummy

[srguitargirl]

Naiwen- Scarlett is about 3.6 kg and is 7 weeks old however she was 3.5 kg at birth and has just made her way back up there ! so I'm hoping by her weigh in on monday that she weighs more cause at least then I will know all the breast milk is doing something or at least the water suppliment isn't hindering her growth kwim ! and Good to hear your taking Edward in I know I've been back to the hospital for silly things but better safe than sorry !

Peta yahh on the whole bottle Scarlett only had a half feed tonight so I wonder what time she will wake up hungry!

have a good night sleep everyone I'm off to hopefully get at least 2 hours before Scarlett wake up or Angus as it is soooooo hot here and we have no air con ughhhhhhh I might go and stay in a hotel next time it gets this hot !

[ReecesMum]

Hey everyone,
Guess what everyone i brought the nuthouse so you better all start packing and tell your DP/DH's they can visit you but only if you want them too.............................na just kidding i wish i brought it hehehe!Sorry i haven't been on recently been a bit upset since the paed appointment as by her scales Reece has only gained 300g in 3 weeks and i really don't know what scales to trust so its really frustarting as the sclae i have been using are showing gains in weight.I know,i know at least on her scales he has still gained even though its only 300g but when i think about as he never gained for 6 months he has really only gained 300g in 7 months.It doesn't help when the paed is also concerned that he is still way below the average line of all growth factors (length,weight,hc) She is chasing up the plan for pediasure as it should then only cost me something like $45 for a years supply through the hospital.Fingers crossed it comes through soon as it is costing me $30 every 5 days for pediasure.Also Reece was awake all day and night till 5am this morning,he wasn't upset he just wouldn't sleep.His sleeping patterns have been way out of whack since xmas and it is driving me mad.At the moment he is lying in his bed talking(babbling) and giggling so he has yet to go to bed and i am expecting my 3 months old nephew at 5am in the morning as his parents are going away for the day and will be back to get him in the night so lets hope Reece lets me get some sleep as this will test me,having 2 kids under 2 to care for at once.Hope it goes good as it will tell me if i can handle another with Reece.

Anyways enough of my babbling its now time to catch up on all the posts i missed...............

To be continued....................................

[Nowhere]

oh sorry to here his weight isnt doing wel, 300 grams in 7 months isnt great i know but the fact that he has done that in few weeks makes me thing the pedisure is working hopefuly you can get tyears worth for 45 that would be good

can he have added caloires like polyjoole or anything

[ReecesMum]

Ok,

Peta,
Lion King is a top movie and its starting to sound like we are gonna need the nuthouse soory i didn't buy it for us all LOL.....................!For SS Reece got a Zebra plush toy which is great as the black and white pattern may help with his vision sessions so my SS picked well for him.SOrry that your having problems with the doctors and Alex's feeding issues.Reece is due to see the speechies about his eating issues this year sometime!Hopefully sooner than never just have to get on my physio's back about as she is forgetful.

Amy,
Hope miki is doing well after her episodes shopping.I understand the whole wanting to be held by mum thing as Reece won't even let his dad feed him unless i'm on the other side of the world and i mean that literally.LOL!AS a matter of fact he will only feed for others if i am not in the immediate vacinity as even if i am out the front he still won't eat for them.Sometimes he takes a few mouthfuls and realises its not me and gets a real temper.Glad to here your DH helped you out with the shopping would have made it easier on you(exceot for the constant carrying her weighing on you).

Shauna(SRGuitarGirl),
I know its a belated welcome,but welcome anyhow.
It a horrible thing that our lives have been turned upside down and who could ahve ever thought it would have happened like it has.I myself had a perfect pregnancy and even though i had a c-section even then there was no hint anything was terribly wrong.My DP(dear partner) was told our son was fine and there was no reason to worry and taht he could go home and get some rest if he liked.So he went home thinking we had the perfect little boy until the next morning when doctors asked him if the docotrs had spoken to me(which they hadn't).We were then told Reece had taken a turn for the worse 7 hours after birth.Mind you it was 9am when they told us this and didn't bother to call either of us at 3am when it happened.Nice huh!You can read Reece's story by clicking the For REECES STORY CLICK HERE link at the bottom of this.
Anyways enough about me...................
Scarlett is a lovely name you choose for her and she is such a little cutie in her pic.Fingers crossed she does not need a transplant in the furture.Like us alll the hard part is not knowing what lies our childrens futures which drives us all mad which brings me to also welcoming you to the nuthouse.LOL!Feel free to ask us any question and we will try to help but most important is we will be supportive.

TC.

Next is Linda and Julie................................

[ReecesMum]

Amy,
Not sure about polyloole as i have never heard about it but will have to ask doc about that....................Thanks.

Linda,
Sorry bout not being on,seems like i started to worry you a bit.But as in first post i have been a bit upest with paed.Thought about emailing you but just haven't got to do much since then.Sorry Kieran has gastro hope he is feeling better and fingers crossed you have not needed to visit the hospital tonight.I can't remember who said it but i saw them gastrolyte icypole things the other day in the chemist maybe that would work.The ones i saw look just like Zooper Dooperr but they are a little more expensive of course.Hope everyone else is doing well considering Kierans sick.Fingers crossed the others don't get it either.

Julie,
Glad to hear Edward is doing well except for the thing your worrying bout at the moment.Hope it isn't anything to worry about but it is best you get it checked for your peace of ming.Good luck at the doc tomorrow.Is your migraine any better or is it still ahnging around?I had a toothache last night with in turn gave me an earache and there i was thinking silly things last night like blood coming out of my ears,it didn't but my mind was playing games on me.LOL!ANd you can't move to UK what about the nuthouse were all gonna live in????LOL!Just kidding(Of course).If you do move i hope you enjoy it.My FIl lives over there and he likes it,says its great.He has invited us to go over for a holiday sometime(all flights paid for) so if you move i could probably visit sometime if i go over there.Thats if you'd want me.LOL!

Anyways take care all and chat soon.

[LivinOnAPrayer]

Hi Lea! Sound like a big few days for you!
I hope reece is putting on alot of weight today hehehe. Have you thought of adding veg oil to his food? (might even help with his BM!)? Alex's dietitian suggested that for her so it cant hurt right. Damn you, getting my hopes up about the nut house hahahaha. Grrrrr. I'd move in today!

How is Edward today Julie?? I hope things are going better this morning.

Linda, how did Keiran go last night? I really :fingerscrossed: that the others dont get gastro now!!

Amy, hows miki today?

Alex is doing ok. She drank a full bottle this morning!! (160ml) So thats a good start to the day. Im going to be calling the speachies at 9am!

[LivinOnAPrayer]

Oh, Lea, that photo of Reece (avitar) is GORGEOUS!!!! he's so cute. :yes:

[naiwen]

Aw lea do come that would rock!

Noo sleeep why will you noty zleep, aaaarrrg do sleepy time now baby, sleep go to sleep!
carve me a coconut because Edward has kept me awake for hours!
His breathing seems better though which is good!

Yay for Alex taking her bottle!

[ReecesMum]

Morning all.
Would just like to know if you ladies still get the affection you use to from your DP/DH?As i find my partner won't even show affection.For example i always see our friends showing affection to each other,you know the odd kiss/cuddle,being in each others arm,in front of others or even in public but my not so DP does not do this.I didn't even get a kiss for new years and the only reason i got one peck on the cheek on my birthday was because he was too caught up in his own issues he forgot it was my birthday until 10am.Slack hey!We had a discussion last night about it and i don't think he really loves me anymore as it is one thing to say it and anohter to actually feel it.I asked him if he actually can feel he loves me and he was unsure and just turned it around and asked me and of course i feel it as i wouldn't be so upset about the issue if i couldn't.If he doesn't love me is there any reason to stay or should i try my best for Reece.So confused!!!

Peta,
Yeah the paed wants me to add butter/margarine to his food but only a little to try and help with the weight gain but its a matter of getting the solids down as Reece is similar to Alex he will only have so much before he protests it and thats only about 1-2 teaspoons and sometimes we don't even get that in KWIM.Really wish i could have brought our nuthouse as i could really do with being away from not so DP.Today is going to be a 'when i get the chance to do something day' which for me isn't that different than any other day except for the fact i have my 3 months old nephew and Reece to look after but i do it because his parents get the chance to have a break and in turn they offered to take Reece on Saturday night therefore i get a break for a few hours too.

TC.

[LivinOnAPrayer]

:hugs:Lea. Its a tough spot to be in with DP. I know it really hurts if you dont FEEL loved, like it used to be. I've been there, still trying to work through it with DH actually.

:hugs:

I know how you mean about actually getting the food into reece. It sucks. The dietitian says all this stuff and i think, hello, we're here cause she WONT EAT!! duh. Have they spoken about NG for reece? I know a tube would suck but if even his HC isnt growing, thats not great....??

Julie Im glad to here little horror head is a bit better this morning. We need new photo's of Edward!! hahaha come on slacko!!

[Loopy Linda]

hi All,

sorry i didn't get back on last night, as i finished my post kiero fell asleep. was worried about him still though, but have had terrible few nights worth of sleep myself so i tried to sleep and if he was sick during night we were off to hospy. but he slept all night woke up this morning and gulped down his cordial, no luck with the gstrolyte as it taste like **** he has been fighting with his older brother and running around house this morning so all is good now! no one else seems to have gotten it ( fingers crossed) so hopefully that is end of it.

thanks for support and advice for him, even though i didn't use it..i am useless. didn't end up getting to sleep till 1 am anyway, too used to being up all night.

lea with loving partner issues i think most men sort of just get into a routine and just get lazy with the showing affection. Dp and i have been through this reguarly. but it only becomes a problem when i am upset about something else iykwim. maybe you were sad about his lack of attention on bday and you think more into it and it all upsets you, with my dp ( close eyes this may be a little rude) if he hasn't spent much time with me or given me his attention or affection no bd. atm it has been 2 weeks and last night he is getting agro at me...too bad give me attention, have conversations with me, watch a tv show with me and i will give him XXX, until then no worries! bet tonight he feels need to help with getting boys to bed and watching a show together....


everyone else you talk too much

how is edward this morning?

did alex manage to get into to speechy this morning?

was scarlett ok last night?

was anyone lese having probs last night? hope i didn't miss anyone sorry,

but i blame you, if you didn't yak so much then i can reply to posts on same page cause i have memory of a seive!

take care everyone and i will be back on soon
Linda

[LivinOnAPrayer]

Im am annoyed. I rand Emerald and speechies arent there until next week (and the one i tried contacting has quit anyway so theres only 1 day a week that we can see a speechy now!!) *sigh, deep breath*, so, I rang brissy (RBH) and got the bloody answering machine so hopefully I get a call back soon cause no one else around here can help us!!!

Im so glad keiran is better. Hope it stays that way!!
I got a letter in the mail from centrelink saying Alex is nearly done with immunisation and once she's had her 18month jab I can apply for the immunisation allowance of $200 and someting. So thats good. Glad they told me hahaha. Useful for something i guess.

I've got some ebay items finishing today and i've deffinatly already made a profit. And i've got a few more things to chuck on today, see how far I get though.
Im going to make some cup cakes with the new mixer mum sent me!! :chef:

[Loopy Linda]

peta what about rocky? can you see speechy in there? would it be much further to travel than emerald?...definitely closer than brissy

[srguitargirl]

Linda I'm glad you had an ok night well with a little boy who can fight with his brothers in the morning that is always a good sign!

Scarlett had a good night she fed at 8 30 then went down till 12 30 then slept till 4am and then was up every hour after that but I'm not complaining hey at least she ate last night ! plus had her water well not all of it but at least some of it, That is one thing I'm going to ask at her next appoinetment cause she won't drink the whole 50ml of water after a feed but will take about 10 to 20 ml so I guess I should be happy with that but when you count it up over a whole day that is alot of fluid loss ! so I don't know what to do.

Hope you all had a good night sleep

[ReecesMum]

Hope everyone is well.

Peta,
I don't feel he wants to work through it,i could be wrong but thats the attitude i get when he says it me thats the problem and he is so perfect.Pfft...... he is far from a perfect partner.Anyways i myself have thought about a NG tube but docotrs have yet to mention it and with his HC he was born at 36cm and is now still only 40.5cm so thats another thing i have to worry about as if his brain grows faster than his head he may die from it if there is nothing doctors can do.And here come the tears but i have to stop them so thats enough from me for now.....................Sorry to hear about the trouble with seeing a speechy its looking like i won't be able to see Reece's until beginning of february.Fingers crossed the hosp can help.

Linda,
Glad to here things are looking well with Kieran fingers crossed it stays that way.And with the xxx i'm the same i refuse to give him it as like you i need more than that kind of attention.(Warning to much info)You might as well say there is definately some cob webs IYKWIM.With the attention I guess i'm just sick of watching my friends share affection when i know i am not getting any myself.Like i know a couple who fight all the time and really don't get along sometimes they hate each other but they still share normal affection.I suppose this is the reason i feel so alone with the whole thing i am really starting to lose the urge to love,well not so much lose it but give up on thinking about it.

[alisando01]

Lea: hun i really think u should go n fill that script for AD's. DP doesn't have to know about it. u just seem so down and easily upset and I am worried about u. go on the meds and see how you feel after a few weeks. don't make any rash decisions when everything is getting on top of you. Try showing DP some affection and see if he shows it back. my DH sometimes needs to be reminded like that.

Linda: Glad to hear he is on the mend! hope that is the end of it in your house!

Shauna: See what the Dr says bout the water hun. hopefully she is getting enough water from u.

Peta: :thumbsdown::thumbsdown::thumbsdown: speachies!!!!! hope u can get in soon hun.

Julie: hope u r having a nap now hun!

[ReecesMum]

Ali,
Thanks hun i might go do that and see how i go on them.Don't be worried bout me i will get through it all as i normally manage to do its just hard cause the emotions build up and when i'm upset they explode.With the affection side of things it was just last week when i would cuddle up next to him several times and get no response so i really don't know what to do.I probably would never leave him as it just hurts to much but how long can i live like this as it is unhealthy for me and Reece.Guess i will have to get the meds and find out.

[Nowhere]

lea hugs im sorry you are so down at the moment and your DP isnt being much help, does any one in thios chat thread live near you so use can catch up for a coffee and a bit of natter sounds like you need some company from someone that understands all you have to deal with
as fopr your little man reece im sorry you are having issues with the feeding and weight gain, if you are thinking about an NG tube like you said I think you should talk to them about it sometimes drs leave it too long to intervein KWIM, the only issue with the retched NG tubes is it can make the oral aversion worse but if it get the calories in its a good thing KWIM
I dont mean to sound blazay about tube feeding im not i know its a big deal when its new but just think of the weight gain

Peta sorry to here about the clinics not operning till next week that sucks, we have the same issue with the neuro grrrrrr no there until the 7th but thats not much of an issue cause we can wait kwim

some activies the speechy had us doing with miki are differnt mouth shapes such as kissy face happy face sad face open wide shut tightly, and working on things with tonge movement to help the muscles for eating such as lalalalalalalal etc also have you got the 3 step tooth care brushes one is flat and rubber one has litle rubber brushes one is baby tooth brush with us the idea was not to put it in her mouth but actualy give it to her to play with and hope she put it to her mouth

naiwen sorry to here edward kept you up all night but glad to here his breathing is improveing

Shauna sorry she isnt drinking enough water, like someone else mentioned fingers crossed she is getting her needs from you

I have some good news sorry for a change Mikenze is up to 7.36 kilos we are so happy this means that the Jej feeding enzymes and colitus meds are actauly doing ther job and helping her grow, sorry to brag about my good news when everyone is so down, hopeflly everyone else gets some good news soon, its been long road to get mikenzee to gain and she has been on ful medical intervention her whole life its finaly starting to pay of we was so close to IV feeds a month ago and are stil not out of the woods but certainly her weight will help us avoid it sorry again thats everyone is having bad time hope my good news doesnt upset any one, im just so happy i burst into tears to see her weight going so wel

[Loopy Linda]

yay kenzi, also thanks for a good idea amy

lea what day next week, if you want. email and we will work something out

just a quick one this time

[Loopy Linda]

also is anyone else in sydney area?

[alisando01]

good to hear lea.

Amy, dont feel guilty about sharing something positive. it might help lift some of our moods. Well done Miki!!!

[ReecesMum]

Amy,
Thats great Miki well done!.Please don't think because im down a bit that your good news will bother me.As Ali said it helps lift some peoples moods and at the moment both Miki and Reece have given me a boost with Miki's meds doing their job and helping her grow thats excellent news and with Reece i had stopped the solids as i didn't want to put pressure on him while adjusting to Pediasure so i have just now re-introduced them and even though its homemade pureed apples which is healthy,no fat content there he took a whole baby jars worth till the last mouthful(approx 20+ teaspoons) which is more than the usual 1-2 teaspoons.Later on tonight i will offer something else and see how he goes.Fingers crossed.....................

Linda,
Will have to let you know over the weekend bout meeting up as i am not sure when d.head(DP) goes back to work.And believe me if i go out and he is at home i will get 50 thousand phone calls about c.rap which drives me nuts.Is Kieran still doing well?How bout Gordy and Jarrod are they well too?May as well say how are you all today which of course includes you.LOL!

[moreboys]

hi everyone.

remember me :wave:it's been a while and this thread has now explored. i'm like 20 pages behind.:eek:
so will just start kind of recently.

Amy, that is awesome news about miki here's:fingerscrossed:it continues. well done miki big congrats. we love it hear good news.

lea so sorry you are having a rough time i can't send any advise but i can send :hugs: x millions.

Here things have been really busy hence i have not been on for ages. hopefully things will go back to normal when dh goes back to work and i can get the comp back. Gabi been going ok haven't weighed her in 2 weeks as health centre closed here but this morning she woke up with this horrid nasty looking rash http://i260.photobucket.com/albums/ii26/moreboys/P1030627.jpg

it's much redder in really life and what's on her arms is everywhere. at the moment no other symptoms so it's wait and see how it develops. i hate wait and see:hissy: doc wants to see us again in the morning. anyway dh just got home but will be back later.
tc

[ReecesMum]

Hey moreboys,

Yeah tis been a bit rough from time to time i just have to shut all feelings off so i don't get hurt anymore.ANd with your little one i have never seen a rash appear like that before i would be on the doctors case about finding out what it is.

[Nowhere]

hey guys thanks for being happy for us its so nice that we have such a suportive bunch here

Lea thats great about reeces apple eating that really is fantastic go reece go reece go reece im so happy for you thats just briliant
Thats nice

more boys that rash dont look good at all hun aer you thinkin g maybe alergy to something has any thing changes IE new wash powder soap a new food playing on grass hope she isnt to uncomfortable with it

[LivinOnAPrayer]

Pood Gabi!!! That looks scary! How is it now??

YAY miki!! Im so glad shes gaining finally!! Must be such a great feeling for you Amy. Well done!!

:hugs: Reeces mum.

Alex has been asleep for ages now. Not sure if thats a good thing! I hope she sleeps through still. I need my sleep!!

[alisando01]

MB: I too would be worried, enough to take her to emergency. hope they can figure out what it is!

[Loopy Linda]

hi everyone,

mb i agree with others, doesn't look nice. is she grumpy with it?

lea no worries, my dp went back to work yesterday so most days ok, except thursday ( dreaded granny shopping day) kieran is almost back to normal, kept everything down today but only ate dry bread really (only kid i know who likes a vegemite sandwich without the butter) jarrod and gordy are both fine. gordy learnt another new trick today...it is called lets rip mum's nipple off 20 times a feed, such a fun game that one.

also lea don't look at the weight gain over the past months, it has only been in the past weeks he has put it on, if he keeps going it will make about 2.5kgs over 6 months and he even ate more today, so that will help aswell...he is such a good boy.

has naiwen been on? i can't remember reading about edward and how he went yesterday (? maybe) after his breathing troubles.

i think my FIL is coming over tomorrow and tonne of junk out back is finally off to tip! that will be a shock! we will see

jarrod got a mobile phone for xmas, anyway today i am soooooo annoyed...stupid sms all day and he likes the song it plays for sms so he has to play it a bit before he stops it....arrrggghhh should have gotten him that book instead...imagine in a few weeks when he starts high school? i am going to go insane!

ok well hoping everyone has a good night, all bubs sleep well and someone b.loody wins lotto soon

[alisando01]

Linda: the novelty will wear off! it only lasted a little while for me, till i saw the bill :eek: and then I was very well behaved! is he on prepaid or plan?

Lea: I agree with Linda. don't look at the months of no gains, look at the weeks of fantastic gains! Did u go to the chemist yet or do u need to wait till DP is nowhere near u? u could always say u need to go to the chemist and get something for reece.

Peta: has Alex been well lately? is it really unusual for her to :sleeping: so much?

Is any1 else in SA here?

[Loopy Linda]

ali, he is pre paid, and he has to buy his own credit with $10 pocket money he gets a week. no way i will be paying for it! but he will probably see nanny in next week or so she will buy him some as he is off to movies with mates...how come kids get to have a life?

[alisando01]

I am glad he won't be opening a huge bill he can't afford! my mum's mantra was 'once it's gone, it's gone' and we knew exactly what that meant. she was not going to top up for us.

[Loopy Linda]

i am bored :hissy: :geek:

[alisando01]

Go for a run Linda! r u just bored coz no1 is posting?

[Loopy Linda]

run???? you sound crazy

yeah bored cause no one to talk to..little ones asleep, big brat phone still going off occasionally, think he only does it to torment me

[Loopy Linda]

so i jsut changed my pic.... wish i had of taken that one right way up...hmmm

[alisando01]

try rotating it in your photo editing software.

[Loopy Linda]

i changed it in photo bucket, now stuck with it that size in photobucket

[Loopy Linda]

fixed it there too now...i wish i could go to sleep..would get a decent sleep if i went now...not going to happen though.

so ali what you up to tonight?

[alisando01]

looks good!

Re the run: didn't u know I am crazy? Now who is going to make my hot chocolate? I don't drink coffee! :laughing::laughing:

[alisando01]

well I am on BH and another forum and 4 weddings and a funeral is on telly. I am boring.

[Loopy Linda]

nah i don't feel like hot chocolate, i got coke and jsut had choccy mmm . doesn't sound too boring to me...i am raiding phones for photos to put up and the tv is still on the channel kiero was watching and i keep refreshing page...i need a life...soon kids will be back at school and sport and i will have my life back...yeah back to driving thema round all day...

[Loopy Linda]

ok so i am reading thorugh other threads and i find out car seat i want to get gordy when he grows out of capsule is no good for his age...the thread tells me to look at rta website to see which car seats are best...so now not only is one i want to get not good ( according to bubhubbers, on rta is average but well above aussie standars, there is better but to me doesn't look a great deal of difference) but the capsule he is on now is not even on their list...so maybe it was sooo not good...i am a wonderful mother! if i go by the threads when he grows out of capsule i sould put him in a baby/toddler seat and then after 1 a maxi rider...Dp is quite stingy..imagine when i tell him that even though older boys only had a baby/toddler seat and i really wanted the capsule this time, i now need two other car seats....will be fun!

[alisando01]

Maxi rider is rated from 8kg. did they say that it is best for older bubs? I want a capsule next time but we shall see. almost got DH convinced.

[Loopy Linda]

i wanted maxi rider but bubhubbers say that it looks too big for baby under 1year etc...not sure and also say they should still be rear facing...trying to work out what sort of horrible mother i am as i turned both boys car seats around before 6 months..apparently that is real bad cause if you are in a crash they still don't have the head control and neck support to restrain their head that way it is better to be rear facing as most accidents are head on and the baby's head is supported better? do you use maxi rider?

[Loopy Linda]

i really wanted a capsule and had to do a lot of convincing to get it...wish i hadn't now. cause gordy is #3 we are always in and out of the car driving other two at time to sport, pre school, school etc...i thought capsule would be really good. in effect i only used it that way for a couple of weeks ( like 2/3) as while capsule and baby are both light it is awkward to hold capsule out so far to not be walking and have it rubbing your leg and jerking baby awake anyway...also got a bit much to lift out of car and put back in on my back ( most likely cause i am old)..DP would carry it a bit longer than i did but i don't think anyone has carried him in it in last month ( maybe more) and he only jsut turned 4 months

[alisando01]

No but I turned Sarah around when she was too long for the convertible carseat. convertibles are the same size as capsules rearward so if he is heavy enough and tall enough it shouldn't matter. ask your mchn or Dr and they will give you a better answer. Sarah was very long at 4 months and did have to turn around then. Em is now lifting her head in the carseat so as soon as she is big enough she will turn too.

[Loopy Linda]

i was going to talk to pediatrician about it..see him next month ( better remember to make appt) i trust his opinion more... but it is strange i will just go through all these threada and discover how bad i am....a little light reading before bed...

i am also bad for putting him in jolly jumper ( same with kiero), fed both older boys solids at 4 months, don't have a routine....i am useless....hmmmm maybe i should read pet section and see how bad i am with my dogs!

[alisando01]

Linda, i gave Sarah solids at 4 months and also use the jolly jumper (em went in the 1st time tonight) I only have a routine coz I had to get Sarah out of out bed when i was early pg with Em.

Do what works for you! and stuff everyone else's opinions.

These poor girls are going to have pages and pages to read in the morning :laughing::laughing:!

[Loopy Linda]

i know that is why i will keep going..


i am not worried about being horrible mother...i am old enought to know you do what works for you at the time...

but imagine if i was young mum with first baby. you have so many relo's telling you everything you are doing is wrong and now everything they forgot about is on bubhub...you would be stuck as to what to do...poor young mums!

i had been thinking of starting gordy on solids..lately he is awake most of the night and wants to stay up playing..thought maybe a bit more in the belly might keep him asleep... but now am hoping it is just a growth spurt and milk is adjusting, he only woke once last night and was easier to get back to sleep. if he had of been born without any problems and i still lived in world where i see dr ffor immunisation ( oops another bad thing i do) pregnancy tests and colds in winter he would be on solids. but that didn't happen and now i am turning into nuerotic mother...i swear inside his mouth has a deformity...i know i am nuerotic... but i don't want to do anything new with him till i ask pediatrician. i wasn't going to put him in jolly jumper...but he wanted attention, and to play and brothers wanted dinner, jolly jumper hangs in kitchen doorway ( very large doorway and not in way) so i tried it..he loved it.

anyway...going to make a list of all the bad mu things i do...then when kids are older and for some strange reason don't becme lawyers, specialists ( now know better to be specialist than a gp) and the likes i can have reasons for it..ie i turned your car seat around too early, i fed you baby yoghurt at 5 months blah blah

i am just thinking more of kids here...it would be bad to never know reasons why things turned out a certain way!...

i think i need nut house reallllllllll sooooooooooon

[ReecesMum]

Gee what an explosion of posts in here and i'm here to be miserable again.See not so DP decided to visit a friend which was all cool till i recieved a sms at 1:30am stating that he had had one too many drinks(3 in total) and is not sure whether it would be safe to drive home so he is now waiting at friends house till he is sure.Mind you he never drank before and now that he gave up the smokes he has been having one or 2 a night.I myself don't see the point.The main thing i am angry at is he knew he would have to drive home and still persisted on drinking.If i knew i had to drive i wouldn't touch a drop,is it just me or am i over reacting about the situation?Or am i so bad he doesn't want to be near me?Maybe he doesn't love me cause if he did he would be home.I am really not coping so well with all these relationship issues at the moment not to mention on top of this Reece still hasn't slept.Its gonna be one of them cry myself to sleep nights i think,We are always fighting and i don't know what to do.He is forever threating to get me where it hurts and make sure that my family will never let me see my nephew and niece again.I am so sick of my family being dragged into our issues it has nothing to do with them.Ok i better stop as i will ramble all night if i don't.Sorry ladies jjust letting off some steam.

Anyways,

Linda,
My nephew is 3 months old and is being fed solids they have even put him on the SMA formula as it is suppose to help fill tummies for longer.My SIL has a set routine for the little bugger as i had him from 5:30am yesterday till 11pm last night.He is succh a little piglet i can't believe he eats so much and still has heaps of formula too.She gives him weetbix with farex or formula in it with 120mls of formula too for the morning feed,couple hours later he takes 240mls,couple more hours he has 1 mashed banana and 120mls formula,again couple hours later 240mls,then again he has solids a whole can/jar with 120mls,another 240mls in few hours and last of all 240mls formula with farex mixed in before bed and as far as i know he sleeps through.I'm gonna need this nuthouse real soon too as i think i am going nuts.....................oops too late.LOL!

Ok i'm off to get some sleep somehow before he eventually gets home so i don't have to deal woth it then.

[LivinOnAPrayer]

:hugs: Lea. Your not being treated fairly at all. Punch him in the head and tell him to wake up to his responsabilities. Jerk.

Isnt it frustrating to see a tiny little mite eating more than our big kids!! hahaha the iorny.

Ali and Linda, you guys talk way too much!! ahahaha.

Well today should be pretty boring. Last weekend before DH goes back to work. But MIL is coming over today to give us money for when DH's little sister stays with us for a week in two weeks time. She's 14 and a lazy b*tch. hmmmm...not to mention the MIL...hahahaha.

[alisando01]

lea; it is normal to fall in and out of love, especially after having a baby. please please please stick at it coz usually it is only a phase. i go thru those 'out of love' times quite regularly but they seem to be settling down now that the AD's r taking effect. it is important to take time out from each other too and maybe he is just taking some time out. don't feel like it is your fault coz hun it is normal. have a read of 'the yummy mummy's ultimate family survival guide' by Liz Fraser. it is very good. and funny too!

Peta: if she wont pull her weight, don't do anything for her. that is what I do with my SIL (18 in Feb) and she has a major attitude problem. y is it that teenagers think the world revolves around them? :laughing::laughing:

[LivinOnAPrayer]

Thats so true. It just annoys me that MIL expects so much from us, like looking after SIL, having xmas and buying ALL the food ect.
Im so over it. We've always lived close to DH's family and friends and never mine, its time for a change. DH said he was going to apply for the army but hasn't done anything about it. grrrr, i want to move to a real city!! Not this country hick town near his mother. grrrr.

Sorry, almost over my vent...

:hugs:Lea. I know it sucks. DH and I were going so so so great and it all seems to be gone now...? I dont know why. So i totally get where your coming from, although your DP (or not so much D) seems to pull really harsh words which i really dont like...its not fair on you. :hugs:

[LivinOnAPrayer]

Oi!

Where are ya all!?? Everyone's chatting else where and here I am rocking back and forth with my coconut.....

[Loopy Linda]

i am here, just found your rant and having a little read...so did everyone read everything from last night...teach you to ignore us or get a life for the night

[Nowhere]

LOL guys if giving you child solids early makes you a bad mum LOL ( how stupid) i must me flipping mother teresa lol NO solids at 21 months hehehehehe is that child led weaning or what oh wait lol for mum of the year i wul have to be giving her just breat milk so i gues it dont count seen as we tube neocate lol

lea i think we should all come over and slap your DH till he apriciates you

hugs to all

im having one of those grrrrrrr days bad mood cant snap out of it etc

[Loopy Linda]

amy has any thing specific happened to put you in mood...or jsut slow build up that escapes occasionally?

[Nowhere]

umm a bit of both lol I was so happy about mikis weight gain and that she is was playing with play dough as it was major sensory breakthough for her ( even though her obsesive compulive disorder shows with it) but noticed since paying play dough her colitus has flaired up bad with blood and mucus poos, and didnt think as to why as she doent ever eat the play dough everyone who watches says she is werid that she dont try lol aperantly some kids do
but then i reaslised even though she dont eat the play dough she does tough her dummy when playing and she wil sometimes suck her hands as babies do and I have found out the reidue that we cant even see on hands is enough to flair her colitus up so we now have to not let her have something she loves to do

we have ordered some allergy free play dough but seen she reacts to everything might still be no good

I know its not a huge deal but its just anoying that she cant even tough it with out getting sick kwim
i gues the straw that broke the camels back so to speak

[Loopy Linda]

i can see that as frustrating, you finally have some breakthrough in one area only to have it negatively affect something else and now have to take away something she likes....sorry to hear, does she need hospy or medication for mucos/bllood poo?

[alisando01]

have a look at this girls ;)

http://www.bubhub.com.au/community/forums/showthread.php?p=2235337#post2235337

[Nowhere]

e exactly good for one thing ruin another she doent need to go to hosptial thankfully she is on meds for it already

[Loopy Linda]

sorry amy, good luck with non allergenic

ali, see! proof! i am handing my kids back!( maybe for a weekend at least)

[alisando01]

Just leave gordy rear facing as long as poss. u can't take back whats already done. thats y u had 3, so u could get it right with 1 :p :laughing:

[Loopy Linda]

the stupid capsule i got only takes up to 9kgs...but he will be in it till then..thanks ali

[Loopy Linda]

yeah ali, really good thread and looks as though it may turn into debate 9of sorts) could have found this last night when we were bored

[alisando01]

thats y i put the link in. I only found it bout 5 mins b4 posting it (thanks to a mod on that other forum) but yeah, my mind is made up and i mite get a better rear facing seat soon.

[Nowhere]

anything terns into a debate on her outside out SN chat lol

good vid but

[Loopy Linda]

i am going to see relatives as their daughter is outgrowing her forward rear convertible, maybe that has a higher kg for rearward and i can use that for a few months beofre getting maxi rider ( or whatever it is called)

[alisando01]

it is important tho and every1 seems to fighting the same side of the debate :laughing:

[Loopy Linda]

don't calm them down...i wanted to see real debate ( argument maybe) i am bored!!!

[alisando01]

:laughing: what about a walk if u can't run :laughing::laughing:

Glad I shared it!

[Loopy Linda]

i got realllllllly big block of chocolate today!!

[alisando01]

:eek: Share!!!:p:laughing:

[srguitargirl]

hope everyone had a good day I took both the kids to the zoo ! that wsa fun Angus had a great time and Scarlett lasted 2 hrs before she was hot and started getting dehydrated so I was walking around with a bottle of water in her after that for most of it till dh took over but it was an alright day I just wish she would have slept more while we were out cause she sure was a cranky pants this afternoon.

oh if you are looking for a rear facing carseat see if you can even hire a safe and sound anything as they all go up to 12 kg reverse thats what I used as my ds was quite heavy by the time he was a year old and was in a S&S guardian retractor, heck I don't even go by the Aussie laws anymore as I bought him an american booster seat that he can use for a long time that is 5 pt harnessed as he can't sit still in the car I would hate to put a seatbelt on him in a normal booster and it was cheaper than the maxirider although they look so cushy I think I will get one for Scarlett when the time comes.

ok going to bed now as I'm knackered

[alisando01]

Thanks Shauna! I plan to go shopping soon!

[Loopy Linda]

ali what car seats do you use?

[alisando01]

Fisher Price Sapphire and Mothers Choice Royal, both made by IGC Dorel

[Loopy Linda]

why would you be looking to get a new one? are the kgs for rear facing different?

[Nowhere]

i want some chocolate i bet its already all gone :(

yer let them debate like hienas its funny always the same ones against the same ones lol hehehe

srguitargirl hey we went to the xoo on new years eve with mikenzee she loved it do you see the baby girafe and that baby monkey SO CUTE

[alisando01]

yes they r only 9 kg whereas the S&S ones r 12 apparently. maybe I could get a capsule that goes up to that.

[Loopy Linda]

look into them at babies galore website before you drive all around trying to find one.

amy i went to big w and can't go past the 400gram crunchie cadbury block for $4...mmmm... but i didn't hide it this time and i had to share it...about a quarter left....mmmm

[Nowhere]

i really wish i had of got a capsule for kenzee she would stil fit in it lol, i wanted one got talked out of it by MIl and SIL then when kenz was about 4 months old i wanted to buy one she was still newborn size and i got talked out of it again with the whole she will grow out of it to quick I tell ya IF i have another one i wil get a capsule if its grows out to quick then at least it wont be FTT lol so miney wel spent hehehe i just like the idea of bub falling sleep in car unclip capsule and away you go into the shops and pop the capsule on the troley

[Nowhere]

look into them at babies galore website before you drive all around trying to find one.

amy i went to big w and can't go past the 400gram crunchie cadbury block for $4...mmmm... but i didn't hide it this time and i had to share it...about a quarter left....mmmm

ok now im jelous I love chrunchy block really wanting to go to servo for some lol but also dont want to stay fat lump for my SIL wedding lol

[Loopy Linda]

amy ali and i were talking about that last night. i have capsule for gordy, he weighed 3.550 kgs at birth and is a little under 50% percetile since his operation. with carrying the capsule i only did it for a few weeks, definitely not till end of even first month. not because capsule or bub is heavy, more because it is awkward and you have to hold it out to not have it hitting your leg as you walk. dp pulled it in and out longer than i did, buti don't think it has been pulled out in last month probably longer, gordy was 4 months yesterday. i really wanted it for same reasons as you especially with two older boys but it just doesn't work out as good as theory in my opinion...

[LivinOnAPrayer]

I am so turning Alex's seat back to rear facing in the morning!! I didnt realise how serious it was....ours is a safe n sound sleep n recline, very comfy and rear facing to 12kg and suitable to 5yrs. Great buy. We had to hire a capsule in brisbane when she got out of hospital though to get her home, and we had that for a few months. Was good! I'd probably do it that way again if we had a #2. I'm so glad Alex's seat goes to 12kg rear facing now!!

I want chocolate!! Hmmm...I have smarties!!! :devil6::devil6::devil6:

Ok, im back. I LOVE giraffes!! They rock! Did you know they make NO sound, they just use body language?? I had to search for AGES (like, a year!) to find that out!! Yes.....coconuts....

Its funny how we've expected our mites to grow out of stuff so quick!! And then here we are, stuck with the same clothes for months and months!! hahahaha how ironic. So its not even cheaper, cause I keep buying more. My mum said I could clothe triplets. Lets not test that one out hahaha.

And as we speak Im buying more clothes on ebay!! Im so bad!! But shes so cute and she so deserves it.

[LivinOnAPrayer]

I didnt carry Alex in it either!! hahaha DH had to or I took her out.

[Loopy Linda]

i am also on ebay...looking for new car, ours got trashed in recent hailstorm...luckily first car i have had full insurance on! we have only had it 3 months now

[LivinOnAPrayer]

wow that sucks!!
Our car is pretty dodgy, gonna save up for a new one when we get back from brissy after op in march. Thats the plan anyway!!

Do any of you live in or near brissy? Or am I the only QLDer here??

[Nowhere]

i love girrafs to so cute

yer lol clothing triplets i could too, i just went trhough all mikenzees clothes and taking all baby looking clothes to the hospital she stil fits most of it bt looks baby

[Loopy Linda]

i am in sydney...there is other qld though, one has brisvegas baby as location....maybe more boys or naiwen?

[LivinOnAPrayer]

Hahaha Amy I so know what you mean! I've put all the baby looking clothes in boxes in the shed. Yuk! Alex is a little girl now!!

Someone needs to live in brissy and come and visit us at the childrens when we're there!!:yes:

[Loopy Linda]

peta i was going to ask you where is your family? you said b4 that you are where you are to be closer to dp family

[LivinOnAPrayer]

I moved to DH, so his family is here as he's never really moved away from this district. My family are all down in maryborough and Brissy. It sucks. It doesnt seem fair sometimes. Like xmas. And Alex's birthday. But hopefully mum and dad will come up for Alex's 2nd birthday in July.

[Loopy Linda]

it would be a lot easier on you with lexi's medical needs to be closer to your family, would he consider moving? also if you move your MIL and SIL would stay longer whenr they visit...downside there

[LivinOnAPrayer]

Grrrri didnt think of that...But i could go to mum and dads hahahaha i would too. I have 3 sil's. Grrrrr.

I'd really love to move but DH is the income earner and he likes the work here, but i'll bring it up again tonight and see how I go. I feel as though its my turn to be near my mum and dad. And my grandparents, Pa has cancer and hasnt got that much longer to go. Id love to see them more.... and let Alex know them.

[Loopy Linda]

good luck....i would put it more in the way of better for lexi with drs etc...might help you a bit

[Loopy Linda]

i was looking back over old posts,,,more boys and naiwen are in brisbane. you should arrange meet up when you go down there...

[LivinOnAPrayer]

Awesome! We will have to catch up! I will make them!! (I'll bribe with chocolate hehehehehe). It would be good (If edward can come out).
Would be nice to have something to look forward to, not dread.

[Loopy Linda]

lea....you are lurking somewhere...come talk to us

[LivinOnAPrayer]

And amy...come back!! I come on and you all leave hahahaha i must smell :confused::rolleyes:

[Loopy Linda]

and ali ran away too...you must really stink as they r in SA and WA...sguitgirl too in WA and ru away from you!

[alisando01]

I'm still here, just googling car seats

[alisando01]

is any1 else in SA?

[Nowhere]

im still her lol Im from WA yes perth no one is in perth sad sad oh no ther is one

[LivinOnAPrayer]

is that a hint that I should go and have a shower? :gloomy:

[alisando01]

No, stay on here. it is Way more interesting when there are more than 2 ppl on!

[Nowhere]

lol peta you dont smell wel not from here any way Il take your word for it lol

You guys are nuts

[LivinOnAPrayer]

So true, not that im usually awake now hahaha. I dont know whats going on. Cant wait till monday when DH goes back to work, but then it will be weird not having him to rely on with alex and stuff.

[LivinOnAPrayer]

COCONUTS AMY, DUH!! :rolleyes:

lol, where you been!!! :p

[Nowhere]

what coconut im lost lol

my hubby goes back on monday too im loving haviong him home to help lol this is his first holiday since we had her so i loving it

[Loopy Linda]

drives me mad when dp home...absolutely no routine ( not that i have much of one) but i stay up all hours and try to sleep in...even had gordy in bed with me still at 10 am some mornings...now i am back to getting up early but not going to bed...hmmm i will blame you lot for that

[LivinOnAPrayer]

No, im blaming you all!! Im doing the same, up at stupid hrs (like this one!!) and still gotta get up early for little miss. Im over it. Bring back my 8:30pm bed times.

[Loopy Linda]

ali how you going with the car seats?

[Nowhere]

lol its your fault im awake heheheh

SOry you DH is no help, im enjoying having shower in peace lol with out mikenzee and enjoying the sleep in every second day its great

[LivinOnAPrayer]

I love thehelp, but i've just had enough. I like my space and i like things done my way. Weekends are nice, but 3 weeks is pushing it!

[alisando01]

looking on ebay for unused 1s. the 1 i like is $300 :eek:

[Nowhere]

yer comne to think of it i miss my routine wel atemted one lol

well im going to bed i been u since 4 again i have actuly done three of the last 3 morning lol so seen its ment to be everysecond I going to sleep in

[Loopy Linda]

as soon as gordy scrunches his face he is hungry ( i am sure DP loves me b'f, gets him out of sooo much) but he spends a lot more time with gordy than he did with kieran, he gets better each baby, i should have another one and he may start to change odd nappy!

[Loopy Linda]

goodnight amy

ali $300 is a bit much for used car seat? how much is it new?

[LivinOnAPrayer]

GOOD NIGHT AMY!! Hugs from alex to miki. I hope tomorow is a great day for both of them.
(Might even try alex with playdough! Thats really really sucky that miki cant have hers...after all that progress. I'll chase up the recepie my mum used to make hers with....)

