Sleep Aponea

[LivinOnAPrayer]

Hi there! How many other mums here have bubs with sleep aponea? My DD, 15 months, is having her tonsils and adnoids out in March. Its getting to the stage where Im almost too scared to look at her when shes asleep cause what if..... :no:

[Nowhere]

my dd has sleep apnea, amonst other things, she has had 2 operations on her airway and has i ipproved alot she used to apnea all the time, she is a lot better now but still having apneas, hers are caused from bother her reflux, her airways and the pead has knpw thrown epilepsy into the mix they are now wondering if she is fitting in her sleep wich is another cause for apnea

We dopnt have that problem of being scared to look in on her wjhen she slpeeping as she is atatched to a cylometrics events link moniter, it moniters her heart rate and respiratory rate whic h is really healpful we alarm if her breathing stops for 20 or her heart rate goes bellow 40 or above 250 its good for piece of mind

if you are concerned i would ask for a referal to the sids monitering clinic at your childrens hospital thy lend out mopniters when requird either the basic apnea one with the belt of the full cylometric if its needed

[LivinOnAPrayer]

Hi mikenzees mum. we keep meeting like this! DD Alex has had airways surgery too, for floppy larynx. I've thought about getting a monitor but i'm not sure if that'll make me feel better or worse. Alex self corrects 99% of the time and we've been lucky enough to either be in hospital or at the right place at the right time when she doesnt self correct. But the ENT surgeons said that taking the adnoids and tonsils should stop the apnea but could make it worse cause of her floppy larynx experience. ? I dont really get why but I guess I'll ask them next time we speak. How many op's has mikenzee had all up and how old was she for them? Alex was only 3 and 6 weeks old for her 2 so I'm not sure how we're going to deal with it this time round!

[naiwen]

Hey lexi11,
DS had Apneas all the time while he was premie, this would usually self correct although sometimes he needed stimulation. He stopped having them once he got to term so I cannot really help but maybe you could try to get a refferal to the sleep clinic at your local childrens hospital?
Hang in there and keep asking questions until you get the awnsers you need.

[Nowhere]

im not sure how removing tonsils and adernoids woud afect the laryngomalacia mmm wil have to ask kens ent on that one,

kens has had a a fare few operations rangeing from the the age of 4 weeks (her due date), and 18 months, i wil behonest the older they get the more traumatic it isfor them, kwim but seems to get a little less traumatic for the mums stil horrible but difernt KWIM, kenz is not great wih anasetic anyway she sems to always have trouble with her breathing after wards KWIM but on a whole i would say she is better with her airway operatong thn the other ones becasue its a shorter theartre time

good luck

[happysammy]

hi there, my ds was 2 months premature and he had no sleep aponeas untill past his due due date, he had a sleep aponeah where he had to be resusitated and everytime he he got sick he would have them constantly the moment he went into a deep sleep. Most times he self corrected himself other times he needed a little bit of help. We took him to Dr Hodge(aparantly one of the best in brisbane) and he put off giving him an operation to remove his tonsils and adeniods untill he was older, but when he ended up in hospital again with another aponea he decided that the best thing to do was remove them, ds was the youngest baby he had ever operated on! he spent around a week in hospital due to bleding(only becsue he was young and its extreemly rare for a baby under 12 months to have them removed) However i believe that if they are older they stay in overnight and then go home. ever since ds had his operation he has had no more sleep aponias! Thankgod for that! We never use the monitor anymore! I believe the the adeniods relax back into the trhroat when the baby sleep which stops the air from getting through the airways as it is blocked by the adeniods, and i think that the tonsils swell up when they get sick and if the 2 add together it = dangerous? thats my understanding! i hope it helps!
Good luck with the operation, a bit of advice, i took in ds bed stuff, pillow, blanket, fav toy, and fav pajamas that way he felt more comfortable at the hospital. Good luck with it all! :angel:

[suemp]

bio boys had/have sleep apnea. ds2 also has tracheomalacia and laryngomalacia and ds1 was born with among other thing extra large tonsils and adnoids. it was a major improvement once they were removed.

[LivinOnAPrayer]

Thanks every one! I'm so glad to hear that most times the sugrey is successful! I had a feeling we'd be in for a rough time with DD but I guess we'll just get through it. Its a relief this surgery is usually pretty quick too. Although it might be happening sooner than march now, as DD has started choking on saliva and food. So we'll see.... Thanks for all your ideas and advice!:wave:

[Cheekychops]

DS2 had excessively large tonsils and adenoids and had them removed after months of trouble with eating and sleeping at the ripe old age of 18mths!! It was tough on him cause he ended up back in hospital a day later cause he refused to eat cause his throat hurt alot!! He was there on a drip for a week cause he was so stubborn!!!

Previous to the surgery he would gag on most food and was dropping weight.... and every single night he would sleap apnea and wake gagging on his own saliva... so he would end up at about 10pm sleeping with me on my tummy for the rest of the night - me with the spew bucket in one hand and one ear open listening to make sure he was breathing... very sleep deprived I was!!! After the surgery he improved 99% the only issue we still have is he sometimes gaggs on food still but I think that is a subconscious reaction....

DS1 had laryngomalacia but it self corrected at about 18mths - 2 yrs.... I've never heard of anyone else with it until now!!! I was known for my 'squeaky' baby!!! :D

[LivinOnAPrayer]

WOW! DD has just started choking on her food and saliva! (actually, I just started a new thread about it!) So your ENT said this was linked? I really hope thats the case for DD and that it clears up!
So what did they recommend you do when your DS was choking? Dip they tell you what you could do to prevent it? Or did they just make ya's wait till the surgery?
Yeah, Im worried that DD will be stubborn too. It's already a struggle to get food into her so I can just imagine her after surgery...
Dr's have warned us she'll probably be up in ICU for the 1st night at the least. Which honestly is probably a relief for me! (Not that the ward nuses arent great!).
Anyway, thanks so much for sharing that! Im really hoping its all linked with DD!
Laryngomalacia (sp?) kids are so special! Although we didnt really know DD had it until it was nearly too late so that noise will haunt me for ever!
:wave: