Cerebral Palsy

[lovetohelp]

Hi

I was wondering if there were any other mums on here with children who have cerebral palsy. My little one was born at 28 weeks, He went into distress extremely high heart rate but was not delivered for 3 hours and was starved of oxygen. I have major infection through my uterus and blood vessels as well due to my waters being broken for so long. Wanted to see if any others mums could share their experiences with me on what to do and expect

thanks viv

[Jender]

Hi Viv

I am not able to help you in regards to any information but you might try posting in the "Parents of Children with Special Needs" section. Someone there may be able to assist you....

:)

[tired*mummy]

HI Viv
My daughter was born @ 23 weeks and dr's told me there was a huge risk of cerebral palsy as the labour was 36hrs & my waters had been broken for ages. She was on oxygen for 5 1/2 months & gets sick quite often & needs oxygen. She also has a brain bleed when she was a couple of weeks old & they said she might have some slight brain damage.
We hadnt noticed anything different with my daughter at all in the first 2 1/2 years. In the last year we have noticed a few development issues & yesterday she finally got in to see her paediatrician & he thinks she has mild cerebral palsy cos she walks on her tiptoes & cant stand her foot flat on her right side, limps when she walks & cant hold a pencil or spoon in her right hand properly. We will have other testing of course but just wanted to say that i hope everything turns out ok & your not alone.
:hugs: to you & please feel free to PM if you would like to chat.
:wave:

[MamaRabbit]

Hi Viv, welcome. My son is a puzzle (and a gorgeous one at that) - there is no easy way to describe his condition. He presents very much like a child with cerebral palsy (although he has not been diagnosed with it) and he has severe global development delay... yet to look at him you would never suspect there was a problem. We are now 2.5 years down the track and are still undergoing various testing as we have no conclusive diagnosis (yet) so we just focus on the day to day with lots of fun therapy sessions. Your childrens hospital will be able to tell you about what early intervention programs are available to you (be it through the hospital or in the community) - ie. physio, ot, speech (this also provides a good support network for you to meet "like" mums and dads). Feel free to email me anytime, I'm still learning as I go but I have also managed to do alot of research on what services and support etc is available.

The most important thing when it comes to having a child with additional needs is to look after yourself, talk to people who can relate (this site is fab), love your little one, and simply live life and laugh lots.