[alisando01]

New is $300 (I only paid $150 each for the ones we have) s/h is $200!

[alisando01]

I have a recipe here Peta.

[Nowhere]

bwaaa i back lol considering cup of tea b4 bed lol

yer try alex on it again mik asi said took a year of therapy to touch it lol then got adicted

terns out therapy was for nothing grrrr
hugs to lexi back fro miki

[LivinOnAPrayer]

I think a home made playdough might be better for miki (and alex for that matter!). Can you post it Ali?

What sort of seat did you find?

[ReecesMum]

I'm around here somewhere.LOL!Yeah reading 5 pages just to get to here.Hehehe another explosion in our thread obviously.Anyways to do with rearward facing,i turned Reece around earlier than the 8kg weight restriction i did it at about 7.5kgs so i must be a bad mum but what do you do if your child will cry themselves silly to the extent they make themselves sick and sometimes this would go on for hours as he wouldn't settle.As that is the reason i turned the seat around and even then he hated it in the middle so i have had to move him behind the drivers seat and he absolutely loves it.Even still when i strap him in he protests it but as soon as the car starts and moves he is fine.(see daddy has a loud noisy car).Mind you the seat is still semi reclined which allows his head not to fall forward.

[Nowhere]

yer i need recipe for gluten salt sugar colour and everything free lol i have ordered some from the US but its stil got salkt but might be ok

[Loopy Linda]

thanks amy, forgot my brat son was still awake and he not long ago made me a cup of tea

[alisando01]

Ok the capsule I found is a Safe-n-sound unity

Playdough

2 cups plain flour
1 cup salt
1 Tablespoon Cream of Tartar
2 tablespoons cooking oil
2 cups boiling water
2 teaspoons food colouring

Mix dry ingredients together

slowly pour in food colouring & water & stir until dough forms. knead until smooth

[LivinOnAPrayer]

Well mums recipe has a ton of salt so we wouldnt eat it hahaha. but Ali's might be better.
We turned Alex around at about 8 months, cause she could hold her head really well but wasnt sitting yet. But she's still about the same weight so what the heck, i'll see how she goes backwards. Hope it doesnt make her sick...

[LivinOnAPrayer]

YAY! Amy you could use gluten fee flour (they have that right??) and no food colouring and miki will love it!! (maybe...could suck being a yuk colour).

[Loopy Linda]

hi lea

[LivinOnAPrayer]

well everyone, im off to sleepy land, it just hit me that im really tired. Im bidding on some awesome puma and nike shoes for Alex on ebay but im too tired to stay awake and see how i go. (if your keen to sticky beak, im lexi_lexi_lexi11 on ebay hahaha).

I will be back tomorow no doubt and looking forward to monday!!! YAYAYAYYA. Good night sleep everyone!
(I havent heard from julie...hope edward is having a good night...)

NIGHT!! :sleeping:

[Nowhere]

ok so im going for bad mum of the year on the car seat thing i turned miki around at 1 she was way of 8 kilo as you can imagine beig that she is 7.36 now but she was refluxing gagging chocking and having apneas and it was imposible to help her when she faced the other way we perservered to a year

[ReecesMum]

I'd just love to have some kind of routine its very rare to have Reece in bed by 12am as a matter of fact he is still awake now.And even when i do put him to bed he lies there and goos and gaas for hours until he gets thirsty and screams to be fed again.I don't mind tending to him throughout the early hours but there is a particular time say about 4am when its so hard to pull myself out of bed and the worst part is doing that in winter.I don't have a set routine for Reece as he is so unpredictable.One day he will be full for hours and the next he is feeding every hour or so and then there is days where he won't feed at all.And sleeping around here doesn't happen much with Reece as the majority of the time he is up fom 7am ish till late between 10pm-12am.Wish i could have him on a routine as i have heard that children with problems work well when they have one.Not much luck getting a routine here.And as for a routine with his father it use to be he was out of the house by 8am and didn't return till 5-6pm but now he has been home for 5 weeks straight its getting ridiculous as when he is out when Reece is due to sleep there is no possible way that he will sleep until his father is home.And here i go again on the blah blah blah trip.Good thing is my mood is much better today.

[Loopy Linda]

night peta

[Loopy Linda]

lea how has reece gone eating today? it was only yesterday he had a great day wasn't it?

[ReecesMum]

Oh sorry hi Linda didn't see you there.LOL! Just kidding thought i'd sneak past and see if you had any chocolate left to pinch and there wasn't any.Hehehe!

[Loopy Linda]

amy there is no way of winning mother of year...you may be up on points with starting solids, but you drop back done for turning car seat around ( i don't think if child is having difficulties backwards gives any leeway) sorry you are back down a couple of levels now

[Loopy Linda]

Oh sorry hi Linda didn't see you there.LOL! Just kidding thought i'd sneak past and see if you had any chocolate left to pinch and there wasn't any.Hehehe!


too right all chocoalte gone now...damn kids finding my stash :crying: :hissy:

[alisando01]

age 1 is overseas standard, bring u up a few points

[Loopy Linda]

ali we going by bubhub theories you and i have to drop down more levels for using jolly jumper, lea you are down cause i know you have a walker...who else uses baby walker

[ReecesMum]

Yeah he did ok today with the Spinach,apple,broccoli,peas puree from the Rafferty's Garden range of baby foods he didn't eat as nuch as yesterday with the homemade pureed apples but its all good as he still drank his milk afterwards.I like it because there is nothing added to it,it is exactly what is written on the label.I wouldn't eat anything with that combination but he likes it.I am just starting with one solid a day for lunch and may increase it depending on his progress.

[Loopy Linda]

reece is being such a good boy lately. did you find out anymore about that oxygen tank thing that i can't remember name of

[alisando01]

ali we going by bubhub theories you and i have to drop down more levels for using jolly jumper, lea you are down cause i know you have a walker...who else uses baby walker

I only put her in it once and she didn't even jump! which capsule do u have?

[Loopy Linda]

okay so i am down about a hundred levels i think cause he goes in his jolly jumper nearly everday and he loves it!

i have babylove capsule, as they decided to have big sale on capsules just as i convinced dp i should have one and i only had 2 weeks left and i was going home with a capsule...i wanted fisher price one really...from threads i think i have c.rappy one

[alisando01]

is it the snap n go? what kg rating does it have? i know too many q's and too late at night