true milk allergies ??

[bossoflatch]

xxx

[bossoflatch]

nobody???

[mum2bub78]

:banghead: Hi There. I too am in the process of trying to work out what the heck is wrong with my DS. There seems to be some sort of allergy/sensitivity to dairy. He throws up and his eczema flares up the next day if he has any. I am thinking of going to the gp for a referal to an allergy person but I know that here in Melbourne you have to wait months to get in to an allergy person! :banghead: I feel a little lost and confused as well. Sorry. I havent helped you at all but at least I have got it off my chest a little.:gloomy:

[bossoflatch]

mum2bug78 - i hope you bubs is better .. :hugs:

[blin]

OMG thank god i found this thread.. I'm very new to this but our 5 month old son has also just been diagonsed with the same allergy to cow's milk protien.. however we have not had any formal testings done.. We had the biggest frieght of our life last tues night when we gave him his first feed of NAN formula (b/c he wasn't putting on enough weight from my boobie, so DHN recommended 1 feed of formula to top him up). It was his last feed, and he broke out in hives, couldn't breathe. Ambulance came took him straight to hosp, 2 lots of adreniline, and still nothing.. it took about 3 hours for him to come round.. it was so nerve wrecking.. the poor little guy had no idea what was going on..

He is now on full boobie, but i'm only having soy products, no eggs or nuts.. apparently all conntected?? they also gave me a special script for necote, too scared to use it, have a pead appt tomorrow and will discuss it with him.

We took DS to the childrens a month ago with blood in his vomit, we were fobbed off with just reflux, and his ecxema was just that.. However since seeing his pead, apparently all 3 go hand in hand, so the past 3 months i have been making him feel like this.. since stopping dairy his skin has cleared up and he doesn't chuck up near as much as he used to.. i feel like i've been poisioning him all this time.. i'm so annoyed at the RCH and the DHN..

Thanks for listening..

B :ecomcity:

[bossoflatch]

xxx

[Nowhere]

hey guys

just have to say by the way love the coment the hosptial made to you about just reflux WTF tel that to my 15 months old tube feeding fundo kid man i hate the attitude from medical proffesional okay sorry mini vent back to topic

Any way my DD has been on Neocate which is the most hydrolised formular on the market it is totaly dairy and soy protein free she has been on that since 4 months old casue she was putking and pooing blood which isnt good

As far as the testing goes two weeks ago my DD had a skin test done for dairy and soy alergies and nothing came up so we tried to re introduce dairy we was mixing 1 scoop of HA nan gold into her 24 hour mix which is 900 mls so 30mls ha nan to 870mls of neocate so not much dariy at all so anyway day one shewas fussy gassy and uncomfortable, day 2 even worse plus extra refluxy even through her fundo plus mucusy diareah day 3 same as day 2 pluss blood in her poo, so we stoped and was advised to wait a few days then try lactose free again only 30 mls to 870 she lasted 1 day and had a shocking awfull day and night finiched up puking blood only a tiny bit (since her fundo she cant do big vomits) we then ended up in the hosptial to have her tube changed and upon drawing back tummy contents from through the new tube we got 10mls of blood we could have got more im sure but didnt try so we are back of dairy lactose or not back 100 percent on neocate and not even thinking of trying anything else again EVER at this stage

So my point to all the babling the tests are not always accurate sometimes that digestive system cant tolerate even if a test shows uop negative, so in my opinion how bub reacts to it is the best test of all

No one can dispute my DD isnt intolerant to it no mater what a test shows

Hope this is helpfull

[bossoflatch]

hey mm - didn't your bubs just have another surgery .. :hugs: poor thing - she has gone thru so much

i am lost for words ... ... i hope things start to get better for her ... do you find the pead gi very helpful and understanging ???

[Nowhere]

hey
yep she did just have another surgery and she is havinga nother one next friday

her drs are all great we had a few hiccups so to speak but the team she has now are great

[Duchessa]

Both mine were on Neocate (id twins both with severe milk protein allergy), actually they are still on it. We found out much like blin did, at around 7 months - the main difference being that there were two little ones in anaphylaxis at once :O Worst day of my short little life that one.

Good luck with it bossoflatch. If it is MPA and you have it diagnosed and change her diet to exclude it, she will be a totally different baby.

[mum2bub78]

Oh MY:eek: I cant belive what some of you have been through. That is my greatest fear (the rash that quickly comes and the breathing trouble). The worst thing about all of this is that I find that people dont believe you and then you are overreacting! Ha.

Update. DS has been off all dairy since our last post. I tried yoghurt again the other day and that = spew. The excema has flaired again as well.

What I want to know is how I should go about getting it diagnosed. I am so sick of my pead brushing me off and hurrying us through. Am wondering if a trip to my gp (who is great) for some advice would be the best step.

Another question. Bubs is on Karicare HA-AR. Seems ok, even though there is milk protein in it (I think). But how do i ensure that he is getting enough calcium. I dont think soy agreess with his tum.

Keep posting girls. You are my saviours as I dont feel so alone in this!:hugs:

[bossoflatch]

xxx

[blin]

Hey Ladies,

just a quick question before i read all the posts.. but some of you have mentioned Soy.. i'm having soy milk, is that ok?? and were any of you breastfeeding?? did you cut out everything that had milk, or just mainly cheeses and mass amounts of milk??

thanks - confussed!!

bee :no:

[bossoflatch]

xxx

[smelly]

Hi ladies

Sorry to butt in on your thread, but I'm very keen to get your thoughts. A bit of background:

My 6 month old daughter is on Neocate (her paed thought she might be intolerant to cows milk and she got a rash and itches from soy). She was chronically constipated and didn't gain weight on normal formula. And she also has reflux for which she is taking losec.

My concern is that my daughter really doesn't seem to enjoy drinking the Neocate... it is very distressing to see her crying for food but refusing to put the teat in her mouth. I've tried sweetening the formula with a little sugar but it didn't really help (and I'd rather not be doing that anyway). I've started her on a bit of rice cereal and pureed vegies and although I think she is interested, most of the time she won't eat anything. But then there are times when she'll gobble 3 tablespoons for Farex. I can't seem to make heads or tails of the way she approaches food, except to say that 90% of the time she finds eating/drinking anything but water upsetting. It seems like she has to be so hungry she's desperate and only then will she eat or drink neocate.

I get my daughter weighed every month but the CHN I see keeps dismissing me because my daughter's weight is following the curve (she was average weight born, but by the time she started neocate was on the 5th percentile and she's maintained that since - so now she is just under 6kg at 6 months of age). I'm getting so frustrated and lie awake at night worrying and fretting because my daughter hates to eat. I just have to put her in the crook of my arm now and she starts to cry. I'm scared she's going to start associating all this negativity with me. I haven't seen the paed since she was 3.5 months old because he said the same thing as the child health nurese "she'll eat if she's hungry". While that is a very true statement, it's not nice to see your baby so unhappy.

I guess I was wondering if anyone knows where I should go from here? Do I just have to accept that my little girl isn't going to enjoy eating and do my best? Or is there something else that can be done? The other concern I have is that I'm not even sure that it is a cows milk protein intolerance. How do you tell? While there was a substantial improvement in her feeding-behaviour once she started Neocate, she is now just as irritable around the bottle as she was when she was on normal formula. The only difference is that she's maintaining weight and is no longer constipated. She still chucks a lot (but i suppose that's the reflux). There was never any blood in her vomit or poos....

I see you have been talking about getting tests done... What are these tests? Does anyone know if there is somewhere I can take her to get tests in Brisbane that might shed some light on the matter? I'm seriously getting bummed out about this and no one else seems to understand.

One last thing, someone mentioned a big list of things to avoid if eliminating dairy. Where do I get my hands on that????

Thanks in advance and I'm REALY SORRY for the long post.
Smelly

[bossoflatch]

xxx

[smelly]

Hi bossoflatch

How did your daughter go with the allergist?? I'd imagine you'd have to wait awhile for test results but could they tell you anything straight away? And I meant to say before that I hope your daughter's hospital tests go okay. I don't know whether to hope they find something or not! It would be good if there was nothing wrong with her but also nice to find out what might be responsible for her symptoms...

I realise I didn't answer any of your original questions. So, here I go:

How was my bubs before we found out she may have cows milk protein intolerance?
- it took her a long time to start to gain weight and when she did it was very slowly
- My daughter started off breastfeeding like a champion but by the time I left hospital seemed to lose interest. I put everything I could into getting it to work - expressing two hourly and taking motilium to try to increase my supply but she would suck for a few seconds and then come off and refuse to go back on. By the time she was 2 weeks old she was seriously dehydrated so we started complementary feeding
- on normal formulas she would be very irritable and cry when we tried to feed her (much like she does now!). And she'd cry in between feeds all the time. I don't know if this was because of the reflux, hunger or because the formula gave her a pain in the tummy
- on cows milk formulas she had terrible blotches on her face. On soy she developed a rash and used to try and scratch her face and back by rubbing up against us. She would rub so hard that it hurt us so I hate to think how uncomfortable she was.
- she was chronically constipated, even when we gave stacks of extra water, brown sugar, prune juice, coloxyl drops. It got to the point we were having to use infant suppositories
- she threw up alot. But again, that still happens while she's on neocate so I think that must be the relux

Did you push for more tests?

No, but that's certainly something I'm thinking about doing. My daughter has had several urine samples taken in the past and 4 out of 5 showed blood in her urine (but no infection). My GP (who is wonderful) was just about to take it further when the 5th urine sample came back clear. He consulted with the paed who said that the earlier samples were contaminated with poo and that there was nothing to worry about. But my GP wants to do another urine sample to double check. I'm glad, because I didn't think there should be blood in her poo either...

Did you get referred to a gastroc paed?

No. I didn't even know they existed. I suppose if we don't get any answers from the tests with my GP I might ask him about it.

It's so frustrating! I hope that there is nothing wrong with my bub but I find it hard to believe that what is happening with her feeding is normal.