Never underestimate the power of a mother's instinct

[Frazzled]

Hi everyone,
some of u may have seen my thread regarding the pocket of fluid on the back of Elliot's head over the last week.

Turns out our GP and the CHN have no idea what they were talking about and it is a lot more serious.

I didn't feel right about their diagnosis and it has been playing on my mind. I couldn;t find any literature on this 'common' thing and no one here had ever heard of it - not so common hey? So i called out paed who said it didnt sound good and booked us in for an appnt immediately.

That was today and it has been an awful day. We have to take our tiny little man to the hospital on friday for a CT scan as our paed believes that there is a tear in Elliot's spinal cord which is leaking fluid into the skull. It will probably require surgery.

As you can imagine, we are shattered. Please keep our little boy in your thoughts and prayers and take it from me, if you don't feel right about something - go with your gut feeling. i only wish i had listened to myself a week ago.

Thanks:(

[xkwzit]

Hi Kate
So sorry that you all have to be going through this right now.:crying:

Good on you for being strong and following your instincts. Hope all goes well. I'll be praying for you.

Cheers

[Elfin]

Kate I can't even begin to imagine what you are your DH are going through. I am so sorry to hear the fluid is more serious. Hopefully the surgery will fix the problem and it is so good that you listened to your instincts.

Best wishes to your family.

[Frazzled]

thank you very much for your support

[Rainbowbrite]

I'm so sorry to hear. Best wishes for everything, i'll be thinking of you all.

RB

[lukaelmo]

Kate when my little man was born his paed said to me never to underestimate my instinct with him.

I am so glad you listened to yours and are doing all you can for your little Elliot.

I will be thinking of you and I will give my own little man an extra cuddle.

[Frazzled]

prayers and thoughts muchly needed. i am so scared. i dont know what id do...:crying:

[♥Heaven Sent♥]

Hi Kate you and you family are in my thoughts and prayers and hope that your lil bub is ok.*HUGS* to your family and do let us know how everything goes.
Jaclyn

[razzle]

Oh Kate, that does sound serious. I know it's easier said than done, but try not to worry. (((hugs))) to you and hubby, and especially little Elliot.

[Rockett]

Hi Kate
How scary for you all.:( Best wishes to you and your family.Your precious boy will be in my thoughts,I hope that everything will be ok.

[DB&O]

Kate, your family will hold a special place in my prayers tommorow, I will hold my little girl tight & hope for nothing but good things for your little man. My thoughts & prayers are with you while your family endures this nightmare, hug Elliot close & beleive that all will be ok. Best of luck.

[veve]

awww Kate ... you are all in my thoughts and prayers tonight... :(

you are an awesome mum - good on you for listening to your instincts!

I hope and pray that all goes well for you and elliot...

((hugs))

[Frazzled]

Thanks Jen xx

[JenNT]

Hi Kate,
Sorry to hear that, thank god you went with your gut instinct.
I hope the scan and results go well on Friday, thoughts and prayers are with you and your little man.

Regards Jen.

[misskittyfantastico]

I'll be praying for you and your beautiful boy tonight {{{HUGS}}}

[Frazzled]

Again, thank u everyone. i will let u know what happens, hopefully it will b good news...

[Rhys'Mum]

Haven't chatted to you before but just seen your post. Will be thinking of you. All the best.

D

[Manxie]

Hi Kate

I cant imagine how you are feeling. At least it sounds like you have an excellent Paediatrician and good on you for not being fobbed off what an amazing mumma.

I am thinking of you

[LittleBoysRock]

Your family will be in our thoughts.

I really hope that everything works out well. Goodluck!

[mumoftwoboys2005]

Kate, please don't be too hard on yourself because you didn't pick it up last week. The fact is that you have picked it up now and are getting something done about it straight away and not 6 months down the track when it could have been worse. I will be thinking of you. {{{{HUGS}}}} :)

[Lunar]

Oh Kate, sweetie, you kow how I feel about you. Your a wonderful and strong mum. You know that Elliot will be in my prayers and I haven't stopped thinking of him and you and hubby too. I wish you all the luck in the world tomorrow. You know you can call me anytime. Keep us all updated.
Much love and big (((hugs)))

[Refresh]

I will be praying for you and your little guy Kate:) Good on you for following your instincts:)

[Blessed Mum]

Hi Kate thoughts & prayers are with you guys, hope everything turns out ok.

MOTHERS KNOW BEST.

[Sarie]

Always go by your gut. I'm so sorry this has happened. I hope Elliot has a smooth recovery.
Best Wishes
Sarie

[lovemybub]

Instincts are God's way of dropping hints.

Our prayers are with you.

[Frazzled]

Again, i can not thank you all enough for your support. It truly is very appreciated. tomorrow will be a very long day but we have to be strong for our little guy.

thank you all x kate and chris

[♥Heaven Sent♥]

Good luck for tomorrow Kate hope your little man is ok.

[reAllytee]

OMG !!!!! :(
Kate im so shocked ! :confused:
Im glad you kept pushing this ! I dont know why we never get answers or get brushed off as over protective mums ! :(
When i was preggers with Harry every scan showed extra fluid on the brain etc etc all turned out well luckily for us & i will be praying that all works out ok for Elliot now.
Please try & stay as strong as you can your doing well as a mum following your gut everytime you think something isnt right or not working so know that all will work out for the best trust in that.
If you need me you have our numbers call anytime you want i dont care ok !
Please give lotsa kisses & cuddles to Elliot & know that you are in our thoughts & prayers.
Also take care of yourself & your hubby.
Love Ally Evan & Harry

[kuz78au]

Lots of ((((((HUGS)))))) and (((((((CUDDLES))))))), thinking of you all, take care xoxoxox

[JenNT]

Hi Kate,
Hope everything went well yesterday with Elliot.

Take care :) Jen

[Frazzled]

So yesterday is over, praise the Lord. It was a very exhausting and painful day but we finished up with a fairly good result.

The CT scan was clear, showing no signs of leaking, malformations etc etc - very good. The fluid, they suspect, is completely superficial. But, no one still knows what it is and have ever seen it before. So while they are comforting us with the fact that it is nothing serious, we are being referred to a neurosurgeon at Westmead Children's Hospital for a second opinion and some kind of an answer???:o

So, that's that. poor little man was so distressed but was very very brave. While we were there they also found that he has a heart murmur, but it is nothing to worry about and are told that it is quite common. That's fine but we had just come back from the scan and all these doctors come running in the room to listen to his heart and started talking about 'irregularities'... OMG!

So all in all, it is positive but not over yet. We would like to thank you all for your support and love, prayers and wishes. It means a lot to us. And, remember to always trust yourself.

Lots of love and appreciation, Kate

[JenNT]

Thank Goodness! Thanks for letting us know Kate, I'm relieved the news is good! I will definately trust my instinct.......... Take care, Jen

[sarah81]

Glad to hear that everything went well today and nothing serious found :smiliedance: You are so brave to get through a day like that especially with the added heart murmur.

All the best, hope the second opinion goes well also, we will be thinking of you :)

[♥Heaven Sent♥]

Glad to hear everything is ok:yelclap:

[MamaRabbit]

I haven't spoken to you before but I'd like to send my thoughts for your little mans speedy recovery. It's a terrifying experience to be faced with something like this. Try to find solace in the fact that hospital staff and specialists are incredibly brilliant and modern medicine can overcome huge hurdles should they find something the matter (particularly so early). My little boy was faced with the Neuro department at Westmead also.....eventually we found some answers and he is slowly on the mend.

Our little angels are very tough when they need to be, they bounce back brilliantly. What a great mum you are for picking it up so early.

Stay strong and keep smiling as best you can, Elliot needs it.

Hugs to you all,

Ellle x

[kuz78au]

That's good news Kate, and I'm sure little Elliot appreciates his mummy being so strong for him....I know I would be a bumbling mess! :crying:

Fingers crossed they get to the bottom of it and it's nothing serious. I'm sure it will all be okay, keep the faith :p

[rockabye]

I too have never spoken to you before, but unless you have given me great advice tonight and I still have my baby brain turned on. But I want to say my thoughts are with you, your DH and DS.

You sound like such a strong mum. Good on ya. Hope the good news keeps coming.

[reAllytee]

Oh i am sooooo happy all went well !
Just keep faith in all being fine & we will all keep our prayers & thoughts with you.
Will pm you :D

[Barry]

You've been referred to the neurosurgeon, I suspect, as more a matter of dotting the I's and crossing the T's, you're doctor most likely wants to ensure that there isn't anything occuring that he has missed, but to also confirm his diagnosis.

You'll most likely also find that the neurosurgeon will be able to give you some plan of action in regards to the condition whether that be management or removal.

I wouldn't stress to much, you'll be in good hands - I hope everyone works out positively for you.

[Miaow]

Its great that it wasnt as bad as they thought at first and Its good you followed it up. Hope all goes well with the visit to the surgeon and that all will be ok with Elliot :fingerscrossed:

[MumsieMel]

Oh Kate i hope Elliott is ok! :fingerscrossed: :hugs: